gardasil autoimmune

Gardasil Consequences: Long-Term Autoimmune Dysfunction

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I was one of those who was convinced that Gardasil would be a good thing. I was unaware of the whole debate surrounding vaccines and the very real risk of injury, despite the fact that my mom suffered injury from the Salk vaccine (polio) in the 1950’s. Even so, I was not warned; no doctor has ever even asked for my family history in that regard.

Trust in the pharma industry was for me a given. I was mercifully oblivious of the dubious practices and entirely false assumptions that lie at the basis of vaccine development. In late 2004, I even did a feature story for a TV news program about the testing of the HPV vaccines in a reference group in Finland. Later, when Gardasil was launched with a recommendation for women aged up to 30 without previous history of HPV infections, I was all ears. A friend and I were at the upper age limit but we both deemed it a good idea to get the vaccine; even at the cost of some $80 a shot (times three!). At the time, I was working in Beijing, China and living with the constant haze of fine-particle pollution that covers the city’s skies. Perhaps that was part of the reason for the adverse reaction I suffered.

The first shot was given at an international clinic in Beijing at the end of May 2008 (according to the notes from the clinic, it was batch number NG39310. The second dose was from that same batch). As far as I can remember, it even entailed a prior doctor’s visit, which was almost nonsensical. I cannot recall whether I signed off on a form relieving the clinic from any possible responsibility in case of side effects. I did not feel anything immediately that I remember because it was customary to wait around for 20 minutes after the shot. Rather, the problems began some weeks later, perhaps even up to a month later, with a flu-like sensation and fatigue, which developed into a state of apathy and brain fog and slowed down my work considerably. I felt unwell and looked it, to the extent that friends and colleagues expressed worry, but I attributed it to the grey skies and the haze over Beijing.

At the beginning of August, the second shot ensued. After that one, I remember having some pelvic pain and unease, nausea and dizziness with period cramps and a bleeding that began late. I was remarkably easily irritated and unnerved. I have always been a night owl rather than a morning person, but after two vaccination rounds I was so fatigued in the morning I just had real trouble getting out of bed. I was constantly tired and had spells when I just could not pay attention to all that was happening around me in a meeting or discussion at work.

By the time I had the third dose of Gardasil it was winter (given December 5th, 2008, batch number NH27420). I remember that episode from eight years ago when I walked out of the doctor’s office. I felt a sudden onset of nausea, like sea-sickness. I felt weary and apathetic. I was not sleeping well. I could not fall asleep until the wee hours in the morning. A few months later, when I had left China and was back at my old job, I felt like a ghost in the morning. I was not doing well, but then again I realize I have been lucky, as I am not one of those worse hit by Gardasil, even though it has taken a toll on my health and my capacity to work.

A year went by and I was still managing somehow, with occasional spells of either insomnia or an abnormal onset of sleepiness. I then fell ill with mononucleosis, an inflammatory disease that lasted for a year and a half and left me with chronic fatigue syndrome (CFS). I am still struggling, but have discovered some coping strategies. Strangely, none of this has affected my physical fitness; I can do work-outs at the gym, do long walks and go jogging, even though the fatigue is there most of the time, lurking. I understand that to be in actual effect an autoimmune condition.

Worse, there is the enhanced cancer risk that has been reported because of the recombinant genetically engineered HPV DNA and the contamination of the vaccine with some HPV strains, other than those it was supposedly designed to protect against. What are the implications for my future health as one of those affected by this health scandal, callously promulgated by the pharma industry? After being vaccinated with Gardasil I have once had an abnormal pap smear test in 2011, other than that I have never shown any symptoms of cervical dysplasia.

I cannot believe that the marketing of the vaccine still is allowed to continue and that Merck does not acknowledge the suffering it has brought on women and teenage girls. What really bothers me is that there seem to be no efforts to determine what exactly is the mechanism by which the content of the vaccine causes the autoimmune disorders and the injury to the nervous system. Why are not those pathways investigated so that we would get some clarity into what is happening? How exactly do the components of the vaccine affect the human body? What is the scope for compensation, if any, for those of us injured? I find it appalling that Merck does not take responsibility for the damage caused. It seems the only serious government action that has been taken is in Japan, where vaccinations were halted and the HPV vaccines were taken out of the national vaccine program. In other countries, there has been substantial debate about the negative effects of the HPV vaccine. I was appalled to learn just now from a friend in Denmark that Gardasil is being administered for free to women over the age of 30 under a program that is supposed to prevent cancer, even though the fate of the vaccinated Danish teenagers who have suffered serious neurologic injuries has been given much attention. How can this be allowed to continue?

Recovering from the Gardasil Vaccine: A Long and Complicated Process

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My daughter Sara was almost 13 when she became ill after two inoculations of the Gardasil HPV vaccine. Read her story: The Gardasil Experience in Denmark. Much has happened since then in Denmark as well globally concerning the HPV vaccine issue. Sara turned 15 when over two years of severe illness had passed. She has slowly achieved some recovery from more than 30 symptoms including a walking disability and severe brain fog.

This is an update on the continuing struggle toward Sara’s recovery. Like many families, we have had to navigate in areas of medicine, where there were no experts to guide us. Thanks to networking, it has been possible to find highly skilled doctors, using a variety of methods from both orthodox and complementary medicine, to help treat Sara.

As families of Gardasil-injured girls we have had fights with our respective governments to recognize the illnesses that were born from this vaccine. In Denmark and Japan, the battles we fought have begun to bear some success. Researchers are uncovering new connections, and medical institutions are beginning to recognize the post Gardasil health issues. We are making progress, but there is still much to do.

Gaining Recognition for Gardasil Injuries: Denmark and Japan

For thousands of patients and families, in over 50 countries, recovering from post Gardasil illnesses has been an ongoing struggle. It has been difficult for the patients and their families to get the medical care needed. There is still very little research on post-Gardasil injuries. There are no tests available to diagnose the illnesses and injuries that develop post vaccine, and there are no recognized treatments for these patients within established health care systems. In fact, for the most part, these symptoms are all-but-ignored by most practitioners.

However, the activism and networking of many families has led to some positive outcomes in recognition. For example, a Japanese TV company made contact and visited our home in December 2014. Soon after a documentary about the Danish HPV situation aired in Japan 12th January 2015. Sara was the main case. Danish doctors met with the Japanese Prof. Kusuki Nishioka, MD, PhD, director of Institute of Medical Science, Tokyo Medical University, who specializes in rheumatic diseases and fibromyalgia. Dr. Nishioka has been a leading voice in Japan against the HPV vaccine. The meeting (featured at 9:50) concluded with a recognition of clear similarities between the symptoms of Japanese and Danish patients.

In Denmark, over the last two years, there has been a growing public wake up with stories in the newspapers, on TV and social media. The interest among politicians, authorities and doctors increased. This has probably been a contributing factor in the growing number of patients reporting side effects. According to the latest update (September 2015) from a database of the Danish Health and Medicines Authority, of the over 500,000 young girls and women who received the vaccine, there have been:

  • 1806 reports of adverse reactions (each person could have up to over 30 symptoms)
  • 374 reports (out of 1386) per News on Side effects per have been classified ‘severe’ from 2006 and up through April 2015.

I should note that the Danish Board of Health failed to report an additional 81 adverse reactions that occurred prior to the vaccine’s introduction into children’s vaccine program in 2009; 11 of these 81 cases were classified serious. The latest update of the database can be viewed here: Danish reports of Gardasil adverse reactions.

In Denmark, the reporting of adverse reactions has increased by about 100 new cases every month since April. Still more families realize how their daughter’s symptoms look similar to obvious patterns presented. A thread is running through all these cases stories of severe side effects, as a Danish leading hospital doctor and researcher stated on TV (1:30).

Gardasil, POTS and CRP: New Research on the HPV-Vaccine Induced Neurological Damage

A research team of doctors and medical staff at Coordinating research Centre/Syncope Unit, Frederiksberg Hospital, published three studies of patient groups with severe neurological symptoms including pain following shortly after HPV-vaccination.

  • Suspected side effects to the quadrivalent human papilloma vaccine.
  • Another study describes 21 cases with the diagnose POTS: Orthostatic intolerance and postural tachycardia syndrome as suspected adverse effects of vaccination against human papilloma virus.
  • The Danish findings have made EMA (European Medicines Agency) investigate into the HPV-vaccine, security and side effects by focusing on POTS (Postural Orthostatic Tachycardia Syndrome) and CRPS (Complex Regional Pain Syndrome). The EMA report is expected to be finished by May 2016.
    Danish and Japanese health authorities are keeping contact as well. Danish Health and Medicines Authorities with the help of a pediatrician are reviewing all adverse drug reports in Denmark focusing patterns of symptoms rather than diagnoses.
  • A Danish TV documentary in March this year presented three case stories. Over fifty young girls participated anonymously in the report simply by silent presence, all making a great impact. The report presented interviews by Danish and British physicians. A Danish professor of molecular medicine comments about the remarkable test results of a young patient after intravenous infusions of phosphoplipids, performed in England (21:20).

Increased Media Coverage, Increased Side Effect Recognition

After the Danish TV report aired, a veritable telephone storm began the very next morning with post Gardasil patients wanting referrals to Frederiksberg Hospital. Until then, the Syncope Unit had examined about 80-90 patients with HPV-vaccine side effects. After the TV documentary, the number of patients grew to 350, increased to 525 referrals by August, and now there is a huge waiting list.

At the same time, Health Care Council of Danish Regions announced the establishment of five centers (one for each Region in Denmark), opening June 1, of this year. These centers were established to treat patients with suspected side effects from the HPV-vaccine. Frederiksberg Hospital Syncope Unit, situated in Copenhagen, as a research Center for natural reasons remained center of the Capital Region. Over 1100 patients are referred to the five Regions by now.

The problem is, in spite of waiting lists, the four other centers have no experience and no present research to help clarify these symptoms in patients without a diagnosis. The knowledge and qualifications of staff behind these doors remain lacking because of the paucity of research on Gardasil side effects. Unfortunately, still some patients are met by an attitude of arrogance. Most physicians have no idea what to look for in these HPV injuries.

At the Frederiksberg Syncope Unit the research team doctors have some ideas, though. While continuing to work with new patients, the unit’s physicians are diagnosing many cases of POTS (by tilt bearing test). By September this year, 62 reported cases have been diagnosed POTS after the Gardasil, HPV vaccination in Denmark. Symptoms are mainly neurological and sometimes resemble or include those of Myalgic Encephalomyelitis (ME). Several of the patients after receiving the Gardasil HPV vaccine examined at Frederiksberg Hospital could be diagnosed ME, according to the research team´s third study this year: Is Chronic Fatigue Syndrome/Myalgic Encephalomyelitis a Relevant Diagnosis in Patients with Suspected Side Effects to Human Papilloma Virus Vaccine?

POTS, ME and Mitochondria

POTS is a well known comorbidity to ME according to the research. It is also connected to mitochondrial dysfunction. An emerging theory is that Gardasil damages nerve cells and induces mitochondrial degeneration. This then leads to conditions of energy loss with neurological symptoms. An increasing number of international studies on Gardasil and Cervarix have been published over the last few years. Case studies such as CNS demyelination following HPV vaccination have been described. Research teams and doctors in Denmark, Israel and Japan etc. are looking into correlation by studying autoimmunity and possible markers. When analyzing symptoms a pattern emerges between this vaccine and many severe injuries. Strong connections have been presented in Death after Quadrivalent Human Papillomavirus (HPV) Vaccination: Causal or Coincidental?

More recently, six cases of POTS were described and published. Another case study presents a 14 year old girl with POTS and Chronic Fatigue Syndrome after the Gardasil vaccine. Last year a Japanese study included 40 cases, the main part with symptoms identical to CRPS, and four cases were even diagnosed POTS. Prof. Yehuda Shoenfeld and his team recently published a study on Safety of Human Papilloma Virus-Blockers and the Risk of Triggering Autoimmune Diseases. The authors conclude, after a review of U.S. VAERS reports, though the vaccine is stated as safe, there are many mechanisms by which autoimmunity is triggered by Gardasil vaccine adjuvants and viral proteins. They suggest that recombinant proteins from Gardasil are leading to an increased association with autoimmunity.

My daughter Sara experience the symptoms concordant with the major criteria of ASIA syndrome proposed by Prof. Shoenfeld. Her case was sent to the international ASIA registry last year. By now other Danish patient cases are being registered.

The Japanese doctor Kusuki Nishioka presented his work at an international congress of bio-rheumatology in Moscow July 2014. Nishioka’s work points to another post Gardasil Syndrome called HANS or Human Papillomavirus Associated Neuroimmunopathic Syndrome.

Sara’s Recovery from Gardasil Injury

Our daughter’s health history is an example of a likely temporal correlation between the Gardasil vaccine and a host of complicated post vaccine symptoms. Sara fainted two days after her second vaccination with Gardasil, March 2013. Right after this, all her neurological symptoms appeared, one after another. Children’s hospital performed several analyses including CT and MRI scans. The only blood test that came out positive was a very low vitamin D test (at 25). The only suggestion for treatment by children’s ward, was a powder medication for non-existing constipation that was postulated due to her abdominal pains. This medication was given despite the fact that her primary symptoms were neurological like tingling, burning and pain of legs and arms, dizziness, fatigue and a constant headache. A neurological examination seemed out of question and was rejected.

We realized that there was no treatment in Denmark for Sara and went to the Swiss clinic Paracelsus, Lustmühle. Back in Denmark, Sara was diagnosed POTS at Frederiksberg Hospital shortly after; although a doctor of social medicine at children’s hospital had claimed Sara could not suffer from any physical diseases and implied it was only some kind of bio-psycho-social disorder.

With the help of our Swiss doctor, Sara had several tests performed by foreign laboratories (German, Swiss, Belgium and British). Clear markers were found proving a dysfunction of her mitochondria, the “powerhouses” of the cells. Among signs of severe oxidative stress were low levels of coenzyme Q10, a key element in the energy production of the cells.

Severe toxic reaction to the vaccination with Gardasil, initiating fibromyalgia syndrome (FMS) with acquired mitochondriopathy, was the Swiss diagnosis. Sara’s muscle pains were correlating classic trigger points of FMS.
Similar symptoms and diagnoses have been proposed in two patients after post HPV vaccine, by Dr. Manuel Martínez-Lavín.

Sara’s treatment was planned from test results, by her Swiss doctor’s experience in pediatrics and diseases of energy loss like Fibromyalgia Syndrome. The doctors there had great competence and knowledge from other vaccine injuries. On several occasions, the doctor hit the nail on the head with tests which would guide treatment details. Sara slowly began to improve.

Abdominal pains recovered within the first few months. At our local children’s ward doctors did not manage to perform a test of Celiac disease, whilst the Swiss clinic found pathological bacteria like Klebsiella Pneumo and other problems of the gut, which needed treatment.

After the Gardasil vaccine, her skin and muscles were sensitive to any touch, she could hardly use a wash cloth for her face. Today a careful massage and deeper pressure of muscles can even be tolerated.

More common metabolic tests were later managed within the Danish system (by our GP), and several linked hormones were affected. Sara had TSH and T4/T3 measured at the very low/ under border. According to the Swiss doctor there is a clear cut connection. He theorizes, recombinant proteins from Gardasil lead to damage of the brain nerve cells, especially affecting the hypothalamus and hypophysis, running the production of hormones in the thyroid gland, the adrenals and the ovaries. Via the TSH-control the thyroid gland normally should produce sufficient levels of T4/T3. But TSH is low as the releasing hormone (TRH) from the damaged hypothalamus is low. TRH has a direct effect on the mitochondria, as a permanent “crosstalk” is going on.

Hormones Matter has published a number of articles on post-medication and vaccine thyroid injury.

Last winter Sara had a solution of homeopathic injections of her skin (sub cutane, D5 Hypophysis and Hypothalamus) four times a week, performed at home by her very brave dad, monitored by the Swiss doctor. New Danish test results are showing TSH and T4 increased to normal levels.

Her HPV related symptoms were worsened with menstrual related pains, increasing to unbearable levels. Though still quite painful today, they are closer to normal for her age.

Her temperature regulation problems have almost gone. Before she would freeze and need a woolen blanket when everybody else felt warm in front of the wood-burning stove, or she would feel too hot in chilly surroundings. Night sweats are history.

Along with the mentioned treatment Sara has been taking a huge number of additional natural supplements and medication. Her diet has been strictly controlled too, with only healthy, nutritional foods allowed per our wonderful Swiss nutritionist at the Paracelsus Clinic.

More than once, Glutathione was measured by test to be at the very low border, and it has been complicated so far to raise this to normal levels.

No doubt phospholipids (NT Factor ATP lipids powder) made a difference of mitochondrial function since the ATP, the energy for every cell, has increased markedly. Nevertheless, lab tests have proven there is still an inability to produce sufficient amounts of ATP, which explains her rapid fatigue and problems in concentrating over longer periods of time. We expect future tests to show even better results based on the very good improvements we have seen so far.

Correcting the Post Gardasil Thiamine Deficiency

Probably the most effective supplement lately has been Sara’s treatment for thiamine deficiency, advised by Dr. Lonsdale. Thiamine is Vitamin B1. This article, in particular, was very helpful: Thiamine and magnesium deficiencies: keys to disease.

We found a German laboratory, Ganz Immun Diagnostics, performing the test for Transketolase in red cells, and the TPP-effect which was 27,5% (normal range < 20%.). To Dr. Lonsdale, there was no doubt, Sara would need Allithiamine (TTFD, a bioavailable form of fat soluble Vitamin B1), plus magnesium potassium aspartate.

Sara went through a tough time over some weeks by a so called “vitamin therapy paradox“. Side effects occurred, she had to go down to half the dose to continue and simply cope with some unpleasant symptoms for a few weeks before going back on full dose. Sara came out better than she had been for a long time, with more energy, and slowly a clearer mind. So far, most of her previous main pains still remain to some degree, but the paradox-related side effects have gone.

Best of all her brain fog began to lift with the thiamine treatment. Learning has even become possible along with concentration and memory improving. She manages a limited number of lessons at home, and she remembers much better than earlier. Her new level of energy allows her slowly to participate in the activities she had not been able to do in the years since the vaccine injury. Still seeing friends takes her energy, and social life is limited. If she overdoes her activity, the bill arrives sometimes days later by exhaustion and deterioration.

Another important treatment has been to increase the level of SAM. S-Adenosyl Methionine (also SAMe) is an important compound of the body and plays a role in many important processes of the immune system including maintains cell membranes. Last summer Sara could only walk up to 300 meters in a very slow speed at pains, with burning feet and exhaustion. We used a wheel chair once to get her to an open air musical area. This really felt like a step in the wrong direction.

She was diagnosed toxic neuropathy (after Gardasil) by a Danish retired doctor. The Swiss doctor made sure we had SAM measured by a German laboratory. Within the first four weeks of treatment by Methyl Guard (Thorne, US, Veggie caps), Sara could walk much better. We even enjoyed her amazing first careful dancing steps for the first time within months.

Sara’s Health Today

Today Sara can walk distances at good days about 1.5 kilometers at a normal speed with small pauses; and she can bike even longer. Twitching legs and cramps have almost disappeared and very rarely occur after too much exertion.

Sara started horse riding therapy, which she simply loves. After some weeks her muscle power improved clearly, and she can now carry a horse saddle. Months ago she could hardly lift a glass of water. She is more independent in activities of daily living, though she still needs help to some degree. She can do things like baking pan cakes again.

While still improving, our hope is to find a way for Sara to recover from resisting pains and to achieve more energy over time. Remaining are still some sensory disturbances (tingling and the more rare burning sensations) and sensitivity to light. Her constant headache lasting over two years, muscle pains of legs/and partly of arms are still present, though once in a while less heavy and variations appear during day time. Still remains severe fatigue and often a delayed exhaustion, which are all typical ME-symptoms. Myalgic Encephalomyelitis is another diagnosis Sara probably will have to cope with.

Sara lost two important years of teenage life. She’ll have lots to catch up with in the future. She faces a great challenge with her education, as two school years have been lost so far. She will hopefully go back to some kind of school life in the future. Sara enjoys music and her classical song lessons. She has kept her hopes and dreams alive, and she can even benefit from her very hard experiences by Gardasil injury. The damage it did to her made her mature and wise beyond her age.

The Toll Gardasil Recovery Takes on the Family

As a family this has been a challenge; sometimes feeling like a never ending nightmare. We realized early, there was no established treatment for this condition, and perhaps luckily, we went abroad in time.

As a mom, I have to stay on top of everything and keep up my energy for activism, networking, and first of all for the care taking. Organizing blood samples is another job, plus catching up on results and writing regular status reports of symptoms and improvement. Ordering supplements is a task for her dad. Sara’s treatment has been counting over 25 different capsules, tablets, plus liquid remedies and drops, powders and injections.

No Danish physician has been able to take charge of Sara’s treatment. The Swiss doctor has been the main physician during the last two years. Our GP kindly assists in blood taking for German labs etc., something not many GPs would do.

The Swiss treatment was welcomed by three or four physicians here, who all have been supportive in Sara’s care. Foreign practitioners shared with us their knowledge and experience as well. For sure, the more consensus, the safer we feel.

Added to treatment, there are exhausting meetings with officials in accordance of planning Sara’s teaching and making sure her lessons are always adjusted to her present resources. We have clear laws on teaching ill pupils at home by local school.

As these post vaccine injury conditions are still not very well known, authorities do not always understand and respect patient’s decreased resources and special needs. Many young girls are trapped by now in the grey area, not able to cope with education or full time work, neither do we have social legislation to cover them appropriately.

There are no guarantees of a full recovery, though we still have our hopes and spirits. The pleasure and great relief of seeing Sara progress will never replace the tremendous pain and losses she has suffered, neither the price we payed as a family; not to mention financial costs.

Regarding connection the remaining dots of vaccine damages, rebuilding mitochondrial function is of great importance. By taking supplements of certain vitamins, minerals, phospholipids, fatty acids (omega-3 and -6 oils), antioxidants and amino acids, it is possible to facilitate a regeneration and maintenance of mitochondrial structure and cell metabolism. These supplements ease the symptoms for Sara and other post HPV-vaccine injured patients.

Final Thoughts

Well skilled naturopaths and physicians from Japan, across Europe and the U.S. are putting great effort in trying different protocols with varied positive effects. An example of co-work is Japanese, Danish and British protocols, as described in Orthomolecular treatment by Atsuo Yanagisawa. There is no quick cure fitting everybody. It is an individual and very long process to find the appropriate treatment. There exists great consensus on certain issues. Namely, that we need more testing and research. The more we know about post Gardasil damage at the molecular level, the better a treatment could be adjusted precisely for each patient. Along with more research and improved testing, we need to understand the relationship between this vaccine and the range of side-effects that develop. This will uncover causal connections to the vaccine injuries. Most importantly, we need to share experiences and research. This will help those who need to recover, and hopefully, prevent future victims.

One Less After Gardasil

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Imagine for a moment having an outgoing, vibrant daughter, just turned 21 years old – her whole life ahead of her. She’s a bright, outgoing, athletic, college student, kind and compassionate. She has hopes and dreams just waiting to be fulfilled. No parent could ask for more. All parental bias aside, this was our daughter, Brittney, before Gardasil.

When Brittney received her first Gardasil injection in June of 2007, she was told that the only real risk involved was the possibility of her having a small seizure shortly after the shot was administered. She did not react within the 15-minute window, during which the medical staff monitored her. She thought she had nothing to worry about. She admitted later, after she took the first dose, that the doctor had told her she could get the HPV viruses that cause cervical cancer through a lab accident at college, (where her blood might mingle with someone infected). She had been in a lab accident just a few months previous, so the fear of being infected was immense.

When she passed out the next morning on our family room floor, she got up wondering what had happened. Britt chalked it up to the possibility of being dehydrated. She had been quite active for several months. Several years before she had fainted from dehydration, so she didn’t think much of it. She was so unconcerned she didn’t even mention the incident until over a week later. By this point, she had experienced two other unusual episodes.

The next incident occurred nine days after her HPV vaccine injection. She had what we now know was a partial seizure. Three days later, her legs gave out while she was at a water park. Hammering pain spread up and down her legs for 15 minutes, then disappeared. As a parent, I was beginning to think the incidents were related, but was not sure how they were connected.

Britt is a fighter. She never backed down from anything, but charged head-on until she accomplished her goals. The nagging leg pain and the strange episodes of blacking out were just one more challenge to conquer. She pushed through summer determined nothing would prevent her from achieving her goal to graduate college and pursue a dream of becoming a singer/dancer.

Sometime mid-July, our doctor reassured us that what Brittney was experiencing had nothing to do with Gardasil. We were relieved – at least we could relax on that score…

In July, we took Britt to Myrtle Beach for a belated 21st birthday celebration. During this week, Brittney began to lose control of her emotions off and on. She would be completely normal, then suddenly explode. She would scream at us that we were trying to upset her, or prevent her from living her life. She had never acted this way in her life. Both my husband and I were shocked at her unprovoked outbursts. We spent the entire vacation walking on eggshells when she was present. It seemed the most innocent remark could set her off. The only thing that seemed to soothe her during that week was going to the ocean and walking the beaches.

In August, she had another ‘episode’ as the doctor called them, this time in the company of several college chums. One of them had a sister who experienced many seizures while growing up. She told Britt’s boyfriend at the time that it looked like Britt was having a partial seizure.

Unfortunately, the boyfriend would not accept this reality and shoved an inhaler in her mouth while she was unconscious and depressed it. Britt came around, choking on the aerosol. She told me about the incident later, which was upsetting. She also mentioned the incident to her doctor, but nothing more than a blood test was taken. The results showed that she was a little low on Potassium so she was told to eat more bananas.

In late August 2007, Britt received her second injection of Gardasil – again with no reaction during the 15 minutes of post-vaccination observation. But, within a week she began to have nagging issues with head pressure, like a cap with too tight of a band around her head. Over the next couple of weeks this progressed to the point where she could barely open her mouth because the muscles in her jaw were so tight. She began falling down for no reason. After three weeks, she began to experience blurred, doubled vision. She was extremely sensitive to light of any type. The pressure in her head was so intense, she was passing out daily. She developed a swelling that appeared to be filled with fluid at the base of her skull and along her spine. Along with all of the other symptoms, severe pain was raging through her body. As soon as her doctor examined the swelling, Britt was sent straight to the hospital.

Multiple tests were done, but nothing showed up on any of them. Britt was sent home with a couple of pain tablets. The resident on call felt she had some sort of brain virus and that it would go away in a couple of days.

From this point on, Brittney’s health deteriorated quickly. She couldn’t read anymore because the words seemed to run together or off the pages. She could no longer tolerate light or sound of any kind. We had to speak in whispers when near her or go up to the third floor and speak very softly. Her hearing was so sensitive that she could hear sirens more than three to four miles away and conversations several rooms away. She couldn’t sit in the same room with a television or radio on. Her pain was so bad, she cried all of the time. We bought noise cancelling headphones so she could tolerate trips to the doctor’s office. She had to have wrap around dark glasses – regular sunglasses were not sufficient to protect her from the severe sensitivity to light.

The nightmare didn’t stop there. Her face would sometimes droop to one side like it was sliding off her skull as pressure in her head grew worse. Seizures and stroking migraines began to happen 24/7. Her stomach was upset all the time. She could hardly keep anything down. She lost sensation in her legs and fingertips, she became completely bedridden, and simply longed to die.

Over the next three years, Britt was seen by over 60 doctors, including teams at Johns Hopkins Hospital, the Cleveland Clinic and the University Of Cincinnati Hospital. None of them could help her. She was so sick to her stomach, she could eat nothing but three ounces of protein drink at a time, fed with a baby spoon. Not one doctor suggested we have her stomach looked at. They simply dismissed it as being stressed, over-reacting to life, or a conversion disorder.

Just to give you an idea of what her new life is like, I will briefly touch on a few events:

  • January to March 2008 – Britt was totally bedridden and seemed to be wasting away. She nearly died before we found a doctor who helped alleviate some of her more severe issues. Unfortunately, she became intolerant of the medications that helped her. She began reacting to everything the doctor gave her. She was sent to many specialists who threw up their hands in frustration at her body’s resistance to treatments.
  • Early 2009 – We found an alternative chiropractor who recommended Okra Pepsin3 with Multizyme to help settle the lining of Britt’s gastro-intestinal tract. After several months, Britt was able to eat many organic and natural foods for the first time since her second Gardasil injection.
  • June 2009 – Brittney seemed to improve for a couple of months, including strength, but this didn’t last. By December she had lost all feeling in her legs, plus the head pressure had returned more intensely.
  • January 2010 – After being seen at Johns Hopkins Hospital Britt’s legs were put into massage bladders. This seemed to relieve some of the loss of feeling – when she left she could feel her upper thighs again. By spring, she was working with a researcher who was willing to try to help with some of Britt’s other issues. He suggested CoQ10, vitamin K Complex, magnesium, calcium and Vitamin D3 supplements. Britt’s sensitivity to light and sound diminished and some of her pain was alleviated. She had a boost of energy for the first time in three years.
  • April 2010 – A migraine specialist administered pain blocks to the back of her head (scalp) which relieved a great deal of the head pressure, jaw pain and complex migraines. She began to eat better.
  • June 2010 to January 2011 – Brittney seemed to be doing well. An alternative doctor had made some modifications to her diet that seemed to mitigate some of her more severe symptoms. She began a gluten-free, casein-free, sugar-free diet, avoiding Citric Acid, MSG, artificial preservatives, and mushrooms.
  • January 2011 – She was exposed to a virus. Her immune system could not handle it. She physically collapsed. The doctor told us that her immune system was crashing and he couldn’t help her. Britt’s grandmother sent over what we thought was homemade chicken with dumplings to boost her health. Brittney gained 60 pounds during the following 24 – 30 hours. We discovered there was Citric Acid in the broth. Nothing would bring the swelling down but time.
  • May to June 2011 – Her more severe pain symptoms calmed down a bit, but she was still vomiting. Her abdomen and stomach swelled to the point where she looked like she was six months pregnant.
  • 2011 – We finally found a gastroenterologist who was willing to examine Britt’s stomach. She was horrified at what she found – Gastroparesis – a damaged Vagus nerve in Britt’s stomach which prevented normal digestion and emptying of her stomach.

Last summer, 2012, we started taking Britt to another alternative doctor. Gradually Britt began to have a small semblance of the life she had before Gardasil. After months of IV treatments, she has been able to handle a large crowd at a cinema, a very busy restaurant, and even go to the mall briefly. Understand that these events have taken place weeks apart. She still has a long way to go. She has been able to enjoy her favorite music with the speakers “normal” without suffering. She wears her wrap-around low vision glasses only on very bad days. She is able to walk on her own for short distances despite the lack of feeling in her legs.

January to April 2013 – Britt has had a huge setback which we believe was triggered by an LH hormone test. This test was to check the levels of these brain-based hormones to try to regulate them. She felt like the Gardasil nightmare was starting all over again before the hormone was neutralized. Within days of the test she began a slow increase of seizure activity, which built from a couple over a four month period, to multiple, daily events. Some were so severe that her power port shifted under her skin. After four weeks of non-stop seizures, we were able to get her in to the doctor’s office for a much needed IV. It took her nurse three tries to find, then flush the port, before the IV therapy could begin. Her seizure activity has now slowed to a minimum. As long as she stays on track for the IV’s, (basic vitamin/mineral infusions that help boost her immune system, calm physical issues, improve mal-absorption of nutrients), she can maintain much of her homebound activities. There are still periods when we talk with her that she displays signs of confusion, memory loss, and inability to concentrate.

Brittney has been ruled “Disabled” due to residuals of Gardasil by the SSA. She receives some compensation through the SSI which is helping pay her myriad medical bills.

Nearly six years ago, Gardasil changed our lives forever. It has been a nightmare without end watching our daughter suffer through every stage of the past several years. She has literally become ONE LESS!

 

Hormones MatterTM is conducting research on the side effects and adverse events associated with Gardasil and its counterpart Cervarix. If you or your daughter has had either HPV vaccine, please take this important survey. The Gardasil Cervarix HPV Vaccine Survey. 

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