healthcare

Corporate-Speak and the Language of Healthcare

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You Are What You Say

Corporate-speak infests healthcare. Buzzwords invaded medicine thirty years ago, but the infection was contained to hospital administration. Now healthcare is controlled by insurance companies, global technology firms and for-profit outfits of all sorts. Business slang, the jargon of greed, is fouling the language of care.

The corporate-speak contagion spread, pushed from hospital C-suites to the wards. Doctors and nurses were encouraged to “drive behavior”. Or “align incentives”. Or even “align incentives to drive behavior while leveraging assets”. All business claptrap.

Except it’s harmful claptrap. Corporate clichés exterminated medicine’s touchstone words. Talk of profit margins, marketing and competition doesn’t inspire trust. Technobabble isn’t the language of compassion. It’s hard to translate caring into bureaucratese.

Sticks And Stones

Healthcare is not innocent. Doctors and nurses stand accused of using baffling shoptalk. We have our own lingo, phrases, acronyms and abbreviations. Most are shorthand. Many are glib and dehumanizing:

–       The MI in 415 (The patient in Room 415 has suffered a heart attack.)

–       Gomer (Elderly and confused patient, almost always male; the word has uncertain origins.)

–       Frequent fliers (People who show up in the emergency room too often.)

–       Treat and street (Rapidly care for emergency room patients and get ‘em out the door ASAP.)

We’re equally scathing about each other:

–       Gas passer (Anesthesiologist)

–       Jock (Orthopedic surgeon)

–       Scoping for dollars (Gastroenterologist)

–       Pediatrician = Geriatrician = Veterinarian (Self-explanatory)

Dark humor helps cope with stress in healthcare; the daily onslaught of pain, heartbreak and frustration most clinicians face. But our slang doesn’t reduce patients to cost centers or data points.

Let Those Who Are Without Sin

Buzzwords are business parasites. They swarmed into health care along with big tech, hospital systems and payers. Like fleas on rats. The medical-industrial complex treats patients, physicians and nurses as costly business problems to be solved. Threats to profit margins.

Hands-on care of sick patients is the most important duty in medicine and the most expensive. Care that relieves suffering is the heart of medicine. But hospital stays are costly. Skilled professionals aren’t cheap.

The biggest boosts in profits come from the greatest reductions in costs. Patients and clinicians quickly run up the tab, so chopping their costs yields the largest earnings lift. In theory, anyway.

The Words

Corporate-speak blurs reality. It reduces accuracy to vagueness and sucks humanity from patients and clinicians. Hundreds of business buzzwords have infiltrated healthcare. More slither in daily.

A few dozen pop up constantly. Ten of the worst offenders are featured.

What The Top Ten Words Have in Common

The word fleas share some traits:

–       The words have common meanings in everyday speech of ordinary people.

–       They replace ordinary words, either to sound official or important.

–       Many started life as nouns and transmogrified into verbs.

–       The words are used broadly across the medical-industrial complex by insurers, policymakers, technology consultants and bureaucrats.

–       The words are rarely used by bedside doctors and nurses who are up to their elbows in…well…you get the idea.

They’re in alphabetical order. Too difficult to rank them by their jargon quotient.

Nonsense Means No Sense

ACCELERATOR: In common use, an accelerator or gas pedal powers a vehicle by regulating gas flow to the engine. The car’s speed is controlled by how much pressure is applied to the accelerator pedal.

Now healthcare accelerators are investors and venture capitalists. Accelerators feed money to health tech start-ups in hopes of funding the next great thing. Most have wads of money but usually no clinical experience. Many envision their lives as billionaires while foisting more useless apps on medicine.

Suggested Replacement: Investor

ALIGN(MENT): Align as a verb means arranging objects in a straight line. The noun alignment, used in everyday speech, refers to the wheels of a vehicle. Mention your car needs an alignment job and most Americans will understand the reference.

Align and alignment are used with equal frequency in healthcare. Both noun and verb substitute for “agreement”. As in: “We must align penalties to drive cost savings and leverage our economic power.”

Suggested Replacement: Agree(ment)

CROSSWALK: Crosswalks are paths showing pedestrians the safest route across busy streets. Often striped, outlined or marked in some way, crosswalks are usually placed at intersections.

In corporate-speak, crosswalks (noun or verb) are virtual pathways linking healthcare data from one source to another: “Need to crosswalk lab data siloed in Claims over to Disease Management to model diabetes programs.”

Suggested Replacement: Link

DISRUPT: Small children are scolded for disruptive behavior. Their parents often hear from teachers who counsel evaluation for hyperactivity disorders. Adults accused of disruptive behavior can be cited for disturbing the peace.

Now, entrepreneurs who disrupt healthcare are praised. Sought after. Causing turmoil, upending patient-clinician relationships and disregarding the basics of good care are rewarded. Policymakers are apt to say, “Need more accelerators to fund the disruptors and get a value-add on our deliverables.”

Suggested Replacement: Change

DRIVE: Driving is the act of operating a vehicle and navigating from one place to another. Physical forces drive objects the way steam powers old locomotives or wind spins pinwheels. Cowboys drive livestock from the range to the corral.

People are herded like cattle, too. The medical-industrial complex talks about driving all sorts of things; behavior, cost cutting, alignment, disruption and wellness. People aren’t as docile as cows—usually. They’d refuse to be driven if not for rewards and punishments. In business slang: carrots and sticks.

Suggested Replacement: Influence

LEVERAGE Before MBAs evolved as a life form, leverage meant the use of levers—shovels, spades, crowbars—-to help move heavy objects. In physics, levers multiply force.

In healthcare leverage is coercion. Leverage manipulates behavior of patients and clinicians. Patients are leveraged with, yup, carrots and sticks. Doctors need more robust persuasion. Threats to income, their practices or their hospital privileges are necessary. As in: “Gotta leverage market position. Get docs to align with the cost synergies. Can drive ‘em with privileging denials.”

Suggested Replacement: Use

MODEL: Models might conjure different images for men and women. Men remember building models of race cars or jets when they were boys (or sniffing the glue anyway). Women think of skinny, glamorous people strutting in front of impassive fashion editors. All wearing absurd clothes with astounding prices.

Computers spit out data to build health care models. Model can be used as a noun or verb in corporate-speak. Models are now theories and fairy tales dreamt by policymakers and analysts. Models control vast oceans of medical spending. No matter they often have no tether to reality. Policymakers might say, “Let’s get the 30,000-foot view and model how we align ER physician behavior to drive high value admits.”

Suggested Replacements: Think (v.) or Thought (n.)

ROADMAP(PING): Roadmaps are relics of another age. Maps, printed on large sheets of paper, were folded to fit car glove compartments. Roadmaps have about 2,000 possible refold combinations, frustrating small children and adults alike. Google Maps don’t need refolding. Paper roadmaps don’t need internet connections. That’s useful here in the American Outback (Intermountain West) where I live.

Business roadmaps, noun or verb, are virtual paths leading to some goal. Or roadmaps can be instructions. Or some program or strategy. Roadmaps are prized across healthcare: “Let’s roadmap our methodology, align it with Finance’s, then cascade the model.”

Suggested Replacement: Plan

SILO(ED): Silos are round towers used to store grain or compressed green crops used for animal feed in winter. Like sentinels, silos often stand close to barns. White silos next to red barns are quite picturesque.

Now virtual silos store data. Imaginary hoards of information, jealously guarded from invasions by competing factions in organizations. There is mystical belief that if data are freed from silos, health care’s problems will vanish. As in, “Need to align forces and create a roadmap to crosswalk data from the clinical silo to the admin silo to model synergies.”

Suggested Replacement: Files or Department

WELLNESS: Wellness is a state of good health. Thriving and flourishing. A benign word that once brought to mind playing children, healthy food, peaceful walks.

No more.

Corporate wellness programs have given the word an ironic edge.

Wellness programs have become coercive. Employees who value privacy can pay thousands of dollars more for health insurance by refusing to join the company wellness effort. Wellness programs cause stress and resentment, hardly conducive to a sense of well-being.

Suggested Replacement: Health (though calling the schemes health programs won’t fix the underlying problems).

Rewrite! Rewrite!

Back in Hollywood’s glamour days, if a film script wasn’t working, the director shouted for a rewrite. Well, healthcare’s new script isn’t working. We don’t need a rewrite—we need the old script:

–       Do we agree the best way to change patient behavior is compassionately?

–       Let’s use the trust people have in nurses to influence their health choices.

–       Clinicians meet often to think and plan. Then find the best ways to give care by linking skills.

Healthcare has been reformed. Not for the better. No surprise, we’re speaking different languages. It’s time to say what we mean, mean what we say. In plain English.

We Need Your Help

More people than ever are reading Hormones Matter, a testament to the need for independent voices in health and medicine. We are not funded and accept limited advertising. Unlike many health sites, we don’t force you to purchase a subscription. We believe health information should be open to all. If you read Hormones Matter, like it, please help support it. Contribute now.

Yes, I would like to support Hormones Matter. 

Image by Adrian from Pixabay.

This article was published originally on September 29, 2015.

Navigate Healing With Loved Ones

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How can you support the heroine in your life and navigate the healing process? Find your inner Chris Columbus.

Being ill is overwhelming. Anyone with ongoing illness is a heroine on an epic journey. This journey can be filled with plenty of bumps, roadblocks, U-turns, and forks (aka decision-making opportunities). There are some awe-inspiring moments as well.

Everyone’s experience of illness is different. Even heroines with the same diagnosis or symptom list will have different experiences of the illness or dis-ease; and the impact on their physical, emotional, mental and spiritual well being varies.

This unique journey your heroine is traveling is not a straight, engineered path moving from A to B to C, so this isn’t a process for a GPS-esque one-size-fits-most solution. The heroine needs a navigator. A valuable way to support the heroine in your life is to be her trusted navigator. Even Amelia Earhart had a navigator.

Because no two journeys are the same and there’s often uncharted territory, lists of things to do may or may not be relevant. No list can cover every circumstance. But anyone, in any situation can draw on inner resources and embody the characteristics of the navigator role. What navigator inspires you? Find a role model for yourself. As you support your heroine consider the traits of your role model and bring that essence into your being.

Here are a few ways to view this journey through the lens of a navigator and embrace your role in your heroine’s healing journey.

Identify the Destination

Most healing journeys have multiple destinations. Each encounter with a healthcare professional could be its own destination. There is the ultimate destination of well-being. The heroine determines the various destinations as the journey unfolds. Regardless of the destination, there are common characteristics to know you’re at a destination that supports your heroine. A destination that works:

  • Feels comfortable ‒ whatever comfortable means to the heroine
  • Strengthens and renews ‒ ultimately the destination is uplifting
  • Encompasses movement on some level ‒ stagnation is not OK

Discuss this with your heroine so you’ll know when you’re on course. If during an appointment the heroine is uncomfortable or not feeling understood, this is feedback that you’re off course.

Pay attention to when the destination shifts. For example, what starts as getting relief for physical pain could shift to identifying underlying emotional trauma that impacts true healing.

Scout the Landscape

Wow, where to start with so much landscape to cover in the world of health, healing and well-being? This is intertwined with knowing the destination. When the destination is relief from symptoms, the landscape could be anything from acupuncture, to dietary changes to pharmaceuticals. When the destination is eliminating the root cause, you’re likely in the territory of older traditions that have studied health for centuries: Naturopathic, Homeopathic, Chinese, or Ayurveda. Pay attention to the destination to know which direction to scout.

Regardless of the landscape, it is helpful to:

  • Curate information – narrow down the vast information into relevant pieces like a museum curator
  • Bring a sense of curiosity –  explore options, ask questions like a child
  • Transform barriers into paths – go above, around, through, or chart a new path; a roadblock may be a sign to shift direction

Map the Cairns

Cairns are stone towers that have marked important places and travel routes for centuries. Your heroine may be struggling just to feel “normal” and have some sort of normal life, and feel how she used to feel. Even people who avidly journal or meditate may miss their own signposts. Having someone else note the journey, like a log book, can be valuable.

Cairns may mark straight routes, turning points, or places to pause and reflect; this could include:

  • Shifts in mindset – for example a new lens of the meaning of the illness
  • Noticing cause and effect – when the heroine feels different emotionally, physically, mentally or spiritually
  • Joy – with so much focus on not feeling well, celebrate even small wins

It can be challenging for friends and family to how to support their heroine. Finding your inner navigator equips you to be supportive moment to moment, and respond to your heroine’s evolving journey.

We Need Your Help

More people than ever are reading Hormones Matter, a testament to the need for independent voices in health and medicine. We are not funded and accept limited advertising. Unlike many health sites, we don’t force you to purchase a subscription. We believe health information should be open to all. If you read Hormones Matter, like it, please help support it. Contribute now.

Yes, I would like to support Hormones Matter. 

Editors note: this post was published previously on September 2011 under the title, Find your Inner Chris Columbus: Navigating the Healing Process. It was re-titled for publication today.

Image by Cloé Gérard from Pixabay.

Sick, Deaf, and Uninsured: The Nightmare of American Healthcare

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Lifelong Hearing Loss

At the age of nine years old, I was diagnosed with progressive sensorineural hearing loss. At that time, I already had a 60% loss in the high tones. No one knew I was deaf because I had adapted and learned to lipread. I suspect most people I encounter these days don’t realize how deaf I am. I have had hearing examinations where the audiologist thought something was wrong with their equipment because I am so deaf I don’t hear most of the tones. My speech comprehension goes down about 50% when the audiologist covers their face with a piece of paper. I was recently tested and my loss has progressed from the “Moderate to Severe” category to “Severe to Profound”. Without hearing aids the world is a very quiet place.

Unprepared to be Uninsured

For the whole of my adult life, healthcare and insurance were not things I worried about. My first husband was in the military, so on those rare occasions I needed a doctor, I saw whoever was on shift at the base clinic. When I was pregnant with both my children, an Ob/Gyn was assigned to me and then I saw whoever was on shift when it was time to give birth at a military hospital. When I went to work for a city government, I had health insurance and doctors were assigned to me sort of magically. For much of the time I had health insurance, I didn’t even make the deductible. I was completely ill-prepared to join the legions of the uninsured in 2010 when I had to take an early retirement from my civil service job.

Phone Impaired in the Age of Smart Phones

I was last able to use the telephone on a limited basis in 2009. Even though I had a special amplified handset on my work phone, I sometimes would get a call and be unable to understand anything the caller was saying. I had to hand the phone to a co-worker when that happened.

Now that I don’t have an amplified land line, I cannot use the phone at all. What calls get made, my husband has to make or take them for me. He has auditory processing disorder and is likely high functioning autistic as well as ADHD. So phone calls take a lot of energy on his part and I don’t ask him to make them unless it is absolutely necessary.

One of the things I think many people may not be aware of is that many, if not most, healthcare practices do not accept uninsured patients. This is especially true of specialist like GI and endocrinologists. I don’t blame them, I cannot pay medical bills unless they are given to me in a manner that I can plan for and afford while still paying upfront for ongoing health care, medications, and supplements. Not being able to use the telephone to call multiple practices to inquire about their patient acceptance practices and to get cost information upfront makes it nearly impossible for me to get services I need even if I have funds to pay for them.

The High Cost of Not Knowing

After retiring early without health insurance, I managed to get by for three years without any healthcare.  When I started having chronic diarrhea, I looked around online to find help that I could afford. That information was not obtainable without a phone, so I wound up in the local university hospital ER with a blood pressure of 240/130. We owed no one when we walked in the hospital doors and now we had debt more than a small house would have cost. I remember lying in bed in a haze and crying because I felt I would never again own a home of my own.

Ironically, the event that I believe triggered my hypertension was related to an unscheduled “invasion” of our duplex by appraisers. One of the reasons I need a home of my own is that I don’t feel entirely safe in a rented home. It is a subjective thing and I have been at loss to explain it until I started learning about autism.

During the four day hospital stay, I filled out an application for financial assistance, but since I still had money in a retirement savings account, my application was denied. I did not feel I should take the money out of that account because I was saving to buy new hearing aids. The ones I was wearing were over 10 years old.

I considered trying to pay the hospital $20 or $30 dollars a month to preserve my tattered credit rating, but I received about a dozen bills, none I could afford. One was for $47,000 (that was already discounted 60%) from the hospital. Several were for $2,000-to 3,000 and numerous in the hundreds from various entities like labs, catering, and doctors. There were even separate bills for the emergency room. There was no way I could pay all of them even at $10 a month. We were living payday to payday with little remaining. Since I could not pay all of them, I did not pay any of them. I was used to paying my bills on time and so consciously deciding not to pay these bills caused me a lot of distress. I still had undiagnosed and complicated health problems that needed ongoing care. I had no idea how I was going to pay for that.

Hostage to the System

I was referred to a local health clinic and I paid for that out of my income tax refund, which I had decided to park in a savings account to pay each years’ ongoing medical expenses. When I was referred to a rural GI practice, my husband’s mother gave us several thousand dollars to help pay for it. This experience was another nightmare. The rural GI was treating thousands of low-income patients and he had, at most, 15 minutes of time with us. He spent most of that time entering data into a computer. This was a problem for me because I need people to face me in order to be able to lipread. I explained that repeatedly, but he either forgot or ignored my request.

I was having ongoing diarrhea, digestive issues, and malnutrition when I was referred to the GI. I did not feel it was safe to protest or be overly assertive with this doctor, as I desperately needed his services.  His lack of accommodation for my deafness was only part of what made this experience so upsetting. He seemed to have no understanding or concern for our financial issues. Even though we explained our financial situation, he ordered a litany of expensive tests. I could not get anyone at the clinic to tell me how much things would cost upfront. Even his office visits were a problem. I asked about cost and explained I was uninsured at the time of the first office visit. I paid the $179 they requested up front, but then they would send me additional bills for $79 with no explanation. The total of all the tests including endoscopy and colonoscopy, CT scan, etc. was somewhere around $8,000-9,000. I think we paid 4 or 5 thousand up front from money my mother-in-law gave us. Again I didn’t get one billing entity, but a 1/2 dozen or so different bills. So that was yet another hit to my already miserable credit rating.

I continued to suffer digestive issues even on the prescription enzymes and PPI.  Since the doctor declined to address several of my health concerns that he didn’t feel were GI related, I was disinclined to go see him again. It was only when we finally got two incomes that we were able to afford an allergist. I was diagnosed with 44 food allergies as well as multiple environmental ones.  The allergies were the cause of the  digestive problems that the GI refused to evaluate. That was another three years of my life needlessly lost to digestion related malnutrition.

New Type of Primary Care

I recently changed from the local corporate clinic to a new type of family practice two hours away. The family practice seemed like a good deal as they had lower costs for lab work and a monthly fee with $20 an office visit charge. They also had a patient portal which seemed ideal for me since I could write about my problems instead of trying to relay them via my husband over the phone. After two visits at $180 a piece, I had problems because they didn’t seem to want to hear about any of the problems other than the type 2 diabetes. When I managed to get them to understand the full range of my health problems, they unceremoniously dumped me via email. They referred me to a nutritionist who strung me along two weeks before declining to take me as a patient because I could not do consultations on the cell phone.

This dumping echoed a lot of childhood experiences of rejection so it was traumatic enough that it made me cry. It has been increasingly hard for me to put my trust in healthcare professionals since the death of my second husband to colon cancer. They were not the cause of his death but there was a lot of needless suffering along the way. This opened my eyes to problems in our healthcare system I was previously unaware of.

Fairly frequently in the past eight years, I have felt a sort of despair that is like being trapped in an emergency situation with no way to call out for help. Some of this stems from a lifetime trauma coping strategy of submission and some of it is due to poor communications skills on my part. I can never know how well I will be able to articulate the thoughts in my head. They seem so clear to me but somehow come out confused and garbled when I am stressed. I have to do a lot of meditation and exercise to calm down HPA activations just prior to a healthcare visits. I arrive at my appointments with as much written down as I can manage because stress causes me to lose even more communications abilities.

Direct Primary Care

I finally had a bit of luck when I found a Doctor of Internal Medicine who has a Direct Primary Care practice. I had almost disabling anxiety in the weeks up to my first visit because I was afraid if I told her too much about my problems she might refuse to take me as a patient. Fortunately, she was honest, blunt, and straightforward in a way that alleviated my anxiety. I focused on my official diagnosis and getting medications refilled on our first visit. On the second visit, I wanted to focus on the undiagnosed problems. Thanks to Chandler Marrs for editing and publishing my story here on Hormones Matter, I feel I have been heard and understood. As a result, I now have referrals to an endocrinologist, a GI, and a contact to get evaluated for High Functioning Autism (HFA).

We Need Your Help

More people than ever are reading Hormones Matter, a testament to the need for independent voices in health and medicine. We are not funded and accept limited advertising. Unlike many health sites, we don’t force you to purchase a subscription. We believe health information should be open to all. If you read Hormones Matter, like it, please help support it. Contribute now.

Yes, I would like to support Hormones Matter. 

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Listening to Patients – A New Opportunity for Medical Science

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Over the last several weeks I have been struck by the growing chasms in modern medicine. I see battles between physicians and patients, physicians and technology, physicians and bureaucracy and between the entire healthcare industry and health itself. The chasms are particularly deep in women’s health where so often serious health issues are written off as psychosomatic or with medication safety and efficacy where obvious side-effects are routinely discounted as not possible despite clinical and biochemical evidence to the contrary. Why is the physician not listening to patients? Why is he so quick to discount their suffering and attribute it elsewhere?

And then it occurred to me, within the doctor-patient relationship there has never been an impetus for the physician to listen to patients. The structure of modern medicine was built upon a presumption of physician authority and expertise that involved not listening but seeing. So what began as a post about listening to patients versus patient engagement (what the heck does patient engagement mean anyway), has evolved into a commentary on the eroding power of the physician and medical science in modern healthcare. Interestingly enough, I think the changes in modern medicine may finally permit, if not demand, listening to patients. Let me explain.

Listening to Patients: A Lost Art that Never Was

Historically, listening to patients has had, at best, a tenuous position in medicine. Some would argue that it was supplanted long ago by the physician’s all-knowing clinical gaze. The clinical gaze, a term used by French philosopher, Michel Foucault, is the ability to see correctly what is unseen, to bring to light and then describe the hidden truth of disease. It was what allowed the physician to penetrate the illusions of the non-scientific engendered by previous generations (16th – 18th century medicine) and to see the truth of the disease by correctly perceiving the signs and symptoms. The physician’s power of observation, his clinical gaze, aided by technology, gave him a vantage point inaccessible by mere mortals, and thus, incontrovertible.

The clinical gaze anchored modern medicine in a way that no other concept could. It brought with it the power to see truth, but also, to define it. No matter how potentially relevant to disease diagnosis, the patient’s truth or story could never replace the physician’s truth – the truth that was accessible only by him and through the all-knowing clinical gaze.

And so it was for most of the last century and a half, the physician was the arbiter of what was valid, of what could be seen and of what could be known about health and disease.  The patient was no more than a body; living or dead, it did not matter. It was the job of the physician to perceive correctly what the body (not necessarily the patient) was showing him and then classify, communicate, and finally, treat appropriately.

From Medicine to Healthcare and the Physician’s Diminishing Autonomy

Despite the inherent tension between the patient’s experience of his or her disease and the physician’s discovery and classification of that disease, the interaction was private, between the physician and the patient. The degree to which the physician listened or did not listen to the patient, the correctness of the physician’s diagnosis and subsequent treatment decisions occurred within the confines of his practice. So long as the interaction was private, the physician remained the arbiter of disease; the clinical gaze his power and the patient his subject.

When the private became public, gradually at first (third party payer systems, pharmaceutical marketing) and then explosively, (the Internet), the clinical gaze, the lens through which disease was defined, refocused away from the patient and the disease itself and toward the economics.

The Interlopers

Managed care and third party payer systems unlocked the sacred space between the physician and the patient. The economics of his treatment decisions increasingly bore more weight than the accuracy or the clinical outcomes. The economic principles of the new managed care systems were skewed divergently. On the one hand, managed care demanded efficiencies of scale in the allotment of care – more patients, less time – but on the other hand, and simultaneously, rewarded physicians and other healthcare providers with fees for services instead of positive outcomes efficiently managed. The macroeconomic principles guiding healthcare decision-making, skewed and untenable as they were, gave the physician a modicum of authority. Even though managed care infiltrated every aspect of the doctor-patient relationship, it was still the physician who defined the disease. The clinical gaze remained somewhat intact.

That was until the pharmaceutical industry caught on and the definition of disease not only miraculously began to fit the latest, greatest drug, but also fit managed care payer guidelines. Some would argue that late 20th century diseases and discovery emerged, not from the plight of human suffering, and certainly not from the powers of observation that once guided the physician’s clinical gaze, but by profit.

The physician, who at once held the power to see and define medical science, is now buried beneath a heap of competing and conflicting interests that are only cursorily related to the practice of medicine. There is no clinical gaze; no medical decision-making that rests solely upon his shoulders or within the space of the doctor-patient encounter.

And Then Came the Internet

The same technological advancements of the latter half of the 20th century that allowed the physician to see more, also allowed others to see what he was seeing and to communicate those insights broadly. Once that private and controlled perception became public, the physician and the all-knowing clinical gaze, no longer wielded the same power it once did.

The primacy and indeed the privacy of what was once a sacred relationship between the doctor and the patient, was overrun by a ‘system’ of disease economics; one that no longer can be considered medicine, healthcare or even what those in those in anti-modern medicine movement call disease care. Instead, we have a ‘health’ economics built on a false precipice of industrialized, factory, efficiency and underlain with a bastardized model of free market capitalism – moral hazard. Indeed, the creative billing seen in the healthcare industry makes the financial derivatives scandals of recent history look downright tame by comparison.

Business Innovation Disguised as Medical Innovation

Nowhere in the current model is there room for listening to patients, for relationship, for health, for ethics or even for medicine itself. Arguably, the possibility for medical discovery, the kind that breaks paradigms and catapults the science forward, is also stifled in favor high profit blockbusters that are no more effective than the last one, gadgets that often fail to deliver measurable improvements in care but sure are fun to play with, and ever intrusive services that make healthcare more cost-effective – well, not really.

Business innovations designed to enhance spread sheets and enhance patient engagement do neither. Indeed, patient engagement is no more than a meaningless euphemism for medication compliance. If we can only engage the patient more effectively through this application or that, then we will ________ (insert promise), save healthcare, reduce costs, reduce hospital visits, save time. What patient engagement applications are really promising is to save the world from the pitifully unengaged or disengaged, burdensome, non-compliant patient. There is no doctor-patient relationship and can be no relationship within this model. Both the doctor and the patient are cogs.

From this perspective, it is no wonder that physicians lash out against patient empowerment, against electronic health records and other healthcare innovation.  Each is a very real threat to an already diminished autonomy.

From Healthcare Back to Medicine: Listening to Patients Revisited

In spite of all the negatives of the entrenched medical-industrial complex (I hate that phrase, but it seems appropriate), there is hope. It rests not with ‘healthcare innovation’ that inevitably promises high returns, nor does it rest with the next great blockbuster drug. Rather, the survival of medical science rests within the space of the doctor-patient relationship. It is there, that when disengaged from the multitudes of competing interests, within that private moment, that the physician can unlock the next phase of medicine, the next great discoveries. It is there that he can listen to his patients.

The Necessary End of the Clinical Gaze

The clinical gaze as a power structure served its purpose in catapulting medicine from mystery and myth, but it was one-sided. It considered disease from an idiosyncratic lens solely within the physician’s control. This was both its strength and its downfall. Without feedback or resistance, it was easy for managed care and the pharmaceutical industry to invade this space and usurp the physician’s authority. All that was necessary was to learn the taxonomies and then redefine them to fit the economic needs of the vendors. New diseases, new drugs were viewed as medical advancements. Technology that standardized diagnostic criteria (or arguably loosened it so that most conditions would fit easily within many payer accepted categories), all but eliminated the need for the physician’s skills.

Had the internet not come along and opened the communication channels among patients, no one would be the wiser. With the internet, patients have become empowered and are rather loudly proclaiming their stake in this conversation. Patients search Dr. Google for diagnostic and treatment options, some sound, some not. They have formed groups and societies geared toward furthering education, research and strengthening their voices. Physicians have hereto ignored or chastised patients, lashing out against their new found empowerment, as if it were the patients and not the industry vendors, who displaced his vaulted position and redefined his diagnostic capabilities. No, it was not the patients who did this, but it is the patients who offer the physician a way back towards medical science – not the all-knowing, indisputable medical science of yesteryear, but the dynamic relational medical science of the next generation.

Listening to Patients as a Way Forward

Listening to patients provides the context and connections that can move medicine beyond an outdated and thoroughly usurped taxonomy of signs and symptoms that serves only to name and to limit or contain disease within an appropriately defined diagnostic category, to a space that can connect the larger patterns and the associations among diseases, health and environment. Physicians can lead this charge but only if and when they begin listening to their patients. It is the patients, not the industry, that hold the keys to the myriad of intractable diseases that plague modernity. Listening to patients, not patient engagement, but listening and trusting the truth of the patient’s experience of his or her disease, is the missing piece of the next great medical revolution.

This article was published previously in May 2013.

The Match Game of Healthcare That Works: Understanding Insurance

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Understand What Insurance Is and Is Not

Finding healthcare resources – people, treatments, care – is a match game. Your quest is to find resources to partner with you to feel better, heal and experience the life you want to live.

Reading “match game,” the vision that probably came to mind involves perusing a list of “providers” your insurance company included in a thick volume of paperwork. Or maybe you wish you at least had an opportunity to have access to such a list. You see lists organized by “specialty” (which you may or may not understand) and geography; and you hope you can find someone with solutions for your needs – someone to help you feel better – from this paltry information.

The Traditional Match Game: The Insurance Company Sets the Playing Field For “Health”

Health insurance is not healthcare. Insurance is business. Health insurance is a payment system.

In the framework of the traditional match game, the insurance company sets the rules with four basic things: 1) a list of “providers” – people who meet the company’s contractual requirements; 2) a list of acceptable services (your “benefits”) the providers can offer for certain ailments; 3) acceptable fees for such services; and finally 4) a means to parse the payment/cost burden. This is so familiar that perhaps we didn’t even question this until prices sky rocketed and services diminished.

Playing the well-being match game within this familiar framework puts the insurance corporation in a position of power. Playing the match game this way immediately puts a corporation, a payment system, in control of your well-being. Through their contractual relationships they determine what constitutes health, who is allowed to serve your needs, and what treatments or medications are acceptable. Insurance companies narrow the field of possibilities and choices for your path to well-being.

By engaging in this match game we’ve been attempting to attain well-being from a system in which the rules have been set by companies that are focused on payment and profit. Pause and think about that for a moment. We have been lulled into looking to a payment system as a means to experience vitality.

You may have had very good success with this structure. While this may work well for some, and may work some times; for many it is a challenge to find care that works. That challenge can take a further toll on health.

In this traditional match game it is very difficult to insert your personal needs, values, and beliefs about health and well-being into the framework of a payment system. It can be a challenge to find the right partner in healing, the right practitioner, who supports your personal journey to live your best life.

Time To Shift the Paradigm

If it doesn’t work for many, if not most, people to look to a payment system as a means to experience well-being, what do we do? It requires a change in the fundamental nature of the match game. In the next article we’ll explore this shift. It begins with identifying your personal concept of the essence of health, well-being and healing. This will vary for each person, and can vary over time. This shift puts each person back into control of their health.

About the author: Deb is co-owner of Experience In Motion, which equips organizations with tools to curate meaningful experiences for customers and employees. Deb’s personal journey from decay to well-being inspired an emphasis in improving healthcare experiences for patients and practitioners by focusing on experiences that heal and self-caring as a way of organizational being. www.experienceinmotion.net.

Note: This is part of an ongoing series to equip you with a process, a path, to identify and experience healthcare that works for you. Other articles in this series are:

The heart of healthcare that works: know your personal worldview of health   

Find your Inner Chris Columbus

Women Are Less Satisfied with Health Care Than Men – Why?

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The New York Times reported that women are less satisfied with their health care than men, citing a study from Health Services Research.

Researchers could see an overall difference between men’s and women’s views, but these differences were even more prominent for particular questions. One question asked patients if they felt they received sufficient information for the medications they were prescribed, and the other question asked whether patients were satisfied with the cleanliness of the hospital.

In both cases, women were less satisfied with health care than men – significantly so. Now the question is, Why?

Perhaps women have just been paying attention to the news. Dr. Mark Hyman explains in the Huffington Post that postmenopausal women are being prescribed cholesterol-lowering medication that increases their chances of getting diabetes – by 71%.

This isn’t the only instance in which women’s health needs were overlooked:

  • Premarin was prescribed to postmenopausal women to prevent heart disease, but it increased their chances of having a heart attack.
  • Studies have found increased osteoporosis in postmenopausal women prescribed osteoporosis medication.
  • Women are prescribed medicine as though they’re men, yet they are more likely than men to have irregular heartbeats due to prescription cocktails.
  • Many doctors don’t realize that pain medication does not have the same impact on women as it does on men. Experiments show Ibuprofen did not reduce pain for women.
  • In fact, the Society for Women’s Health Research and Medco Health Solutions, Inc. presented a study that showed women are prescribed more medication than men, yet they are less likely than men to get the appropriate drug for their needs.
  • The Center for the Study of Sex Differences at Georgetown University in Washington, D.C. explains that your gender can significantly impact how your disease should be diagnosed and treated. Yet the FDA only required that women be included in drug research since 1993.

No wonder women are less satisfied with their health care than men.

Women Are Less Satisfied with Health Care Provider’s Cleanliness

As it turns out, women’s immune systems are more resilient than men’s. Even so, women are more susceptible to certain illnesses and diseases than men are. Some experts suggest a woman’s stronger immune system is the cause for her susceptibility to autoimmune disorders, but the reasons remain unclear.

Sharyn Clough, a philosopher of science at Oregon State University, explained on NPR how society’s emphasis on a girl’s cleanliness could impact her susceptibility to diseases when she gets older, since she may not be exposed to the same bacteria as young boys.

While this may, or may not, be the case, it makes sense for a woman to be more aware of the cleanliness of her environment if she was raised to do so. It is even more reasonable for a woman to consider the cleanliness of her surroundings if she is more susceptible to disease – especially when she is in an institution that treats the sick.

It’s important that health care providers know that women are less satisfied with their health care than men. Voicing our opinions raises awareness, and these industries don’t want to lose half of their market.

It’s entirely possible that women are less satisfied with health care than men because women pay more for health insurance than men – health care that seems to be specifically geared toward the needs of men, not women.

Related Posts:
Women Pay More for Health Insurance
Affordable Care What’s in Effect Now
Falling Through the Cracks

This post was published previously in April 2012. 

 

Patients Come For Care. Not Hospitalists.

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The professor squinted through cigarillo smoke rings. She listened as fourth-year nursing students discussed ways to help Cambodian refugee families be more independent in their new American home.

“This independence drivel is bull s**t. People come for care. Dammit, care for them”, she snapped.

The nursing professor was persona non grata in a Central American country. She cared for—and politicized—indigenous women in the country’s highlands to the displeasure of ruling elite. But her command to care for those who come for care is unforgettable four decades later.

To care for another person means many things. Among them is a willingness to take responsibility for another human being’s welfare. Parents accept responsibility when they care for children; partners accept it when they care for each other. Grown children care for frail parents, assuming responsibility for their well-being.

Nurses and doctors used to accept responsibility when they cared for their patients. No longer. Now care is fractured. Responsibility ricochets around in the ether, never settling on an identifiable person.

Care is splintered among teams, electronic health records, data banks.

And hospitalists.

It’s Academic. The Birth of Hospitalists.

Hospitalists are not new. Robert Wachter and Lee Goldman, writing for the New England Journal of Medicine in 1996, invented the term “hospitalist”. The Society for Hospital Medicine now claims to represent 13,000 of the 44,000 practicing American hospitalists.

Twenty years later, patients are still dismayed to find their trusted physicians will not shepherd them through hospital stays. The substitution of hospitalists for personal physicians is met by confusion and blank stares. Most Americans are unacquainted with the hospitalist idea. People familiar with hospitalist care are rarely enthusiastic about it.

Not surprising. The Wachter and Goldman article didn’t mention patient welfare until a throw-away line at the end. They focused on the prospect of cheaper care first, then physician convenience. Finally, the two authors discussed the advantages of hospitalists for medical education. The authors brushed aside the most damaging effect of the hospitalist scheme with “…any possible discontinuity in care [emphasis mine] is outweighed by improved clinical outcomes, lower costs, better education for physicians…”.

Oh yeah “…and greater satisfaction on the part of patients.”

Perhaps only physicians marinated in academia could be so oblivious of the essential roles trust, understanding and familiarity play in patient satisfaction, much less healing.

Hospitalists: A New Breed of Physicians

Dr. Richard Gunderman posted an update on hospitalists last year in The Health Care Blog. Gunderman lists the benefits of hospitalists for each affected group. He talks about patients, hospitalists themselves, community physicians and hospitals. He hints at the advantages for the most powerful players —insurance companies, including Medicare—but doesn’t explicitly talk about them.

  • Benefits for Patients. Patients may get better care because clinicians are always available. Hospitalists are well-versed in hospital management and part of hospital teams, according to Gunderman. And they are skilled in the latest hospital medicine theories. Dubious advantages.
  • Benefits For Hospitalists. Hospitalists enjoy regular hours, predictable lives and no patient responsibilities off duty. These docs can avoid the messy work of caring for patients with chronic illnesses. Hospitalists need not waste time forming long-term bonds with patients. The hospitalist-patient relationship is a commercial transaction, not a healing relationship. No trust required because the patient has no choice. Patients are captives in hospital beds.
  • Benefits for Community Physicians. Community physicians no longer need to make rounds, a time-consuming and revenue-gobbling activity. Doctors only make money when they do something to or with patients. Driving to several hospitals or writing progress notes on inscrutable electronic records isn’t billable time. Further, they don’t need to stay current on acute care medicine and hospital procedures. Community based doctors can devote their efforts to chronic disease and preventive care. They have no responsibilities to their hospitalized patients.
  • Benefits to Hospitals. Hospitals have much to gain. Gunderman runs down a list of dividends that pile up for hospitals using dedicated inpatients physicians. All are some version of: It saves money. Hospitals can swell their revenue by controlling the hospitalists’ practice of medicine; demanding they deny admissions, force earlier discharges and withhold care. Then the hospitalists and their employers can dodge responsibility for the consequences. Patients turfed out of the hospital disappear. Vanished, like Brigadoon.
  • Benefits to Insurance Companies. Insurance companies and Medicare profit when costs are lower. Drs. Wachter and Goldman promoted hospitalists as a lower-cost way to give inpatient care. Their article promotes cheaper hospitalist care as the leading reason to hire hospitalists: “First, because of cost pressures, managed-care organizations will reward professionals who can provide efficient care.” Managed care was in its heyday in the mid-nineties when ways to control costs began. Managed care organizations fell off radar screens because of bitter patient blowback. Cost control pressure is even more intense now, however.

Commercial insurance companies and Medicare seemed to gain the most by the wave of hospitalists washing over unsuspecting American patients.

That is until the hospitalist management companies popped up.

Rent-a-Doc: Hospital Temp Services

Hospitals aren’t the only players feeding revenue streams. Enter hospitalist management companies, essentially rent-a-doc operations. Large health care systems and academic medical centers often use their own flocks of hospitalists. But many other hospitals are contracting with management companies that deploy platoons of hospitalists from coast to coast.

Where there’s money to be made, there are investors. Where there are investors, there are mergers and acquisitions. Sound Physicians is a hospitalist management company based in Tacoma, Washington. Sound Physicians’s tagline is “Hospital Medicine—the way it should be”.

Apparently Fresenius thought so. It’s a giant German health care conglomerate with a market capitalization of $23.31 billion. The folks in Bad Homburg, Germany parted with a small chunk of that change. Fresenius pumped $600 million into Sound Physicians’ bank account in July 2014, becoming the company’s majority shareholder.

Sound Physicians, with an invigorated balance sheet, did some shopping of its own. The company bought Cogent Healthcare in November. Cogent Healthcare, another hospitalist outfit, based in Tennessee. The combined company employs more than 2250 providers in 35 states.

The hospitalist management company, IPC Healthcare is self-described as “the nation’s leading national physician group…focused on hospital medicine”. It employs about 2500 “hospitalist providers” (includes nurse practitioners and physician’s assistants). Its closest competitor is Fresenius, according to Morningstar.

IPC beats Fresenius in another category, toothe unenviable federal lawsuit category. The company is alleged to have pressured its hospitalists to “upcode” or bill for more expensive services than they provided. This is a civil fraud case, no criminal conduct is charged. Yet if IPC hospitalists are shown to cave in to company pressure to submit fraudulent billings, what other pressures sway them?

Wachter’s World: One-Man Hospitalist Industry

Bob Wachter has done well for himself, too, since he and Lee Goldman published the NEJM piece almost twenty years ago. Many of his accomplishments are listed on his (modestly named) blog Wachter’s World. He heads the Department of Hospital Medicine at University of California San Francisco. He’s published many articles and several textbooks. Peer-reviewed journal articles and texts represent great effort, so some accolades Wachter’s received are earned.

Wachter has spun those accolades into gold. He sits on many boards, advises private companies and government agencies. He was named to the board of IPC Healthcare in 2013. His position is sweetened with various stock and stock option offerings. Wachter is transparent about his financial interests in companies tied to the hospitalist industry.

Wachter is a popular motivational speaker on the lecture circuit. Hard to say who’s more motivated though, the audience or the speaker. He reportedly rakes in more than $25K per speech and gives forty or so talks per year. A cool million would motivate lots of folks to jet around the country and yammer at friendly audiences.

Transparency and objectivity are different things. It’s commendable that Wachter is forthright about his commercial entanglements. But a long trail of studies in health care has shown doctors are influenced by treats like lunches and pens. Stock options and lucrative speaking dates are a new order of magnitude. Wachter has robust vested interests in ensuring hospitalists remain a flourishing breed.

Robert Wachter benefits mightily from the hospitalist crusade he birthed. He cheerfully takes credit for its purported successes. He seems less eager to take responsibility for the failures. Or the federal lawsuit.

Hospitalists: Hype, Hubris and Hypocrisy

Dr. Gunderman also identifies drawbacks to hospitalist care. Many physicians miss long-term ties with patients just as much as their patients miss them. Despite Wachter’s and Goldman’s dismissive attitude, discontinuity in care is an immense problem that’s not solved by technology. Gunderman points out the information in electronic records and “true knowledge of the patient” are distinct notions. Expert, safe care demands knowledge of the patient, not electronic data.

Hospitalists: Who’s the Boss?

Healers have served humankind for millennia. For centuries, trust in the medical practitioner has been the bedrock of care. Hospitalist arrangements erode that foundation.

Companies like IPC and Sound Physicians have a simple formula: The more patients their rent-a-docs see, the more money is made. So an ugly pattern of overworked hospitalists has emerged around the country. Hospitalists themselves have reported understaffing that leads to mistakes, poor communication and even patient deaths.

The hospitalist holy grail of cheaper care is undermined by short-staffing. The bigger the physician workload, the longer the patients’ hospital stays.  And the longer the stays, the higher the bills.

The Buck Stops Nowhere

When doctors hospitalized their own patients, the line of responsibility was clear.  The doctor worked for the patient and no one else. He or she owed a duty to the patient. Full stop. Now the lines have blurred or sometimes, disappeared.

Hospitalist management companies can be controlled from abroad. Hospitals contract with these companies. Physicians employed by the companies see patients in hospitals that want a return on their investment in these contracts. The hospitalists must answer to the hospitals, their employers, insurers and Medicare, perhaps the hospital medical staff.

The only people not owed any answers are patients.

Globalization at the Bedside

Professional practice is built on trust, responsibility and accountability.  It’s difficult enough for patients and families to trust strange hospitalists who dash through on shifts, perhaps three or four docs in a brief hospitalization.  It’s almost impossible, in the best of circumstances, to decipher which hospitalist handles what. Or who should be held responsible when things go sideways.

How much tougher will it be to trust the doctor at your bedside when she has foreign bosses peering over her shoulder, directing your care?  If this is the way hospital medicine should be, heaven help us all.

About the author: Chris Kapsa, NP, DNP has been in nursing for forty-five years, thirty years as a women’s health nurse practitioner. She pioneered private practice for nurse practitioners in Utah and now owns a patient advocate business, Kapsa Care Resources. She researches and writes about America’s chaotic health care system, especially problems of health care economics and distribution.

Fetal Rights Versus Maternal Rights: The Slippery Slope of Personhood

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Perhaps you’ve seen the case of Erick and Marlise Munoz, who reside in Tarrant County, Texas. Marlise is comatose due to a pulmonary embolism and is on life support because she is pregnant. In previous conversations, Marlise had expressed to her husband that she wouldn’t want to be on life support should she become comatose. These wishes, and the wishes of her husband, are being disregarded by the hospital. Current laws in Texas protect fetal rights over the rights of the mother; this means that Marlise will be kept alive until her child can be delivered safely, even though neither she nor her husband desired this outcome. This baby may face many developmental challenges because Marlise has been deprived of oxygen, so Erick will be facing another hurdle.

I had thought that the missing safeguard for the Munoz couple was a living will, which many younger people assume is for senior citizens; that if Marlise had a living will expressing her wish to be removed from life support, she wouldn’t be kept alive. Wrong. Texas law has the authority to void a living will in the interests of keeping a fetus alive. However, this point differs from state to state.

This case accentuates the importance of having a living will at any stage in life, senior or not, as well as discussing your wishes about being kept on life support with your family or partner. However, even a living will may not protect your wishes if you happen to become pregnant; this depends upon which state you reside in.

When did the rights of an unborn child become more important than the rights of the mother, and what is the desired outcome of the fetal rights movement? The term “fetal rights” applies the same legal protection to fetuses as children, meaning that mothers can be imprisoned and sentenced for decisions they made while pregnant that may have endangered the life of the fetus. And, as Vince Beiser of Mother Jones writes, “such tactics may be paving the way for abortion – the ultimate violation of “fetal rights” – to legally be declared murder.”

Take, for instance, the case of Sally DeJesus, a woman residing in North Carolina, profiled in the Mother Jones article “Fetal Abuse”, who briefly relapsed into drug addiction while pregnant, but still sought treatment and delivered a healthy baby. Because she admitted her mistake of using drugs while pregnant to healthcare workers out of the desire to keep her baby healthy, she’s now facing up to three years in prison.

Women’s rights advocates are concerned because this could mean that people struggling with addiction while pregnant won’t seek help because of these legal penalties, and will further endanger their own health and the health of their unborn children. Furthermore, this law penalizes women who use illegal drugs and ignores women who may be endangering their fetuses with legal substances, such as cigarettes or alcohol. If the goal is to protect unborn children from irresponsible or uninformed mothers, it is a sloppy one. It also appears to lead more women into the prison system rather than a system of supportive rehabilitation. If the state cares about the lives of the unborn children it claims to protect, it won’t lead them to have mothers in prison with untreated addiction problems.

What we’re left with is a mass of sticky questions. If the state has the right to keep someone alive against their will and the wishes of their family, who has to foot the hospital bills? Since the Munoz family would not have chosen to deliver the child now being kept alive by the hospital, who will pay for the care of the child that will likely face developmental challenges due to oxygen deprivation? Who is responsible for the child when the state decides life or death?

The fact that the state of Texas can overlook a living will to preserve the life of a fetus also raises the question of how far that can go. What’s the point of making a living will if the state can override it? If the state’s interest is in preserving life at all costs, why honor the “do not resuscitate” clauses at all? Presumably this won’t happen, because the lives of unborn children seem to be more important than the adults responsible for them.

In states where fetal rights advocates have passed legislation, people, especially women who are or may become pregnant, find they don’t get to choose how they live or die. If they’re struggling with addiction, they may further endanger their own lives to stay out of prison for endangering the fetus, rather than seek medical help. Furthermore, certain cases in Alabama and Mississippi are toeing the line for prosecuting women who’ve miscarried due to illegal drug use. Clearly these laws are being put in place to establish personhood for fetuses so that abortion laws can be challenged. That leaves pregnant women in certain states faced with the possibility of jail time for miscarrying, depending on certain factors. Abortion may be legal, but endangering the life of an unborn child, sometimes unintentionally, may become illegal. It’s a frightening state of affairs when the life of a fetus becomes the keystone of determining what happens to the life of a woman. Think of Ireland’s draconian anti-abortion laws and how they led to the 2012 death of Sita Halappanavar, who died while under hospital care because she was refused a badly needed abortion during a life-endangering miscarriage. Sita’s life ended because it was deemed that her fetus, which had already died, was more important than Sita’s own life.

 

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