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From Chrysalis to Butterfly: My Thyroid Journey

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Change is something that we fear
And yet we’re happy when it’s here
It may rob you of all that’s dear
But is often more positive than it may appear

Progress is another game
That’s just change by another name
If we open up our heart and mind
We’ll know treasures of a different kind

The word change is often something that people tend to shy away from, partly because it carries an air of uncertainty, but also because it is associated with a great deal of hard work! Sometimes we know that change has to come and that we have to proactively change something and in such cases we may feel as if we hold the reins, but there are also times when change is thrust upon us and it is up to us what we make of it.

We may struggle to accept the fact that we are capable of adapting to many different situations because, as I wrote above, change scares us. But sometimes it can help us to reap unexpected rewards. In the case of many of the people reading this (myself included), change was thrust upon us in the form of a chronic illness: thyroid disease. Many of us were uncertain what we were dealing with upon our diagnosis and once we were finally diagnosed we were angry and resisted this change – Why me? This isn’t fair! What now?

But when we get sick we have to go through a period of acceptance and realize that we have been presented with a challenge to overcome, whether we like it or not. While faced with these uncertainties and fears, it is okay to mourn the passing of our good health and it is also alright to be emotional and angry – in fact, letting out our emotions and possibly talking to others in the same situation can help us to move on and proactively tackle the life cards we have been dealt. Chronic illness is definitely about acceptance and it’s all about redefining what “getting better” means to you because sometimes it is about the acceptance of realizing that when you are better you may still be changed and different, but learning to live with this and love yourself regardless.

As you will know, the thyroid resembles the shape of a butterfly and, like a chrysalis chronic illness, forces us to go through a transformation. Make no mistake: There will be roadblocks along the way. There will be times when you stumble and fall and feel like you are never going to get up again, but you will and you will probably be wiser and stronger for it, as well as better able to deal with the next roadblock that comes along, even if at times those roadblocks start to look awfully familiar!

In my poem above, I doubt that any of us would agree with the second line – nobody is going to welcome chronic illness with open arms. We’d prefer to tell it to “piss off!”, but down the line some of us will look back and be happy that we have come this far. Many have commented that their diagnosis has improved their life by making them more aware of their health, making them more empathic towards others and allowing them to make a whole host of wonderful friends. Indeed, these points resonate with me, particularly the last one. We moved back to the US in December of 2011 and since that time we’ve been taking the opportunity to meet up with many of my online thyroid friends – it’s been a blast and has meant that we’ve felt a lot less alone than we would have otherwise. Pre thyroid diagnosis I knew little to nothing about health and medicine and now I feel much more in control of my own body, even if it doesn’t always cooperate!

Change is a very emotive word that can come about in a variety of ways. Many people argue that without change there would be no progress and yet others are afraid of the word and avoid it as much as possible. Some people however don’t have this choice and find that change is thrust upon them – through a change in lifestyle due to a necessary move; by splitting up with or losing a loved one; by losing a job and being forced to change careers; by falling ill and having to take time out to recuperate and ultimately re-evalute our life and what we want from it; by discovering an unexpected gift and feeling the need to develop this; by welcoming a new member to our family …

I personally have experienced all these situations and more and the one lesson I have learned time and again is this: it is not about the change itself; it is about one’s attitude to said change and how you deal with it. Positivity and optimism (even when it might seem difficult) can go a long way to turning even the most negative of changes into something positive, albeit at first glance these changes might make us feel as if we are doomed.

Moving, as scary and trepidating as it might seem, particularly if the move is not a voluntary one, can be seen as an opportunity to explore a new place and broaden our horizons. My husband and I lived in Germany for many years, a country where we rarely felt at home, but looking back I believe that the majority of expats (us included) would say that they don’t regret living abroad because it truly broadens your horizons and your intercultural skills.

I can remember splitting up with past partners as I recall the deep pain I experienced by severing that bond, but I personally believe that if a relationship is meant to be both parties will either mutually make the effort to work it out, e.g. through marital counseling, taking a time out and then resuming the relationship or, alternatively, if it is not meant to be, you will move on to a new and more harmonious beginning. When I broke up with one of my exes M, it was an extremely painful time, but looking back it was also liberating because I was forced to come to the painful realization that we were not right together and I was finally liberated to be myself rather than someone he thought he could mold me into. I was ultimately free to go ahead and live my life and eventually meet my husband Corey who truly accepts me for who I am.

When it comes to jobs, about 10 years ago I did an internship in PR and marketing and was unfairly bullied and consequently ended up prematurely quitting my position. I was in a panic as to what would come next and how on earth I was going to drum up enough money to pay my rent in a foreign country. But within just a short time, what seemed a curse had turned into a blessing. During my internship, I had realized that I was a talented translator and so after I left that company that is the career I ended up pursuing and was soon earning many times more than I had been at the poorly paid, exploitative internship and felt much more appreciated and fulfilled.

A few years after that, thyroid disease forced me to slow down and smell the daisies. Since I was a little girl, I’ve had a passion for writing, but in recent years have had trouble coming up with inspiration for things to write about. I realized a long time ago that I like helping others, but how to go about it? When I fell ill, I was given the answer. I was given the opportunity to turn a negative experience into a positive one by sharing my experiences with others in my situation and putting pen to paper was a cathartic and therapeutic experience that taught me about how I was feeling and also enabled me to mentally heal and get past certain blocks that had previously hindered my path.

These are just a few examples of how something that is initially perceived as a negative change can in fact be turned into a positive change and how we have the power in our own hands to do this! It requires us to believe in ourselves and realize that sometimes we have to expect the unexpected. As human beings, we are very skilled at adaptation and transformation – like Andersen’s ugly ducking (who was modeled on himself, by the way), we do have the power to become a shining swan; like Hank Morgan, Mark Twain’s Connecticut Yankee in King Arthur’s Court, we can adapt to the craziest of situations and as a chrysalis we can turn into a butterfly – a thyroid butterfly in all its gorgeous colors! ThyroidChange itself is a prime example of how a few people have the power to inspire others by taking a dream and making it happen. As weak as each of us may feel at times, together we are a powerful resource and support for each other. There is no need for us to accept the status quo because, as others before us have proven, we have the power to change it if we only try.

About the author: A long-time writer and blogger, Sarah was diagnosed with Hashimoto’s thyroiditis in August 2009. This inspired her to use her writing skills to help and encourage others in similar situations. She writes regularly for ThyroidChange. 

This article was posted previously on ThyroidChange and re-posted with permission.

Iodine Deficiency and Thyroid Disease

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Iodine is an essential dietary element needed for proper thyroid function. In the US and many industrialized nations, dietary iodine is found in table salt – iodized salt. Without dietary iodine, hypothyroidism, goiter, weight gain, depression, fatigue ensue. Hypothyroidism, a result of iodine deficiency during pregnancy, is the leading cause of preventable mental retardation and neurological deficits in children.

In the US, approximately 10% of the population is iodine deficient while 50% of Europe is iodine deficient (Zimmerman 2009). Iodine deficiency has been increasing in the US, in women of reproductive age, 14.9% percent are potentially deficient (Hollowell et al. 1998). Similarly, the incidence of congenital hypothyroidism in newborns has also increased in the US over the last two decades (Parkes et al. 2010).

Iodine deficiency in women can lead to overt hypothyroidism and consequent annovulation, infertility, gestational hypertension, spontaneous first-trimester abortion, and stillbirth. Iodine deficiency is also associated with increased risk for thyroid carcinoma in animals and humans.

This deficiency is preventable through supplementation, but it must be identified first. Simple urine tests exist, but are not common in medical practice.

In the coming weeks, Lucine, in partnership with ThyroidChange and others, will be exploring thyroid disease in women. If you have been diagnosed with thyroid disease, tell us your story. We’d like to hear from you.

The Thyroid-Fluoride Connection

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The Thyroid Pandemic

Are you one of the 27 million Americans suffering from a thyroid condition? Have you been told that you will have to be on medication for the rest of your life or get treated with a radioactive therapy to destroy your thyroid gland?

There is an increasing amount of disturbing evidence that one of the factors that could be causing the thyroid pandemic is the presence of fluoride in our drinking water. It’s not the only one but it certainly is one of them.

This should not be surprising. According to a 2006 report by the National Research Council of the National Academies, fluoride is “an endocrine disruptor in the broad sense of altering normal endocrine function.” You might have guessed it; the thyroid is part of the endocrine system.
What The Thyroid Does

The thyroid gland produces thyroid hormones, which are needed by every cell in our body. A shortage or excess of thyroid hormones throw us out of whack causing symptoms like interrupted metabolism (weight issues, fatigue), memory loss, depression, anxiety, hair loss, infertility, high blood pressure, constant joint pains and many more.

The thyroid gland binds with iodine to produce one of the thyroid hormones, called T4, also known as an inactive hormones (as it does not do much for us). T4 is then transported to the intestine and the liver where it gets converted to T3, the active hormone that our body is actually using to function properly.

Fluoride’s Interference With Iodine

We are now finding out that fluoride inhibits iodine’s ability to bind with the thyroid gland. This means if we drink water with high amounts of fluoride, our thyroid is interrupted and cannot produce enough T4. Insufficient T4 means insufficient T3. It is also believed that fluoride slows down the conversion of T4 to T3 hormone which could explain why in spite of being on medication like Synthroid many people feel far from well. Again, this could be just one reason amongst many others (such as toxic load of the person, poor diet, chronic stress, etc).

In the case of people with hyperthyroidism (excessive thyroid hormone production) you might think this is a desired outcome to see your thyroid function reduced. Well, not really. People with hyperthyroid are known to have a high level of toxicity from water, food, stress, heavy metals, as well as nutritional deficiency and imbalances. Ingestion of fluoride will make the toxicity and imbalances even worse, it’s therefore key to address the quality of drinking water too.

Even the Government Is Backing Off Fluoride Now

The fact that the U.S. Department of Health and Human Services (DHHS) has announced plans to lower the recommended level of fluoride in drinking water is showing us that the government is finally making the connection between our health, our thyroid and the water we are drinking.
Would I Get Tooth Decay?

Think of it this way: most countries in the world do not add fluoride to their drinking water and they don’t have tooth decay any more larger than we do. In fact, most of the European countries declared addition of fluoride to any food and liquid substances outright illegal. The United States is one of 8 countries in the world that still adds fluoride to its drinking water.
So, What Can I Do?

The truth is: removing fluoride from water is very difficult and expensive as the only commercially available filtration system is reverse osmosis. My recommendation therefore is: do what you can and get a water filter that reduces the amount of fluoride in your drinking water.

This article was contributed by: Magdalena Wszelaki, a Thyroid Diet Coach. Magdalena is a former Hashimoto’s patient, in remission now for a few years. She attributes much of her own, and her clients’ healing to detoxification of the body. She’s currently offering a series of free information about detox and thyroid health on www.ThyroidDetox.com.

Blind Faith, No Longer Blinded: Tales of Thyroid Illness

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At 11-years-old, you hardly understand the complexities of life and the implication of any diagnosis. My doctor told me I had Hashimoto’s Thyroiditis, and that it was insignificant… a pill, every day, and blood tests, every 6 months. Simple. My mother, a pediatric nurse, brought me to the best pediatric endocrinologist in the NYC area. With blind faith, I went about life veiled by ignorance about thyroid disease.

I professed my Hashimoto’s at every medical visit. Yet, it was never considered in any treatments. I was told I was depressed and prescribed anti-depressants. I had irregular periods and was prescribed birth control pills. I had dry hair and told it was from processing and products. My skin was like that of a crocodile. Must be genetics, as I shared so many similar behavioral, mood and medical similarities to my father. I accepted my genetic fate, but never once made the connection to our shared diagnosis of Hashimoto’s. That is, until the Hashimoto’s emerged and demanded recognition.

My doctors called it postpartum depression. I could not seem to manage my moods and anxiety, but I was not depressed. This was my third child and the baby weight was not coming off. Something was wrong, I could feel it in my soul. I was driven to research my disease. Soon, I realized all of my idiosyncrasies were symptoms of my “insignificant” disease and my hormone imbalance was distorting my reality.

In the 24 years since my diagnosis, the field of Endocrinology has improved the treatments of Hashimoto’s and other thyroid conditions, yet my treatment remained the same. I encountered countless others who also had their lives forever shifted due to these “insignificant” disorders, but I also discovered treatment options that alleviated those symptoms. My blind faith that my physician knew best dissolved. My doctor transformed into a human with flawed knowledge of a rapidly changing field, and from the once naive patient emerged a woman who refused to accept this was acceptable.

This shared experience with innumerable thyroid dysfunction patients also suffering from symptoms of a disease, yet labeled with minimizing terms such as depressed, mentally unstable and hypochondriacs. This motivated me to action. If we demonstrate and express our experience, if we grab the ear of our physicians who dedicate their lives to healing us – then I have faith we can change our future and heal the next generation. This new found faith inspired me to write, “Endocrinologists: Patients with Thyroid Dysfunction Demand Better Treatment.”

This international petition amassed over 3600 signatures from over 65 countries. It inspired, Denise Rodriguez, an amazing woman with a different, yet similar, thyroid journey, to shape and mold my raw petition into the amazing movement it is today (a little less than 3 months later). We just launched ThyroidChange™, a web-based initiative, to unite the voice of thyroid patients worldwide.

Hormones matter! I have faith that our voices, when strengthened with worldwide support, can change the future of thyroid care. Please join us on our journey.