The Fluoroquinolone Antibiotic Side Effects Survey

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Side effects
Introducing the fifth in our series of crowdsourced health surveys and our first to include men and women: The Fluoroquinolone Antibiotic Side Effects Survey.

At Hormones MatterTM we have read the stories about the adverse reactions associated with the fluoroquinolone antibiotics, Cipro, Levaquin, Avelox and have been struck by the depth, breadth and life long nature of these symptoms. We are concerned by the lack non-industry sponsored data, and so, we created this survey, the first in a series of studies on this topic, to begin the process understanding fluoroquinolone side effects.

About the Fluoroquinolones

Individual reports abound about the dangers of the fluoroquinolone antibiotics. After over 30 years on the market, it is only recently that the FDA issued issued its black box warning about the risks of tendonopathies. We think this is too little too late and aim to determine the real breadth of reactions by going direct to you, the patient, the recipient of the fluoroquinolone antibiotics. Since the fluoroquinolones represent the most frequently prescribed antibiotics in the US, likely elsewhere too, and 39% of those prescriptions may be unnecessary, we think it is especially important to collect comprehensive and objective data about the risks and range of adverse reactions.

We need your help to gather these data. Please take this survey and share it with your friends, colleagues and anyone you know who has been given a fluoroquinolone antibiotic. Please post on your Facebook pages and share on Twitter, Linkedin, Reddit and other social media. We will need thousands respondents. That requires crowdsourcing. And since we are an unfunded venture, feel free to contribute to this research too, by clicking Crowdfund Us.

Purpose of the Fluoroquinolone Antibiotic Side Effects Survey

Patients and their physicians need more data about the side-effects of the fluoroquinolone antibiotics. There is a lack of data about who is at risk for adverse events and whether certain pre-existing conditions increase one’s risk for an adverse event. There is also a lack of data about the long term health effects of these antibiotics. The purpose of this survey is to fill that data void; to learn more about the risks for and nature of adverse events associated with each of the fluoroquinolone antibiotics, Cipro, Levaquin, Avelox and others. This will be the first of a series of studies on fluoroquinolone reactions.

Who Should Take the Fluoroquinolone Antibiotic Side Effects Survey

Anyone who have been given one of these medications, whether a reaction developed or not, and/or the parents or other family members of children too young or patients too incapacitated to take the survey for themselves.

How Long Does the Fluoroquinolone Antibiotic Side Effects Survey Take?

This is a long survey. We felt it was important to assess the full depth, breadth, onset and severity of adverse reactions in order to give patients and physicians the data they need to make informed medical decisions. This necessitated a longer than desired survey. We estimate it will take approximately 20-30 minutes to complete the survey.  We hope, given what is at risk, survey respondents will take the time to complete the entire survey.

Is the Survey Anonymous and Secure?

Yes. We do not collect personal identifying information and the survey is hosted with SSL encryption using a verisign certificate Version 3, 128 bit encryption.

How Will the Data be Used?

To inform future research and health decision-making.

Who is Conducting this Research?

Researchers from Lucine Health Sciences and Hormones MatterTM. For more information on Lucine Health Sciences, click here. For more information about Hormones MatterTM , click here.

Take the Fluoroquinolone Antibiotic Side Effects Survey Now!

What Else Can I Do To Help?

Our organization is completely unfunded at this juncture and we rely entirely on crowdsourcing and volunteers to conduct the research and produce quality health education materials for the public. This study, and many of our studies, are driven by patient requests and patient involvement.

If you’d like help us improve healthcare with better data, get involved. Become an advocate, spread the word about our site, our research and our mission. Suggest a study. Share a study. Join our team. Write for us. Partner with us. Help us grow. For more information contact us at: info@hormonesmatter.com.

To support this or other research projects – Crowdfund Us.

To take one of our other surveys, click here.

To sign up for our newsletter and receive weekly updates on the latest research news and opportunities, click here.

Thank you in advance for your help.

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15 Comments

  1. Hi,
    Words cannot express my gratitude for this work (hopefully I will be able to express gratitude via crowdfunding when I have a job again).

    This may be a dumb question, but is there a “list” of generic named Fluoroquinolones? What are they commonly prescribed for? I’ve been given z-packs for walking pneumonia and ton of antibiotics as a child (grew up in the 1990s) for strep and scarlet fever. I suffer a laundry list of health issues (chronic untreatable yeast infections, acne inversa/hidradenitis suppurativa, migraines, joint pain, extreme fatigue)

    Can this a glabrata infection cause cognitive issues (focus, mixing up words/spelling–unusual for me)? Can I walk in and “demand” my PCP look into fungal testing? Afraid they will just think I’m crazier, as I am always complaining of being sick despite mostly acceptable blood work.

    Pleases let me know if I can be of help in any other capacity. I am desperate–though brave and fierce women like yourselves sustain me.

    1. Yes, you can demand fungal testing, because if you don’t who will? Read Debra Anderson’s post on Glabrata and Lisa Bloomquist’s article on post FQ fungal infections. They are quite common unfortunately.

  2. Hi,
    Words cannot express my gratitude for this work (hopefully I will be able to express gratitude via crowdfunding when I have a job again).

    This may be a dumb question, but is there a “list” of generic named Fluoroquinolones? What are they commonly prescribed for? I’ve been given z-packs for walking pneumonia and ton of antibiotics as a child (grew up in the 1990s) for strep and scarlet fever.
    Can this infection cause cognitive issues (focus, mixing up words/spelling–unusual for me)? Can I walk in and “demand” my PCP look into fungal testing? Afraid they will just think I’m crazier, as I am always complaining of being sick despite mostly acceptable blood work.

    Pleases let me know if I can be of help in any other capacity. I am desperate–though brave and fierce women like yourselves sustain me.

  3. I was treated approximately 2-3 times per year for past ten years with Levaquin and just learned of this fluorotoxicity and I have every symptom mentioned in Lisa Bloomquist’s article to the extreme. I’m not sure what to do to next, have been following protocol for gluten and processed food sensitivity for past year but still struggling. Just heard of this for first time a few days ago.

    1. Join the FB fluoroquinolone toxicity group. I joined 2 weeks ago, after my first and very major attack. It was horrific.

    2. GO TO A NEUROLIGIST AND HAVE A NERVE CONDUCTION TEST IT IS VERY PAINFULL, BUT THEY CAN TELL IF YOU HAVE NERVE DAMAGE,I HAVE NEUROPATHY IN BOTH FEET AND LEGS AND MY HANDS IF NOT FOR NEURONTIN I COULDN’T WALK. I WAS GIVEN LEVAQUIN IN JULY 2014 BY AUGUST 5TH I COULDN’T WALK.MY PRIVATE DR SENT ME TO THE NEUROLIGIST,AND JAN.2015 I WAS USING A ROLATOR. I ALSO HAVE FIBROMYALIGA,TENDONOPATHY IN BOTH SHOULDERS AND KNEES,I DID WATER THERAPY FOR TWO YEARS ON AND OFFAND CAN WALK, BATHE,AND DRESS MYSELF SOME TIME WITHOUT HELP.I HOPE YOU NEVER TAKE THIS POISON AGAIN.

      1. Levaquin loves the knees.. I got relief with magnesium chelate, tart cherry pills and juice, pure fish oil omega 3.. 100% natural vitamin E as d-aloha-tocopherol, B complex for neuropathy, coQ10.

      2. Brenda, I was down to a 5 or 6 on the pain threshold with 10 being the worst. I had a nerve conduction test and went back up to a 9. It’s now 4 weeks later and it’s only just begining to dampen down. The test said there was NO damage, crazy, but the test does not get down to the cellular level. So if it was me I would advise others not to take the test.

  4. My healtg issues have spiraled since taking levoquin for walking pneumonia. .. then to find out I had an overgrowth of bacteria in ny intestine..

    1. Bella there are several natural remedies for UTI,s especially if you have had serious adverse effects from these antibiotics, I have suffered since 2007, I am trying to heal myself with help from others whom also have been severely injured from Levequin, Cipro Avelox and many others in this category. Please join Floxie Hope for information that will help you with questions from others who share the side effects and are trying desperately to heal.

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