I have been living with endometriosis for roughly 16 years. Like many women, it took a long time for me to get a diagnosis. In fact, it took 14 years to get a surgical diagnosis, 7 years after my first complex cyst was seen during an emergency room visit. I spent years enduring agonizing period pain, chronic pelvic pain, nausea, fatigue, bowel problems, and ovarian cysts. Even after my surgical diagnosis, I had to fight to get the effective treatment and diagnostic care that I deserved. The following video gives you just a snapshot of one year of my life living with endometriosis; a year that I will never forget; a year that will haunt me for years to come.
Living with Endometriosis: a story of struggle and hope
Thanks to a highly skilled excision specialist, I have been given a second chance at a functional life. However, the journey to healing is not yet complete. To read my full story, including my struggle for a diagnosis, two surgeries, infertility, and how I lived through my recent miscarriage, visit:
Kelsey is an Early Childhood Educator, patient advocate, and blogger from the Boston area. She chronicles her journey using sewing as a positive outlet while living with chronic pain and Stage IV Endometriosis. Unofficially diagnosed at 22, Kelsey has spent seven years learning about her disease, and has recently become active in Endometriosis research and advocacy.She recently founded Endo Sisters Healing Together, a support group for New England-based women with endometriosis. To read more, visit her blog at www.silverrosewing.blogspot.com