In the ER … Again! Heavy Menstrual Bleeding

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heavy menstrual bleeding
“You really shouldn’t be doing this,” the ER doctor informs me. As if I have any control over my body and its screwed up menstrual cycles. As if I choose this hormonal fate. I want to punch him, but I can barely keep my eyes open to look at him while he talks. “You really need to figure out why you are bleeding so heavy, this isn’t normal.”

If I had enough energy to lift my limp head up off the hospital bed, I would point out the fallacy in his logic – this is not my responsibility. I have been in and out of ER’s and doctors’ offices since I was 18 years old from menstrual bleeding so heavy that I pass out or nearly pass out. It always seems to be more of an inconvenience than a concern for doctors. Oh they are concerned at first. But as soon as I explain my history of this problem, his concern, like all doctors, turns into annoyance. As soon as I tell them I don’t want to take oral contraceptives or any other type of artificial hormone, the concern quickly evaporates like the sweat dripping down my forehead in spite of my shivering body being wrapped up in blankets. Even after I explain my experiences on oral contraceptives (OC) and how the four times I have tried to take it to regulate my periods, I bleed like this every single month, not just occasionally, and that’s on top of the other side effects: extreme depression, weight gain, and epic mood swings that cause my boyfriend to nearly dump me (and who would blame him – I’d dump me if I had to deal with the monster I become on OC).

“Ok” is all I have the energy to muster as I close my eyes to prepare myself for the next cramp I can feel billowing in my lower abdomen. I let the pain wash over me as he continues oblivious to the pain I’m in.

“You need to follow up with your primary or gynecologist,” he tells me. “I’m going to give you progesterone to stop the bleeding…” he goes on to explain the difference between progesterone and estrogen. I don’t stop him to tell him I write for a women’s health ezine or that I’ve done enough research that I likely know more about women’s health and hormones than most general doctors.

A few minutes later my nurse, I’m tempted to start a new religion just so I can appoint her as a saint, walks in with my discharge papers. “Ok honey, I hope you feel better. I’m so happy it’s not an ectopic pregnancy or anything serious.” Throughout the day she has brought in warm blankets and shown more compassion than any doctor I have ever met. I am a problem they can’t fix. They aren’t Dr. House so they’d rather just pass me off to another doctor and move on to a more exotic problem. I’m just a noncompliant patient with hormone problems. God forbid I ask them to think outside the box and figure out what is causing this excessive bleeding. My nurse takes out the IV as careful as you can take out an IV and in a motherly tone says, “I’m glad everything came back normal, but sometimes not knowing is even worse. You go home and take it easy.” I fight back tears. Exhausted and hormonal, I want to hug this woman for her simple acts of kindness and compassion.

“This isn’t really anything new.” I tell her, even though she already knows my medical history. “It sucks, but I’m used to it now.”

“But it shouldn’t be like that,” she says. Like I said, this woman should be appointed as the saint of Emergency Departments.

On my way out of the ER, I stop by the hospital pharmacy and pick up the prescription for hormones that I won’t take. I head back to my office to explain to my male boss that everything was fine and try to make it sound serious enough not to sound like a hypochondriac. He smiles and Okays me to work from home the next day.

I go home to my very concerned boyfriend. I throw the bag with the “magic” pills on the counter and exasperated say, “they gave me IV fluid and hormones, but I’m not taking them.” Naturally, this causes a fight that I don’t have the energy to deal with…again.

Boyfriend: You need to take the medication they give you.

Me: It won’t help and it just messes my system up even more.

Boyfriend: [throws arms in the air … like he’s more exhausted than me at this point?!] You’re not a doctor.

Me: I’m going to bed.

Like every time before, the bleeding slowly lets up in the following days. I’m not a prophet, but I can tell you how this story will end: For the next few weeks, I will walk around like the living dead. I will force myself to eat in spite of having absolutely no appetite. The doctor will call to follow up. “Do you want to take birth control now?” she will ask and when I tell her no, “there’s really nothing more I can do for you at this point…” I know this is how everything will play out because history is simply repeating itself. Sadly I have learned to accept it. In another month, or six, or maybe even a year, I’ll be back in the ER and the cycle will repeat itself again. As I write this I’m so faint that I’m debating going back to the ER to test my blood levels again, but resignation is the only emotion I can muster. Not concern for my own health, but resignation that this is as good as it gets so why fight the system?

So, why do hormones matter? Why don’t hormones matter is a better question. Why is this story an acceptable fate for me and so many other women?

This article was first published on Hormones Matter in July 2013.

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111 Comments

  1. I have to give my opinion on something, well not just mine but several women’s advocates. Look at history to get a clue why our periods are not normal now. I dont care if they call a 5 to 7 day period normal in the 20th 21st century it wasnt always. Women are starting younger and going longer than ever before, we havee girls 7 years old starting menstruation! Thasts absolutely ridiculous and no its not normal, but it is happening. The average age of starting is now 12.1 years, that means women are exposed to more cycles more hormones and out of control hormones for far longer than in history.Leading to more health effects, like cancer.

    There is nothing we can really do about it either, its in our food our air our water, its in the dirt we grow crops in and the animals we feed on. Its synthetic hormones BPA and growth hormones and antibiotics. These things have changed womens bodies on the whole over decades. Children are giving birth, children! not 12 and 13 but 7 and 8. This should horrify and outrage women around the world, we have been changed,we are no longer natural as intended, no this is not normal. No modern menstrual cycle is normal.

  2. Wow! This article and all the comments are so helpful! I’ve read that 1 in 5 women suffer from heavy periods but it doesn’t seem like anyone talks about it because I don’t personally know anyone besides myself that has this problem. I’m 54 and and still going through peri-menopause. I have five children and miscarried my 6th pregnancy. My periods started gradually becoming heavier in my late forties and then my cycles got first longer and then shorter.

    Two years ago, I started having trouble with blood gushing out when I stood up or if I moved. My PCP diagnosed me with anemia and sent me to get an ultrasound to look for fibroid. It showed one fibroid on the outer wall of uterus, so that wasn’t causing the bleeding and a number of ovarian cysts. The report also said that my uterine lining was too thick. I was referred to a gynecologist.

    Gynecologist ordered another ultrasound a few months later and the lining was still too thick, so she did a uterine biopsy. (I was really scared to get it it after ready how painful it was for some women. Fortunately, I felt no pain at all and didn’t even bleed the next day.) All the biopsy showed was that I had recently ovulated. After that my periods were normal for awhile and then I didn’t have one for a few months. When it returned it was very heavy and lasted more than a week.

    In the meantime, my doctor left the practice and they gave me a male doctor. He wanted to do a hysteroscopy but I am in no hurry to have that done so he put me on Provera and ordered another ultrasound a month later. When I returned after the ultrasound, that doctor was gone too and I had yet another new male doctor. Ultrasound showed that the hormone was working and everything was going great: regular periods with on a few days of heavier bleeding and clots, I got fewer migraines and was no longer anemic.

    Then this past spring, I started spotting between periods. When I mentioned this at a follow up appointment, the doctor said my body wanted to reassert it’s own cycle and he took me off the Provera and ordered another ultrasound which showed normal lining thickness and new cysts and a new fibroid. I let him know that I was getting bad migraines since being off provera and skipped a period. He told me to keep track of cycles for 3 months then come back but that I’d be seeing another doctor because he is moving away.

    I had a period on May 31st but didn’t have another until August 23. I have been bleeding every day since. At first it was light with a few heavy days, but this past week, every day has been very heavy with clots up to the size of a silver dollar. I had to wear my period panties (which by the way are a god send even though they’re expensive,) every day but only have two pairs and didn’t have time or energy to to wash them so wore regular underwear with a long overnight pad and paper towel.

    I only went one day without a migraine this week and have terrible cramps and feel exhausted when I’m working or driving. I had a neurology appointment and was running late so literally ran from the car to doctor’s office about a mile from where I found parking. I sat on a share to get my blood pressure taken and when I stood up, there was blood the chair. I was horrified as this is something I’m often afraid of happening. They gave me a paper protector to sit on. The neurologist told me that this isn’t normal, that I’m almost to the point of needing a transfusion and might even need a hysterectomy. She said that I should ask gynecologist for a sooner appointment and lie to the office girls saying that I’m faint and dizzy. I don’t want to go too soon, because I don’t want the scope and since I don’t know if the new doctor will try to push it. I actually had 2 months worth of Provera left and have been taking this week, but neurologist thought that was a bad idea. She also said taking iron won’t prevent me from getting anemia because there’s enough iron in the red blood cells but not enough red blood cells. (Last month, when I asked my PCP to check iron levels, they were normal.)

  3. Every word down to every detail mentioned in this story is all me!. I wish we could come together and raise awareness. I almost bled to death from my blood going down to # 4 and I’m tired of getting blood transfusions and dnc surgeries just to stop the bleeding. I’m tired of passing giant blood clots the side of two fist that I literally have to push out of me. I’m tired of blood dripping down my legs onto the floor and ruining my slippers. I’m tired of losing jobs and having to miss work and school because of this. I’m tired of having to wear all black and having to buy $20 bags of gigantic pads every few weeks. I’m tired of feeling like crap and passing out. I’m tired of having to go and sit with the sweet and kind cancer patients to have to get iron treatments through the IV’s. I’m tired of having to bleed on the chair and through 10 different pairs of pants in front of people. I’m tired of not being able to have intercourse for months. I’m tired of having to sit on news papers in people’s cars just so I don’t bleed through. I can’t even wear tampons because it will come right out literally. I’m tired of not being able to move around in bed because it will look like a murder scene took place if I just as if turnover from my left side to my right at night. I’m tired of waking up in the middle of the night having to change my sheets because I bled right through a bedding pad and a towel. I’m tired of feeling like I’m peeing on myself and using 6 huge pads at one time and my underwear still messing up even after wearing all of those pads. I’m tired of the headaches, heart palpitations, shortness of breath, fatigue, chest pain, sweats, chives, leg pain, abdominal cramping, and so much more. I’m tired of being given 100 different types of hormones that make things 10 times more worse. Im tired being told that a hysterectomy may be my only option and then I’m told that I’m to young. I’m tired of seeing a million different gynecologist only for them to tell me they can’t help me. Im tired of the ER trips just for them to examine me and mention to me that it’s so bad that it looks like I’m hemorrhaging. I’m only 28 and this has been going on since I first got my period at 11 years old. It’s humiliating and to hear people that have a normal flow complain about their menstrual makes me think “How dare you complain” 😑

    1. Wow…I could have wrote this…..day 8 of a period, have had to change a super plus tampon and a overnight pad every hour day and night for 8 days. There is no sign of this letting up. Does anyone have anything that has worked for them? I have been trying to research naturopathic ways, as I have tried everything else.

      1. Wow, I”m going through the same exact thing..I”m 47 and suffer from endometriosis 30+ years, but I have been bleeding for 42 days straight, like a horror show , I have to wear double overnite pads two towels on my bed and still i bleed through everything, i run to the restroom leaving a trail of blood everywhere, been to the e.r. 3 times in six weeks , for me there is NO pain meds out there for this, it feels like im in labor…i had an appointment with gyno this week and she sent me provera, been on it two days and im miserable my bleeding is worse im nautious, cant eat, cant walk it makes me fatigued, I”m dizzy ..I wish I could say something positive . Im always trying to look at the bright side of thing and staying positive and hopeful…but with this situation, I cant….good luck to all you ladies suffering..hope to stay in contact…. Raquelgonz123@yahoo.com

    2. I feel bad for you because i have gone through this for 40 years hun. And for some of us it gets worse the older we get. At 51 im tired of dealing with it all i want this nightmare to stop. My mother had horrible periods right up to 62 when she had a hyst because she was so over it. Lets face it for some of us there is no easy fix. You have a choice a shitty choice like a hyst or an even shitter choice of living like this for 10 15 20 years.

      The drugs dont work, the hormones stop working after a while, ablations wont work in the end, diet and exercise and supplements do little for women who truly hemorrhage. Its a sad life full of embarrassing situations and loneliness. Because you cant go out and play like your friends do, you are either too weak , bleeding too much and dont want an accident, its a horrible way to live. And i have lived it my whole menstruating life minus 5 years. Some women truly are cursed

  4. Reading this I could relate at 18 I was diagnosed with PCOS which turned into a monster over the years I’m now 25 and have been forced to use BC due to major blood lose I’m on 2000 MG of Iron which doesn’t help but makes me bleed more . I’ve gone a whole year with a menstrual Cycle many of times. Only if they were a doctor who could invent something to help all the billions of women going through the same issues. My husband left me since I wasn’t able to conceive due to always being on my menstrual. I have a new boyfriend and he is definelty going to leave me I’m severely depressed , I have horrible mood swings, I have gained so much weight within the last 5 years I can’t recognize myself, I have ridiculous hair growth where I’m starting to look like a man some days I want to just give up. I just want to be normal again but the way my life works I realize this is just the beginning. So far being on clomid and metformin have helped me be regular . Good luck to all of the woman going through the same thing we can make it together.

  5. I will read this more after getting some more sleep… I’m too exhausted to read, but this is day 28 of my period. I only had 6 days off spotting prior to that which came at the end of a 15 day period. I wear a cup which holds almost 2 tablespoons of fluid. I’m changing it 3 times a night and 3-4 times during the day. I’m absolutely exhausted. Called my ob for an emergency appointment a week ago… today at 3pm was the first they had. My tubes are tied, I’ve had a softball size cyst rupture before which i had surgery to clean up. My son has a severe bleeding disorder, glanzmanns thrombasthenia, which apparently I’m a carrier of, but i don’t think i have or I’d have died long ago. My periods have been regular until recently. Normal heavy couple days light couple days. Like clockwork. This is killing me and the pain of the cramps and aching is terrible. I’m 35 yo and feel like I’m bleeding to death. Hopefully i get some answers today, but after reading all of these responses, my hopefulness is fading.

  6. I’ve had this kind of period since I was 8. I’m talking 2 pads in an hour. After 25 year I was finally diagnosed with a bleeding disorder called Von Willebrands. I’ve only been in treatment for it, a nasal spray at the beginning of my period, for 2 months now and it has really helped with the bleeding.

    If you’ve got bleeding like this you need to make your dr check you for all bleeding disorders. Several drs wouldnt even test me for the Von Willebrands because they said it was rare and unlikey. Make them test you or find a dr that will. its life changing.

    1. Yes- I was going to ask if these people have been tested for vWD! I have it too and suffer horribly with bleeding. I’m in emerg right now because I am basically hemmoraging with this cycle. It feels like early labour!

  7. I’m not sure if this is even the thread I should be commenting on, this is the only article I’ve read so far.

    I had my third child (second cesarean) and a tubal ligation done about 3 and a half months ago. Yesterday was day 1 of my first period since. I’ve always had irregular, somewhat heavy flow, painful periods since I got my very first in 6th grade. But they have never been like this, and quite frankly it’s concerning. I’m going through super tampons and maxi pads in an hour, I have very severe cramping all over my belly, and I’m extremely light headed & fatigued. This is just DAY 2 of my cycle! My boyfriend almost dragged me off to the ER against my will, because I know how most drs are with this topic & I don’t want to waste my time and wake my kids up for nothing. I shouldn’t mention that I’ve been told after both of my c-sections that I have “a little anemia” and I should take iron, which I do. I also eat a pretty iron packed diet. I’ve never had any uterine issues that ive been made aware of and other than cesareans no major surgeries either. Should I go to the ER or should I wait and call my OBGYN in the a.m. and see what he says? I haven talked fainted or passed out, but every time I stand up whether it’s slowly or not i come pretty close to falling back down.

  8. I have been through similar. Recently found i was anemic and am bleeding so heavy and with such large clots thar i can only make it about half way through an hour long session with,a client without having to excuse myself. I have been anemic before and cannot take the pills. They make me feel like im having a heart attack. Everyone says its heart burn but thats not what it is. So, the doctor set me up for an infusion. Oh lord! Again, felt like a heart attack along with nearly passing out, etc and spent 6 hours in tge er. Happy for steroids at that time. So, ive decided to try birth control pills once more (i am 44 years old). Its not what i wanted but i have to get real… this is not something that i can live with. If they dont work, im going to consider a hysterectomy. Im just so close to menopause that i hate to do that now. I should have done it 15 years ago.

    1. I would avoid a hysterectomy as you will create many more serious problems and they will be worse than the bleeding. You will get to menopause and then the bleeding will stop. I had very similar symptoms to yours and when I was diagnosed with an ovarian mass which they scared me into believing might be cancer, I proceeded with the hysterectomy and ovary removal. Removing your uterus will leave you with a lifetime of problems as your bladder and bowel will eventually fall out a place and you will be dealing with the nightmare of prolapse symptoms. Dr’s have no permanent way of repairing the anatomy once the uterus is removed. My life was destroyed by hysterectomy and all the failed surgeries since that time have taken a toll on my health and the lives of my loved ones. I will suffer with the pain and humiliation of nonstop doctor visits, until the day I die. Really do some research so you understand the consequences of hysterectomy if you decide to proceed with the surgery.

  9. My cycles are normally the regular 5 to 7 days. It usually consist of cramping (witch advil normally knocks right out, thank God), and my two first days are ALWAYS heavy. I have to double up and still change every hour. Sometimes, I get nauseous but that has been an issue since I first started at age 13. So, my lasy pphysical, I found out I was anemic. Iron pills was the recommemed remedy. It’s worked so far with the heavy flow and cramping. I actually skipped month after starting the iron pills. I’m sorry to hear some of your stories ladies, I really wish these doctors would be more patient and understanding. But find out if you are suffering from anemia. Good luck to you all….

    1. My periods started out painful and heavy also. They didn’t let up to something normal until I had my first kid. Something about that calmed everything down.
      I don’t know. Maybe if she and her boyfriend is ready to start a family and have kids?

      Other then that, the only solutions I can think of would be an ablation, or outright hysterectomy. They are also getting close to uterine transplants.

  10. I stumbled across this article after researching (for the millionth time) what i should do about by extremely heavy, painful, and abnormal periods. And can I just start by saying thanks you. It is a huge relief to know somebody else feels the exact same way that I do. During my last period I lost so much blood that I couldn’t even stand up, and when i called the ER and explained my problem and asked what I should do, the doctor just tells me “hmm I don’t know. Maybe try a glass of water” like I hadn’t already tried that a million times. I feel your pain and I hope you stumble across a cure or are at least able to get through to a health professional who will listen to your very valid opinions and concerns.

  11. After 6 years trying to conceive I finally got pregnant 3 weeks after I contacted http://iyareyarespellstemple.webs.com/ It was simply amazing. I had history of recurrent miscarriages and was also diagnosed with genetic problems but using your system I got pregnant naturally at age 44& after 2 HSGs and 4 negative IUIs including 6 induction Clomid cycles and laparscopy. God will bless you and your good work more and more. I am recommending your program to all my friends.

  12. I have similar issues. I am 30 years old, and can barely move sometimes due to my period. I have had over 15 blood transfusions in the past 6 years due to almost dying multiple times. The only option they ever give me is take the hormone pills or get a hysterectomy. I have no cause for this type of bleeding, it is crazy. I hope you feel better <3

  13. Have you looked into bioidential progesterone cream? Have you gone to a naturopath that specializes in hormonal health? If you have gotten ultrasounds and a laparoscopy (to see what’s going in, that can’t be viewed by an ultrasound – e.g. endo, etc.) that you might be able correct by bioidentical progesterone cream. Look up Dr. Natasha Turner – she’s written a few books on the issues. You might have excessive estrogen as well – DIM supplements work as well as diet. No one should be going to the hospital every month – and I agree dr. will just tell you to go on the pill. NAturopath’s are the answer to balance you out. Tranaexemic acid (Spell?) is a medication that decreases blood. It works as well and is not hormonal medication but decreases the flow so you can function more. Do you eat soy, gluten or dairy? Take those out as well. Perhaps you know all of this – only article I’ve read here – but hopefully it all works out.

    1. This sounds like my story after 3 years of telling my doctors and begging for them to to do more I finally switched to a new GYN. Low and behold she orders an ultrasound and I have multiple fibroids but the biggest one is more then half the size of my uterus. Now that leaves me with this struggle of what to do because I would like to conceive however I’ve read it may cause complications. Not to mention I’m over 35. What to do and trying to make people understand the pain and tiredness is frustrating.

  14. I’m 28 and I’ve taken birth control pills for about 12 years straight and always had normal light periods. I started getting migraines and gained weight and decided I just no longer wanted to take birth control pills considering how expensive the co pay is each month and that I no longer wanted a synthetic hormone in my body. It’s been almost a year since I stopped taking Lo-loestrin and my periods have not been normal at all. They come about every 3 months and are super light almost non existent. I will have random light spotting at times. I recently just got a period after 3 months of not having one and it’s lasted for almost two weeks and I have severe cramping and bloating I’m not sure what is wrong. I’m going to see a gyno asap as soon as it ends. I have no idea why this is happening to me or if anyone can relate to me or give me any advice? -Samantha

    1. The same thing happened to me when I came off of depo. My periods were super light and then, about four or five months later, I got my period and it lasted about 3 months. It was fairly light but non-stop and my gyno just shrugged it off and told me that “Women only lose about two tablespoons of blood during menstruation.” I was astounded. It was like she didn’t even hear what my problem was. I was bleeding for 3 months straight and it went in one ear and out the other. Never went back to her again.

      1. I’m experiencing the same thing. My period is so heavy and painful it makes me vomit. The pain is on a level I can’t explain. I’m clotting something awful and can feel the clots ripping on the inside. I’ve been to the ER and they did a pelvic exam on me and told me I need to see a OB/GYN but I have no insurance and the clinics are always full. I just deal and wait for 4 to 6 days when the pain will subside. I have lost jobs because I have to miss work from not being able to get out of bed for days. Every inch of my body hurts and just when I get an hour of feeling normal, the pain comes back and my stomach is twisting and turning sending the most unbearable pains across my abdomen. I’m at a loss. I take ibuprofen and put a warm rice bag on my stomach but that hardly ever helps. My hips feel like I’m carrying bags of bricks on them. I’m 35 years old and unable to get pregnant. It’s very depressing and heartbreaking but I get the same answers from doctors, to take meds and relax, see a gyno. I don’t know what to do anymore

        1. Try fertility blend its amazing it will regulate ur periods and youll be pregnant in no time..My sister couldnt get pregnant for yrs and had irregular periods and bleeding but yet she tryd fertility blend and has been pregnant 3times already off of it..hopes this helps:)

  15. i had my first period in fourth grade and since then it’s been heavy every single month for a full seven days and the pain that comes with it is insane. Last year, my mom and I set up an appointment with our OB/gyn to get me started on birth control to help the flow decrease. My doctor put me on pills that “promised” a period only once every three months. Bleeding in the first cycle of pills is normal, as most girls know, but I took these pills for almost a year and I would bleed for two months at a time. When I talked to my doctor about it he said “don’t worry it happens at first.” Well after a year I was tired of spending more time changing my tampons and pads than worrying about school or even work. I stopped taking the pills and now I’m back to a heavy flow once a month. I guess you just have to deal with it sometimes.

    1. Try natural alternatives ive had problems with my periods also . Do reasearch on it might b hormonal u poor lady i feel for u.

  16. I’m currently experiencing a period of 4 months, 1 week, & 9 days. I too, am used to this. This isn’t my longest not too many years back I had a period for a straight 9 months but it wasn’t as heavy and clotting as it is now. TMI but this time I’m bleeding through ultra tampons & the biggest & longest pad together that I can find within a couple hours. I’ve always been irregular since I’ve started my period when I was a younger girl but now I’m very close to 30. I just met with my doctor as I do every month and I feel like her and the OB/gyn she talked to feels like I’m making this up, although I don’t know why someone would, I truly believe there’d be no benefit from it. I’ve been on a couple different oral forms of birth control & depo shot solely for regulating my periods but nothing worked. This current Doctor that I’ve had for two years has put me on metformin to regulate periods and jumpstart ovulation as me and my fiancé have been wanting kids for about 5 years now. My cycle is so erratic I never know when to expect it, as I’ve mentioned earlier I’ve had a period for 9 months straight but also had NO period for 9 months straight, the most regular I’ve been was before this cycle where I had a period every other month for a little over a year-never the same day but at least I could expect to have or skip one. I’m so frustrated, I begged her this last visit if there was something she could prescribe to make the bleeding stop, I can barely walk much less any activity without gushing and it’s really taking a mental toll. I almost wish for a diagnosis so that I could get some kind of treatment, anything but the post I’ve had is a pelvic ultrasound where results came back normal when being checked to see if I had PCOS. Pap smears come back normal too. I guess it doesn’t help that I’m heavy and that my hormones should be out of whack because of it but why should that make any of us suffer. It’s not fair to be a woman sometimes, we get stuck with things that are out of control and when we need help we put our lives into doctors hands who couldn’t care less but pass us along and wish us a farewell.

    1. Oh my goodness that is so awful! and I thought mine were bad, my heart goes out to you because it really is no fun at all and it does affect quality of life. A few products I have tried that have greatly worked for others are Shepherds Purse, Estrosense or Estrosmart (same thing but one is Canadian and one is American) and either flax, evening primose, or borage oil. I started adding flax and noticed a great reduction in pain and bleeding in my last two periods but then I woke up with my period this month, heavy and crampy again. Just when you think you have figured it out your body is like..haha nope. But I’m determined to keep trying. I take Estrosmart but since I have difficulty swallowing pills I have to break them open and shake them up with water and they are some kind of nasty so I don’t think I am getting the full benefit but that product alone has crazy good reviews. That combined with shepherds purse if you haven’t tried might help you.

    2. Your situation is almost identical to mine but theast time I saw doctor in 2012 they confirmed I do have PCOS. However the obgyn consultant said nothing I can do for you unless you lose several stones in weight. I did not manage to lose weight despite dieticians and psychological interventions and slimming world. So, I’m still in Same position, never ending period since April, and not pregnant after 8yrs and I also can’t stick to taking metformin. Do you find it helps anything?? I think it may be time to go back to the Doctor but I feel like it’s pointless cos I’m so big! Dunno what to do, I don’t want to take pills to stop bleeding and mess up cycle more, but I do want to know why it is like this!

    3. Try fertility blend its amazing it will regulate ur periods and youll be pregnant in no time..My sister couldnt get pregnant for yrs and had irregular periods and bleeding but yet she tryd fertility blend and has been pregnant 3times already off of it..hopes this helps:)

  17. This article and so many of the comments are helpful. Thank you. I’m going through a very abnormal bleeding thing myself and was in the ER 2 days ago. After a very embarrassing and invasive barrage of tests, there’s nothing wrong with me that they can find. I’ve been bleeding for 21 days now and I think my diet which is high in raw foods, green foods, etc, is the only thing that is helping me not be deficient in my blood count. But how much longer can this go on? I’m doing an out of state move in 10 days, and as a single mom, I took it easy yesterday, but that’s really not an option. I work full time and have a whole house to pack. I have raspberry leaf tea which I will start today, vitamin D capsules, and I’m keeping my diet strictly full of the stuff that doesn’t thin the blood. I’ve always had heavy periods, but they’re like clockwork. 3 days heavy, 1 not, 1 off, then one light day. I’m 37. I have MS too, so they gave me an antibiotic dycycline or something, just in case this is my body fighting an infection. Ugh. That’s what they do with MS patients that they scratch their heads with a symtom they can’t find any reason for. I’m so tired of this bleeding and it’s scaring the crap out of me. Going to the ER told me everything it’s not, and after what I’m sure was a few thousand dollar visit, I know nothing still, and I’m still bleeding heavily.

    I’m willing to try the other antibiotic mentioned above, just to make it stop. Any other suggestions would be helpful.

    1. Oh, and I’m allergic to birth control and refuse to take it. I do take hydrocodone/ibuprofen for my MS pain but no other major drugs.

    2. Check out the book “The Paleo Approach” by Sara Ballantyne. It’s an AutoImmune Paleo diet that helps (and could reverse) AutoImmune diseases such as MS, etc.

  18. I have very similar symptoms, and very similar problems with doctors right now. The main difference for me is that my period was normal, like clockwork for fifteen years (5 days a month, every month) until I took the pill (cerrazette) for the first time in 2009. After that, all hell broke loose.

    I get one period a year that lasts for up to 6 months. I lose so many pints of blood every day when it happens, that I’m pretty much bed-ridden. It’s caused dark circles under my eyes, low iron count of course, migraines that make me throw up, low iron, low calcium, burst blood vessels all over the place…Oh, and my boobs got bigger. I look like Barbie–the panda edition.

    Progesterone isn’t the cure. It’s the cause in my experience. Norethisterone doesn’t stop the period, and it is so much worse after taking it. You get another three-month sentence of blood loss if you take norethisterone.

    I was diagnosed with BV for six of the seven years that I’ve had this (they never tested the theory. They just threw pills at me), and they were wrong, but the treatement for BV worked on this, whatever the hell it is.

    The doctor’s tests proved I never had BV. But here’s the thing, metrinidazole stopped the period, and the symptoms. Sure it comes back every year, but metrinidazole stops it for me.

    This year, knowing all this, the doctor refused me the antibiotic because they discovered it wasn’t BV (finally) and apparently an antibiotic could be bad for my health if I overuse it. (What, once a year? Is it more unhealthy than mass blood loss?) Oh wait, screw the doctor. I can get the antibiotic at the local store. *self-medicates because like hell I’m going through 6 months of that again–ever!*

    If you haven’t tried metrinidazole, one course of it won’t kill you, and it worked for me. I don’t know about long-term use. Antibiotics = bad apparently, even though they cure everything. But if you only bleed once a year, I can’t see how an annual antibiotic will harm you. Take at your own risk, but it works for me. Since my doctor clearly doesn’t work for me or the health of any woman in the universe ever, I guess I’ll have to find my own cure. So for me right now, it’s metrinidazole.

    Whatever this is, in my experience, progesterone is the worst thing you can take and metrinidazole stops it. I’ve only tried the antibiotic 6 times (6 years), but it worked every time, and I figure an antibiotic once a year is better for me than womb removal.

    As for possible causes, and since the doctors wouldn’t do the research, I did some for them. So I’ll be giving my doctor this next week as a to-test list, which I took from their database based on my symptoms. Besides ‘whiny women’s problems that we’re never going to treat’, these symptoms we’re having could also be a sign of:

    -Ovarian Cancer
    -Endometriosis
    -Pelvic Inflammatory Disease
    -Renal Failure
    -Polycystic Ovary Syndrome
    -Cirrhosis
    -Liver Cancer
    -Pituitary Cancer
    -Mitochondrial Encephalomyopathies
    -Hypothyroidism
    -Diabetic Nephropathy
    -Ovarian Cysts (Common)
    -Systemic Lupus Erythematosus
    -Addison’s Disease
    -Bowel Cancer (Common)
    -Celiac Disease
    -Ovarian hyperstimulation syndrome
    -Tubo-ovarian Abscess
    -Cushing’s Syndrome
    -Hepatitis C
    -Meningococcal Meningitis
    -Pancreatitis
    -Stomach Cancer
    -Hereditary Angioedema
    -Lyme Disease
    -Tularemia

    Now, I don’t know anything about medicine, but do know that I was never tested for any of those and their database recommends them based on my current symptoms. I know that antibiotics work (for me anyway), and I know that throwing progesterone at women for this particular problem–Doesn’t. Ever. Work.

    From what I’m seeing online, thousands of women suffer from this. It’s an epidemic, and it’s pure sexism that it isn’t being investigated or researched properly. So, I guess we do our own and share our information:

    So here’s my reearch. I tested it on myself. No side effects so far:
    -Ibuprophen slows the blood flow down a bit.

    -Herbal remedies don’t do anything.

    -Norethisterone may initially slow it down, but it comes back a million times worse the day after. Plus, your headaches and pains get a million times worse too. It’s like the anti-christ of treatments.

    -Cerazette causes this. Avoid like the plague!

    -Metrinidazole instantly stops all the bleeding after a 10 day course. On a 7 day course, it stops within a month of taking it. It doesn’t cure it, but it stops it.

    -Doctors are dicks about this. I’m not sure if it’s sexism, laziness or stupidity, but every doctor I encounter on this subject makes me want to punch them in the throat.

    I hope this helps. I hope a clever doctor reads this and does some frikkin research. But that seems statistically improbable unless a penis starts bleeding. Then I’m sure we’d see a miracle cure.

    1. This is the best post ever!!!! I can relate 10 times over …. To ALL of it. There has to be a cure. I’m miserable each month, and simply refuse to take hormones. Period. And I know that I’m not the only woman with this issue. It’s 2016 for heaven’s sake …. Why can’t this be treated? Truly treated without invasive surgery! Cutting out my “inter-workings” cannot be the answer. I refuse to accept that, so I just adjust my travel and other activities the best I can. And I continue to make Playtex richer.

    2. My story is so similar. Excesssive bleeding so heavy I feel like im peeing on myself with huge gishes of warm blood pouring out of me. I do have PCOS ( Polycystic Ovarian Syndrome). I have had cystic ovaries for 25 years but there was no name for it then. 15 yrs ago I got yhe diagnosis. 10 yrs ago the severe bleeding started. 5 yrs ago it much worse. I have only had 1 transfusion, but now I will begetting myfurst iron infusion for severe anemia. I love all my Dts. I now have 4. My primarycare, hematologist, gyno, and gastro. Ro make mayters worse I recently fpund I have celiac too. Here are the main points.

      1. Choose a female dr when possible. Men never take us seriously.

      2. Hormones will make some of us worse.

      3. Take 800 mg Ibuprofen, motrin every 4-6 hours it will make the blood vessels contract and the bleeding stop after a few days.

      4. POLYPS!!!

      After years of this, My latest ER visit and worsening of my symptoms my new gyno is as worried as I am. I had my blood counts / volume checked on monday. My appt with her was friday. She felt tghey needed to be checked again immediately to be sure it was still accurate. It takes a lot of blood loss for those test results to need to be repeated soo soon. She suspected polyps and scheduled a test a week later in her office. During the test she saw just how heavy my bleeding was and confirmed I had several polyps. She is also worried about hyperplasia because I have a 2cm thckening of my uterine lining and it is a typical problem with pcos. So many of you sound like PCOS is the issue. She says i wont stop bleeding until the polyps are removed and wants to do it asap. Beacuse of the concern for hyperplasia she has to wait a few days for the biopsy results before she can. I hope this encourages and helps some one. I will update ina few weeks if this helps me.

  19. I know your pain my periods have always been very long and heavy usually around 21 days. I’m allergic to birth control have tried 7 types and have no insurance so I’m always in the er. I get the same treatment iv and told that I need to go to the gyno with the occasional blood bag when my iron is very low. I have been bleeding for 126 days straight today (very heavily) and have been taking iron supplements. I am to the point that I am going crazy and so is my fiancé. I will be going to the er in about 30 minutes and write an update if they do anything different for me (which is very doubtful).

    1. PLEASE GET SOMETHING NOW TO STOP THE BLEEDING!!! 126 days is too long.. You need tantric acid or a very large dose of depo to stop it now!!! DON’T delay. check your hemoglobin now, and blood volume.. Get pelvic MRI not ultrasound to check for fibroids or other mechanical reasons for heavy bleeding.

  20. Sounds so similar to my issue.. My periods last forever. like 16 days long. Then like last week I had a normal period, I got so excited. It ended Wednesday. Now I’m bleeding a ton, leaking through a tampon within two hours. Passing pretty large clots. My gyno just repeatedly suggests birth control.. But I’m trying to conceive. So she suggests losing weight. But this wasn’t always an issue. It’s been going on for about a year now. Before that my periods were normal. Yet my lifestyle was super unhealthy. I literally lived off fast food and Pepsi, (not kidding I only drank Pepsi and ate a fast food meal and my only meal once a day.. Bad relationship) I ended that relationship moved home started eating regularly and I don’t drink soda now. I’ve been trying to get pregnant for 7 months with no luck. I had blood tests, ultrasound and Pap smears all come back normal. So my doctors suggestion is birth control. Which only masks the problem. Something has to be wrong. I hate not knowing what, and not being able to start a family with the man I’m in love with. It’s leading me to become terribly depressed. I’ve considered discontinuing the medicine I take for anxiety to see if that helps but I’ve been taking it for 3+ years so I’m not sure that’s what’s affecting it. I’ve been to two gynos, the first just told me to lose weight and didn’t do any tests. Like yeah I get it being overweight can affect this stuff in some people but I really don’t feel like that’s the issue. But I am not a doctor and being overweight is usually blamed for everything.

    1. Your situation sounds very similar to mine. What I have read is that excess fat actually profuces estrogen in the body. Losing weight can help some women by regulating hormones, which is why doctors suggest it. Currently trying to test that theory out. Funnily enough, I suspect my hormonal imbalance is the reason losing weight is so difficult for me. I do everything right, but the weight doesn’t come off like it used to. Researching diets specifically aimed at regulating hormones. We’ll see how it goes…I hope you figure out what works for you as well.

  21. Im 34, and feel ive missed my chance of having kids bc this bas started happening to me. Im crying all the time just thinking about a hysterectomy, but i will never find anyone to have kids with since i can hardly leave the house. Im in a horrible bind because of all of this. I experienced something similar when i was 19, i had polyps. I had to get a d and c, took bc until it ran out, and my problem was fixed. Now im older and afraid to take bc, and im tired of living like this. I’ll be seeing the dr soon, and see if its the same, or something different. All i know is ive been bleeding since Christmas eve.

  22. I’m 28 years old.I’ve been diagnosed with a blood disorder.I never had a regular period. I have 3 healthy boys. But now I’ve been bleeding for over a year. With blood clots big as hell. The only time I stop bleeding is when I take this damn Medroxyprogesterone which makes my stomach hurt even more than it already do. It feels like I’m having a baby all over again. I’m sad and depressed every day and night. I haven’t had sex in so long. My boyfriend understands what’s going on. But I smile in front of everyone just so they don’t see my cry. My doctor just wants me to take BC pills which I don’t want to because of the bad experience I’ve had with them. All I want is a hysterectomy so I can have my life back.

  23. My daughter is 23 and has been diagnosed with endometriosis. I myself had it and had a hysterectomy at the age of 26, but never went through what she is going through. She has had 2 surgeries to remove with laser. Each about 3-4 years apart. It has been a little over 3 years now and started with more symptoms. Dr placed her on a different bc pill estrogen based about a month ago. She has been bleeding literally for 3 months +. Dr won’t do anything until she gives him a timeline when she wants to have kids. She is still in college and is not close to being ready for kids. He also won’t listen to her that she has been bleeding so long. He just calls it breakthrough bleeding and tells her to double up on the pill. She is in pain everyday all day long. She uses a tampon and a pad and still bleeds through. She has clots all the time. She is exhausted and tired all the time. Any suggestions would be most appreciated!

    1. Also they did an ultrasound and said her ovaries were displaced. Gynecologist said if bcc didn’t work within 2months he would put her on an iud. In the mean time he told her he would see her in 3 months. So frustrating!

    2. Please find another gyn. The high dose birth control is not only probably making it worse, but is very dangerous in terms of inducing blood clots. We have lots of articles on endometriosis and adenomyosis and different treatment options. There are specialists, most gyns are not specialists and do more harm than good with endo. We also have articles on birth control induced blood clots and other topics that might be useful. Find a specialist and don’t be afraid to go through multiple doctors until you find one.

            1. You’re welcome. I don’t know if I mentioned this in the previous response, but consider reading the articles by Philippa Bridge-Cook on bleeding disorders on this site. Women are not commonly tested and there are several plus also ferritin deficiency that can cause them – vitamin B12 deficiency too – I think. Consider also reading Lara Briden’s articles. She’s an ND out of Australia that specializes in women’s period health. Good luck.

    3. That is just awful and unacceptable. As early as age 14, I was hospitalized with blood transfusions after having fainted. The only advice I have for you is a medication called Tranexamic Acid (?) Or that is the active ingredient, anyway. Been taking those since. Perhaps she has already tried those? Also, some painkillers, as well as herbal remedies and nutrients, are said to decrease bleeding. I wish you and everyone struggling with this overlooked problem all the best and good luck.

  24. I have had my period for five months and its heavy and I feel faint and major hard core cramps I am feeling as if someone is having a rock concert in there. I have gone through a ton of birth controls and I’m just getting sick. They tell me it will eventually stop. I wish that was true because next month will be the sixth month and its heavy I’ll get a break here and there with a light day but I have no energy I try to extend school but I end up sleeping through class. Getng fustraded because I don’t have energy and constantly getting headache’s

  25. I am so happy to find this article. My daughter is 14 and has had irregular periods since last May. In Sept they got so heavy she coUldn’t stand up with out it running dinw her leg. Kt would slow a little but never went away for almost 3 month. I tom her to the gyno and after hearing for several it was determined she was anemic (surprise surprise) and they wanted her on birth control right away to stol the bleedIng. We did that…dcotr had her taje 4 pills the 1st day, then 3 pills then 2 pills. She shahs on 2 pills for several weeks before the doctor put her on 1 pill ler day. That last less than a month. She started having break through bleeding. It got sl bad she was cramping horribly. She passed 2 huge clots that looked fleshy. I toom a picture to send to the Her ped who sakd go to the hospita,. The er dc called her gyn whknsaid…start kver 4,3,2 and stay on 2. They did an ultra slund saw some fluid in the uterus bit they weren’t concerned. Her iron lev went down even more from where they had been. Put her on iron pills and sent her home. The bleedi g stopped butstarted again 2 weeks later…and she was still on 2pills per day. The only thng the pills seems to be dling is making her gain weight. She gained 10 lbs and is super active…an Allstar cheerleader who practices over 20 hrs a week including tumbling. She decided tonighyt to go back to 1 pill because 1 or 2 doesn’t seem to matter. I feel like the gyn isn’t concerned at all…hasn’t tried different pills either. I made her an appt at CHOP for 3 weeks from today. I feel like none of this is mirmal.

    1. Being on birth control pills to control bleeding and/or endo does not work, not to mention places her at a very high risk of developing blood clots, especially when she is taking very high doses. Please read our articles about hormonal birth control risks/blood clots and also the article about pill bleeds.

  26. Everytime I “do get” my period it consists of a month or two.
    Every single time I do I’m always passing large bloodclots,
    Like the golf ball size. At the end of my period when it’s
    Almost over , I get this excruciating pain just like labor
    For a few hours that have me shaking and nearly passing
    Out until I finally pass the mother of all clots. This mother
    Of all clots is the size of a 8 oz cup. Not exaggerating.
    First time it happened I immediately went to ER in such a
    Huge pain I could barely walk finally passed in the ER room
    , all the Drs and nurses were sure it was a miscarriage
    Of how massive it was. But nope just another mother clot.
    I’m sick and tired of going to so many Drs to fix this. No one
    Gives me answers. I’ve been trying to get pregnant for 2 years
    And it’s impossible. They keep putting me on BC or
    Medroxyprogesterone to make it come down or stop it.
    On top of that they keep finding cysts. I have researched
    So much I have evaluated myself. I believe I have pcos. But
    I’m not a dr. And these Drs don’t care , just here and here
    Take these pills. Everything is pills now a days. I’m 100% sure
    That’s what’s messed me up to being with. Why do I say that?
    Well for starters I always had a normal cycle. I successfully got pregnant
    Young at 18. Everything normal , few years down the line BAM!! Everything went
    Down hill. I’m so disappointed , frustrated , can’t have a normal day
    Without carrying a case of extra pads and tampons or even work properly.
    Constantly changing my Tampons and pads every hour. As I write this here I am 2 am , in excruciating
    Pain waiting for once again the mother of clots to come down.

    1. Hi Diana, Sorry you are suffering so badly! Have your doctors ever mentioned adenomyosis? Here is an article where you can find out more about it: http://www.hormonesmatter.com/adenomyosis/. With that type of clotting/bleeding, it sounds like you may have adenomyosis. Also, with heavy bleeding you really need to make sure that your iron levels are ok, otherwise you may feel quite awful because of that: http://www.hormonesmatter.com/overlooked-cause-fatigue-low-ferritin/. Do you live in a big city? I think if you are still having these problems despite treatment, you may need to get a better doctor.

      1. Very similar, I had my last period last April, thought I was done. In November got a surprise heavy period. Christmas Eve another. My gyn wanted to run a biopsy and ultrasound and I was scheduled for Jan 12. It became unbearably heavy, Palm sized clots. They decided to squeeze me in the morning of the 5th, I never made it. 6:30 in the morning I passed out on the bathroom floor…..thank goodness my daughter hadn’t left for school yet and could call 911 and put undies on my naked ass. Was in and out of consciousness for a while. Hemoglobin was 6.8. Two units of blood and dnc that night. Still didn’t stop bleeding for a week. Adenomyosis. Another blood transfusion the following Thursday, hemoglobin only 7.6. Hysterectomy just last week. She said my uterus looked like a wad of vericose veins and I had cysts in my tubes. But I didn’t have any pain. Try to get some more invasive tests. Not comfortable, but if your uterus is getting damaged by the bleeding you’ll never get pregnant. So try to get the biggest work up imaginable. My dr did all the hormone, blood disorder tests she could think of, and got up in there really good during the dnc to look for fibroids. Scans for tumors and cysts. Get a dr that will take your insurance to the extremes. And if you get short of breath, or your heart starts to race every time you stand up go to er instantly……

    2. I absolutely hate my period I wish it was normal! I wish I didn’t have to pass so many blood clots, I wish I didn’t have to constantly wake up and change pads and not getting enough sleep! I wish I could enjoy my two year old nephew adventures as he visits the circus and attend birthday parties! I’m always in the house waiting on a blood clot to pass so I can change my pad! Irregular periods suck! Firboids suck! I just would like a normal period that is all!!! Ladies I understand how y’all are feeling!!!!

  27. I have started research in this area once my younger sister lost so much blood that when she went to get blood levels tested, they said it was a miracle that she could even walk.

    This was a trait passed down from my mother as she suffered the same thing. She said they wanted to give her a hysterectomy at 16yrs old and that she would never have kids. She had 3 kids at ages 27, 33, and 38. Finally choosing to get a hysterectomy at 47yrs old. My younger sister is 20yrs old and is bed ridden for days and stays on her period for god knows how long. It never really made her dizzy or cold or anything until recently. She has gotten her birth control pills literally yesterday but she wants to start it on the beginning of the week so that it lines up perfectly. The doctor left a message saying her blood is so low that it’s in the danger levels and that spooked my mother, so she rushed her to the ER to see what they can do.

    Here are my question on this crappy thing. Will birth control work to regulate her period? What is it supposed to do exactly? She wants to have kids i believe, so removal of things will not be allowed and she’s a Jehovah’s Witness and they don’t believe in blood transfusions for fucks sake. I just want to know if she will die from her own period? Is birth control the best answer?

    I’m a guy also, so i don’t have much info/knowledge on periods to begin with. Just don’t want to be forced down one path if there are other options.

    1. Hi Kenyon,

      It is great that you are researching options to help your sister! This article has an overview of treatment options for heavy menstrual bleeding: http://www.hormonesmatter.com/heavy-menstrual-bleeding/. Birth control pills are sometimes used to try to “regulate” periods–for some women this helps, and for others it does not. Birth control pills do commonly come with side effects such as fatigue, depression, anxiety, loss of libido, or even serious side effects such as blood clots. Tranexamic acid may be a good treatment option.

      Taking the birth control pill will not help with her low iron levels though. A blood transfusion is likely not necessary. Depending on her levels, she will need to take iron supplements, or if they are really low, she can get an IV infusion of iron (this is not a blood product, so should be ok for Jehovah’s Witnesses). This article talks a bit more about iron levels: http://www.hormonesmatter.com/overlooked-cause-fatigue-low-ferritin/.

      Finally, you say that your mother also had very heavy periods. Your mother and your sister may both have an inherited bleeding disorder. Often these do not get diagnosed. She may want to get tested for deficiencies in clotting factors, von Willebrand’s disease, and platelet disorders: http://www.hormonesmatter.com/bleeding-disorders-in-women-with-heavy-period/.

      I hope this information will help.

      Best,

      Philippa

  28. I lived with heavy bleeding much longer than I had to. Mine was not as bad as this many here, though. I feel for you. But I am going to have my uterus removed soon via laparoscopic surgery. For those who don’t want or cannot have children anyway, why not have the uterus removed? I’m vegan and holistic-minded, by the way. But this uterus has got to go. Wish I had gotten it removed many years ago.

  29. 35 with what I’m certain is a hormone imbalance of some sort that I wish someone could fucking fix already. I’ve never asked for or taken pain pills because I used to work in a dental office where the front desk girls, dental assistants and dentist used to trash talk anyone who asked for a pain script regardless of wether or not it got prescribed… I just assume spare myself that aggravation caused by their inevitable refusal. I pride myself on my high threshold for pain, I would just puke them up anyway since that’s what I do when I have my period… On a monthly basis, on the first day of my period, I get this feeling like I have a heavy bag of coins in my twat, like my vagina is just going to push out of my body and turn me inside out, this MUST be what child birth feels like, I don’t push though because I’m afraid my pelvic floor will collapse or something if it hasn’t already? Well it gets so bad with the stabbing, popping pain in my pelvic area on the sides, and the throbbing pain you can see with your eyes. Then I can’t keep my eyes from rolling back in my head from the excruciating pain and I can’t look straight ahead no matter how much I try to focus and breath, I get stabbing pains and gas cramps and dysmenhoria that twists me to my knees, I then pass out with a grey/white sweaty face and low blood pressure, ….and then shit myself when I’m unconscious once EVERY MONTH AND NO ONE FUCKING CARES! I’ve been told by a gyno to use lube when I mentioned sex or 3 min of light jogging had started giving me excruciating cramps that make me vomit and bleed mid cycle, I’m told to take alive for my pain but I can’t keep it down, I can’t usually stop heaving for 2-3 days, I start loosing control of my bladder after I start dry heaving and sometimes I’m out cold on the floor until the pee has long since become cold however long that is, I shiver from my low low blood pressure, and choke on my own vomit sometimes when I’m passed out, when that happens I awake with severe chest pain in my lungs? breathing bubbles of burning yellow stomach acid out of my nose. What else… um oh I told my gyno how much pain I was in and she thought it might be caused by depression not the other way around. She tried to insist that I take Wellbutrin and asked me if I was a harm to myself or others just because I cried talking about the pain that has slowly gotten to the point where I wish I could die to escape it. Plenty of people that get tortured probably wish for death, that doesn’t mean they’re depressed. Can this pain be causing PTSD? After failing to get pregnant after 2 years of trying despite my pain, I finally educated myself and asked for a laproscopy, they gave me an ultrasound. I told the tech I had big problems and she obviously didn’t believe me and then with a surprised look on her face she notice the image of my MANGLED uterus and said I have a large fibroid covering my entire endometrial lining so there is virtually no place for an egg to implant and thats why I haven’t had success getting pregnant during my painful intercourse, and she also said that I have endometrial cysts all over one of my ovaries. I asked her which issue was causing me to pass out from pain and she said that “neither condition necessarily causes any pain” that was invalidating…. I said with a genuine smile that I must have some nerves that are getting hit because I’m actually in severe severe severe pain for a couple days each month. I then asked her “even though you’re not a doctor, do you think I will ever be able to conceive?” she looked at the image turned her head and said the word “probably” but the way she said it sounded like a question. I have been bringing up this pain annually with my gynos for the past 7 YEARS! I guess I should’ve cried uncontrollably in the dr.’s office 7 years ago ….I might be able to conceive now? but they might’ve just dropped the ball anyway from the sound of everyone else’s comments… What I want to know is if this is some sort of fucking joke the medical community is playing on me? I don’t know where to put all of this anger, If they finally do preform a laproscopy will I wake up to find I’m in worse condition due to every doctors apparent incompetence? I noticed at an early age when I had hpv that gynos don’t tell you what’s going on the way other doctors do. I got warts fried off and I wasn’t even told I had warts/hpv. I didn’t even know I ever had it until I was an adult and I googled it. This bullshit behavior from the doctor would never fly at the urologist…. Why then at the gyno? I can’t help but think that the world is a whole lot more sexist than I could’ve ever imagined. This is so fucked up,…. I’ve been up all night afraid the pain will start any min because my nipples were sore yesterday. I took alive preemptively because it doesn’t kill pain it only prevents it because it is just an antienflamitory I think. Well that’s what I noticed. Aleive still only takes 20% of the first few hours of pain away but I take it religiously anyway because 80% of the pain I feel each month is still more pain than I could imagine was possible up till last year when it got… much worse… I’m certain my sister’s 10 hr natural birth was a quite a bit less painful than what I experience every month. She could say words when she yells out from pain, I just groan/wail the way my grandmother did the night before cancer consumed her from her liver to her lungs. She was unable to get pain suppositories prescribed before she died although my nurse aunt pleaded with the doctors because grandma couldn’t keep the pills down even when she crushed them up;( Imagine how many patients die angry at their doctors…. medical malpractice is the 3rd leading cause of death in the USA… I want to get involved and change it all but I don’t even know how I could do that, I feel completely helpless when I’m at a time in my life when I should either be having children or getting ahead in my career and my whole life has been leveled by this. I left my fiancé because I’m sick of having painful sex and I’ve been so sick since we moved in together 3 years ago that I really just want to disappear. I have my appointment to discuss my ultrasound with an actual doctor this Monday at beth-israel here in NYC but I had to raise hell even to get an appointment. There were “no” appointments available when I called, they could not make any appointment for me. NONE. I had to go in and cry to them just to get my name on the books. This has disease has erased my life as I knew it and is more painful than anything anyone should have to know and no one gives a fuck about the loss of a really vibrant hardworking woman who was really hoping to one day prove to the world that I could make a difference through helping others and now I can’t even manage to help myself.

    1. It sounds like you may have endometriosis–has anyone mentioned that possibility to you? The kind of pain you are describing is definitely not normal. It sounds like you are in New York? There are a few excellent endometriosis doctors there. For starters, there is Dr. Iris Orbuch…she is so compassionate and a skilled doctor and surgeon. There are others as well. Most general practice gynecologists are not very good at identifying and treating endo, so you are much better off going to someone who specializes in endo. To learn more about endo check out the Endometriosis Research Center, or Nancy’s Nook on Facebook (a support and education group for people with endo).

  30. I have the same problem! Now I do not feel so alone. Mine get so bad to the point were I can’t go anywhere and I’m pretty much bed ridden. After my period I will get bad dizzy spells, white coating on my tongue from iron deficiency. I am often afraid that my periods are going to take my life. I am considering getting my ovaries removed.

    1. I have iron deficiency anemia as well, it’s so low that I don’t even register in the low ends of scale. Have you tried iron infusions? It has changed my life!

  31. It is so bad I would rather be dead or pregnant just to make the heavy bleeding stop, pregnancy is NOT an option at 53 YO. How do we make doctors understand how bad my life is with this problem!

    1. 35 years old, 2 miscarriages in 2 years. I started birth control at 21, to control my heavy periods. It took over a year to regulate, but it worked & my acne cleared up. At 30years old, I decided to quit birth control pills because I wanted my body to be in a normal hormonal state for future pregnancy. This caused havoc on my body, including horrific acne. 5 years later, my periods from HELL are back with a vengeance. Besides clots, cramps, heavy flow it lasts for 2 weeks! My life is completely dysfunctional. I basically wear diapers all day, & cringe with fear waking up — afraid that I have destroyed my bed sheets again. I cannot take it anymore. I’m going back on the pill, this is my only choice… Because I refuse to allow my periods to dictate the sanity of my life. It may not be a healthy choice, but I don’t give a crap. Bleeding this way is NOT normal, & if the pill can make me feel “human”– then I’m doing it!

  32. Thank you for sharing your story! I’ve been experiencing the same problems on and off since I was 17 (almost 45 now so yeah…it’s been quite a long time)
    My apologies in advance for any grammar mistakes as english is not my first language.

    In the past years I’ve been in and out the hospital with no other lame advice as: why don’t you go on the pill,take a mirena device, have an hysterectomy or endometrial ablation. But no one ever took the time to find out why I’m bleeding like hell.
    They gave me the tramexanic acid pills but even though they stop the bleeding I noticed the next period has even more sharp pains as normal so I only take those when I really, really have to go outside.

    So I went on a journey myself, tried acupuncture, traditional chinese medicine and many alternative treatments.
    My acupuncturist/TCM doctor noticed after a couple of months that my progesterone levels were not working the way they should and told me to take 300mg a night from ovulation until menstruation and keep a diary to find out any patterns in the way my body acts. And because of this progestrone deficiency my body functions were out of balance and the longer it was untreated the worse my body reacted (besides the bleedings I experienced a couple of miscarriages, etopic pregnancy, insomnia, bowel inflamations,constipation, depressions, anxiety, sore legs, back pains, I was always exhausted, cold and very nervous and it all got worse year after year)

    I also went to a alternative therapiste who helped me with balancing my body with supplements like vitamin D, magnesium and stuff like that.
    We tried all different things to see what worked and what not. Like estrogen supplements and Vitex were a huge mistake, they made my symptoms worse, magnesium helped me get a normal sleeping pattern and “fixed” my bowel problems.

    We found out through the diary that the main trigger for my low progesteron levels was stress. If something stressfull happend my body started to bleed and ache like crazy.
    It turned out that I produce so much cortisone to “deal” with stress that there’s no hormones left to make progesterone.
    There is a theory that it’s caused by a failing endocrine system, the one that is responsible for the endorphine/dopamin/serotonin things but I haven’t found any specialist who have a clue yet.

    I still have episodes where my body fails me and bleed like hell, even with the progestereon pills but now I now why it’s happening and what event causes it.
    So most of the time I feel healhty and happy and I try to avoid any drama or stressy events and I finally live a “normal” life, have great energy and am again able to enjoy things.

    But you know life…it always has some tricky surprises for you so sometimes you have to deal with stress and now I know upfont when I have to take some days off to recover and sit/sleep on a big stack of extra towels.
    I hope one day someone will find a cure for our failing hormone system but honestly I think that menopause will be there first…

    1. Hi Sarinah,

      I read your comment, and I feel like we have very similar problems! I’be tried 3 or 4 different birth control pills, but when I was given estrogen pills, my body went crazy. I was always moody. One second I was overly excited, then extremely sad, then out of nowhere I was angry at everyone around me. It was horrible, so 4 months ago my OBGYN gave my progesterone hormone pills, but really low dosage. It did nothing, it even made my bleeding worse. Since around October, I’ve been bleeding almost non-stop. Sometimes, I get hopeful when my period is gone for a day or two, but then it comes back stronger, heavier and I feel so depressed and in pain. I even had an ultrasound done, but the results didn’t show any concerns from my uterus.

      Recently about a month ago, I started going to see a acupuncture doctor for alternative medicine. He tried to help, but still my period came all the time and even heavier. Now that I’m reading through this arcticle and all these replies, I think my problem is a combination of stress and low progesterone. I’m a very paranoid person, and I always worry about everything before it even happens.

      I need to find a new doctor, and ask for a higher dosage progesterone pills. How are you doing now? Do you have any advice for me? I’m only 24, and I’m so stressed out about this. I don’t know what to do anymore. I thought I’ve tried everything. Please, any advice would help. Thank you.

  33. I sufferfrom heavy periods and cramps so bad I had to pull the car over and let my 15 yr old son drive. I will soak thru a super tampon and heavy flow pads both together as I have to double up, in less than an hour. I started doing research on natural remedies and found red raspberry leafs. It doesn’t mask the problem like birth control, it fixes the problem. Please do your own research so I don’t misinform anyone.anyways, I take 2 a day even when I’m not on my period to regulate my blood,it made my life more bearable to say the least. Less blood flow, no clots the size of a golf ball,and even shortened it by a day. I will continue taking the capsules to see how it goes but so for so good. I encourage u to do your own research and try it,its all natural so what’s the harm in that. Good luck! PS. I’ve done it all too, ultra sounds blood tests always come back normal. But I don’t feel normal. I have faith that this is my answer.

    1. Hi, wondering how your doing on red raspberry leaf capsules? I’m having (have had for years) the same problem everyone here is having, I seriously can’t take it anymore, I went to the Drs the other day for bad heavy bleeding again…I’m 44. Dr thinks low progesterone. So 200mg at night, maybe it takes a while to take affect, idk because since then it’s worse, I could hardly function yesterday at work, out of control, how can I bleed so much! I feel like I’m sick, run down weak, I’m so done…and now getting depressed about it…willing to go to the health food store if the red raspberry leaf capsules have been working for you…if something doesn’t change soon, I’m requesting this toxic organ removed!

  34. You truly need a progesterone in 300 mg at night … It will do a trick and heal.., check the Cmor centre dr. Jerylin Prior… Extremly smart woman doctor who is pioneer in females hormonal problems … Progesterone was given in early 50 ties by english female doctor also… It balances estrogen and normalized your cyckles girls!!!!!

  35. I have been through this since I started my cycle when I was 15, I am now 32. I was finally diagnosed with endometriosis at age 19 after my first child. Was also told I would never have children, I have 4 now. But as I write this I am currently awaiting for my hysterectomy next week because I can’t handle the pain and bleeding I have now. Instead of bleeding each month for 7 days I now am lucky to have 7 days of nothing in 2 months and the pain is almost worse than childbirth. Wondering if you have been checked for this? Hoping you find out your answers.

  36. I am 23 almost 24, and I have had periods like this since I was 11. They are extremely heavy. I go through a super plus tampon and pad in 30 minutes to an hour. They are extremely painful too. My husband and I have been trying for a baby for 2 years now to no luck. Every time I go to the hospital, they just look at me and say I am wasting my time. It is at the point to where I can’t work and I can barely move. The doctor usually just gives me an inflammatory pain killer (which I am allergic too.) Seeing this article shows me that I am not the only one going through this I just wish I knew what was going on. Is there any suggestions on what I should do because I can’t continue to live like this. I am even starting to go through it almost every other week. Please, if someone can help me, then, please do.

  37. Thank you for sharing. I am going through exactly this right now. Although along with a blood test I had a pelvic and transvaginal ultrasound done which determined that I have a hemorrhagic cyst in my ovaries. It seems in my case as well no matter how much I am bleeding or how much pain I am in, I am just an inconvenience to the doctors. On the worst days I go through a fill pack of pads everyday and am up every hour throughout the night having to change my pads. But I won’t stop being an inconvenience and I will continue to be relentless until I get answers. We know our bodies better than anyone and I know when something is wrong. So I will keep pushing.

  38. Wow! Your post made me cry. Last Sunday I had my second episode of exactly what you described. I feel so much better knowing I am not the only one. Thank you for putting this out there for the world to see. Be strong and know you are not alone!

  39. Adelinajuline, Yes, with bleeding that heavy you should go to the ER. The general recommendation is if you are bleeding through more than a tampon or a pad every hour, for several hours in a row, then go to the ER.

    A few thoughts on treatment. Loestrin may not be the best option. I’m not sure what the rationale is for prescribing a low estrogen pill. I know you said you are taking three of them, but still…to stop the bleeding hormonally you may need more estrogen than that.

    You can also use drugs that help your blood clot to stop the bleeding. Typically in the ER they will use DDAVP or tranexemic acid by IV. These will both help stop the bleeding. You can also be given a prescription for tranexemic acid to be taken orally at home.

    You should ask to have your hemoglobin and ferritin checked. After all that bleeding you are likely anemic. They may only check your hemoglobin, and that is only part of the story. See this article for more information: http://www.hormonesmatter.com/overlooked-cause-fatigue-low-ferritin/

    I hope you can get it under control soon!

  40. I’m on day 120 of my period. I went to my general care physician when the bleeding became unbearable and soaked through my pants. I’m 25. She prescribed loestrin and has me taking 3 a day to stop the bleeding. I’m day 6 into the pills and I’m still bleeding through a tampon ever thirty minutes with huge clots bigger than the tampon itself. Do I go to the e.r.?

  41. Thank you for your response. Those things are possible looking up the symptoms. I am in Canada, and its so hard to get doctors to listen to you here. I had to go home from work today because of the pain and bleeding.

    About a year ago, they say that my uterus was swollen and at the time I was diagnosed with a cyst which they saw through ultrasound.

    I never bled like this before ever though until it started a year and a half ago and never stopped. Just before that, I didn’t have a period for 1 year. They have done multiple blood tests and 1 ultrasound and they came back normal. I was then sent to see a gyno. He did a pap smear and pelvic exam and he told me I most likely have PCOS and that I would need to do another blood test again to try to find it….I am confused by needing so many blood test cause I have already had 4 and each one showed I was fine. I am currently afraid to go get one at the moment because of how much blood I am losing already. I also was taking the birth control for the past couple of days, but I am afraid to keep taking them because the pain and bleeding have become much more severe since I started taking them.

    1. Philippa, who wrote both of the articles I suggested to you is in Canada. Reach to her in the comments section of articles and perhaps she can point you in the right direction. I know it took years for them to diagnose her appropriately. You should also consider thyroid testing.

      Most standard blood tests will not show anything. You’ll need to ask for specialized testing. Talk to Philippa and dig into the research. There is an answer out there. Even though you have cyst on the ovary, I don’t think you have PCOS. Women with PCOS don’t have periods very regularly, maybe two-three times per year. If the birth control pill is making it worse, stop taking in it. Whatever you decide, learn to trust your gut. If it doesn’t feel right, it isn’t.

  42. I have been bleeding very heavy now for a year and a half. It stopped for about a month when the doctor gave me birth control, but it was making me so sick that I had to discontinue it (dizzy for one) I started trying to take them again a little over a month later, and they have made the bleeding 20x worse. I have so many blood clots and the pain is really bad. I can’t do my job or focus. I don’t know what to do…

  43. While it doesn’t help with the pain or the anemia or all of the medical issues that go along with the heavy bleeding, I have found that the diva cup instead of tampons (it holds clots, tampons don’t) and reusable pads (they absorb leaks that would run off the pad and onto my clothes) have drastically helped my experience with heavy bleeding. Issues with leaks and embarrassment are almost nonexistent now. And with the cup, I never have to worry about carrying enough supplies. Just empty and re-insert. It’s still annoying to be in the bathroom every hour to empty it when the bleeding is really heavy, but at least no more stress of going through a tampon every half hour and then running out because it’s hard to carry that many.

  44. I hope this will help any woman who is experiencing heavy periods, or irregular periods. Get ground flaxseed meal and take two tablespoons a day, every single day. Mix it in some almond milk or a smoothie. You can get flaxseed whole and grind it in a coffee grinder, or you can buy it already ground. It is easier to use already ground, just keep it in the refrigerator. A really good brand is Spectrum. Do not get flaxseed oil, as it does not have the lignans you need to regulate your period. Make sure you take the flaxseed meal every day, and don’t skip days. Flaxseed meal has been a tremendous help for me when nothing else worked. It has shortened my periods and lengthened my cycle. I hope you will have as much success with it as I’ve had.

  45. Hi Everyone,
    I am 44 years old and have had this prolonged heavy bleeding now for a year. All my life I have been regular never had issue’s with prolonged periods.

    Had to have a pint of blood last month. My hemoglobin count got down to 6.4. It was horrible could hardly move my legs to walk.

    They stuck me on Provera. Stopped my bleeding for a week. Started again Aug 3rd its now the 14th. I am cramming the iron pills and vit C.

    My bleeding is moderate to heavy no spotting. The blood is thin so it rolls up the pad to my underwear missing the pad. Cannot wear tampons. I am miserable.

    Gyno said to me while in the hosipital last month. We can “talk” about ablasion at your next visit?? All my tests came back normal. With the exception of hemoglobin and ferrite levels.

    I hate going to the ER for this issue. I refuse to go back to the ER unless I pass out or have shortness of breath.

    I only wonder how the body can function without organ shut down with such little iron in the blood? How does it manage? OR is there a point where the body can’t keep up. I haven’t heard of anyone bleeding to death from a prolonged period.

    1. One of the things that I have learned over the years is that where there is one nutrient deficiency there are others and those deficiencies add up and wreak havoc on women’s health. The low iron should be tackled even before one considers ablation. Yes, the anemia can be a result of the blood loss and so correct the blood loss and perhaps correct the anemia. It may also be a result of other issues that are yet to be diagnosed and could influence the high blood loss – vitamin b12 deficiency for example is common with anemia (http://www.hormonesmatter.com/are-you-vitamin-b12-deficient/). Vitamin A deficiencies can also lead to heavy bleeding. Had I known some of these things years ago, perhaps I too could have avoided an ablation and the subsequent problems that followed. Most recently, learning the importance of nutrients in menstrual function, I was able to eliminate my daughter’s severe menstrual cramping, which had plagued her for years and would land her on the bathroom floor in pain. Supplementing with magnesium and vitamin D worked for her. (For reference, most women are vitamin D deficient and magnesium deficient in general, but I was surprised at how well and how quickly increasing her levels worked).

      The nature of your bleeding is interesting, runny fluid versus clotting and likely means something – perhaps a bleeding disorder. This is not often tested by physicians. I would rule this out too before proceeding with the ablation. http://www.hormonesmatter.com/bleeding-disorders-in-women-with-heavy-period/

      Advice – see a naturopath or a functional medicine physician who does micronutrient testing, replace what is missing and go from there. Also see a hematologist to rule out bleeding disorders.

      Good luck.

  46. For those still experiencing heavy bleeding, have you had a full endocrine workup to check thyroid, pituitary, and adrenal function?

    Have you been checked for a clotting/bleeding disorder? Von Willebrand’s is the most prevalent. It seems many gynecologists don’t even test for these. (I guess they’d rather do hysterectomies since those are much more profitable.)

    You likely already know that birth control or Rx tranexamic acid (Lysteda) or even NSAID’s are usually effective at reducing flow – http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0015970/table/ch8.t1/?report=objectonly. But as some of you well know, these don’t work for some women.

    I had a hysterectomy and am suffering the many adverse effects even though I was close to menopause. Even if you keep your ovaries, there is about a 40% chance they will fail.

    A woman with all her parts produces ovarian hormones into her 80’s. These hormones are essential to good health and well-being. And the uterus and its four sets of ligaments are essential to pelvic integrity (positioning of pelvic organs as well as skeletal integrity – alignment of the spine, hips, and rib cage). I have written about this as well as other aspects of hysterectomy here on HormonesMatter – http://www.hormonesmatter.com/author/ws/.

    If you cannot take hormones, complete ovarian failure is a serious health issue as well as a quality of life robber. Something to consider…

  47. I am right there with you, and getting a hysterectomy next week. Only 28 too but at least a complete family. Today I’ve been told twice to go to ER but last time they treated me like a nut to go to er for a period. I have adenomyosis. Ask for Lysteda, and a diagnostic lapaproscopy. Demand it. Lysteda really made my bleeding far less and is not hormonal, I can’t do hormones either. Hang in there I know how it is.

  48. I’m experiencing heavy bleeding and I really don’t want to go to see a Dr. 2 weeks ago I was given birth control pills, but they did no good. What other medication can they possibly give me to control the bleeding?? I am feeling desperate. I bought some progesterone cream, but I am afraid I might induce the bleeding even more. Any help or advice will greatly be appreciated.

    1. Hi, sorry to hear about your problems. The general rule of thumb I have always been told is that if you are going through more than 1 pad an hour – go to a doctor or ER. They will run tests to rule out something more serious and if it is just a heavy period, they will likely give you IV fluids. With heavy bleeding you could pass out, so make sure someone drives you and don’t do anything strenuous (no exercising, lifting groceries, etc.). I am not a medical doctor and this is just the advice I have received from drs and nurses over the years. This is not medical advice and please take note of the site’s medical disclaimer:
      Information contained in this site is general and it is neither intended, nor should be construed as medical advice. If you have any specific health care needs or require complete diagnostic and/or treatment information, please see a doctor or other health care provider.

      If it is just a heavy period and you don’t want to use birth control to regulate your hormones after this cycle – I would suggest going to see a naturopath in a week or two.

  49. Lisbeth,
    Here is a synopsis of what I wish I had known when I was your age that I know now.[I’m 61]. I had early puberty & early menopause. From the age of 12 I passed clots the size of chicken livers & would be on my knees vomiting from the cramps. Anemic for two weeks then start over. Wicked PMS by my 30s. Got Percodan for the cramps & high dose BC pills for the flow.[1970s].
    Many years later I found out that along with all the other risks; that BC pills artificially raise cortisol levels-suppressing immune system.
    By age 38 [after two kids] I was floxed from Cipro & was bedridden for a year. Did not figure this out for 15 years [got floxed 6 more times] now have CFS/FM/MCS, severe insomnia etc.
    Many dangerous & expensive inconclusive tests later ;they wanted to take my uterus but could find no fibriods,cancer or endometriosis. I finally did basal body testing on my own & got on non synthetic Armour thyroid based on that & symptoms like heavy periods, hair loss, & dry skin etc. This helped tremendously including my energy levels.
    I also got 16 huge amalgam fillings removed & replaced with composites. Had I known that Hg poisoning could CAUSE the thyroid problems I might have waited on the Armour.
    Also fluorinated drugs [not just quinolones] accumulate in the pineal gland blocking melatonin & pineal proteins which are needed for sleep, puberty & menopause.For a list of F drugs to avoid go to http://www.slweb.org & click on the FTRC link.
    Further research, hair & urinalysis turned out I was severely heavy metal poisoned but not just mercury. Lead & arsenic were very high among others. Turns out I was environmentally exposed as a child & young adult from lead arsenate aerosol sprayed on the gypsy moths on Cape Cod for 4 years till the birds stopped singing & Rachel Carson wrote Silent Spring which jump started the EPA. In addition my mother was mixing amalgam fillings all day working for 3 dentists so I was poisoned in utero & by her breast milk.
    Chelating has helped a lot but don’t trust doctors to do it IV. Go to http://www.noamalgam.com and but Andy Cutlers book. It shows you the cheapest, safest, & most effective way to detox & quantify the results. Lab tests are available at http://www.directlabs.com. Took me 23 years to figure all this out and much damage has been done [DNA testing from 23and me concur], recovery is is harder when you get old so do it now!
    PS My biological dentist has had to do major chelation twice now because of his job [he takes out mercury] but also had a ton of lead & arsenic in his tests. He was not happy when I told him lead arsenate is heavily sprayed on all the golf courses as a pesticide & that’s where he got it from.

    1. CAWS, would you be interested in writing your health story for a blog post. I am certain other women can learn from your experience and hopefully stave off some of the suffering that you have had to endure. Thank you for commenting.

      You can send us a note at: info@hormonesmatter.com

  50. My doctor never had a clue what was going on with me. They stuck me on different medications guessing that it would help me but they just made me feel worse and didn’t help the bleeding.

    A friend recommended Dr. Ben Gonzalez in silver spring, MD and he found out that I had a fibroid the size of a grapefruit! No other doctor even got close!

    He wrote an article about what happens when doctors don’t know whats wrong.

    http://www.atlantismedcenter.com/blog/everything-is-normal/

    Might help you a little:o)

  51. I came across your post while researching my yet again fainting episode. I don’t land to the ER, I sometime just pass out on a banch near by, and half an hour later (or sometimes longer) I would wake up and drag myself home.
    Came from a Chinese background, Dong Quai is one of the chinese medicine my mom and my sister in law, and lots of my chinese friends swear by. However, they are the most bitter testing thing you can have. According to Chinese medicine, they don’t believe in ‘pills’, they believe you have to make it a soup, slow cook them so that all the ‘juice’ got out into the hot water and that the body can absorb than a pill. Don’t know it if an old wives tale, but these soup are so bitter and smell so bad I refused to take them too.

  52. Hi Lisbeth! I am really glad I found the time to read your post as your instructions were really perfect for navigating through the site. I have been battling being anemic pretty much all of my life. Though I don’t feel like an expert on the subject my grandfather on the other hand swears by taking one iron pill a day. He is nearly 90 years young and a fiery spark of energy. I would consider consulting with a hematologist though for your bleeding issues. There must be something that he or she can prescribe that is safe and help you manage your cycle so it doesn’t affect you so harshly every month. I couldn’t imagine bleeding for 16 days like your first response does. I know that I used to have pretty long periods until I got pregnant for the first time. It definitely made me regular and three days at most. So maybe getting pregnant is not an answer but some light at the end of the tunnel at least.
    S Take care and good luck. Sincerely, Ursula

  53. I’m actually about to go to the emergency room myself for the first time for this in just a couple hours. Going on day 16 of heavy bleeding with clots and I’m wearing 5 pads at a time and changing them every hour and still bleeding through my pants, all over the bed, and furniture. They better do something.

  54. Have they tried bioidentical progesterone? It is a far cry from any of the synthetic, harmful progesterone available and also has mood enhancing/stabilizing effects. Synthetic progesterone makes women feel awful but stops the bleeding. Bioidentical calms, stops the bleeding and protects from the ravages of estrogen, which we continue to drown in in America for several reasons (plastics, BPA, chemicals etc.). Progesterone is the first hormone a women loses (generally age 35) and can also be used up in periods of high stress.
    Best of luck as you look for answers.

  55. Have the docs not investigated the possibility of adenomyosis?? Sounds very much like adeno to me! And totally understand what you mean about the lack of sympathy when you refuse their almighty hormones! I have severe endo and have had countless doctors wash their hands of me because i won’t take hormones to put me through a chemical menopause , or bc pills. But i took bc pills for years and had awful side effects so would never touch them again .

  56. Thank you both for the advice! I’ll look into both. I picked up some floradix on my way home from the ER and already had Moringa at home, which should both help rebuild my blood. The bleeding has slowed down tremendously, but the whole experience just added to my already maxed out stress levels. I’m thankful that this isn’t every month, but I’ll definitely look into the Chinese herbs, I’m fairly sure I have yarrow root tea and dong quai in the cupboard. My energy levels are starting to pick up, but it’s going to be a battle with doctors in the following weeks. Thank you for your support!!!

  57. Hi Lisbeth, I’m very sorry you had to go to the ER and are feeling so bad. I know exactly what you mean about how the next 2 weeks are going to go–I’ve been there myself many times. I know it is exhausting to fight the system, especially when you are already fighting illness, but you have to. There is more they can do for you. If you aren’t already taking tranexamic acid, you can ask about a prescription for that. They can give it by IV in the hospital, and there is also an oral form you can take at home. It’s a drug that works on the blood clotting pathway to help slow the bleeding. Also, if you aren’t taking iron, please consider taking some. I know oral iron is very hard on the system but it will really help your fatigue. You can also ask your doctor about IV iron. I’ve discovered that hematologists manage anemia much more aggressively than general practitioners. And it should be managed aggressively, since it can be very debilitating. Hope you feel better soon.

  58. You are brave!

    I bleed a lot too,have become anemic, I also refuse taking hormonal contraceptives because they are so bad for me in every possible way.

    I have been taking 2000 mg a day of dong quai (Chinese Angelica) + DIM + yarrow tea for the heavy bleeding,I started them last month and my last period was much lighter that I could go to work.

    My mood has improved, energy levels, and my skin 🙂

    Hope you can feel a little better soon.

    XX

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