Post Hysterectomy Skeletal and Anatomical Changes

Author: 330 Comments
hysterectomy
FacebookTwitterGoogle+PrintShare

I wonder if so many women would “choose” hysterectomy if they knew how it would affect their figure and internal anatomy. I know I would have told my once respected gynecologist “no way” and left never to return if I’d known just a smidgen of what I now know. Here are some of the anatomical and skeletal changes that occur post hysterectomy.

Ligament and Skeletal Changes Post Hysterectomy

An intact woman’s figure has space between the rib cage and the hip bones commonly known as the waist. The waist gives her the curve in her lower back, the natural sway in her hips, her “elongated” torso that’s proportionate to her extremities. This all changes after hysterectomy.

Four sets of ligaments hold the uterus in place. These ligaments are the “scaffolding” or support structures for the core (midsection). When the ligaments are severed to remove the uterus, the spine compresses causing the rib cage to gradually fall toward the hip bones and the hip bones to widen. This causes a shortened, thickened midsection, protruding belly, and loss of the curve in the lower back, giving the appearance of a flat derriere. In some women, these changes cause those hated rolls of fat (weight gain or not). In others, it looks more like a pregnant belly. This can be particularly distressing for women whose hysterectomies denied them the chance to have (more) children.

As if an unattractive figure isn’t devastating enough, these skeletal changes lead to chronic back, hip, and rib cage pain as well as tingling and loss of sensation in legs and feet. It also explains why, even absent osteoporosis, hysterectomized women lose height. With all these changes to the skeletal structure, I wonder if hysterectomy can also cause spinal stenosis. It would certainly seem plausible.

Evidence of my spine compressing started 12 to 18 months post-op. A crease started forming about two inches above my navel. It gradually lengthened over the next 6 months to a year until it became visible all across my midsection. I’ve always been thin (underweight) with flat, toned abs and prominent hip bones. And contrary to what most women experience after hysterectomy, I lost weight. As my spine compressed, my flat abs became “fat” and flabby. My hip bones became less prominent in the front (as my belly pooched out) and more prominent in the back since my rib cage had fallen onto my hip bones. And I now have intermittent back, hip, and rib cage pain as well as tingling in feet. My sacrum / tailbone has also looked bruised since not long after my hysterectomy.

Internal Organs Post Hysterectomy

And how does the body change on the inside? Well for one, it affects the bladder and bowel. The uterus separates the bladder and bowel and holds them in their rightful positions. Removal of the uterus causes these organs to fall impeding function. When the bladder or bowel is full, there can be a feeling of discomfort or even outright pain (exactly what I’m feeling at this moment – constant pain that increases by just walking). Complete emptying can be problematic as can incontinence. Bowels may alternate between constipation and diarrhea. Adhesions can further hamper bowel function even to the point of a life threatening obstruction. I’ve had serious bowel problems ever since my surgery 7 years ago. Chances of bladder, bowel, and vaginal prolapse and fistula also increase leading to more loss of quality of life and future risky surgeries. Hysterectomy has even been shown to increase risk of renal cell (kidney) cancer likely caused by damage to ureters. I have to wonder if functions of other organs may also be affected as our organs don’t work in isolation and may be further affected by the anatomical changes.

Nerves and Sex Post Hysterectomy

And what about sensation after all those nerves and blood vessels are severed? What’s it like having a shortened vagina that’s not connected to anything? Well, it’s no wonder sex isn’t the same! How can it be? And if you enjoyed uterine orgasms, those are obviously a pleasure of the past. Even nipple sensation can be lost because nerve endings are found all along the spine. The severing of nerves as well as scar tissue formation can cause a problem worse than loss of sensation – nerve entrapment which can be quite painful.

I’m not sure which is worse – the hormonal adverse effects or the anatomical and skeletal adverse effects. There’s no doubt though that my body has been drastically altered since the unwarranted removal of my vital female organs.

The adverse effects to a woman’s figure, as well as the many other adverse effects of female organ removal, are detailed in the video “Female Anatomy: the Functions of the Female Organs.” Priceless!

FacebookTwitterGoogle+PrintShare
Previous Article

Inert Ingredients in Glyphosate Herbicides Are Toxic Too

Next Article

Forget Dove, This is Real Beauty – This is My Body Project

You may also like

330 Comments

  1. I happy I found your page. I am 8 weeks post-op from a radical hysterectomy with an oophrectomy. Having read a lot of the comments I do feel like so many issues are not discussed on diascharge fro the hospital. I was told by the surgeon that my headaches are not related. Pain management is like pulling teeth meaning don’t ask. I thought I would be so much better by now and seemed to have hit a wall.I saw my surgeon at 6 weeks post-op and was told how well I was healing and didn’t need to come back, to go see my primary for a wellness chec as my BP was elevated.

    My surgery was emeregency and I probably needed it, but was not prepaired for how difficult the recovery is.
    And reading these comments is very helpful navigating these at times difficult days. I guess it’s good to know I’m not imagining things.
    I wish doctors would at least just admit that these issues exist and are related to surgery instead of just go home be happy.I might add that I am 58 yo and maybe just not bouncing back like a younger person may.

    Thank you for your page.

    1. Cindy, I’m sorry you’re having a difficult time and that your doctor has been dismissive! Headaches are actually quite common due to the loss of hormones. It really is a travesty that gynecologists fail to inform their patients of the fall-out from female organ removal especially since so few of these surgeries are necessary. I was told mine was necessary but my pathology report proved otherwise. Another myth is that women who’ve gone through menopause won’t experience the negative effects. But our ovaries produce hormones our whole lives so of course post-menopausal women will also experience symptoms if their ovaries are removed.

      I wish you the best in getting relief from these symptoms!

      1. Thank you for your reply. My pathology report was completely negative for any underlying issues that would have required cancer treatments etc. i wish I would have been more informed about everything.

        1. Cindy, That’s a common lament “I wish I had known / been informed.” It’s the Gynecology specialty’s modus operandi to not inform and even misinform women (including cancer scare tactics) because hysterectomies and oophorectomies are so profitable. They don’t even require fibroid removal surgeries (myomectomy) as part of gyn training yet each gyn resident must do a MINIMUM of 70 hysterectomies. And the insurance companies seem to not ask any questions when approving these surgeries even though they know they’re rarely necessary. Sorry for the rant!

          1. Yea, I was in a lot of pain and probably would have sold my soul to the devil to make it stop. And was told I probably had cancer at the first hospital who then transferred me to the second hospital. Once there still in excruciating pain the Ob/gyn oncologist came in and said your getting a hysterectomy. Hindsight is 20/20….sigh…..

            Thank you for the “rant” ?

    2. I am 35 yrs old. I had my partial hysterectomy in June of 2003. I have since had 5 lapos since then for removal of my left ovary, part of my bladder and multiple scar tissue issues. My last surgery was in 2013 when I finally decided enough was enough. My son is turning 14 this year and I couldn’t imagine having to take away from time with him for another meaningless surgery. Doctors dismiss your pain and won’t give you anything to help it beyond a prescription right after surgery they don’t/won’t do long term pain management. I felt so lost for so long. Now I’m free. I still live with pain every day but knowing every min I spend with my son on this earth will now and always be on my terms. A blessing. I hope everyone finds their own path and I pray you all a happy and pain free life.

      1. Tisha, I’m sorry you’re still in chronic pain after all these surgeries. I assume you have endometriosis which sounds like a horrible disease. It’s so sad that so many women undergo hysterectomy with the understanding or hope that it will end the pain. Unfortunately, many do not get relief or it is short-lived. I wish you the best life possible despite the chronic pain.

      2. Yes Tisha, I agree with you. The doctors will not address the pain factor they act like it doesen’t exist. And if they do even acknowledge the pain factor it’s addressed by telling you to take Tylenol or some other over the counter product that does not work.

        I had everything removed 8 weeks ago and still experience pain. I believe you that you also have pain, and it’s dismissed so easily by medical professionals. They have no sympathy even as they tell you that you just had major surgery. I wish you well and hope you find some measure of relief.

  2. Oh wow. I feel so duped. I had no idea about all these problems after having a total hysterectomy. Mine was April 28, 2016. One month later I started getting terrible joint bone pain. I can’t sleep at night. I just started bio identical hormone replacement. It is a cream that I rub into my forearms. I have been waiting for it to make my joints feel better and to finally sleep….but no luck. I feel like I am 90 years old when I sit for a while and then get up I cant even walk because the hip joint pain is so bad. That is the reason I just went online….to look up if this hysterectomy could be the cause of my sudden joint pain and to my surprise, YES, it is! I feel like crying reading all of this. I did not have any idea about the physical changes that are now going to take place. I thought everything would be so much better after this. That is what my new OBGYN made me feel like.

    1. Don’t get upset. I read it takes a full year to heal from the operation. Give yourself time. I feel that pain too in the joints and bones. So I might take some vitamins for that. I had my operation in June 2016. I went on the HRT patch and It’s being good . I am hoping after the year it will be all good.

    2. Marlo,
      I’m sorry that you were also duped as so many women are. What gynecologic problems led up to your surgery? Was the da Vinci robot used? I assume your ovaries were removed since you started hormones. Please be aware that hormone therapy is trial and error so it may take awhile to find the “right” type and dose for your body.

      The hysterectomy industry is a well-oiled machine and has been for decades. I’m 10 years post-op and it still baffles me that doctors and hospitals get away with removing so many women’s organs unnecessarily when it has been clearly shown to cause more harm than good. Where is our government in protecting us from harm? I recall someone saying that when she contacted her legislator, she was told that he/she didn’t want to put any gynecologists out of business. Another woman was told by a legislator that the government doesn’t legislate health care. It’s clear from ACOG’s website that they lobby Congress heavily and we know money talks.

      It doesn’t help that women who’ve had these surgeries are oftentimes not forthcoming for various reasons – embarrassment, shame, belief that it was necessary, misery loves company, etc. Also, the use of the da Vinci robot keeps the industry “alive and well” with promises of shorter surgical recoveries. And there’s a lot of incentive to use those expensive machines not only to recoup the initial capital outlay but also the maintenance expenses. Hysterectomy statistics are also misleading as they typically only report inpatient surgeries and many (40% in 2012) are outpatient. This leads people to believe that hysterectomies are on the decline when they are not.

      I know you are still early post-op and just trying to function. If you want to be part of the effort to stop this harm / abuse, here are some ways to do that:

      ProPublica’s Patient Safety organization is doing a hysterectomy survey. It would be great if you would complete it and include what you were and were not told about this surgery (whether or not you had surgical “complications”). Here’s the form’s link – http://propub.li/1t6uZNr.

      This is another way to report your patient harm to ProPublica – https://www.propublica.org/getinvolved/item/have-you-been-harmed-in-a-medical-facility-share-your-story

      Consumers Union (part of Consumer Reports) also has a Patient Safety arm. You can report your harm here – http://safepatientproject.org/share-your-story. I reported my unwarranted hysterectomy and oophorectomy in two categories, Doctor Accountability and Medical Errors (even though my organs were intentionally removed).

      Best of luck to you! Please keep us posted on how you’re doing.

      1. It’s been a year since my surgery. Most recently I’m having bladder issues and joint pain in lower back and hip bones.

        1. Michelle, I’m sorry you’re suffering these after effects. If you don’t mind me asking, what problems led to your hysterectomy and what method of surgery was used (e.g., abdominal, laparoscopic, vaginal, da Vinci)?

    3. Omgg I am layin here cryin im not alone i jad my hysterectomy on april 9th and by july i have been sufferin with joint pain ..They said i had epstein bar buat its not goin away so i went to a lyme specialistwhich he put me on antibiotics which he went on symptoms and now im reading tjis

      1. I am so lost i cant even work i kept my ovaries tho so im confused my lower back constantly hurts and my neck and shoulders and uppear back hurts so bada

        1. I’m sorry you’re suffering so terribly! I recall another woman being told she had Epstein Barr after having a hysterectomy but I don’t think it ended up being that. I also know a woman who is being treated for Lyme disease but she didn’t have any symptoms of it until after her only functioning ovary was removed.

          Did the back, neck and shoulder pain also start in July (along with the joint pain)? Or have you had it since surgery?

          Have you had a hormone panel to see if your ovaries have shut down (which happens a lot after hysterectomy). A blood test for FSH (Follicle Stimulating Hormone) and estrogen are the ones they use to see what the ovaries are / aren’t doing.

          1. Everything happened 2 months after surgery. Was neck pain then went to shoulder pain and now at back and very tired and knees sometimes hurt .The only time I’m not as pained is when im laying down.I work in retail and im so pained standin its horrible and spendin all thos money on a lyme literate doc.ro just go by symptoms is driving me crazy..I am gonna for blood work on saturday and if it comes back negative im done with that ..What doc should inseak ugh ty for quick response all indo is cry i never felt so pained in my life xo

              1. All my idiot primary would say is this is eptein bar and it takes at least 6 weeks for u to feel better and took me out of work for 2 weeks ..I asked her if this joint pain could be from hysterectomy and she said no ugh unbearable.So tired of this pain

                1. Your primary doctor needs to educate herself on the side effects of hysterectomy! Reading women’s experiences like those here would be a good start. It’s frustrating and makes me angry that doctors fail to acknowledge or realize that removing body parts is harmful!

            1. Yess i know she kind of tossed it under the rug when i spoke about it .!! Im gonna call my gyn today and try to get appointment. I cant live this way always in pain and i dont think its lyme disease..but i will keep takin antibiotics until blood work comes back ..Thank u sooo much for this because I would of no clue if i didnt read all this oh and by the way im debbie nice to meet u my dear

              1. Also my ribbs hurt me so bad and down my arms r sore and lower back pain is crazy ..Im always tired ugh what a life at 48 i rather keep bleedimg

              2. Gynecologists who do hysterectomies (which is the majority of them) usually don’t / won’t admit to the negative effects especially if they didn’t advise you before the surgery (uninformed consent). But he / she should still be willing to order a hormone panel. And I didn’t think of this before. You may also want to ask for a complete thyroid panel including antibodies because loss of ovarian function can also affect thyroid function. Let us know what you find out.

                1. Okay well the lyme literite doc took and fsh blood work and to see if i have any infectious diseases i will get tje blood work back on thursday ..I will let u know thank u again

    4. I had been having pain here and there for 3 yrs. Always cramping and the pain was intense. I seen many drs and not one dr knew what was wrong with me. I k ew some drs thought I was faking my pain. I found a dr that said I needed a hysterectomy because I had an over larged uteris which found out I had a mass growing in my uteris. No cancer. Thank god! I had my a partial hysterectomy
      june of 2016. Not to long ago. I felt better after my pain was gone from my c section. But then I started having alot of hip pain and pain on my tail bone and Im cramping and bloating. The dr that I had wasnt informative as he should had been. My uteris was being removed because he told me I had a large mass growing like a baby in there. He put me on hormones, he said it would stop my periods and slow down the rapid growth of the mass. The reason for stopping my periods was because I was pernicious anemic. My blood level was a 6. Id lose to much blood durning my periods. I was having to take tons of vitamins. B1, B6, B12, potassium, multivitamins, iron, vitamin C and D. I was in the hospital 3 days. He removed my uteris and left my ovaries. He told me I wouldnt have to take hormones but if he took my ovaries out then id need to take the hormones. He was giving me a choice. And of course I did not want to take hormones. I didnt like how they made me feel. So, I chose to leave my ovaries. I also told him if my ovaries needed to come out then I was ok with it. He said they didnt need to come out. My first visit to him 2 weeks after my surgery he asks me if I heard of endometriosis. I said, not really. He begins to tell me that the stomach lining grows into the area of my uteris. He tells me that was causing most of my pain. This is something he shoukd had told me while I was in the hospital and here I am 3 months later and im bloated and cramping n my lower body of my hips n back hurt very badly.I feel pressure on my colan and bladder. I feel pressure when I urinate. And I urinate very often. My body doesnt feel right. I know something is wrong. Very confused and afraid.

      1. Roberta,
        Thank you for sharing your story.

        Have you been thoroughly checked for a urinary tract infection (UTI)? Those are fairly common after hysterectomy and can be difficult to eradicate. The displacement of the bladder and bowel (without the uterus to anchor them) can also cause problems with elimination – incomplete emptying of bladder and bowel. That can cause discomfort and bloating. But it seems that there may be other causes of bloating after hysterectomy. It seems to be a common complaint.

        Back problems also seem to be a common complaint which can be due to surgical positioning in the short-term post-op period. In the long-term, back problems are caused by the loss of pelvic integrity due to the severed pelvic support structures.

        Endometriosis can also cause pelvic pain and cramping. Since endometriosis grows outside the uterus and throughout the pelvis, it can continue to cause pain after hysterectomy.

        I hope you can get answers and treatment for these problems!

  3. Hi
    On 25th June 2015 I had surgery for a cyst on my ovary, when I was on the operating table they found the primary site was my bowel which turned out to have cancerous lymph nodes. In short I therefore had bowel surgery and full hysterectomy. We are now 18th August 2016 and few a couple of months between my armpit and the top side of my breast I have had a constant dull ache. I have checked my breast for any abnormalities and don’t seem to have anything, all looks normal. (I am booking in with my GP/Consultant to get checked – couple weeks wait) but in the meantime thought I would ask if this could be related to the hysterectomy?

    1. Janet, I’m sorry for your cancer diagnosis. Hysterectomy or bowel resection wouldn’t typically cause pain in your upper chest / side. However, blood clots are a risk of surgery and the chest pain could be a symptom of pulmonary embolism which is VERY SERIOUS and needs immediate medical attention. Here is a list of symptoms – http://www.mayoclinic.org/diseases-conditions/pulmonary-embolism/basics/symptoms/con-20022849. If you think you may have this, please seek medical help immediately!

  4. Hello,

    I had my full hysterectomy June 4, 2016. A couple of weeks later I began to have bad joint pain like arthritis in my legs, hands, back of my shoulders, and hips. I am also really tired. My doctor put me on a low dose of estrogen but I’m still tired and in joint pain. I’m really concerned and my doctor had me go to the clinic and have hormone blood tests. I’m miserable the moment.

    1. Wow, Danielle, those symptoms developed quickly! However, ovary removal (or post-hysterectomy ovarian failure) is a severe trauma to the body because the ovaries are endocrine glands that produce hormones our whole lives and are necessary for every cell in our bodies. So women usually suffer with numerous symptoms, joint pain oftentimes being one of them.

      But it’s possible something else could at least be contributing to this pain. They usually give prophylactic antibiotics before surgery to help prevent infections. If you were given a fluoroquinolone type antibiotic (there are a number of these, Cipro being one) you may have developed one of its side effects, tendinitis. Here is an FDA alert about that – http://www.fda.gov/Drugs/DrugSafety/PostmarketDrugSafetyInformationforPatientsandProviders/ucm126085.htm. There are also a number of articles on Hormones Matter about the side effects of these drugs – https://www.hormonesmatter.com//?s=fluoroquinolone. That being said, I don’t know how much you have to take to cause these side effects but just thought I’d mention that.

      I wish you the best moving forward from this major surgery.

      1. KW..Thanks for your response. I am seeing my doctor this Thursday to discuss my blood results and I’m hoping he can help me. I will bring up the antibiotic issue you wrote about. I can’t wait to start feeling better. As far as weight gain, the only place I have gained weight is in my chest I assume because of the estrodile. I don’t bloat anymore which is wonderful. Again, thanks for your response. Danielle

    2. Danelle i feel your pain i have same symptoms since hysterectomy on april 9th of this year .Two mpnths later nothing but join pain and i have my ovaries ..God help us with this pain it is slowly killing me !!

      1. Hello,
        I’m sorry you’re feeling the horrible joint pain. I now have pain in my arms and I’m still tired. After work I come home and lay in bed for awhile. It seems to relax my body for a bit but as soon as I get up it’s horrible. I’m on estrogen and my doctor just put on testosterone after my blood work was done. Please let me know if you find a way of feeling better. I’m up for anything at this point! I feel your pain. 🙂

  5. Sorry to read about all the serious complications that women and you have dealt with after a hysterectomy. However, I have serious doubts about your waist weight and collapse of the ribs theory. The ribs are held up by the spinal cord and have nothing to do with support from uterus ligaments. A scaffold has a firm base usually the ground and the ligaments you refer to hold the uterus in place but are like ropes. you and others may have too much pain to try exercise but I would think that stretching and pilates would be of benefit. Other complications such as stomach muscles and belly fat, urinary problems, sex problems, and spinal cord hysterectomy related pain are serious and I have no suggestions. Just don’t think that most women benefit from such misinformation about a collapse of the midsection. It just adds to anxiety and the feeling that nothing can be done. Have you checked with a helpful doctor about this? And, if this is about a class action lawsuit you should get the facts straight before initiating it.

    1. KW, The descent of the rib cage / shortening of the upper torso didn’t make sense to me either when I read about it shortly after surgery. But then as time went on, it became clear as I watched it gradually happen. It also explained why all the women I knew who’d had hysterectomies had thick midsections. The 3/4/15 post by Ann below describes it as follows: “My body was previously bikini worthy, now as others seem to have experienced, there is less support so my ribcage is lower and my abdomen has a bulge…. I have a new large indent in my back now, almost like the plane across where the uterus was has an empty void and doesn’t support my spine.”

      Yes, some women have been so egregiously harmed by hysterectomy that they live with chronic, debilitating pain making them unable to exercise. Some don’t have pain until the back pain sets in from the loss of skeletal integrity. I have maintained my exercise routines and although I still have strong ab muscles, there’s all this compressed flabby “fat” that no amount of exercise can help. I avoid the form fitting clothes I used to wear because they accentuate my thick and shortened midsection, protruding belly, and flat butt. It’s been 10 years since my surgery and I still despair about how this has destroyed my body.

      I know we’d like to think that hysterectomy doesn’t cause so much harm. But you do a serious disservice by saying that women shouldn’t share their negative experiences and knowledge because it may cause other women anxiety. The nay-saying and discounting of negative effects is one of the main reasons for the continued epidemic of unwarranted hysterectomies and all its harms. I’m curious why you mentioned a class action lawsuit. Are you by chance a medical malpractice defense attorney or work for one? In my opinion, all women who’ve had hysterectomies and/or oophorectomies without being given the facts about the life long functions of the uterus and ovaries deserve to be compensated especially if done for a benign condition. Have you had a hysterectomy and, if so, when?

  6. Hi, thank you for publishing this information. Sorry that that website, which I think may have a name beginning with the letter “H”, banned you. This information is very informative as I have seen other women posting comments about suffering from back pains. Maybe they’re different from mine, but I think all is related to this surgery. I feel as though your article is describing me. I had a partial hysterectomy on Feb. 29, 2016. I thought it would alleviate the low back and leg pains I was experiencing since September 2015. In fact, my own gynecologist was convinced that these pains were the cause of multiple gigantic fibroids. The largest fibroid measured 10.5 cm last year, and after they were extracted I was told they weighed a total of 3 pounds.

    However, the same week of my surgery I began a sharp pain when I strained at the toilet. The pain seemed to have originated from the lower back traveling down my inner thigh via my nerve. I thought I was having sciatica again. But this nerve pain never went away, and to this day I’ve still got it. In addition, over the last few months I’ve gotten this excruciating pain after I am in a lying or sitting position. The pain again originates from my lower back and goes down both legs to the point that I cannot straighten up or the pain increases in intensity. It lasts the entire day now. It feels as if my back is stiff and I can feel a sort of pressure in the pelvic floor area. I am sure that what you described about prolapse might be what I’m experiencing. No matter how much I stretch the pain is there. All I’m doing is depending on naproxen which I know is a risk to take long term due to the effect of a bleeding stomach to stroke.

    I asked my doctor to refer me to a physical therapist hoping to get some deep tissue massage which I was told helps. Instead the therapist only wants me to do some core exercises which she said will take a long time before any improvement (if any) will occur. I didn’t like that she seemed to want to have me continue returning to keep her busy so I’m truly considering acupuncture next.

    If anyone else is experiencing this sort of pain and has tried acupuncture please reply to let me know how it went.

    Thanks.

    1. Cheryl, I’m sorry you’re also suffering since your hysterectomy! I have not had acupuncture for nerve or back pain. Hopefully, someone will come along who has.

      I’m curious if the da Vinci robot was used for your surgery. I’ve read that training on the robot is severely lacking but I’ve also read that, in general, gynecologists don’t get adequate surgical training during their residencies so many are ill prepared to operate. And unfortunately hysterectomy is overused. Also, if you were in a teaching hospital, a resident may have done your surgery and the attending surgeon may not have even been in the operating room.

      ProPublica’s Patient Safety organization is doing a hysterectomy survey. It would be great if you would complete it. Here’s the form’s link – http://propub.li/1t6uZNr.

      This is another way to report your patient harm to ProPublica – https://www.propublica.org/getinvolved/item/have-you-been-harmed-in-a-medical-facility-share-your-story

      Consumers Union (part of Consumer Reports) also has a Patient Safety arm. You can report your harm here – http://safepatientproject.org/share-your-story. I reported my unwarranted hysterectomy and oophorectomy in two categories, Doctor Accountability and Medical Errors (even though my organs were intentionally removed).

      I hope you’re able to get treatment to address the pain!

      1. Hi WS,

        Thanks for the reply.

        My surgery was performed by an experienced gynecologist (he isn’t an OB as well just strictly GYN). It wasn’t a da Vinci robotic surgery. I’ve read that this type could cause women to experience back pains afterwards due to how they position the patient. Glad I didn’t have that or I’d probably be in worse shape than I already am.

        I forgot to mention that I suffer from arthritis so that could be part of why I’m in pain.

        Thanks for the good wishes.

        Best,

        Cheryl

      2. Hello.

        I had a hysterectomy with the davinci robot and still have my ovaries, this was June of 2014. I had stage 0 cervical cancer at 42 and I am pretty active, busy, work full time and it just seemed like the answer not to mention it was a very scary diagnosis.

        I came through the surgery fine, picked right back up about 3 weeks later and carried on full time work, president that year of a local nonprofit – the weight started coming on late fall – I remember I wore a dress to an event in October of 2014 that laughs at me from the closet now! The weight continued, I went into surgery about a good 140-145, I’m fighting now to stay at 165. What started becoming interesting, well annoying is a better word – is the weight didn’t come back in the normal areas. I’ve always been very small around the waist and ribcage, small breasts (and I was ok with that and miss them, haha) mainly carrying my weight in my rear and my legs. They are the skinny parts of my body now and I have boobs and a gut, even when I would gain some weight before the surgery, my stomach always was flat. Leads to believe there is something to changes with organs being removed and just kind of the overall result two years post op of what I am dealing with! I am going to a new gynocologist today actually as I have been released from the gyno-oncologist to talk to him about this – it’s livable – but I think menopause has hit, my moods which I am able to keep under wraps except to those close is up and down and up an down and living in the South, the hot flashes wow, pretty bad. I look forward to reading other replies when I get time and I will report back in after my appointment – he was recommended to be a doctor more knowledgeable in the menopause area, I hope he can help and answer questions about the belly. Best to you all.

        1. I’m sorry you’re dealing with these after effects of hysterectomy done for stage 0 cervical cancer (I assume the conization procedure didn’t give clear margins hence the reason for hysterectomy?).

          The reason your abs no longer remain flat with weight gain (or without for that matter) is that hysterectomy alters the figure as explained in my article. The four sets of ligaments that have to be cut to remove the uterus are the structural supports (sort of like scaffolding) for the pelvis. They keep the spine, rib cage and hips where they belong. Once those are cut, the spine gradually compresses, the hips widen and the rib cage falls causing your midsection to shorten and thicken / your waist to disappear. From my connections with other women, most don’t really understand this until it starts happening to them post-hysterectomy. Gynecologists typically do not admit to these figure changes…it wouldn’t be good for their hysterectomy business! It sounds like your ovaries have failed or aren’t producing their natural level of hormones which is another common after effect of hysterectomy that gynecologists rarely divulge. The ovaries of women who have all their parts are shown to produce hormones into at least the eighth decade.

          I hope you can get the help you need to feel and function better!

          1. I really appreciate your response and will try to filter through so many responses for other answers. If you have time – for women like me who are going through this at now 44 – are HRT’s recommended – or only in extreme cases? Do they help with this skeletal body change?

            I’m not suicidal or sad, only taking a sleep aide, no anti depressants, just mad that my body is changing, I’ve started a product called Plexus that has helped my regularity, it never was good, after the surgery it was really difficult – just always constipated and the Plexus (or else it’s in my head) after about a month has really evened things out (hallelujah).

            I had clear margins, but I had AGUS and with it being glandular the doctor thought it would be a good preventative measure as I have researched that can skip around. I think even if I had known this was going to happen,

            I finally said enough three weeks ago and got back to the gym. Is there hope for gals like us, or is this it! Oh my. 🙂

            1. HRT is a personal choice. I think it’s important that women do their own research and weigh the risks and benefits against the medically documented risks associated with ovarian failure or ovary removal.

              There aren’t any real fixes for the skeletal changes resulting from the severing of all those ligaments. However, bone loss is a common consequence of impaired ovarian function or ovary removal (loss of estrogen and testosterone) which can cause additional deterioration to the spine and other bones.

              I’m glad to hear you aren’t suicidal or depressed. That was one of the worst effects for me although I had many others besides that!

              I hear you on the bowel issues. I had diarrhea for a long time post-op and my bowels have never returned to normal. Glad to hear the Plexus has helped!

              Getting back to the gym should help with weight…I hope it does!

    2. II had a hysterectomy six years ago since then can’t go without a day having nerve pain on my back hips thighs no legs it’s mostly on my right side I work full time and now I’m of work because I in pain all the time

      1. It’s also on both legs I get burning and like someone putting a sharp knife into me went to doctor and he’s said its not connected to hysterectomy I did not believe him

        1. Sandra, I’m sorry you’ve been suffering with nerve damage since your hysterectomy. I’m curious if the da Vinci robot was used for your surgery. Nerve damage is a risk for any method of hysterectomy but it seems it may be higher for robotic.

          I urge you to share your experience with two organizations that are working to improve patient safety.

          ProPublica’s Patient Safety organization is doing a hysterectomy survey. Please share your experience of nerve damage and any other surgical complications as well as all the other negative effects. Here is the survey link – http://propub.li/1t6uZNr.

          This is another way to report your patient harm to ProPublica – https://www.propublica.org/getinvolved/item/have-you-been-harmed-in-a-medical-facility-share-your-story.

          Consumers Union (part of Consumer Reports) also has a Patient Safety arm. You can report your harm here – http://safepatientproject.org/share-your-story. I reported my unwarranted hysterectomy and oophorectomy in two categories, Doctor Accountability and Medical Errors (even though my organs were intentionally removed).

          We need to make the media aware of the awful harm and gross overuse of these surgeries or it will never end! Thank you.

          I wish you the best in getting relief from the awful nerve pain!

          1. Hi, I actually posted a comment a few months ago above. I’m suffering from constant back, hip, and leg pains mostly on my right side but could be simultaneously sometimes. And it feels nerve related.

            Since I last posted my comment the pains have gotten worse. I am now experiencing a lot of stiffness in my mid section and the nerves going down my inner thighs in the backs of my legs prevent me from walking properly. I either have to hunch over a bit or walk like Frankenstein. I must say that while it can occur at any time of the day or night it’s a lot worse after getting up from bed.

            I haven’t gotten around to trying acupuncture as it’ll be out of pocket so I’m still waiting. In the meantime I have mentioned it again to my PCP who has ordered labs done but it appears that she is looking to a possibility of it being caused by rheumatoid arthritis. I’d been tested some years ago for RA but it was negative so I don’t know if it’ll show as positive now. I do not want RA as it’s a terrible condition to have.

            What I have read in the meantime as well is that perhaps I’m in either perimenopause or full menopause; I have no idea as I do not have my uterus again just ovaries and cervix. I still get a bit of staining/spotting. But I read that menopause & perimenopause causes a lot of joint and muscular pains that are excruciating.

            Also fibromyalgia has symptoms similar to mine so I am thinking about that too.

            1. Cheryl, I’m sorry the pain has gotten worse! It sounds more like nerve damage but I don’t know much about fibromyalgia or RA. I hope you can get answers and relief soon!

              1. Thank you, WS. I think the nerve is damaged and if not certainly is affected. I do feel that the hysterectomy had something to do with it getting worse though. Because I recall three days post surgery feeling a bad nerve pain right in the lower back same as I feel often nowadays.

  7. Hi my name is Michelle I had a hysterectomy in 2004 at 34, my ovaries were left due to adhesions making it impossible to remove. Ever since I have been very unwell, I am also type1 diabetic and suffered with juvenile arthritis as a child. I have suffered with chronic joint pain, muscle stiffness, headaches, acid reflux, a prolapsed bowl, severe constipation… the list is endless I have spent the last 15 years in and out of hospital, I was medically retired at 38 due to my illnesses. I was given no hrt or even spoken to about it, I have been searching for answers for years with no success with all my problems put down to my diabetes, which has never been stable, which doctors have never been able to understand either. my life has been a constant battle I have four children that I have brought up basically alone and when I think back to before my hysterectomy I was a happy bubbly person with a good job, husband etc I changed becoming old tired in constant pain not interested in sex the depression etc the list just goes on and on. I have never been right since I have got on with life as best as I can moved to France continued to look for answers for my pain but again all attributed to diabetes a cop out. I am suffering badly today with severe low back pain, pelvic pain, left buttock, thigh, knee calf and foot. I have just started in a new relationship and a sex life which is very difficult as I have zero sex drive also worry due to the rectal prolapse, during sex I am experiencing sharp pain that radiates into my hip leg etc and it is now constant I have been on morphine for pain for many years it helps me cope but it is not helping this pain after reading the information on here I am convinced my illnesses have been caused or made worse due to my hysterectomy. I feel very angry that I was never told of these very dibilitating side effect but also would like to thank you for the information, I just don’t know how to move forward with the doctors to try to explain to them what I believe has caused so much pain and suffering and what if any think can be done, I have asked for hrt before but been refused due to my diabetes which I think is unfair please can you help stare me in the right direction any advice info would be greatly appreciated, thanks michelle.

    1. Michelle, I am sorry for your horrific medical treatment starting with the hysterectomy. So many doctors dismiss our complaints. I don’t know how much of that is out of ignorance versus not wanting to admit to the harm. You could point your doctors to this Medscape article “Long-term Effects of Hysterectomy” (registration required to read in its entirety) – http://www.medscape.com/viewarticle/805517 – as well as the HERS Foundation’s female anatomy DVD cited in my article.

      ProPublica’s Patient Safety organization is doing a hysterectomy survey. It would be great if you would complete it with everything you posted here in the “Is there anything else we should know?” box. Here’s the form’s link – http://propub.li/1t6uZNr.

      This is another way to report your patient harm to ProPublica – https://www.propublica.org/getinvolved/item/have-you-been-harmed-in-a-medical-facility-share-your-story

      Consumers Union (part of Consumer Reports) also has a Patient Safety arm. You can report your harm here – http://safepatientproject.org/share-your-story. I reported my unwarranted hysterectomy and oophorectomy in two categories, Doctor Accountability and Medical Errors (even though my organs were intentionally removed).

      We need to make the media aware of the awful harm and gross overuse of these surgeries or it will never end!

    2. Michelle, I should have also provided the following websites as resources for understanding the negative endocrine / hormonal effects of ovary removal which would also apply to post-hysterectomy ovarian failure (which oftentimes occurs due to loss of blood flow and feedback from the uterus). The first one has a comprehensive list of citations including MANY studies showing the harm.
      http://www.gynreform.com/citations.html
      http://www.overy.org/

  8. All, ProPublica is doing a hysterectomy survey. If you or a loved one had a hysterectomy, please complete the survey via this link – http://propub.li/1t6uZNr. The survey includes questions about emergency versus scheduled, type / method, and reason. There are two additional sections, one asking “Did you or your loved one suffer any infections or injuries or other complications because of the operation?” followed by a section to explain / provide details to a “yes” answer. There’s another section titled “Is there anything else we should know?”

    Please be sure to include ALL negative effects you’ve experienced even if they are not surgical complications. And if you were not told the facts about the long-term negative effects of hysterectomy and/or ovary removal, please state that.

    This is another way to report your patient harm to ProPublica – https://www.propublica.org/getinvolved/item/have-you-been-harmed-in-a-medical-facility-share-your-story

    Consumers Union (an arm of Consumer Reports) also has a Patient Safety arm. You can report your harm here – http://safepatientproject.org/share-your-story. I reported my unwarranted hysterectomy and oophorectomy in two categories, Doctor Accountability and Medical Errors (even though my organs were intentionally removed).

    Let’s at least make the media aware of the awful harm and gross overuse of these surgeries. Thank you!

  9. I had a complete hysterectomy in 2004 due to severe endometriosis. Since then my low back, hips and legs stay in chronic severe non stop pain. I am on heavy pain meds. MRI shows mild spine issues but not enough to cause such pain. I’m wondering if endo is back. If so what can be done? I have lost 1″ in height since my surgery as well. Anyone have any knowledge if it can be fixed?

    1. Eva, That sounds awful! If you don’t have pelvic pain, endo wouldn’t seem to be the cause. Have you had this pain since your surgery or shortly thereafter? If so, it may be nerve damage. Have you had a DEXA scan to check for osteoporosis in your hips and/or spine?

      1. I had partial hysterectomy in 2008 ,I was 32yrs old I was ok till 4 months back am having severe lower abdominal pain and candida which is getting worse I consulted de dr with no effect I am so confused what is wrong with me

    2. I had a partial hysterectomy in 2014 due to endometriosis, adenomyosis and large fibroid. I first had uterine ablation which did not work and I was still bleeding inside my uterus. I felt good the first year, but over time, I lost my waistline, I look in the mirror and cry. I work out but my joints, especially my hips, legs and back throb. I have gained about 7 lbs, that I cannot lose. I am still small, but my waistline looks terrible. I have so many regrets, wish I never had the ablation. I would have rather dealt with the heavy bleeding and my smaller waist. So far, I have not lost any height, but have lost my waist line and my bones have changed for the worst. My plan is to visit my endocrinologist to see if my hormones are balanced, my energy levels have dropped too.

      1. Jill, I’m sorry you’re also suffering the after effects of this damaging surgery.

        We need to expose the gross overuse and permanent harm of hysterectomy (as well as ovary removal / castration) to the mainstream media. There are a number of ways women can tell their stories and make the media aware of the many negative effects. ProPublica’s Patient Safety organization is doing a hysterectomy survey. Here is the link – http://propub.li/1t6uZNr. The survey’s main focus seems to be surgical complications. But there’s space to add any other information you deem important.

        This is another way to report your patient harm to ProPublica – https://www.propublica.org/getinvolved/item/have-you-been-harmed-in-a-medical-facility-share-your-story

        Consumers Union (part of Consumer Reports) also has a Patient Safety arm. You can report your harm here – http://safepatientproject.org/share-your-story. I reported my unwarranted hysterectomy and oophorectomy (ovary removal / castration) in two categories, Doctor Accountability and Medical Errors (even though my organs were intentionally removed).

        Please continue to speak out. Best of luck to you!

  10. Thanks for sharing these stories! I had a hysterectomy 8 months ago and still kept my ovaries. I had a softball size tumor and lost more then half of my blood. I was in the shower then almost passed out , I walked into our local clinic thinking I needed a vitamin or IV. I was shocked when the Heath aide told me I had to be mediated out for a blood transfusion to save my life, as we live in a village with no hospital, I flew into Fairbanks, AK where I had to get more then half my blood back. The doctor had told me if I waited another day, I wouldn’t have made it. I am only 36 years and have 2 boys and 2 girls with a new baby grandson. Ever since surgery I had so much pain, discomfort, fatigue, and now depression. I used to be real busy with my family going outdoors for hunts, fishing and picnics. Now days I just barely do anything and my whole life has changed. My health has just been going down. I have been having some pains in my ribs, major lower back pains and my incision still hurts. I get tired very easily, my bowel movements changed forever it’s never been the same. I’ve been wondering if all of this has been normal and now reading everyone’s stories I don’t feel so alone, I’m the first and only one in our village to experience this also, I have been very worried for my life, like can we die from the symptoms? I mostly think of all my children

    1. Julie, How scary that must have been! I’m sorry you’re now suffering such ill effects from the hysterectomy. It isn’t normal to have pain at this point (8 months post-op). Some discomfort (but not pain per se) in the midsection would be expected to some degree because of the shifting of organs, tissues and bones. You shouldn’t have pain in your incision nor “major lower back pains” though.

      As far as the depression and fatigue, it could be hormonal since ovarian function can be impaired and even totally lost due to loss of blood flow and feedback from the uterus. However, the life changes this has caused could also be to blame. Testing of hormone levels may be helpful. A check of iron levels would also be reasonable. I didn’t have abnormal bleeding prior to my hysterectomy and didn’t lose much blood during surgery but discovered probably close to a year post-op that my iron levels were low.

      I hope you can get some help and start feeling better!

  11. I had a total hysterectomy in November of 2014. I have experienced so many terrible body changes such as the ones discussed. Hips have shifted sides of stomach are wide. No longer a woman’s figure. Legs got very dimply and joints and back ache. It’s as if I feel all these changes as they are happening and causing so much discomfort. Sex is not the same libido is gone and nipples no longer harden. Skin is terrible and uncomfortable. Skin is so dry and jaw line dropped. My hair is coming out and scalp feels different. Legs even changed shape and bottom section of body feels heavy. Doctors don’t seem to want to help and didn’t explain all this beforehand. I am so sad all the time. I am 48 and Not taking any hormones currently. Woukd estrogen help with skeletal changes and other symptoms such as joint pain? Is there shape wear or excercises that can help my figure transform back at least a little?

    1. Suz, I’m sorry you were also a victim of the hysterectomy industry. It is so disturbing and egregious that doctors and hospitals get away with not disclosing the damaging effects especially since only about 10% of these surgeries are necessary.

      The figure changes also became apparent to me around 18 months post-op and continued worsening for a time but seem to have stabilized. I used to have such nice flat abs, so flat my hip bones stuck out. I was horrified that despite being underweight (and even more so than pre-op), my figure had morphed into that of an “old lady” with a compressed / “fat” midsection and droopy backside. The figure changes seem to be the “best kept secret” about hysterectomy. I think that is the main reason I was banned from the big commercial hysterectomy “sister”hood site. And they didn’t even have the decency to tell me I was banned. They continued to appear to post my comments but they were only visible to me and no one else!

      Skin and hair changes also aged me overnight. I had extreme hair loss and dryness and the front section turned gray. My skin turned saggy, veinous and horribly dry (face, arms, legs). I’m on estrogen and the skin aging and dryness have stabilized but don’t know if that’s from the estrogen. But I had so many other symptoms including suicidal depression that improved with estrogen.

      Like you, I also had discomfort in my entire midsection as my skeletal structure collapsed. I don’t have that so much any more but my back occasionally hurts now that my rib cage is sitting on my hip bones. Thankfully, it isn’t chronic or severe but I do worry that it may worsen. I also have occasional pelvic pain due to bowel changes (and bladder to a lesser degree).

      My sex life has also been destroyed and breasts have no sensation. 🙁

      Without ovaries (or ovaries that have failed due to loss of the uterus), we are at a disadvantage because naturally menopausal ovaries produce hormones a woman’s whole life especially testosterone that can be converted into estrogen as needed. Yet ironically there is no FDA approved testosterone product for women. Estrogen has improved almost all my symptoms. It may help your joint pain…many women find that to be the case. It may also improve your mood. I wasn’t just sad; I was severely depressed to the point of being suicidal…had never been like that before. Estrogen helps maintain bone density so in that regard it can mitigate some of the spine compression. But it cannot reverse the compression and hip widening caused by the severing of uterine ligaments, the pelvis’ support structures. Osteoporosis is one of the risks associated with ovary removal (and ovarian failure) and can happen fairly quickly. There are many other increased risks as shown in this list of citations – http://www.gynreform.com/citations.html. How troubling that this information is not divulged to us!!

      Stretching exercises and sit-ups would help keep your core strong and may help its appearance. Shapewear may also help. I have a piece but find it uncomfortable for little benefit.

      I wish I had more to offer but at the same time need to be realistic. I will always regret that I was scammed into having my organs removed and will continue speaking out. But I also finally realized I had to “accept” the after effects and make the best of a crappy situation.

      1. Thank you for replying to my post, it helps to hear from someone who understands as no one else seems to. My husband has told me I’m checked out, I guess I am. I am having trouble dealing with my new self with no help in sight. How much estrogen do you take..? I think that would help me but doc is giving me a hard time,, I will try it. Thanks.
        Suz

        1. Your doctor (gyn or primary care?) is giving you a hard time about taking estrogen? He/she needs to read up on the many NON-reproductive functions of the ovaries (and the uterus for that matter). The ovaries continue to produce hormones for decades after menopause (probably our whole lives) and surgical menopause is proven to be nothing like natural menopause. Gynecologists are SUPPOSED to be the experts about our sex organs’ functions but many act clueless. They would stand to lose a lot of revenue if they treated our parts as the health-promoting organs they are…they would have to stop removing them so recklessly! Sorry for the rant but hearing all the stories over the 10 years since my surgery makes my blood boil!

          Do your research about the increased health risks of ovary removal and the benefits and risks of hormone “replacement” so that you are armed with information to make your case if you want to take estrogen or some form of HRT. Be aware though that HRT is very individual and can take a bit of trial and error to find the one that works well for you. But there are many options – patches, gels, tablets, vaginal rings, pellets. I have given a few of them a try and have been on generic Estrace tablets for the last 3+ years. Instead of the intended oral delivery (swallowing), I either take transbuccally (dissolve between cheek and gum) or insert vaginally overnight. This avoids the first pass through the liver and also keeps vaginal tissues healthy. Most doctors will look at you funny if you tell them you take it this way so if I switch doctors I won’t bother divulging that! Generic Estrace comes in .5mg, 1mg and 2mg strengths. 2mg is a pretty typical daily dosage for oral delivery for a woman without ovaries. But it’s usually best to start with a lower dose and gradually work up based on symptoms. The patch and gels also work well for a lot of women. Again, you can only try various forms and see what works for you.

          As far as your husband’s comment that you’ve “checked out.” You’ve lost the parts that made you female so it is not surprising. If his prostate and testicles were removed, I can assure you he wouldn’t feel like himself!

      2. Hormonal replacement will fix all of theses problems you are having.
        I have been on it 20 years and I thank God I am on it … The horror stories are just that … I have a radical at 30, I’m now 50 and still on HRT AND WILL CONTINUE….

        1. Mary, Although HRT is helpful for some women, nothing can truly “replace” the hormones produced by the ovaries. And as Chandler stated, HRT does have a number of risks and isn’t effective for all women. Of course, each woman should do her own research and decide if those risks are worth taking.

          Indeed, many women are horrified by the effects of hysterectomy and/or oophorectomy because they weren’t told about the many consequences. These stories are very real and not just women being dramatic.

  12. I had minedone in dec 2014 till today don feel well hot and tighness at chest area very tired most of the time even after taking herbal medication . Go see the gynecologist and was told not related. Dont have this before surgery.

    1. Siti, I’m sorry you have been feeling badly since your hysterectomy. Gynecologists typically dismiss our complaints as unrelated since they seldom inform us of the negative effects before they do the surgery.

      If your ovaries were removed or failed from the loss of blood flow and feedback loop with the uterus, hormones (especially estrogen) may partially address your symptoms.

  13. Sir/Madam,
    Pl explain about problem. My wife was undergone operation for removal of utrus (Hyp) in five month ago. But now a days back pain and knee pain problems are come to notice. Some few days there is no such problems except some minor pain of body. Pl explain any problems of any danger diagonasis and what treatment can be taken and which type of specialist can I contact for better treatment . pl reply as early as possible.

    1. Sir, I am sorry to hear your wife is having pain since her hysterectomy. Surgical positioning can cause back pain but it sounds like this pain is a recent development which would probably mean the cause is something else. The back pain mentioned in this article is caused by the gradual shifting of bones and tissue (spine, hips, rib cage) post-surgery. Although some sensations related to this shifting can be felt by several months post-op, pain doesn’t seem to be a common complaint this early post-op.

      Since she is also having knee pain, the back and knee pain may be a symptom of loss of ovarian hormones. If her ovaries were removed, quite a few symptoms can ensue rather quickly. But even if her ovaries were left in place, removal of the uterus can disrupt ovarian function and cause the same symptoms as ovary removal. Hormone blood testing may help determine the cause.

  14. I had a complete hysterectomy (including both ovaries) when I was 30 yrs old (am now 49) because of very heavy periods lasting over 2 weeks and clots the size of quarters, both ovaries where covered w/ cysts, one was taken out first then 3 months later had complete hysterectomy, since then have had loose stools and bowel problems w/ pain in stomach, also had my gall bladder out 8 yrs ago, now I have more bowel issues w/ that like burning & very yellow BM’s about every 2 months or so, also have Acid reflux have had it for a few yrs and also have shingles and possibly Postherpetic neuralgia, now I am having constant pain in flank area all the way around on both sides burning & cool sensations in back around kidney area and tenderness in my belly area, fullness/bloating under my rib cage on both sides after I eat, but I don’t have pain when I urinate so probably isn’t any thing kidney related ( I hope) have had this for almost a month now, have had this attack now 2 times, the last was 6 months ago, went to the dr’s and urine was checked and said no blood was present so couldn’t be a kidney stone, was told it was probably the Postherpetic neuralgia from my shingles causing this, was prescribed gabapentin, this took the pain away and made me tired, but when it wore off before my next dose the pain was still there, now here I am 6 months later having same symptoms, also noticed s higles outbreak on the base of my skull right where my hairline starts, this appeared 3 weeks after all this pain in my back and stomach, so not sure what the H*ll is going on really, could this also be cause from scar tissue as my stomach pain is around my incisions as well, i have no insurance so can’t keep running to the dr’s or get any testing done, so I guess this leaves me just having to deal w/ the pain, not sure if the Postherpetic neuralgia pain last this long,just so frustrated having all this pain lasting for a month now..

      1. jadedkrystals, I’m sorry for all your troubles! It’s interesting that you’ve also suffered with loose bowels since your hysterectomy. It isn’t surprising that it worsened after your gallbladder was removed. I have heard of other people having chronic loose bowels after gallbladder removal. Psyllium husk / Metamucil has helped me but I don’t drink it every day since I have times when BM’s aren’t as bad…haven’t figured out why some days are worse than others. Bile acid sequestrant drugs (which are typically used to lower cholesterol) can also be helpful for loose bowels.

        As far as the midsection pain, it’s hard to say what’s causing it. The nerve pain from Shingles can be disabling. And as you mentioned, adhesions could also be at least partly to blame.

  15. I had robotic Laproscopic hysterectomy on 10/15/15..

    My chief complaint PRIOR to my hysterectomy was LOWER BACK PAIN. I was told “you will feel like a new person after the hysterectomy.” They were so wrong! I feel 10 times worse than I did BEFORE the hysterectomy! I had my uterus, Fallopian tubes, cervix, removed but both ovaries stayed. Purpose for the hysterectomy was due to being diagnosed with: Adenomyosis and Endometriosis.
    (I have my OR report, operative report, pathology report, and glossy 8 1/2x 11 photos to show all that.)

    Again, my surgery date was 10/15/15.
    Felt really great up until last week of January 2016…. Noticed drastic, sudden sharp pain from my lower back shooting around the sacrum, up into my spine, all the way to my neck and head. This sharp pain was coming and going sporadically. But now, the excruciating pain in is my lower back constantly. It feels like constant pain in the bone of the sacrum (lower back). The shooting pain up into my neck and head still occurs whenever it feels like it, i just never get any warning at all. I literally cannot sit comfortably. This is impacting my sleep in such a way that i cannot roll over without waking up in tears and placing my hands on my hips and lifting myself up enough to roll over. Now for the past 3 weeks I am experiencing what feels like a “pulled” something or another in my upper, inner left thigh area. It feels like something is pulling hard- like a stretched out rubber band– and it hurts just as bad as my back.

    I am in so much pain all day everyday and nothing helps whatsoever. Naturally my GYN got his money out of me and conveniently he is all booked and per his nurse (who was nice enough to return my call), “your symptoms do not sound like they are from your surgery in October 2015– maybe you should see a neurologist.”

    Good God– seriously? I am so sick of one dr passing me off to another!
    I just want to feel better and continue on with life.
    I just turned 42 last month and I should not be going through all this pain which is now daily.

    Any suggestions? I am very open to anything at this point.

    1. How awful! I’m sorry you are suffering! This sounds like nerve damage. I know other women who are living with nerve damage after hysterectomy. It seems most of them had a robotic hysterectomy. Do a web search for “robotic hysterectomy nerve damage” and you will see that it appears to be fairly common. It is a travesty that so many women are talked into a hysterectomy without being told the many short and long-term negative effects. And afterwards, the gyns / surgeons want to drop us “like a hot potato” now that they’ve made the big $$$ off of us. 🙁 Nerve damage is difficult to treat and it doesn’t seem that there are many doctors who know much about it nor are able to treat it. I wish you the best in getting some help!

      1. WS
        I have read almost every one of your responses and have only this to say. You are by far the biggest NEGATIVE NANCY I have come across reading this forum.For every woman that has had a positive experience after her hysterectomy, you apologize for them having done it, (you have nothing to apologize for) you say you are happy they are feeling better, yet you jump right in to say all the bad things that are gonna happen down the road. Are you GOD? How do you know what some woman will experience? Every woman is different. As I said before misery loves company and the more negative shit on this forum will only scare woman into making the wrong decision. It’s not up to you or anyone else on this site. It is a decision made by the the individual. And if someone decides to not have the surgery based on this forum they are an idiot!

      2. Must be nice to be able to pick and choose which comments to keep and which to delete. This whole forum is one big depressing story after another. At least have some balance. Not 95% doom and gloom and the odd 5% positive experience.

        1. Tracey, I cannot help but wondering what motivates you to continuously read and post your displeasure with our blog and the nature of the articles on hysterectomy, particularly on an article about skeletal and anatomical changes post hysterectomy. Are you paid by someone to do this? Do you have no other time commitments? Your displeasure is noted. Furthermore, as to your regular suggestion that hysterectomies do not produce negative effects, that is simply not true and not amount of wishing it were so, will make it so. Regarding this particular post and the anatomical changes post hysterectomy, while it is true that not every woman will be affected by the skeletal and anatomical changes associated with this surgery, every woman’s body will experience those changes and adapt or not adapt accordingly. Your efforts to suggest that these anatomical changes do not exist are simply not true. Any surgery that removes an organ will induce compensatory anatomical reactions. What was there once, is no longer there and the tissues and organs will displace in an effort to accommodate those changes. Some women will experience negative symptoms to those changes, others may not, but they exist nevertheless. Similarly, not all symptoms emerge immediately, some take years to manifest. Your denial that they exist, just because they do not exist immediately, is once again false. Finally, yes, we can chose to monitor and moderate comments as we see fit, and heretofore, yours will be moderated out. We get it. You don’t like us. You don’t like what we write about. That is your prerogative. Don’t read the blog.

        2. I agree with Tracy.I’ve had a hysterectomy 06 years back as I had fibroids.I am 44 years old now. I’m in perfect health. I run 40 km on an average every week, do abdominal exercises, swim, cycle and play other sports. I do have a thickened mid section compared to before but apart from that there are no other bodily changes.Also not having to deal with periods every month has its own pluses. So really in my experience its not such a terrible surgery to undergo

          1. DB, Some women do feel that hysterectomy is, in your words, “not such a terrible surgery to undergo.” Some women aren’t as bothered by the figure changes but they have been devastating for me (just as much as the loss of most of my hair and skin collagen from abrupt hormone changes). And it’s not just about appearance. These changes lead to back problems after years of the rib cage resting on the hip bones.

            The other big complaint from women (regardless of whether or not their ovaries were removed) is loss of libido and sexual response especially for women who had uterine orgasms.

            Did your doctor inform you of the life long functions of the uterus and ovaries and the negative effects of having the uterus and/or ovary(ies) removed? Many of the problems take years to manifest. Risks of uterus removal include bladder, bowel and vaginal prolapse and dysfunction, heart disease, impaired ovarian function and all its health risks. Women deserve to be given this vital information to make an informed decision.

            I’m curious what prompted you to search for information on hysterectomy.

          2. To DB, was your surgery, Robotic Laproscopic and what were your symptoms or reasons for having the hysterectomy done?

        3. I am 54 and had a total abdominal hysterectomy 4 months ago. My experience of the operation and its outcome has been nothing but positive. I’m back to my normal exercise routine of weight training, running and yoga. I thought I would gain weight after the op, from lack of exercise, but that has not been the case. In fact, I have lost a small amount and put that down to a healthy and nutritious diet. I was using a bio identical hormone ( HRT ), for a couple of years before the op and have continued with that, using the same low dosage as before. My sex life is great. All in all, my energy levels are renewed and I feel fit and well. For each woman who has had a bad experience with hysterectomy, there are an equal amount of ladies out there, who’s outcomes have been very positive.

          1. Patty, I’m glad your surgical recovery has gone well. What many women fail to realize is that many of the problems caused by hysterectomy happen down the road as explained in my article. Surgeries are supposed to restore health and function not cause a whole new set of problems as hysterectomy is proven to do.

            I’m curious what prompted you to go looking for hysterectomy articles.

            1. WS, I was looking for hysterectomy articles, because I am very interested to learn of other women’s personal experiences with their hysterectomies. It is a huge and fascinating subject, and probably more so when it is something you have experienced firsthand.

    2. So pleased to have found some info regarding the after affects of a hysteractomy, I had one in April 2015, followed by chemotherapy, and am now clear of the cancer. Body changes yes, definitely, but I do recommend a daily walk, I feel this has been my saviour, and has kept me reasonably fit, no not free from discomfort but manageable, and I recommend a daily quarter teaspoon of milled linseed to keep the bowels regular..

      1. Shirley, I’m sorry you had cancer but glad you are now cancer free! I walked a lot after my hysterectomy too because I became severely depressed and exercise has been shown to be just as effective as an anti-depressant. I had been a regular exerciser prior to my surgery but ramped it up to fight the depression. As far as bowels, instead of the common complaint of constipation I had diarrhea which finally settled down to some degree but I still have very loose bowels.

        Linseed / flaxseed is good for a lot of things since it is high in omega-3’s, antioxidants and fiber.

    3. I have been reading all comments on this page and when i came across yours, I wanted to call you up and compare issues with you! We have the exact same pain and issues going on and what’s even weirder is, I also had Robotic Laproscopic surgery one day before your’s, on October 14th 2015. I experienced lower back pain and heavy periods before the hysterectomy and was diagnosed also with Adenomyosis and Endometriosis. As I read through your letter here, every symptom and issues you have explains mine exactly to a T! I feel the need for all of us women experiencing horrible pain and symptoms after these robotic hysterectomy surgeries, to all form a pettion against them, in that we should all receive money for our suffereing and pain caused by this type of surgery just as they have been doing with the women who received and suffered or have died from The vaginal Mesh surgical implants! Not only do I suffer with pain every day, My bone struture is different and my lower abdomen is swollen all the timje and hangs over my underwear line making it impossible to fit anything i wore before the surgery. I used to be tall and thin, strong and energenic.The Robotic Laproscopic Hysterectomy is a lie and a scam for Dr.’s to make money, NOT to make middle aged women feel better!

      1. Kristina, Thank you for telling your story. I’m sorry that you too are suffering! I hope you can find something to relieve your pain.

        You’re right that we all need to do something to end the hysterectomy scam (robotic as well as other methods). This surgery is so overused and not one woman with whom I’ve connected was given the necessary facts before signing her consent form.

        There are a number of ways that you can tell your story and make the media aware of this abuse of women that causes permanent harm. ProPublica’s Patient Safety organization is doing a hysterectomy survey. It’s critical that women talk about all short and long-term consequences / negative effects not just surgical complications they may have experienced. Here is the link to the survey – http://propub.li/1t6uZNr.

        This is another way to report your patient harm to ProPublica – https://www.propublica.org/getinvolved/item/have-you-been-harmed-in-a-medical-facility-share-your-story

        Consumers Union (part of Consumer Reports) also has a Patient Safety arm. You can report your harm here – http://safepatientproject.org/share-your-story. I reported my unwarranted hysterectomy and oophorectomy (ovary removal / castration) in two categories, Doctor Accountability and Medical Errors (even though my organs were intentionally removed).

        Pursuing legal remedy may be another avenue if you haven’t already done that but very few lawyers take these cases. Please continue to speak out. Best of luck to you!

  16. I had TAH kept my ovaries (boy, that was a battle). But I’m also a lupron victim so I don’t put up with Drs crap. But had it Aug 2013. I have had so many problems since. I get constant UTI and kidney infections. I just went to a health food store and going to try killing colonies with a couple of probiotics than hopefully a prevention. But I have been having issues since day 4 post hysterectomy and it’s every 2-6 weeks. I also have severe rib pain right and left. I have bowel problems too and the nausea and fatigue is hell. I had awful periods. They were heavy. It’s the one reason I am ok with the hysterectomy but my back and hips and leg Ana d feet hurt but again this could be from lupron and the years of birth control. But my hair is so dry and starting to fall out. I am not myself.

    Could the rib pain I feel be the rib cage falling off and my migraines and I also get some other severe headache. It’s interesting talking about loose stools because that has been happening than this god awful headache with nausea. It wasn’t like a migraine.

    I hate this. I have had issues since I was 17. But I truly feel awful. My energy levels are just depleted. I’m dealing with idiot doctors rift now plus I am too tired to go to all these specialists. I also have 2 kids with special needs. I just can’t. My heart rate has gotten really high 105-130 at dr office. They say maybe cuz in pain. I’m always in pain. I just bought some cucumerin (tumeric). Because I am so desperate to feel better.

    1. Jen, I’m sorry you are suffering so many after effects from both hysterectomy and Lupron! It sounds like your ovaries may have stopped functioning. It’s also possible they were removed despite your insistence to keep them. I recall reading a study where many women said they still had their ovaries only to find out they had been removed. And you can’t always tell from the insurance claim or bill because ovary removal isn’t always shown as a “separate” surgery or procedure code…pretty shocking that can happen! Inpatient surgical data from 2006, 2007, and 2010 shows that ovaries were removed in 74%, 73%, and 65% of hysterectomies, respectively. And that of course only includes cases where oophorectomy was coded separately.

      HRT may help some of your symptoms and may mitigate some of the health risks associated with ovarian failure or ovary removal but of course estrogen can feed endo. Some say that taking the estrogen with progesterone or a progestin reduces this risk.

      Your rib pain could be, at least in part, from the descent of the rib cage because it is likely now resting on your hip bones. My rib pain is intermittent and usually only mild…never severe. You may have lost a lot of bone density from the Lupron and now ovarian failure which can cause rib pain. Another cause is costochondritis (inflammation of the cartilage that connects the ribs to the breastbone / sternum). The pain in your joints is a common symptom of ovary removal or complete failure but could also be from Lupron. Since the ovaries typically function a woman’s whole life (they do not shut down at menopause) our symptoms and health problems tend to be much worse than a woman in natural menopause. Numerous studies support this as documented here – http://www.gynreform.com/citations.html. Plus we have the anatomical, skeletal, and sexual negatives of losing our uterus.

      I hope you can find something to resolve the UTI’s and kidney infections as well as your other symptoms! Post back and let us know how you’re doing.

  17. Hi I had emergency hystrectomy 2yrs back I m 32yrs now I was 29 reason was my placenta was percreta and my uterus got ruptured now I m having severe pain in my hipbone and my knee and shoulder left side hurting more and left side sole give me pain when when I walk I have three yr old toddler with me I have to run after him, quality Of my life is getting worse. I haven’t start hormone replacement therapy any good suggestion? are these problem cause of hormones depletion? suggest me what to do scared of hrt cause of side effect

    1. Sumbil, I’m so sorry this happened to you! Were your ovaries removed? If so, you will want to read up on the benefits versus risks of HRT as it relates to the increased health problems associated with ovary removal. Even if your ovaries were not removed, they may not be working properly since you don’t have your uterus. Some bloodwork of hormone levels may be helpful in deciding if HRT may be beneficial. Best of luck to you!

      1. Thankyou for your prompt reply no my ovaries was not removed u mean progesterone and estrogen lutenizing hormone and fsh levels should get checked before taking hrt ?? Hrt cause CA breast can u tell me it’s rate of occurrence as side effect and clotting defects what measure I can take to avoid these with hrt

        1. I’m glad to hear you still have your ovaries…I couldn’t understand why they would have been removed. Yes, blood levels of FSH, LH and estradiol may be helpful. Since hormone levels fluctuate throughout the month, it is possible that levels will look normal at one point but abnormal at another. So it may take a series of lab draws.

          Studies have shown that estrogen only (without a progestin) does not increase risk of breast cancer. You can find information on this by doing a web search for something like “pubmed estrogen replacement breast cancer risk.” As far as the clotting risk, transdermal forms of estrogen such as patches and gels have a lower risk of clotting than oral / pills since they do not have the first pass through the liver.

  18. I have had a Laparoscopic hysterectomy in February with just my uterus taken out. Since my surgery, I have been nauseous and have bowel problems. I have had every test they can possibly do and no one can figure out what is causing this. This is affecting my life. I regret getting the hysterectomy but can not undo what is done. But was wondering if anyone else has had chronic nausea and diarrhea on and off after your surgery and if doctors figured out why?

    1. I’m sorry you are suffering from complications! I had the same problems. The nausea wasn’t as severe as the diarrhea. I was going 6 to 8 times a day so ended up losing a bit of weight that I didn’t need to lose. I don’t think it let up much until about 9 months post-op and it was still pretty bad after that. It never has completely resolved and I’m 10 years post-op. But now I go only once a day (or less) but BM’s are almost always very loose.

      I have not gone through a lot of tests. I did stool testing but not sure what testing was done. I assume they checked for certain infections like c-diff. My stool did have an abnormal level of fat indicating I had fat malabsorption which made my GI doctor (never needed one of these specialists before hysterectomy) think it was my pancreas. But my pancreas and ducts looked good on imaging. Plus I did not have the pain that is typical with pancreatitis. Celiac test was negative. Endoscopy did not show anything. I have not had a colonoscopy…have not been able to bring myself to do that at this point. Metamucil can keep BM’s more solid but I would prefer to find the root cause and fix it if possible but at this point it is probably too late.

      I hope the cause of both your diarrhea and nausea can be determined and fixed! Keep me posted on what you find out and how you’re doing.

      1. Tyvm. I am gonna be going to get a Hida Scan which scans my gall bladder to see if that is functioning properly. The ct scan I have had wont show that so that’s my next move. Then a colonoscopy in june. I have had 2 ct scans, 2 ultra sounds, upper endoscopy and then the 2 mentioned above pending. I also have had blood work done which i printed out and a pile of them. I can not take the nausea much longer though. It is making me very fatigued in the mean time. Just wish i found someone that had exact and what it was and what has helped someone. I hope all is good with you. ty

  19. I am 55 and still having regular periods. My mother after 8 children was in her 50s when she went hit menopause. So was my older sister who had no children. I had several heavy, clotty, crampy and several week periods during August, September, October, November 2015. I called my GYN and she told me it wasn’t normal and to come in. A 66 year old friend recommended Female Toner Tea. I have taken the tea over the last few months. It seemed to help. My periods went to my normal 5-7 days, became less heavy and the clots diminished. I still am a bit crampy. I decided to follow up with my gyn in March and had a uterine biopsy. I have been diagnosed with complex hyperplasia with atypia. What are my options? I have my first consult with a Gynecologic Oncologist today. My gyn told me over the phone she was recommending a total hysterectomy since I had a “bad uterus” and also to have the ovaries and tubes removed. She scheduled my Gynecological Oncologist consult.

    1. Maggie, I apologize for my belated response…my email notification informing me of new comments to my articles was not working so I was unaware you had posted.

      I am sorry to hear you are faced with this. Did you get a copy of your pathology report? My gynecologist was dishonest about my condition to get me into the operating room. All I needed removed was an ovarian cyst and he removed all my parts. Hysterectomy and ovary removal are two of the top overused surgeries. Only 10% of hysterectomies are considered necessary. Were you not offered progestin therapy to see if that resolves the hyperplasia? Granted, atypia is worse than without atypia but progestin therapy does oftentimes cure both conditions.

  20. With gratitude for finding this information and website! On June 23rd, I will be 2 years post hysterectomy (TAH) due to a growing tumor of almost 3lbs and a uterus size of 24 weeks….I was 52y/o and blessed with 3 sons. After 3 months post surgery, I had to retire my full time profession as a licensed therapeutic massage therapist due to fatigue, lower back, sacroiliac joint, hip, leg and foot pain! I do see my private clients 1x/ week, 2/day. I no longer can remain for long lengths of time to stand, walk, dance, sit, or lay in bed without the debilitating feeling of flares of chronic pain. My balance has been compromised and have had (4) falls since surgery. I have been through MRIs, cat scans, X-rays with none of the doctors in agreement of report diagnosis , including being told, it was all in my head and offering rx drugs for pain and antidepressants, all that I refused. I certainly feel and experience of incontinence and leakage of urine and stool. I continue to mourn the loss of my female organs and some days feel more depression. I have attempted my organic diet with occasional treats of pleasures! I use to enjoy my walks with my dog and make attempts daily, but I become winded and fatigued almost instantly, I worked with a personal trainer and found no relief, I receive medical massage 1x/ week which provides relief that lasts approximately 2 days and a sound sleep one night, typically I have insomnia and flip in all positions throughout the night due to the pain. I’ve gained 30 lbs and (2) dress sizes, post op and realize the weight also effects the joints and discourages me even more!! My surgeon suggest through assumption, that I go for pain management by epidural injections to numb the nerve, no way!! I do believe the CBD oil may help or medicinal marijuana vs. rx drugs, however, been reluctant to engage in this conversation with any of my MDs as it is not in their way of practice… I appreciate this video and information as it has answered all of my why questions!! Moving forward, I know I am not the same person physically or mentally, and as I always did will recreate my being to find balance and peace of mind, however, physically I am at a loss and wish there was a solution for all the woman that suffer same! I am open to receive any suggestions and pray for health and wellbeing to all my sisters of the world!

    1. Lyn, Thank you for sharing your story. I am so sorry that you too are suffering from this damaging surgery. I have heard of other women experiencing dizziness from the hormonal changes post-hysterectomy. But I have to wonder if surgical positioning along with length of surgery is also a risk factor for that. I have read it is a risk factor for nerve damage. I don’t know if you had robotic surgery but there are articles about additional risks (such as burns) with that method. I wish you the best in getting help and relief for all this problems. Please continue to speak out about the harm of hysterectomy since only a small percentage are truly necessary.

    2. Thank you for sharing, my symptoms exactly the same. You sharing is validating that I’m not crazy. Had vag hyst and rectocele/entercele repair approx 10 months ago, doctors don’t even hear me when I share my cocerns. Yes, need to learn to accept new normal and work as best as I can to find strength! Wish I never had the surgery….

      1. Kathy, I’m sorry that you too are suffering the after effects of hysterectomy. I wish the best for you in moving forward in spite of having had this damaging surgery.

  21. I am 35 years old. For the past 5 years, I have been struggling with extended periods which are very heavy (2 weeks of period and 1 week of spotting every month). Every transvaginal ultrasound I have comes up perfect. There is never a thing wrong. 5 years ago, my OBGYN did a D&C and Polypectomy. He thought it might be a polyp causing the problem. He said it would be an easy fix and I’d be back to normal in no time. After the surgery, he said there were so many polyps in there, there was nothing he could do and suggested an ablation. The surgery was a complete waste of time. Biopsy was fine. He said at my age, the ablasion wouldn’t be a permanent fix but might give me 3-5 years before I might need a hysterectomy. After reading about ablation online, I opted out of that and instead tried the Mirena IUD. I had the Mirena for 18 months. I just had it removed this week. The past 18 months, the AMOUNT of blood I lost definitely decreased but I was still having bleeding and spotting for 2 weeks. Also, every time I’d have a nice long run without any bleeding, I’d get a yeast infection! Now I just take a constant prescription of diflucan and boric acid. Also, on the IUD, I began getting frequent migraines which I had had RARELY before. Also, my ovaries are now covered in small cysts which I never had before! After having a gushing 3 week period followed by a yeast infection, I had the doctor remove it last week. I’m back to square one. I really don’t want the ablation and definitely don’t want the hysterectomy, but at this point, my life is just not what I want it to be. I never read about women having hysterectomies for polyps. Fibroids, yes, but not polyps. It seems ridiculous that no doctor seems to be able to get these out. I guess I just have too many? I’m depressed and my quality of life from having 3 week periods every month is horrible. For now, I have my anemia under control but the Mirena helped so much with the blood loss that I’m worried about what will happen now. My doctor says he can prescribe Prometrium to help thin the lining and tranexamic acid to take during my period to reduce bleeding, but that’s about it. The polyps just like to bleed. Are there any other suggestions you can give me? One more note. After a difficult labor with my first child, I also have uterine prolapse and urethra prolapse. I’ve been told the uterine prolapse is between mild and moderate. So far, it doesn’t affect my life other than I can’t wear a tampon. I’ve gotten a second opinion, and she has just suggested hysterectomy since I have bleeding problems and prolapse (which she says will just get worse as I age). I’m tired of living like this, but realize that surgery might just bring another set of problems.

    1. Gosh Claire, that sounds miserable! Although polyps tend to cause excessive bleeding, has a bleeding / clotting disorder been ruled out? Von Willebrand is the most common one in women.

      It’s a shame the Mirena IUD caused migraines. I assume you have tried various formulations of birth control pills? Of course, with the migraines you got with Mirena, you’re likely limited there too since Mirena is a low dose progestin. Tranexamic acid would be worth a try since it is shown to significantly reduce bleeding – http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0015970/table/ch8.t1/?report=objectonly. And Prometrium may not have the negative effect that the (synthetic) progestin had.

      I wonder if another gynecologist would be able to remove your polyps. So many of them just want to do ablations and hysterectomies so it can be difficult to find one who will do less drastic treatments. Of course they may just grow back. But if the root cause is addressed, they may not. Do you fall into one of the high risk “polyp maker” categories (high BP, overweight, have taken / take tamoxifen)? Do your ovarian cysts have a “strand of pearls” appearance that would be indicative of PCOS?

      As far as the prolapse, if it gets worse, you could try a pessary. There are a number of types and they have to be custom fitted but that would allow you to keep your uterus and its non-reproductive functions. Of course, if you are bleeding all the time, this could get a little messy! But hopefully, you can get the bleeding under control!

      1. Thank you for your helpful reply!

        They ran a Von Willebrand panel on me last summer and all 3 components were within the acceptable range. The doctor told me that if I had a clotting problem it probably would have shown up during childbirth? Although I had a bloody eye a few months ago and the eye doctor told me that there is more testing that can be done? I guess I should look into that.

        I also wonder if another gynecologist could try to remove the polyps. But I’ve had 2 second opinions after my first failed polypectomy and both have just suggested IUD, Ablation, or Hysterectomy. Apparently if one doctor fails, they assume they will too. I was also thinking that if the “root cause” was found, that maybe if they removed them, they might not grow back if I’m on Prometrium and trying to keep the lining thin! It’s just hard to fine someone to want to listen to this.

        I have no typical signs of “high risk polyp maker.” I’m BMI of 22, have low blood pressure 100/60, and haven’t taken any tamoxifen.

        My body does seem to have a problem with growing extra tissue though. I have thyroid nodules (tested to be benign) but am on no medication because hormone levels there are all fine. I also have cystic acne and have since I was 12 and it’s not letting up! I also had my first Colonoscopy last year due to family history and at the age of 34 had an adenoma polyp that was removed! My body grows extra stuff.

        The ultrasound does say that the ovarian cysts are characteristic of PCOS. However, the doctor seemed confident that this was only due to the effects of the IUD. Pre-IUD I never had any ovarian cysts at all. If I do have PCOS, I’m not sure what kind of medication I could take for that.

        A few years ago, I tried different variations of the pill, but I bled for 2 months straight. The doctor said it was due to the estrogen in the pills irritating the polyps. So now I’m going to try the Prometrium as it could have a similar affect as the IUD but hopefully without the chronic yeast infections. I just got a prescription for the Transexamic Acid too.

        I will see what the next few months hold using the Transexamic Acid, Prometrium, and NSAIDs during my period.

        1. Yes it does seem like bleeding would have been an issue with childbirth. However, not all cases of von Willebrand are hereditary; some are acquired from other medical conditions. And some forms have very few symptoms. Interestingly according to Wikipedia, hypothyroidism is one of those conditions which you may have since you have thyroid nodules. But then again sub-par thyroid function can also cause an irregular menstrual cycle! Do you have any other symptoms of hypothyroidism? It is rampant in my family yet all of us are thin and pretty high energy which does not fit the typical hypo “mold.” Have you had the thyroid antibody tests done?

          It’s interesting that you developed multi-cystic ovaries after the Mirena. It seems I read about another woman who had that happen. If you don’t have the metabolic syndrome / insulin resistance associated with PCOS then you shouldn’t need to take any medication. Of course, if they are causing discomfort or pain then that is another issue.

          It makes sense that the estrogen in the combo BC pills aggravated the polyps causing an even longer bleed (you certainly didn’t need that!).

          I can relate to growing extra tissue. When I developed an ovarian cyst, the CT scan showed that I also had cysts in my liver and kidneys. Thankfully though no polyps on colonoscopy.

          Can you take NSAID’s with tranexamic acid?

          I will be interested to hear how these meds work out for you. Hopefully, they make your bleeding much more manageable!

          1. I see my endocrinologist in April for my yearly thyroid exam and ultrasound. I will ask her about the bleeding disorder and checking for thyroid antibodies. I have no other symptoms of hypo. My TSH, T4, and T3 have always been normal. I have no weight issues.

            My OBGYN would at least like to do a D&C and Polypectomy later this month to check for any malignancies and try to get out polyps. He’s open to the ablation but here’s my question.

            Wouldn’t a successful ablation be one where there are no polyps growing? If he is unable to get out all the polyps, I don’t see a point of doing the ablation. If he can get out all the polyps, I would rather take hormones to try to prevent the polyps from growing back rather than having an ablation that might not last long because there are still polyps in there.

            I’m going to pick up my prescription for tranexamic acid right now! I can take NSAID’s too. I’ve noticed I’ve been extra dizzy my first few days on Prometrium but I hope as my body adjusts this will go away.

            1. I am with you 100% that it does not make sense to do an ablation. The polyps are almost certainly the sole or main cause of the bleeding. If they all can’t be removed or they are removed but grow back then it seems you’d have a higher likelihood of ending up with post-ablation syndrome / trapped blood causing chronic pelvic pain.

              Hopefully, the dizziness from the Prometrium will settle down. If not maybe you can take one of the vaginal forms that goes straight to the uterus and has less systemic effects but with all the bleeding this may be impossible.

            2. I was diagnosed with adenomyosis. Something that has not been researched much. Ask your GYN if this could be the issue.

              1. Thank you for your response. I did ask my doctor about adenomyosis. She said that since I have zero pain with my periods, it’s probably not adenomyosis. I really don’t have any pain. No cramps, nothing. No back pain. Never have. She did, however, say it’s always possible, but just unlikely. She said the only real way to find out is a hysterectomy. Did you have a lot of pain with the adenomyosis?

        2. I am not a doctor, but have you researched iodine deficiency and PCOS? It may be worth a look before more surgery. Many have been helped as you will find. Godspeed you on your healing.

          1. Thank you for your response! My dermatologist actually ran bloods tests to check for PCOS since I have such bad acne at my age. She said everything was normal. I see my endocrinologist in a few weeks for my yearly thyroid checkup due to nodules. I will be asking about the Iodine deficiency and the PCOS.

    2. Hi, yes I too had tried everything ! 2 normal births, needing force pts for 1, then 3 sections, I opted to have my tubes tied, 5 babies were enough , I’ve had nothing but trouble also! Tried everything that was suggested, I had my hysterectomy 2 weeks ago, all I wanted was better quality of life, but after reading this I think I may not have what I was looking for , get depressing, had my tubes tied, taken tablets, had marina, had eblashion, taken more pills, they could only remove 1 folopian tube, which was totally blocked, the other is still attached to my excessive scar tissue from the c sections, I’m feeling robbed at the moment and my husband dosnt understand why !

      1. Shona, I’m sorry you’ve had so many gyn problems and ended up with a hysterectomy. Tubals can make for worse periods so it is not surprising. I hope you can move forward in spite of it.

  22. I had cervical cancer,1985 at 36 the uterus was removed,lymph glands and lymph node.I have my ovaries tacked up high,it hurts, had bladder surgery after that did not work suffered terribly, ,I have lbaf constipation and back from pain and sciatic severe anemia, life was never the same.Sorry for everyone, the surgeon and doctors saved my life but I am left with a world of pain can’t eat or gain weight IBSC Gerd Sciatic,disc tears,sex too painful,this surgery ruined my life, but when you have cancer and it traveled you have to do it.I pray everyday to be healthy again but this bowel pain and operation pain is still here after all these years.The pins hurt that hold up the ovaries and I still get period pain even though I had menopause..

    1. Ginger – I am sorry you had to have a hysterectomy for cancer and have suffered so much ever since. Thank you for telling your story.

  23. I am so happy to have done the research on hysterectomy surgery prior to making a decision. My Dr. Told me the same general stuff but NEVER any of this. He is a male specialist so what does he know about the issues females go through after surgery. I am so sorry for all of your sufferings that each of you have experienced. I whole heartedly agree that the pharmaceutical companies make a killing off each one performed. It is not right. And good point to the one who said they don’t rip out a man’s testicles when diagnosed with prostate cancer. Is this a conspiracy at the expense of women or what!!! I almost feel like it’s a way for government to control the birth rate by using insurance companies and pharmaceutical industries.
    After reading all of these I am not having this surgery and will only have the cyst taken off my ovary. This doctor said they couldn’t do that. Ha!!! I am getting a second opinion on whether or not there is even a cyst there!!!
    I am so grateful to each one of you for sharing your story here. Please know that because you shared I am better informed. I had no idea that all that happened after surgery but it sure makes sense. I thank you all. Perhaps my life will be healthier without this awful surgery.
    I pray that Jesus heals each of you and you each find that one or two things that will get you back on your feet again.
    Thank you and God bless each of you!

    1. I must have overlooked your post. I am SO glad you found this article and decided against having a hysterectomy! Thank you for posting. Have you been to another doctor to see if you have a cyst (or some other problem)?

  24. I am 42 years old and was recently diagnosed with uterine fibroids. I have experienced pain, heavy bleeding, constipation, am anemic, and feel bloated around my periods. I have seen two doctors now and feel like my only option is a hysterectomy. In all my research, nothing takes away the fibriods except surgery. As I do more digging, I am nervous to continue having the same symptoms after surgery. I have also started using some alternative supplements, (i.e., pau d’arco, and super greens, blood builder) to help with both the fibroids and the anemia.

    Does anyone have any advice? Will having a hysterectomy will improve my quality of life?

    1. Breanne, I am sorry for your troubles. Although hysterectomy will remove your fibroids, it will leave you with a whole new set of problems in the long-term since the uterus and ovaries have life long functions. Only about 10% of hysterectomies are truly necessary yet 40% of women aged 45 to 54 have had one. I have connected with so many women since my unwarranted hysterectomy 10 years ago and most of us have similar complaints about how our lives have been shattered due to all the resulting problems. And they get progressively worse! Not one of us was told the facts about the importance of our organs (uterus, ovaries, and maybe even tubes) our whole lives. Please read all my articles about hysterectomy here before you seriously consider this surgery – http://www.hormonesmatter.com/author/ws/. There are a number of other articles on this site about hysterectomy or the uterus by other authors. You can find them by doing a search (search box is in the upper right corner).

      Have you tried anything to address the heavy bleeding which of course will also help the anemia such as birth control pills or the non-hormonal prescription medication Lysteda (tranexamic acid) that you take only while bleeding? I assume you are taking iron with vitamin C to restore iron levels? How bad is the pain and how long does it last?

      You should not need to lose your uterus for fibroids. If medication is not enough to address your symptoms, the fibroids can be removed via hysteroscopy if they are small or myomectomy if they are large. It would be akin to cutting out a cyst on the arm versus removing the arm. Other surgical specialties don’t remove parts for growths; they remove the growths preserving the part/organ and its functions. But with the gross overuse of hysterectomy, one must tread carefully in finding an ethical surgeon with the right skills to remove the fibroids. Fibroids shrink after menopause when estrogen levels fall so waiting it out is also an option although I know it can be tough not knowing how long that may be.

      1. I am 45 and have been suffering from extreme mennorhagia since last 9-10 years. had so many hormonal treatments , tranexemic acid ethyl t sylate but no effect on heavy bleeding. since last 2-3 years I am extremely anemic that I have to take regular blood shots . I can not take iron in any other form. had D&C. uterus completely healthy still problem persists. had mirena 10 months back. since then I am bleeding continuously with a break of about a week between each period. amount of blood loss has reduced but I have gained 7 kg in last 10 months and having difficulty in breathing. there is no previous breathing problem. now doctor has given me a choice to continue with mirena or go for hysterectomy. hysterectomy is going to hav so many side effects and mirena giving continuous non stop bleeding. I am in a fix what to do. can anyone help..

        1. Neelam, I apologize for my belated response…did not see your post. I’m sorry you are faced with this. Having tried hormonal and non-hormonal medications, I suppose there isn’t much left. I doubt prescription strength NSAID’s would help since tranexamic acid didn’t. Endometrial ablation has some drawbacks (some of which may not manifest for years) but that may be an option. Here’s an article I wrote about it – https://www.hormonesmatter.com/endometrial-ablation-hysterectomy-alternative-or-trap/.

          Have you been tested for a bleeding / clotting disorder? Von Willebrand is the most common one in women. It seems many gynecologists do not think of or mention this possibility. But I’m not sure that would even change your treatment options but would be good to know. Here is an article about bleeding disorders in women – https://www.hormonesmatter.com/bleeding-disorders-in-women-with-heavy-period/. There may be other articles on this subject. You can find them by doing a search here on Hormones Matter. Best of luck to you!

    2. I had a laparoscopic total hysterectomy, for a variety of issues including PMDD, endometriosis, fibroids and ovarian cysts. But, the reason I really wanted the operation, is because I have 3 herniated discs in my lumbar (l3/l4, l4/l5, l5/s1) and my pre-menstural week to 10 days plus 12-17 days of bleeding each cycle caused horrific sciatica and shoulder pain. My SPINAL SURGEON agreed with my gynae surgeon, that a hysterectomy would likely bring me tremendous relief. The spinal surgery option was dual level fusion – now that IS an operation you want to avoid if at all possible. I was fortunate to have private health cover through my employer, although I used the NHS for initial diagnosis and recommendations, incepting my insurance only once surgery became an inevitability – so I have no fear I was operated on for ‘business’ reasons. I’m just very grateful that both surgeons are top of their respective fields, and my consultations included appropriate discussions to ensure I researched, challenged, and reconciled to make my own decision without any coercion, indeed I was adequately challenged by man who operated on me to feel he would only do it if I could say with clarity I had no reservations. I have sincere concerns regards the validity of some of the ‘information’ in this article, and would caution other women to not let this piece terrify them. Ultimately, we must all choose to do what we feel is best for ourselves, and I hope all here find resolutions to their unique health needs.

      1. Kate – I am sorry you had so many problems. Hopefully, your endo was excised at the time of the hysterectomy to give you a better chance of long-term pain relief. The anatomical and skeletal effects do not happen overnight. They are gradual. I do not understand how having a hysterectomy could improve your herniated discs in your lumbar spine. Since the spine gradually compresses and the rib cage falls after hysterectomy, this would make things worse not better.

        When was your surgery? Were your ovaries removed and, if so, are you on HRT? Mood disorders are common after hysterectomy especially if the ovaries are removed or stop functioning properly due to loss of blood flow. I had never had a mood disorder until after my hysterectomy when I became suicidal. Hopefully, the trade-offs will be worth it in the long run.

    3. Breanne,

      Have you researched uterine fibroid embolization (UFE)? I had a total abdominal hysterectomy (TAH) in 2012, in which they also removed my left ovary due to what was thought to be Endometriosis. About a year later, they found an unknown mass on my right ovary and due to my age (48) advised that I have the remaining ovary removed as a preventive measure since I would be nearing menopause in a few years and they thought it might also be due to Endo.

      If I had it to do over, I would have gotten serious about the UFE procedure in the years preceding my necessity for surgery. My surgery became imminent because one of my fibroids was growing rapidly and although fibroids are rarely cancerous, was growing into my vaginal canal. At that point, I was advised that UFE was almost certain to fail due to the location and size of my fibroids. Or, let me say, they couldn’t give me assurance of the UFE helping so I opted for surgery.

      I told my physician (whom I think very highly of) to leave my ovaries intact during my TAH if at all possible. So, she only removed the left ovary which she thought to have the endometriosis. This surgery did great damage to my body and affected changes in my hormone levels, libido, etc. but nothing as drastic as when I had the oopherectomy to remove the second ovary. Since that time, libido has been all but nill. I take a small dose of estradiol which helps somewhat, however am considering beginning a low dose of testoterone regimen to see if that helps more.

      Please explore all options before having this surgery. These issues are only part of the problem. You might not have all of these issues if only your uterus is removed, but often they will advise to have the ovaries removed at the same time to avoid need for other surgeries should you have problems with your ovaries in the future. Also, to prevent the possibility of ovarian cancer which has a very low recovery rate.

      However, even with uterus-only removal, you will most likely be left with the issue of no longer having the capacity for uterine orgasms (if you did before), only clitoral. While you can learn to ‘enjoy’ these orgasms, they are much more shallow and sometimes even frustrating. I certainly don’t intend to be the bearer of bad news but strongly believe that women need to hear from other women who have been through this situation. There is a need for a very understanding partner also after this surgery due to the changes in your anatomy, mood, and libido. I have had moments when I’ve wondered if my sex life will ever resume to satisfying. Take good care and all best.

      1. Kat, I am sorry that you too are suffering the effects of hysterectomy and oophorectomy and did not get informed consent including the fact that the ovaries and uterus have lifelong functions. The ovaries are shown to produce hormones a woman’s whole life and are essential to good health. Menopause is merely a transition from the exocrine / reproductive functions of the ovaries (performed by the outermost theca) to the endocrine functions (performed by the inner stroma).

        I also want to clarify some information about ovarian cancer:
        1) Removal of ovaries does not prevent ovarian cancer; it merely reduces the risk since ovarian cancer cells can be found elsewhere (they do not always originate in the ovaries).
        2) For women who do not have a genetic predisposition / family history, their LIFETIME risk of ovarian cancer is VERY LOW at 1.3%. Studies have shown that the removal of ovaries causes much more harm than good due to the many increased health risks / mortality and reduced quality of life associated with ovary removal. At no age is oophorectomy associated with increased survival.

        We need to stop treating women’s organs as if they are “an accident waiting to happen” and disposable. Testicular and ovarian cancer rates are similar yet men do not have their testicles prophylactically removed. Prostate cancer rates far exceed those of all gynecologic cancers at 14% yet men do not have their prostates removed prophylactically and many do not even have them removed after a cancer diagnosis. Lifetime cancer rates can be found here – http://seer.cancer.gov/statfacts/more.html. At most, only 10% of hysterectomies are done for cancer.

        1. WS, I appreciate your thoughtful comments. Please bear in mind, however, that I do not feel, nor did I ever say that I had a doctor who did not ‘inform’ me. That is a misnomer. My doctor did everything she could to assist me in watchful waiting over my fibroids and told me that I would have to be the one to make the ultimate hyst. decision. It was only when my fibroid grew too large and in a location to deal with that it became imperative. And, the ovary was removed only due to the fact that she was very sincerely concerned that I had endometriosis on that ovary. I did much better in the libido department until I had the second ovary removed which was not only recommended by her but another very respected surgeon who does surgery to minutely pick every tiny shred of endo out of women’s interiors so they do not lose their ability to have children or keep their organs as long as they choose. I just need to be clear on that. I also DO have a maternal history of ovarian cancer in my family – my mother’s sister. While that might not be directly mitochondrial, it can be a risk factor as I understand it since it was a maternal aunt. I do LOVE your equation of the rates of ovarian cancer compared to testicular cancer, however, and how out of balance that is. I agreed there is a problem. I feel that my issues were truly happenstance and no one could have prevented the course of events I endured. I have just been extremely saddened by my ‘losses’ as is so aptly covered in this article and wanted to offer some, hopefully, helpful advice to another woman who might still have time to make other decisions. All best, Kat

          1. Kat, I agree that you did not say your doctor failed to ‘inform’ you. However, there were a couple of statements that indicated you did not get the necessary information to make an informed decision, those being:
            1) Your left ovary was removed for what was thought to be endometriosis. Contrary to what many women are led to believe, removal of the uterus and/or ovary(ies) is not a cure for endometriosis.
            2) It was recommended that you have your other ovary removed when the mass was found since you “would be nearing menopause in a few years.” This implies that your doctor led you to believe that the ovaries stop functioning at menopause. The ovaries produce hormones a woman’s whole life (although their function can be impaired after hysterectomy).

            I am sorry to hear about your aunt having had ovarian cancer. When there is a family history of OC, it is typically recommended that genetic testing be done before resorting to oophorectomy due to the serious increased health risks of ovary removal.

    4. Hi.
      I did my total abdominal hyterectomy 6 weeks ago. I feel perfectly fine. None of the side effects they are talking about.
      I did only walking the first 4 weeks. Now I am gradually going back to my exercise routine.
      The point is to take it easy the first 4 weeks , no lifting heavy objects no running.
      You will be ok.
      Good luck.

      1. I’m glad to hear your surgical recovery is going well. The anatomical and skeletal changes do not happen immediately. They are gradual. It can take a couple years to notice the effects of the skeletal changes on your figure / shape. But while they are gradually occurring, you will probably feel some sensations in your midsection caused by the shifting of bones and tissues. And these changes continue to some degree as the years go by since the pelvis’ support structures have been cut.

        The shifting / descent of the bowel explains why many women report changes in bowel function, most commonly constipation.

          1. It not everyone will experience negative effects of hysterectomy but everyone will experience the structural changes. Those cannot be avoided. If you remove a structure from the body, everything else will adapt and compensate. In some cases, the outward effects are not as noticeable. In other cases, they are very noticeable and induce a whole host of other issues. If the ovaries are removed then, the woman is placed into immediate menopause. If they are removed early, well before menopause would naturally occur, the side effects are dramatic and no amount of HRT will compensate sufficiently. It’s not being negative to discuss openly the potentially negative consequences of a surgical procedure. We should all understand this information before we make the decision to have the surgery. We should all be aware of how bad it can get for some women. That’s not being negative. That’s just understanding the possibilities. It’s better to have this information before than be totally blindsided after.

  25. I’m 40 years old and was recently diagnosed with cervical cancer. The doctor felt a radical hysterectomy was the best solution to get all of the cancer. Me, being in information overload already, went along with it. I’ve been out of surgery for a week now and have found that my left hip hurts after a bit when I sit on a hard surface or when I sit on the toilet. My right leg I’ve had issues with going numb at insane times depending on how I would stand, sit, lay down, or lean my lower back against a counter. Since the surgery, however, it has stayed numb despite feeling returning the other areas that were numb. This numbness goes from my right hip down the outside of that leg to about the knee and some across the thigh. I can use that leg to push myself further up in bed when I’m laying on my right side and have burning sensations go through, sort of like several hot needles jabbing me at once. It goes away but not without me gasping and holding my leg. The nurse told me they would “look at it” on my follow up. Anyone else have any ideas why it would be doing this? I was thinking they may have done something to the sciatic nerve while they were in there. I’m glad I found this site and hope someone can give me a little in-site if this is normal.

    1. It’s nerve damage. There may be post surgery inflammation and when that subsides the nerves will settle down but if it doesn’t it is likely the nerves are damaged in someway. I had/have that two down my left leg. Didn’t present until about two months post. I have nerve damage from a cervical spine injury from years ago and so was well aware of the sensation. I have learned from that injury that the only way to maintain it is daily activity – I have to workout to keep my arm from going numb (from the neck injury) and have deep tissue massages regularly (monthly for the last 15 years, sometimes more when I do something to irritate it) to keep everything moving. I’ve applied that to the leg and while it doesn’t cure it, it does become more manageable. Also, we have a writer on our blog – Leslie Wakefield – who specializes in women’s pelvic injuries and she does some pretty impressive and specialized types of pelvic physical therapy that seems to work wonders for those who use her. One of our other writers, Philippa Bridge Cook uses this to manage severe endometriosis and surgical adhesions. You might consider looking up Leslie’s articles.

    2. Oh, and it could be simply that your back is out from all of the laying down and immobility of the surgery/recovery, perhaps even before the surgery. That is a simple fix, a massage or chiropractor or both can pop it back in and the nerve compression should cease.

    3. Stacey – Nerve damage was the first thought that came to mind. Surgical positioning and number of hours in surgery can cause issues. I had some hip pain early post-op that resolved over time. I think it took about a year to resolve. The chances of nerve damage may be greater with radical hysterectomy but it could just be that you were in the surgical position for an extended period of time. How long was your surgery? Hopefully, your symptoms will lessen as time goes on.

      1. The surgery lasted about 6 hours according to my family that was there waiting for me when I woke up. It was done robotically since he felt that was better for someone my size as well as being what he’s known for. Thank you for the insight. Was going to see a chiropractor once I was healed just because feels like things are out in nt upper back.

        1. Stacey – Hopefully, your upper back pain gradually resolves. Surgical positioning as well as the gas they use to inflate the abdomen can cause pain in the upper body. I hope your recovery is otherwise going well!

  26. When I was 25 I went to my GYN because I was having painful periods. He did a hysterectomy in which he took everything but my cervix. They tried putting me on several different hormones over a 2 year period, but none were right for me. Now I’m 37 and have been experiencing some major issues with fractured ribs. I have had two fractures within a two month period. Both were caused when someone gave me a hug. And I can’t stand on my feet for long periods of time. I only weigh around 119 lbs. so I know it’s not my size that’s causing the problems. It’s seems I’m way too young for all of these health issues.

    1. Jerri – I am so sorry that you also fell victim to the hysterectomy and oophorectomy industry. It makes me so angry to read stories like yours. With the epidemic of unwarranted female organ removal, it’s clear that Gynecology health care professionals have no ethics or moral compass.

      The fact that you could not find the “right” HRT just goes to show that we are sold another false bill of goods in that we can’t just pop a pill or slap on a patch and life goes on. And to add insult to injury, women’s ovaries also produce androgens such as testosterone with fairly high levels long after menopause. Yet there is no FDA approved testosterone. And androgens are important for much more than sex drive, one being bone density.

  27. After five years of horrendous bleeding issues, pain and chronic anaemia I had a total hysterectomy, leaving only the right ovary. I also had vaginal repairs for a prolapse. Pathology did indicate multiple cysts; very enlarged uterus; adenomyosis and other inflammatory processes.

    I was looking forward to the future post surgery of not being confined to the house for 2 to 3 days a month due to the heaviness and certainly thought my prolapse issues was gone or markedly improved would also improve the quality of my life, including sexually.
    I am only three and a half months post surgery BUT I am in worse pain now than prior, despite being checked by Doctor and two Gynaecologists who all tell me I shouldn’t be in pain.

    In HINDSIGHT I was so blasé in my approach, with looking at the whole picture. If only I could turn back time, I would vastly change my decisions and ask a lot more questions. The trouble with most gyno-surgeons is that they have a far too clinical approach SURGICALLY.
    I certainly miss my uterus and cervix sexually, with orgasms being a shallow version of what they use to be. Two Doctors were down right dismissive of my less quality sex life saying that the clitoris and surrounding areas are the major conductors of orgasm (true to a degree) but one cannot dismiss the role of the uterus and cervix in ‘deep’ orgasms and lubrication. I am especially upset that I allowed such a large surgery to take place when all that should have been removed at the most, was uterus and left ovary, but I am trying not to dwell now as I have to move forward.

    I have chronic low to moderate pain for the last two weeks in back and genitals, dismissed as being nothing to do with the hysterectomy and due to sacral/coccyx issues only (… but I beg to differ as I believe it is all interconnected).

    There is a large gap of information not given to women post surgery in rehabilitation, specific exercises to do to build yourself from inside out to support your ‘new’ body. Nobody tells you about the chance (albeit small) of chronic nerve damage or the possibility of prolapse of bowel/bladder after a hysterectomy due to your altered body.
    Two gynaecologists didn’t even address the correct care post vaginal repairs. Etc, how to sit and breathe for that bowel motion or diet/fluid specifics and that pelvic floor exercises/therapy is a ;must. All I got was” A make sure you drink plenty of water, eat well and take it easy for six weeks” is NOT enough information.
    Nor do most tell you about sex, pre sex preparation, suitable lubrication, the possible need for short term vaginal hrt creams etc or gentle techniques or positions and the possibility of needing to use dilators to gently re-stretch the shortened and altered vagina.

    I have had to research myself for diet; dietary supplements; re-exploring sexuality in new ways to adapt to my altered body; safe pelvic floor specific books/dvds; addressing pelvic pain through exercise; pelvic safe yoga and physiotherapists and acupuncturists who specialize in pelvic issues. I also had to actively chase the name of a Doctor who addresses hormonal issues through an orthodox and herbal approach, that looks at oestrogen and testosterone therapy, not just hand out the generic dose of an ‘over the counter’ one dose fits all approach.
    I had to discover and become proactive all on my own, two Doctors and two Gynaecologists really gave me no real help at all.

    This has been a whole new learning curve that the most medical profession has glossed over. The basic information of major risks of a hysterectomy being:
    infection; damage to other organs during surgery; blood clots and bleeding doesn’t even really touch upon it all.

    Hell, even addressing that dry vagina after going into a full blown surgical menopause (which I was told wouldn’t happen because I had one healthy ovary left) wasn’t addressed nor was addressing the tight tissue post vaginal repair, which after a hit and miss approach has been helped by massaging with vitamin d oil from capsules.

    Some of the medical profession has a lot to answer for, I am just glad there are some who look at women holistically and not in selected body parts in their approach.

    I know some women’s lives improve vastly after a hysterectomy, I was not one of them, early days I know, but now I am left with trying to rebuild my life.
    I have grieved, gotten angry and now am being proactive.

    1. Jay – Thank you for sharing your story. I know it is difficult to share this personal information and admit that you were in essence scammed. Unfortunately, there are so many of us who are victims of the overuse and misinformed consent of the hysterectomy and ovary removal (castration) industry.

      It is an atrocity (besides being a violation of the Hippocratic Oath) to disassemble women for just about everything that “ails them” concerning their female parts. It is incumbent upon us to speak out and make every effort to stop the gross overuse of these surgeries. In the U.S., 40% of women aged 45 to 54 have had a hysterectomy. That is a disgrace on the Gynecology specialty as well as the hospitals and surgical centers.

      I hope you find “solutions” for the problems caused by the removal of your organs.

      1. Hi! My experience is quite similar. 7 years ago I had a full hysterectomy. (Cervix, Fallopian tubes, uterus and left ovary) during this surgery I also had a bladder suspension. Three years ago I had to have a bladder sling. The suspension lifted my bladder. And the most recent was the sling which pulled my bladder forward. So right now I currently have both the suspension and the sling.

        As of now I have developed vaginal prolapse to the point where my intestines bulges out from my vagina and I have to push it back in. This mostly happens when I need to have a BM. For me being regular is about every five days or more.

        If I walk for more then half our or so my insides feel like they are just hanging inside. To the point where it hurts and I have to lay down on my back. I can’t explain it any other way then it feels like I have to push as though I am in labor. The pressure on the pubic bone and the pressure on my pelvic floor.

        If anyone else is experiencing this similar pain please let me know. This is very debilitating. Not to mention I feel like my body looks so different in my midsection. I have never had a weight issue and now I feel like I do.

        Thanks Lynn

        1. Lynn, How awful! I have read that 35% of women undergo a second surgery within 2 years (if I remember correctly) after having a hysterectomy. That really shocked me! Just goes to show that hysterectomy is a very damaging surgery. I am sorry you are now dealing with vaginal vault prolapse and a prolapsed bowel. It is sickening that gynecologists destroy the lives of so many women and those who could change it look the other way or enable them!

          And yes the figure changes are devastating not to mention the pain caused by the misalignment of the bones and compression of nerves and blood vessels.

    2. I had a hysterectomy 2/2010. In 2011 diagnosed with Graves Disease (hyperthyroid). Then I began to experience numbness in my right foot March 2012. I had MRI in 10/2013 found that have cervical spinal stenosis. I also have left hip and left lower back pain. I shared all of this with my GYN who performed the surgery. He says that the only thing that can happen is Osteoporosis. My life has flipped upside down and all around. I stopped working 6/2013 because of all these after diagnosis.

      1. Sherlyn, I am sorry for all the problems you have developed since your hysterectomy. Thyroid problems are common post-hysterectomy since the endocrine havoc puts a lot of stress on the thyroid. And as detailed in this article, hysterectomy destroys the spine and hips so your other problems are not surprising. Hyperthyroidism is also associated with bone loss as is ovary removal or post-hysterectomy reduced ovarian function or failure. I have found that the majority of gynecologists are not honest (either before our surgeries or after) about all the problems that can, and so often do, occur after the uterus and/or ovaries are removed. I hope you can find some way to improve your situation.

    3. Oh how I wish I knew all this before my surgery. I would NEVER have had it done. When they find a “very slow growing cancer” (prostate) in men they adopt a “wait and see” attitude In women they rip our genitals out. Weight gain, huge breasts (I’ve always been big busted which I hated but was losing weight and they were starting to get a bit smaller and then….) that I have suffered with all my life.

      Quality of life is very important. “Slow growing”…what, like 20 years? I should have walked out of that office, looked for someone willing to try freezing the polyp (very small cancer encapsulated in polyp–or so they said), removing it etc. etc. anything but what they did.

      I am a miserable castrated woman who has even contemplated suicide during the last three years. I hope all these surgeons burn in hell. A woman did my surgery and I can’t figure out why another female would do this. A man—let’s tell him he has a tiny “spot” of prostate cancer and then cut his family jewels off. Sorry but I am going out of my mind. I want my body back.

      1. Sharon, I am so very sorry for what was done to you! The cancer scare tactic was used on me too by a gyn I had trusted for almost 20 years. I never ever could have imagined that he would betray me so horribly nor that I would fall for the scam. If you haven’t read my hysterectomy story, you can find it by clicking on my author name “WS” next to this article’s title. I was scammed at least in part to help residents meet their minimum surgical requirements for hysterectomy. Each resident is required to do 70 hysterectomies.

        This hysterectomy and castration racket has been going on far too long. It is well past time that the authorities step in and stop all this harm that is destroying women and their families!

  28. Hello and thanks for posting your wisdom and knowledge. I’ve been experiencing pain that I can’t really diagnose nor can my doctor. Before I came upon this site, I was looking for information that I can take to my dr’s appointment tomorrow. As of now, everything that I’ve found is linked to gallbladder or heart issues. Well, the pain that I’ve had is recurring. For years, I’ve dealt with fibroids and the pain that comes with it and could do nothing about it because I never had insurance until the Obama Care. It seems like once I got it, the pain kicked up in high gear with sudden sharp killer pains that would stop me in my tracks to feeling like something had come out. Well, something did…my cervix…hanging out of my vagina! I called my doctor ASAP and upon checking me, he already confirmed that it was my cervix and would need surgery to snip off parts of it rather than remove it. We didn’t see eye to eye so I found a new doctor that checked me and felt it was no other option other than to perform a hysterectomy. I wasn’t sure because I wanted kids and then seen those chances slip through my fingers. After prayer and support from my sister and family, I opted for the surgery with the daVinci robot. After my surgery, I started dealing with constipation which was never an issue before where I needed Miralax and stool softeners for elimination. But I was relieved that the pain was gone so I just dealt with it. It never dawned on me that surgery is probably the culprit now because the same issues that I complained about with my female parts are now the same issues I’m currently expressing. The same pains are back and I have no clue what to do. But, I will say that this article was quite helpful. I will be talking to my doctor about the gallbladder and heart issues but I will definitely be talking about the possibilities of complications due to having the hysterectomy. Thank you for sharing and let no one cause you to stay silent. I speak the truth where necessary as well not only to help and shed light, but to hopefully show someone else that silence is not always golden.

    1. Cheryl – Thank you for your kind words. I am so sorry that you too were a victim of hysterectomy over-treatment (as is the case for most women who have this surgery). Constipation is a common complaint since the bowels are displaced. Adhesions (scar tissue), reduced innervation and blood flow can further hinder bowel function. Bladder problems also tend to ensue since the bladder is likewise affected. I have written about these changes here http://www.hormonesmatter.com/hysterectomy-impact-pelvic-floor-organ-function/. You can see a list of all 7 of my articles here – http://www.hormonesmatter.com/author/ws/.

      I hope you can get a diagnosis for this pain and find something that relieves it. There are tests for gallbladder function (HIDA scan). Be aware though that gallbladders are also unnecessarily removed (although I don’t know at what rate). And one can suffer permanent negative effects afterwards. Of course, there are cases where it needs to be removed.

      It is so important that we educate ourselves since we are the ones who have to live with the consequences. It is sad that health care has come to that but just as in any other business, there are unethical people. And then there are those who are just incompetent.

  29. Dear WS,
    Thank you so much for taking so much of your time to write these articles & for all of your diligent research, etc., I know this can’t be an thing for you (especially living it yourself personally). We definitely need more like you, especially when it comes to women & their reproductive systems.
    My life took a huge drastic turn 10.5 years ago, at the age of 30.5 years old. I became the victim of surgically induced early menopause due to an ectopic pregnancy that went extremely bad to even worse (as if losing a pregnancy wasn’t already horrific enough). Now, I realize that my situation may not “fit” perfectly into this particular article you wrote & the comments therein after, however, I can tell by reading your other articles & the comments you leave, that you will not mind where I “put” my story. Thank you in advance…
    Okay, so this ectopic pregnancy emergency surgery was supposed to be laparoscopic, however, immediately upon the Dr. making the initial belly button incision, the whole OR Team (at a very large University Hospital) found out the hard way that my ectopic had blown up like a hand granade inside (Dr.’s exact words upon waking up). I’m not going to get into all the gory details here, but just know that a 40 min. surgery turned into a massive life threatening five hour surgery!! I lost so much blood, I nearly died on the table, more than once. Prior to this, I was a good gynecological patient, always got my annual pelvic exams & PAP’s, etc. Also, miscarried once prior to the ectopic. This particular miscarriage happened quickly & was able to “purge” the non-viable pregnancy on my own. Of course, I was under proper care from my OBY/GYN, to be sure all “passed” & that I wasn’t in any danger. Even prior to the first miscarriage event, I had a few ovarian/uterine ultrasounds, confirming ovarian cysts on BOTH left & right sides. Okay, so fast forward to my awful ectopic emergency surgery & recovery. Immediately upon waking, my Resident Surgeon in charge (doing the majority of the work) exclaimed to me with deep concern the following (not verbatim):
    1) “We almost lost you a few times, but you’re a fighter…” then followed by “We need to perform an HIV Test because the scalpel knife sliced my finger while cutting your stomach open!” Of course, being super in pain, groggy & disoriented, I shook my head yes/okay to test my blood (in case I infected him). Can you believe that?! I get it, but not what I want to hear…
    2) Then the Dr. proceeded to tell me that I lost the baby (11 weeks), which I knew would be the case… But then said something like, “did you have cancer or radiation treatment before?!” I shook my head NO! Doctor then said, “the turmoil from the ruptured pregnancy, caused permanent damage to your left ovary & Fallopian tube, which is now cleared out. But, I was unable to find your right ovary & I looked hard for it!” I was in such shock over this all, but to have him tell me I’m missing my right ovary, when I’m pretty certain I had both ovaries based on previous ultrasounds, was putting me in a “Twilight Zone” feel. The Dr. then said that my right Fallopian tube was barely there & what was present, looked to be severely damaged, but the damage was NOT from the rupture, it was “old damage”, scarred & about 1/2 the size it should be (compared to a healthy tube). He said, “that’s why I asked if you had cancer or radiation therapy.” WOW!!
    Of course, I’m beyond devastated, not to mention in severe pain, as the incision was now fairly long, long enough to be stapled shut with about 20 staples. Background story necessary because, I can contest to sudden removal of ovaries, no matter what the reason & the horrible impact it has when you no longer produce female hormones, especially estrogen. So, here I am, a young female at the age of 30, who can no longer conceive or bare children. A thriving female, who only felt a glimpse of what it’s like to be pregnant. So sad! The Dr. did NOT remove my uterus or cervix at that time, but that didn’t matter when it came to ALL the yucky menopause symptoms – GOD AWFUL! After that fateful day, it changed me & my body, for the worse, FOREVER, just as you’ve described your body. About 8 years later (at the age of 38), I had to remove my cervix & uterus due to life threatening & sudden hemorrhaging (they were basically dying with proper hormones). I really wanted to keep those “parts” (for health reasons), but obviously, wasn’t meant to be & couldn’t feasibly go on living while bleeding out like I was. The entire Menopause experience has been so difficult on my body and once my cervix & uterus was removed, my health declined even further, big time! Not sure if this is a coincidence or not, but my strong intuition tells me it’s not a coincidental situation. Would truly love to pick your brain, as I never actually opened up to anyone about this in this magnitude or capacity (so personal & devastating). I have a lot of other health factors that I can explain, but thought it best for you & others to not go too deep, for fear of confusion.
    Is there anyway you’d be willing to discuss this privately with me, WS? Maybe you’ve met or communicated with others that have had a similar experience. This still weighs very heavy on me after all these years and with more & more problems occurring, I’m starting to really wear thin (more ways than one; my weight is decreasing & my bone density is severely low). Thank you again!! Much love & support to all who are suffering in various ways due Hysterectomies & other health ailments. You are never alone in this!
    All my best,
    CaneySuzyQ

    1. SuzyQ – What a horrific story! I am so very sorry for what happened to you! I am not surprised that losing your uterus caused further problems since we really need all our parts. Did your “menopausal” (surgical menopause is a misnomer) symptoms worsen after the hysterectomy along with other changes? I have to wonder if you still had your right ovary and they removed it? I know of some women whose ovary(ies) was/were removed and they did not even know it. You can find a whole list of citations about the effects of ovary removal (and some about hysterectomy) at http://www.overy.org. I will also email you privately.

  30. Underwent a radical hysterectomy at 33 years old due to a pair of gast growing uterine fibroids.

    This article is the kind of ridiculous, misinformed bullshit that needs to be purged from the internet. Ladies: Take your advice on these things from people who have actual medical education.

    1. Suzie – Unfortunately this is not, in your words, bullsh*t. It is too bad your doctor didn’t remove just your fibroids so you could keep your uterus and its LIFE LONG functions. Doctors, hospitals, pharmaceutical companies, and now device manufacturers (da Vinci) profit handsomely from this surgery. I have connected with many women who have had hysterectomies and none of them were told the long-term risks and repercussions.

      I am curious what prompted you to seek out this information after your surgery. How long has it been since your surgery?

      1. Hello,the reason I came to this site is because of excessive bloating and belly protrusion. I had my partial in 2003 and since then I`ve had constant bloating and lack of bowel elimination at times it never donned on me until now that it may be from my hysterectomy, i`ve tried practically everything to ease the discomfort but nothing is working. What do I do now? is there any help? or should I consider a tummy tuck?

      2. I’m a 46 year old who just underwent a recent hysterectomy. It’s early so I can’t say anything other than what I feel at this moment. I’m feeling so much better mentally. I to check the Internet about big topic things to get a feel for other’s experiences. But I must agree with some of the others. This is one of the most depressing forums to come get information that you yourself can utilize. As we all know the ENTIRE body is very precise in how it functions optimally. No one should ever expect to get a hysterectomy and act oblivious to its side effects. That is really juvenile . Sorry! We have to weigh the pros and cons for ANY decision we make in life and not preach to the world blaming someone else (I.e. docs, etc) if things don’t go according to the plan in our head. I too know plenty people who have had this surgery years ago and say they would do it again. So everyone is different and NO 2 people have the exact same functioning. All I’m saying is really know your body yourself, get prepared then if you want this surgery to solve other problems, go for it if you come out with enough pros that fit YOU! No one should be scared away from a decision that could very well change their life for the better but chose not to.
        And to keep it real, no doctor is going to run down a list that “could” happen to you. They don’t know how you will react to it until it’s done. Don’t ever count on that. I wish everyone the best no matter your decision!

        1. TJ – It is my hope that women find this information BEFORE making a decision on treatment options for their gynecologic problems. Doctors are not informing women of these long-term sequelae. You are right that the body is “very precise in how it functions optimally.” Studies show that the uterus is needed for optimal health. Many of the after effects happen in the long-term. Far too many hysterectomies are being done unnecessarily (70% by ACOG standards). Educating women is key in reversing this long existing over-treatment.

          1. WS,

            Thank you so much for researching and writing this article. The information you have presented is crucial for all women considering a hyserectomy, whether a full or partial one.

            I had a partial hysterectomy (laproscopic; kept cervix and ovaries), at age 46…six months after my beautiful son was born. He is my third child and he has an 18 year old brother and 16 year old sister.

            A year after my daughter was born (aprox. 15 years ago), I got a bladder sling due to horribe frequency and incontence issues. I had zero complicaions from the sling and it improved the quality of my life immnesely. It is still working to date, though I want to mention this as I am wondering if the sling has anything to do with the complicatons I have had immediately and ongoing post op. These issues have become alarrmngly worse lately and I spend a good part of my day dealing with them.

            The first thing that became a problem post-op was chronic constipation. No matter what I do, I am always constipated and so much so that I always have a build up of and pass a huge amount of mucus (sometimes just mucus). This has affected my entire gastrointestinal tract of course and I have intrmittent issues with enough gas to float a blimp, nausea, heartburn, etc. Over the last two years, I have definately noticed my intestines shifting down and I may have a rectal prolapse as a result. It isnt bad enough yet that I want to consider surgery for it at this time, but I can unfortunately see it going in that direction.

            My figure has shifted also and I now have the poochy pot belly you describe. I am slender othwise. My daughter even commented recently on my shape and suggested a tummy tuck so I would look more proportionate! I never thought I would consider any kind of plastic surgery for myself unless it was medically necessary. This may qualify as my lower back aches nearly every day from my altered and off kiilter frame, which is now un naturally front heavy.

            Most of the time I forget that I had a hysterectomy and oddly don’t think to consider it as the cause of all of these changes. This may be because I was never told about ANY possible adverse short or long term complications from the surgery, especially long term anatomical changes. Nor was I offered any other choice than the surgery or an unwieldly and painfully uncomfortable pessary for my mild uterine prolapse. Looking back I remember my OB matter of factly telling me that surgery was really my only option and cheerfully started to schedue the procedure right then and there during the initial exam.

            I have been doing my own research lately for these issues that concurrs with the information in your article. I have to admit I now wonder how much my hysterectomy was really necessary for me or just an opportunity for that OB to preform an expensive surgery at my lifetime’s physical and emotional expense.

            I would really appreciate your comments on what may be going on with me and would also be grateful to know if anyone else has experienced similar symptoms and what actions were taken and what outcomes have occurred.

            1. KME – Thank you for your kind words. Hysterectomy is so overused (nearly 40% of women aged 45-54 have had one) and causes so much harm. Since women are seldom told the sequelae, it is my passion to make every effort to spread the word. I have written 7 articles here on HormonesMatter – http://www.hormonesmatter.com/author/ws/. This one on hysterectomy’s impact on the pelvic floor and organ function may be particularly helpful in your case – http://www.hormonesmatter.com/hysterectomy-impact-pelvic-floor-organ-function/.

              I am sorry you are suffering these after effects and that your surgeon offered you no other options and rushed you into surgery. It seems a common strategy for them to just go ahead and schedule the surgery and we, trusting our doctors, comply. If other options are offered or questioned by us, we are often told erroneously why they won’t work and that hysterectomy is the best option. Many of us have had a long-term relationship with our ob/gyns, having seen us through many years of annual exams, pregnancies and childbirth so we trust(ed) them. It doesn’t help matters that the insurance companies don’t seem to care that this surgery is so overused. I could not even get my insurance company, Cigna, to divulge what my doctor submitted to get my surgery authorized.

              Many women complain of bladder and bowel dysfunction since those organs are displaced to some degree and the pelvic floor is weakened. Adhesions can further hamper organ function. And since you had previous symptoms of prolapse, hysterectomy increases your risk for another prolapse.

              Have you tried using some sort of “laxative” when the constipation is particularly bad? Magnesium has a laxative effect. I take a calcium/magnesium supplement before bedtime when my bowels are sluggish. If I take it on a regular basis, my bowels are too loose but my surgery triggered severe diarrhea and I have had more of a problem with loose bowels than constipation ever since. Thankfully, my bladder isn’t too “cranky.” There are times when it does not empty properly especially after having caffeine.

              You did not mention having any symptoms of ovarian failure or even natural menopause. The reason I mention this is that loss of estrogen to the urogenital tissues can cause bladder issues. Some women find that vaginal estrogen helps. So if you have vaginal dryness, some vaginal estrogen may be worth a try for both that as well as your bladder.

              I hear you on the tummy tuck! I never needed nor thought about any such thing. I had a very flat abdomen…bikini worthy body at age 49. I am still thin but the “fat” poochy pot belly is disgusting! I personally doubt I will ever have a tummy tuck because it is pretty risky and the recovery is quite brutal from what I have read. But it will not fix the shortened midsection (rib cage sitting on my hip bones) so I will still have the mis-proportioned body. Plus it could not restore my previously flat abs because a lot of the tissue is not fat per se but compressed tissue if that makes sense. The descent of your rib cage onto your hip bones is more likely the cause of your back pain. I find that sitting or standing for too long can exacerbate it. Strengthening your core can help.

              Post back and let us know if you find some remedies for your issues. Hopefully, you will!

          2. Why would the uterus be “required for optimal health”? I recently had a full hysterectomy and apparently it was a good thing I did. The proctologist reported finding cancerous activity which had not been discovered before. How can leaving that in your body be beneficial? So, what exactly does the uterus provide in “life long functions”? I am well past the age of reproduction which is the main function of the uterus, ovaries and falopian tubes, at least that’s what I learned through the years. Perhaps you can enlighten me on it’s other uses. I had to have a very painful gall bladder removed also. Should I have left it too? Every woman’s body is different in it’s responses to necessary surgeries. I don’t feel your opinions are very encouraging to those women who have to have these body parts removed for health and survival reasons.

            1. Mary – There is absolutely no doubt that cancer of the uterus warrants a hysterectomy (removal of the uterus). Unfortunately, far too many women are misled about their diagnosis or condition causing the bulk of hysterectomies to be unwarranted / unnecessary. I have connected with many women whose gynecologists used cancer scare tactics to get them to consent to having a hysterectomy and/or oophorectomy (ovary removal) only to discover after surgery that they did NOT have cancer. Less than 10% of hysterectomies are truly necessary and only a subset of those are for cancer.

              Unfortunately, your understanding that the uterus, ovaries, and tubes are only needed for reproduction is inaccurate. Studies show that the ovaries of women with all their parts produce hormones their whole lives and protect them from many age-related diseases such as heart disease, osteoporosis, dementia, Parkinson’s, lung cancer, diabetes, etc. A good explanation of the ovaries’ functions and problems caused by their removal can be found here – http://www.overy.org/ – with a comprehensive list of studies here – http://www.gynreform.com/citations.html.

              The fact that the ovaries are active our whole lives explains why some women have post-menopausal bleeding. Most cases of post-meno bleeding are not cancer or even pre-cancer (endometrial hyperplasia) but merely some sporadic ovarian activity especially in women who went through menopause in the last 5 years or so. However, any post-menopausal bleeding should be investigated just to be sure. If hyperplasia is found via an endometrial biopsy or D&C procedure then hormonal medication is the first-line treatment since it oftentimes cures it, no hysterectomy needed. I assume you meant to say a “pathologist” not “proctologist” found “cancerous activity.”

              You are right that it is difficult to read about the consequences of hysterectomy but that does not make them my opinion. These are anatomical facts.

              It would take a bit of writing here to explain the many non-reproductive / lifelong functions of the uterus (and ovaries). So I will just point you to all my articles so you can understand the importance of these female sex organs. You can find all my articles here – http://www.hormonesmatter.com/author/ws/.

              Just as men need their testicles and prostates for optimal health, women need their sex organs too. I hope this helps clarify!

            2. Yes I agree, I stumbled upon the site searching for reassurance. I’m 38 years old, a marathon runner and have just had tubes removed and uterus ablated (I think that’s what’s it’s called) due to pain and spotting, my uterus I was told didn’t look normal and I am currently awaiting pathology results. I have been informed that I may require a hysterectomy. I have no children, something I thought I could deal with but am now struggling with. Will I be able to continue running? Am I going to put in weight? Become incontinent? I’m scared more than ever now and hoping my result is benign as if I have cancer and a hysterectomy takes away from me what I deeply enjoy, I honestly think I would rather die.

              1. Bonnie, I am sorry for your troubles. Since at least 90% of hysterectomies are unnecessary, it is extremely common for women to be told they need a hysterectomy when they don’t. Why were your tubes removed? Are you saying your uterus did not look normal at the time of the ablation? Is that when they obtained tissue for biopsy? It would be a good idea to get a copy of the pathology report when it becomes available along with related medical records. You can then do your research on whatever “condition” you are told you have in order to make an educated decision. Unfortunately, women cannot even count on second opinions since so many gynecologists recommend hysterectomy unnecessarily.

                Weight gain and bladder problems (including incontinence) are fairly common complaints after hysterectomy. And the list is much longer than that. You can read all my articles about hysterectomy here – http://www.hormonesmatter.com/author/ws/.

                Post back and let us know the pathology results.

    2. Some women don’t want others to be informed (urinary incontinence, anal incontinence, castrated, no sexual function, ruined figures, pain, etc. etc.) because they are lying to protect their self-image. Hysterectomies ruin women. Period.

      1. Angela – Thank you for commenting. Women’s dishonesty is one of the BIGGEST roadblocks to ending this harm / abuse of women. The biggest hysterectomy “support” forum treats hysterectomy as a sort of “sister”hood / sorority and women who are too negative are banned. Other roadblocks are the fact that insurance companies cater to the medical industry by authorizing these surgeries that are seldom necessary. And our government appears to be beholden to the medical industry since they have done nothing to stop it. The American Congress of Obstetricians and Gynecologists (ACOG) spend a LOT of money lobbying Congress. We need to write our legislators to end this madness.

        This website – http://www.overy.org/ – addresses some of the ways you can take action on the issue of ovary removal. But we also need to end the overuse of hysterectomy since it also causes so much harm.

        1. It’s frustrating. I was going to sign up at one of the “sororities” but I realized it would be a waste of time. There’s enough info here and elsewhere. Women who want to know the truth will find it.

          I’ve told two girlfriends not to have the procedure and why. The first last I heard was seeking an attorney for the injuries and pain she now suffers. It was difficult to have much sympathy when she refused to believe me. I never brought up the fact that I had warned her and she never mentiononed it either.

          The second just this week. From her response, I doubt if she will listen either. Her uterus is fine. The doctor wants to remove it as a precaution since she had early stage ‘breast cancer’ (the kind that usually doesn’t develop into anything life threatening yet women are advised to have their breasts removed and undergo chemo for which doctors receive commissions from pharma on every treatment – another scam!).

          I saw my mother destroyed by a hysterectomy at 38. This has been going on for decades and the denial has to stop. Women don’t even have to tell me they’ve had one. I can see it – in their faces, their hair, their figures, their lack of vitality…One day the doctors who perform hysterectomies will be showered with the same scorn as those who performed lobotomies.

          Keep up the good work <3

          1. Angela – I find it odd that so many women ignore the warnings from women who have already had the surgery. Some even post on forums asking women to refrain from responding if their experience is/was negative. Granted, it’s pretty much human nature to think “that won’t happen to me” and to trust our doctors but when we share all the awful after effects, you’d think it would make a difference.

            I too can usually tell which women have had hysterectomies by their figures, hair, skin, muscle tone, and demeanor. There are times I’d love to strike up a conversation but you can’t ask someone “did you have a hysterectomy?”!! Although there are 20+ million of us, it is a very lonely feeling because no one wants to talk about it. That says something in and of itself!

            1. And by not allowing the negative – so that castrated women can pretend there’s nothing wrong with them – all it does is create more victims. There is NO woman that isn’t negatively impacted by a hysterectomy. We’re our own worst enemy sometimes.

              Unless it’s life or death and there’s no alternative it should not be done. Doctors don’t chop off arms as a ‘precaution’ or if there is any alternative treatment.

              If a man’s penis is severed, men crawl out of the woodwork to come help. It makes international news!

              But a woman’s uterus or ovaries? ‘Oh! The doctor yanking out my sex organs was the BEST thing that ever happened to me! I feel great! You should do it too!’

              I saw with my own eyes what it did to my mother. But it was never discussed. I wish I had said something – maybe she would have been able to deal with it better.

      2. I had a full hysterectomy six weeks ago tomorrow, and it was the best thing I ever did! Inside I had four tumors inside my malformed uterus, my ovaries were absolutely covered in large, painful cysts, I had a uterine AVM, all caused by a miscarriage earlier in the year. I’m 44 and had a tubal ligation (tubes cut and cauterized) 11 years ago. I also dealt with polycystic ovarian syndrome and severe endometriosis my entire adult life.

        I’m stiff now, no bathroom issues, no pain, (not even while I was in hospital!) but I’d like to find ways to overcome this stiffness. It doesn’t hurt, but all my joints feel like they need a bit of grease :/

        I’ll be cleared to exercise tomorrow, and I’ll be looking into yoga and core strengthening. I was on full bed rest for a total of four months since February 2015. My illness caused me to lose 30% of my muscle mass, and almost half my hair.

        I’m really looking forward to not worrying about my junk trying to kill me anymore. I don’t feel victimized, I feel liberated.

        1. Barracuda – I am sorry for all the gynecologic problems you had as well as the miscarriage. I hope the surgery ends up benefiting you in the long run. Unfortunately, many of the side / after effects of hysterectomy as well as oophorectomy happen in the longer term (years later) but we are not given all the facts prior to our surgeries. I did not lose any hair or muscle mass until after my TAH/BSO and then I lost a lot of both within months post-op. PCOS itself can cause scalp hair loss (and excess facial and body hair) but since this is a metabolic syndrome, removal of the ovaries does not cure PCOS. Granted, the cystic ovaries are gone but the insulin resistance and other associated symptoms remain. Hopefully, you will get some relief from the pain of endometriosis. Did an endo specialist excise all the endo in your pelvis?

          1. All the endo was removed, thankfully! This was the fourth time I’ve had cautery, and hopefully the last.

            It’s been a few months since surgery, and I’m noticing some differences. My hair is still growing back (the hair loss was caused but the miscarriage), I’m having hot swings, crying jags, my nails are peeling, my ears are constantly ringing, for weeks now! And I’ve gotten fatter, around my midsection and face, my weight hasn’t changed.

            My hips always ache. My pelvis shifted forward because of the round ligament removal, my gait and stance changed, so that’s gonna take some getting used to. I feel like I walk like an asshole now. That’s what I constantly refer to it as, sorry :/ I can’t take long strides anymore, and letting my knees cross is painful. I try not to do that.

            And man, can I slouch! That rib to hip thing is real. If I was a dude, I’d never leave the house. I now try to sit as straight as possible, with my butt behind me, if that makes sense, and watch my posture. I plan on going to physio to help me adjust.

            I consider each of my afflictions to be just inconveniences, but having them all together is sorta miserable.

            I’m trying to make the best of it. I prefer this over what I went through last year. I’m still thankful it’s gone and over. It could be so much worse.

            How long has it been for you? How are you feeling now?

          2. Oh and you’re totally right about patients not being informed, I went in blind! Went home blind too. I had a short, vague pamphlet that didn’t really answer anything directly about what to expect.

            For almost three months I felt pretty good, then it started. And new crap is occurring fairly frequently.

            I have a feeling I’ll be learning the hard way.

            1. Barracuda, I am sorry you were not informed either! Many of your symptoms are indicative of the loss of ovarian hormones / “surgical menopause.” (I don’t like that term because naturally menopausal ovaries produce hormones a woman’s whole life so the afflictions caused by post ovary removal should not include the word “menopause.”)

              It can take some time for the body’s stored up hormones to become depleted which is why your symptoms are worsening.

              I am 10 years post-op.

              1. I’ve been researching in medical journals and online, as well as asking for professional and personal opinions on the subject. I’ve been coming up empty. There seems to be little to no research done on the subject! How can that be? It shouldn’t be labelled as mysterious, and just left at that.

                I’m documenting my experience, creating a timeline record of symptoms, maybe it can help somebody someday.

                I’m glad my organs are gone, truly, but the symptoms don’t let you have a good time.

                1. Barracuda, Are you saying you’ve been researching and coming up empty on the anatomical and skeletal changes? Or something else?

                  1. Anatomical, skeletal changes, nobody ever mentions those when talking about hysterectomies. My mother and my sister both had them, and never once mentioned anything about the changes. I’m pretty sure I’ll mention this first, if the topic arises.

                    1. The skeletal changes can typically be observed in women who are years post-hysterectomy especially if they are not overweight. The Whole Woman website explains that the uterus is like the hub of a wheel with all the major ligaments attaching to it. The pelvis collapses when this hub is removed – https://wholewoman.com/newpages/hysterectomy.html. This FAQ page is also helpful in understanding these skeletal changes – https://wholewoman.com/newpages/faq.html#Q8.

                      This article talks about the long-term effects of hysterectomy including those on the pelvic floor – http://www.medscape.com/viewarticle/805517. You will probably have to register to read the full article.

                    2. Wonderful! Thanks for the link to resources! I really feel lost in the woods with all of it. I guess this is the new normal :/

    3. Suzie, What is your problem? As for advice from people who have actual medical education is a joke! I am not writing about my hysterectomy. I am writing about your total lack of education remark. My husband was in the military for 34 years. I have seen countless doctors as you can never get the same doctor as they rotate. I have had health problems in the past like utis, stomach problems, severe allergies etc. I have been told it was lyme – negative, HIV – negative, all in my head – negative. etc. Overseas I had severe headaches. One doctor sent me to a shrink who told me it was because I was so happy to be going back to the states. I have been to the Mayo clinic – no help. Finally I found an allergist who found out it was candida. My immune system was down to 1 instead of normal 15 to 30. I am being treated and it took care of so many things. By the way the headaches were caused by birth control pills which was making my blood pressure go through the roof. The other doctors never bothered to take my blood pressure. Went off them headaches gone. These women have real problems and that is not bullshit. You need help Suzie. You could have written something nice instead you acted like you know it all. Do you have medical education? I suggest you need to talk over your real problems with a counselor as there is more here than meets the eye.

  31. Please help, I had a LAVH, everything removed including the ovaries in August 2014, since then I have had severe lower back pain, I can’t walk more than 10 mins without pain, I never had pain before my operation. My back pain has some relief when I go to the loo. Anybody else suffered anything like this

    1. I had a total hysterectomy may 2014 and my lower back hurts daily. I can walk a few steps and it’s worse. I thought it was from being shoved in my back by the nurse, when they were transferring me from one bed to another after surgery. I hope you get relief soon.

  32. I’m considering the surgery bc I have large fibroids that cause me to look pregnant and sometimes swell causing
    Pain and pressure. The fibroids are up to my ribcage and fill my abdominal cavity. It’s awful and I hate it. I know 3 women who have had the surgery and they are very happy they had it and relieved. One I saw about 2 weeks after her surgery and she looked 10 years younger! So much fatigue and stress lifted from her face. Another woman had surgery years ago and her posture and body look fine.

    1. PL – I am sorry you are dealing with fibroids. You did not say how close you may be to menopause. They do typically shrink after menopause. The figure changes do not happen overnight and many women are good at disguising them with changes to their wardrobe such as loose fitting clothing or certain styles.

      Have you pursued less drastic options that preserve the uterus and its non-reproductive functions such as myomectomy or Uterine Fibroid Embolization / Uterine Artery Embolization? UFE / UAE is done by radiologists not gynecologists so you may not have been offered this option.

      Best of luck to you.

      1. WS thanks for the reply. I am 48 and so, close to menopause. I am also looking into the other options you mentioned.
        As for the body changes after hysterectomy, my grandmother had the surgery at 44. In her 70s, she still had an exceptional looking body and good posture and having seen her unclad, there was no mistaking. She did, however, exercise daily and take care of herself.
        My mother had the surgery about 10 years ago and has no complaints concerning it.

    2. i had a hysterectomy in 2004. I had a large tumour on one of my ovaries and they could not be sure until after a biopsy on it after its removal by surgery whether it was cancerous or not. I was 50 at the time and scared of cancer so i thought best to remove uterous and ovaries as I no longer needed them. After surgery the results where tumour wasnt malignant but in time it may have become. I was never advised about the negat5ive

      MY BIGGEST REGRET IN LIFE IS HAVING This TOTAL HYSTERECTOMY.

      Without ovaries the body doesnt produce estrogen or testosterone so I have been having yearly estrogen and testosterone implants.

      Ever since HYSTERECTOMY y whole personality has changed, gone from an outgoing lady to a hermit rarely interested in socialising and i have little energy and gone from 60kg to 70kg

      I THOUGHT THAT WAS BAD ENOUGH. LAST 3 YEARS I HAVE HAD STRESS INCONTINENCE AND OCCASIONAL PROBLEMS TRYING TO P0O AS ITS HARD TO PUSH OUT DUE TO BOWELL PRESSING ON MY VAGINA. G

      ynocologist told me a month ago that normally the uterus holds the bladder the vagina and the bowel in place as they are all connected. He said when uterus is removed the other organs often become unstable often swinging in the wind and after on average 6 years after hysterectomy women start having problems.

      I am a week out of major surgery after having a bladder sling repair and an anterior and posteria vagina repair. IN THIS PROCEDURE A SLING Is inserted to support the bladder and the sling is attached to strong ligamonts either side of the pelvis to stabilize and support it and front and back of vagina has supports from it also atached to pelvis ligaments to keep in place and keep vagina away from the bowell and bladder. If I hadnt had a hysterectomy i wouldnt have needed this surgery as I was very fit and every thing was where it should have been. If I knew what I know now i would have just had the one ovary removed.

      1. Irene – I am sorry that your organs were needlessly removed. My story is similar to yours. The only problem I had was a large ovarian cyst and my surgeon should have removed just the cyst.

        Like you and almost every other woman who has had this surgery, I was not informed and was actually lied to about the many consequences.

        I hope your pelvic floor repair recovery is going well and that your bladder and bowel function improve.

    3. I too wound up with really large fast growing fibroids (5lbs removed)which resulted in me having blood clots in both femoral arteries because one fibroid was the size of a 7 mth fetus)and I too was told more likely than not you have cancer (only after I could convince the doctor the 30 lb weight gain and swelling was not normal and this was at UCLA). I had to spend the morning before surgery negotiating with the gyn/onc on what he would agree to leave in. The surgery was horrible 6 hours and they removed everything except ovaries and even removed my omentum. My recovery was horrible I couldn’t stand straight or sit up for 2 months, had a blocked bowel etc. etc. I have a 14 inch vertical scar (bye-bye bikinis)and now have a huge divot in my abdomen and look deformed and have chronic pain in my abdomen sometimes with stabbing pain and frequently feels like somebody is shooting hundreds of rubber bands at my abdomen, I cant even touch my abdomen or even the inner portion of my leg and its 6 mths later. I think the whole point we are all trying to express is that these gyns are so quick to just to yank everything out because “we don’t need it anymore” (which is not necessarily true given ART – I had not had a child yet but who knows with medicine nowadays but that has forever been taken from me now). Additionally, they don’t fully explain options nor explain how serious the surgery will be (thankfully they ordered blood for me as they knew the surgery would be really long – there was a team of about 10 in the operating room which scared me to death – how could some little ol’ fibroids be that big a deal and if they are that big a deal then why don’t the doctors treat the surgery like that. I was told I would be in the hospital 2-3 days – that was a joke I could not even stand for 5 days and I was in such pain I cried every time I had to get up or moved. The recovery and life after have been horrible – the pain, the weight gain etc. I didn’t even go for my follow up visit because I couldn’t bare the thought of anyone touching me especially in the area. In general I think most women who have this surgery are under informed by their doctor who treat it like is a nothing surgery but then again we live in a country that insurance only covers one day in the hospital for a mastectomy – my guess is if a man’s thing was cut off insurance would cover weeks of recovery.

  33. Hi I had Ablation last May 2014. It was unsuccessful due of bad cramp last Four months on period for 7 days straight repeated until last three weeks I had surgery for hysterectomy and keep my ovaries plus removed gall bladder last 6 weeks.. I noticed that I had a hot flash without sweat last week Monday bedtime. My body drove me so crazy by hot flash for 4 hours so I decided to get a tub for cool water to break out of hot flash so successful and emotional so senators to cry easily then same thing last Monday bedtime.. I have been emotionally unstable crying for good reason from frustrating and stressing too. I feel better no more sorely on my Betty. Only left is in my vaginal and can feel it… Hurry up to heal it..Have u experience of it?

  34. I had a hysterectomy almost 3 months ago. I hate what has happened to my body. My vagina is not even similar to what I remember. My breasts are so painful I don’t know how to aleviate it. Sex…misery. I feel so alone. No one I know has had this experience. I feel a needling pain in my lower abdomen/vagina. When I work on my feet I have to be aware of holding my muscles tight so I don’t have incontinence! My hysto was done vaginally, cervix and utterus only. Someone help me! I am only 42. I wish I had just lived with the cramping and bleeding.

    1. Karen – I am sorry you are also suffering the after effects of hysterectomy. It is a travesty that about 40% of women eventually have this destructive surgery despite the vital lifelong functions of the female organs and the rarity of gynecologic cancers. Since it is fairly common for ovarian function to be disrupted or cease altogether, be watchful for that. Hormones can be helpful but I am not sure how much can be done for the anatomical and skeletal changes.

  35. I am so glad I found your post, I thought I was searching in vain for answers, after my hysterectomy I experienced numerous changes, weight gain, ageing more rapidly, facial features and skin texture changed, my figure changed. I experienced emotional episodes, irrational behaviour. Had my surgery in 2010, compared to photos of me and my energy levels, sex live, I have aged about 10 years in a 5 year period. My mother also went for her hysterectomy during 2012, she experience similar side effects. Are there any remedy for this rapid ageing, frizzy hair and weight gain?

    1. Annele – I am sorry you as well as your mom are suffering the common after effects of hysterectomy! Were your ovaries removed or have they failed (which is fairly common after hysterectomy)? That can certainly amplify the after effects. And if this is the case, hormone “replacement” (although not a true replacement for our organs) may help stabilize the situation. It is a disgrace that so many women lose their organs unnecessarily and are left with worse health problems and a lesser quality of life than what led them to having the surgery in the first place. So few of these surgeries are truly necessary (only about 2% are done for cancer).

  36. Cheryl – I am curious what prompted you to search for this article and how long it has been since your hysterectomy. These changes are gradual and do not happen immediately.

    It is unfortunate that your surgeon did not use conservative treatments allowing you to keep your uterus and its many non-reproductive functions. When chronic pain and dysfunctional bleeding are stopped, women obviously feel relief. But unfortunately, for many women, the relief is replaced by regret and despair as a whole new set of problems present themselves.

  37. I’m not disfigured, prolapsed or any other bs this article claims. My sex life is amazing now. Best choice ever! Goodbye 28 tumours! See ya horrible periods! No more doubling up pads! And… Omg!!! I still have a waistline as well. Don’t believe everything you read on the internet. This article isn’t factual information. It’s only someone’s opinion.

    1. I’m curious how you’re able to have an amazing sex life without a uterus.

      The big bang is the moment when the uterus, vagina, and anus contract simultaneously at 0.8-second intervals. A small orgasm may consist of three to five contractions; a biggie, 10 to 15.

        1. Mary – I am glad to hear you have not had one of the biggest disappointments of hysterectomy – lack of libido and sexual response / orgasm. Most women lose sensation to their genitalia, vagina, and breasts due to severed nerves and blood vessels. And for many women the uterus and cervix are big factors in orgasm. They don’t realize how much they play a role until they are gone. Loss of ovaries makes matters worse. These are our sex organs after all. I am curious what prompted you to go searching for hysterectomy information since you say that your experience has been positive.

          1. Prior to my hysterectomy I had been experiencing some pain in the pubic area. I was looking to see what internal organs could be affected by cancer, after a hysterectomy, and fell onto your site.

  38. HI WS –

    I’m a freelance reporter investigating the connection between hysterectomy and back pain—a topic that has very little research behind it. Do you have any medical contacts who grasp the implications of this kind of surgery and chronic pain and back trouble who would be willing to be interviewed?

    I appreciate any leads and assistance!

    Best regards,

    Cate

    1. Hi Cate – I do not know of any medical professionals who grasp the implications of hysterectomy on back pain. However, I suspect that many do not grasp the connection or would not be willing to admit it. However, you would think all doctors should know since they all had to study anatomy. But especially, it would seem that orthopedists, neurosurgeons, chiropractors, and even physical therapists would see it in their practices quite frequently especially since about 40% of women have had a hysterectomy by age 60. The non-profit HERS Foundation – http://www.hersfoundation.com/ – may be able to direct you to someone. All the aftereffects of hysterectomy need to be exposed in mainstream media as women are not being given the facts and have to live with the lifelong damage. Thank you for your interest in this subject.

    2. I had a vaginal hyst in august. I’m now 6 weeks p/o. I had a cuff infection and uti that resolved. I started lacing lower lumbar spiny pain last week. One or two vertebrae only. Severe pain with aitting, bending, standing. Otherwise I feel great!

  39. Jen,
    I am sorry to hear of your diagnosis. You may fall into the 2% of hysterectomies that are warranted due to a cancer diagnosis. I do not know much about cervical cancer such as diagnostic accuracy (false positives / false negatives). Keep in mind that pathologists have different experience levels so sometimes a second pathology opinion is worthwhile. Best of luck to you in getting the right treatment!

    I personally was misled about my condition and discovered some inconsistencies and lies in my medical records after my hysterectomy. Getting copies of tests including biopsies and doctors’ notes can be extremely helpful. We as patients have to take charge to be sure we get the proper care.

    Best of luck to you!

  40. I have been diagnosed with stage one cervical cancer, squamous carcinoma and adenocarcinoma. Both medical opinions I received recommended a hysterectomy. My ovaries will remain intact. I am a 31 yr old mother of 3. After reading your article and exploring HERS, I am extremely fearful to go through with the surgery in two weeks. I want to make the right choice.

    1. I am not a physician, but I suspect this may be an instance where the hysterectomy is a valid option. Maintaining your ovaries is critical and it seems your doctors are willing to do that. If you choose this procedure, make sure the surgeons do not use a morcellator (http://www.hormonesmatter.com/morcellation-foolhardy-technique/). It is common with hysterectomy and it will spread cancer cells.
      Good luck with this decision.

    2. to the lady afraid of having surgery as she has cervical cancer I say don’t be afraid . You have three children to live for . My mother died young of cervical cancer . It is worse than any outcomes of having a hysterectomy . No one wants that . Of course they don’t . But without Cancer you will live ! Also the operation and how you will feel after is not as bad as you might fear .
      Live for your children ! Beat cancer !

  41. I am 28 recently had a hysterectomy had multiple complications but I still don’t regret it just wish I would have had a done by another dr and another way. I have suffered for years with cervical prolapse recurring cysts a fibroid I tried having implants removed my uterus and right ovary became enlarged. For me even with the complications I would still have it again just with a different dr and a different way. I was constantly bleeding you shouldn’t scare women or make them question their decision.

    1. Britney – I am sorry your problems led to a hysterectomy. This article is only meant to inform women. My hope is that many more women find it prior to surgery versus after so that they can make an informed decision. Unfortunately, women are rarely informed about the lifelong functions of the uterus and ovaries. Although you did not share the details of your complications, I hope you are able to get the necessary treatments for relief and resolution.

  42. For those who are angry and distressed at reading this article – I understand as that was my same reaction when I discovered these anatomical facts. But it does not make sense to shoot / attack the messenger. You need to be angry with your surgeon for failing to inform you of these facts / adverse effects as well as question what other adverse effects were not communicated to you.

    Every woman deserves to know the adverse effects of hysterectomy with and without ovary removal before she signs a consent form. Silence and denial perpetuate the gross overuse of these damaging surgeries.

    1. Thank you for this info. The more you know the better informed you will be! A hysterectomy was recommended to me to treat large fibroids. I was told that the large uterus may negatively impact my kidney function. Two previous gynecologist did push a hysterectomy; the last one did and recommended a gynecologic oncologist. No finding of cancer-it was suggested because of the large size. I continue to research because the ob-gyns didn’t spend a lot of time discussing outcomes with me.

      1. Correction: the 2 prior gynecologist did not RECOMMEND a hysterectomy. The latter ARNP and gynecologist did. I have been monitoring my uterus for the past three years waiting for menopause to kick in so the fibroids would stop growing. I have explored other options. No doctors favor individual fibroid removal.

        1. Miriam – It is encouraging that the first 2 gynecologists did not recommend hysterectomy. So did they recommend “watchful waiting” since no doctor recommended removal of the fibroids (myomectomy)? Or did they recommend some other type of procedure?

          1. I wish someone would have recommended the ex-ablate process where I believe ultrasounds are used to apply heat to shrink the fibroids. No one stated the your uterus had to be under 8 months pregnancy-size. I would have loved to have that option.

            1. Miriam-I’m so sorry that neither of your GYNs informed you of the option of fibroid removal. My fibroids were too large by the time they were detected, so I never had that option. Over the past few years, I have been undergoing what I think is surgically induced menopause, as the GYN snagged one of my ovaries during the procedure. Yay! I am in the camp of trying every possible treatment available to avoid hysterectomy. Mine changed my life. I used to be very physically active and happy. Since surgery, I now have constant back, leg and hip pain, headaches, depression, lack of drive. I’m always hot and sweating. My once tiny, strong tummy area is now flabby and my entire abdomen is completely numb. Unable to tighten my muscles at all. I only speak for myself and I don’t get why it is that some try to supress others’ opinions. There were mixed opinions from the women I worked with who’d had hysterectomies, but nobody had any helpful info. I really regret having had my hysterectomy and I only hope to inform others of my own experience. It’s up to them to do what they will. I am considering having a tummy tuck at this point and you can bet I will thoroughly research plastic surgeons. They can take away tummy flab, tighten abdominal muscles and liposuction the surrounding tissue. I’ve seen amazing results. Thank you so much for this site! We need to get the word out to all who wish to know.

              1. Just to be clear: Regarding hysterectomy, I am not referring to a Cancer diagnosis or any imminent, life-threatening condition. Certain conditions require surgical removal.

              2. JRM, I’m sorry you’re also suffering! In addition to the anatomical effects, it sounds like your ovaries are shutting down which is fairly common.

                It’s so important that we take action to stop the gross overuse of these surgeries. ProPublica is doing a hysterectomy survey. Please complete the survey via this link – http://propub.li/1t6uZNr. The survey focuses on surgical complications but there is a section to share other information. Please be sure to share all the ways it’s affected you and the various aspects of your life. Email the Patient Safety Project journalists – Marshall.Allen@propubica.org and Olga.Pierce@propublica.org – to tell them about the harms of hysterectomy and how you were not provided with all the after effects of this surgery (lack of informed consent).

                This is another way to report your patient harm to ProPublica – https://www.propublica.org/getinvolved/item/have-you-been-harmed-in-a-medical-facility-share-your-story

                Consumers Union (an arm of Consumer Reports) also has a Patient Safety arm. You can report your harm here – http://safepatientproject.org/share-your-story. I reported my unwarranted hysterectomy and oophorectomy in two categories, Doctor Accountability and Medical Errors (even though my organs were intentionally removed).

                Let’s at least make the media aware of the awful harm and gross overuse of these surgeries. Thank you!

  43. ElleL – This is anatomical fact not BS. I know it is distressing to find it especially if you had a hysterectomy or are considering one.

    And it has NOTHING to do with vaccinations.

  44. ESmith – I understand your distress at finding this information. I did not understand it either…that is until it started happening.

    Withholding this information from women who have had hysterectomies is a disservice to women who are considering or are told they need a hysterectomy since only about 2% of hysterectomies are truly necessary. All women deserve to know the lifelong functions of the uterus and ovaries BEFORE they consent to surgery.

  45. This article is PURE BS. I also came across this website looking for something else. I would bet you are also against vaccinating children. …Propaganda

  46. Yvonne – I am SO happy that you found the information necessary to understand the damaging effects of hysterectomy and are cancelling your surgery. Please spread the word, the HERS Foundation’s video, as well as the articles on this site so other women can know the truth before it is too late. Thank you for sharing your story!

  47. I just watched the video and read most of the reports from women that have had a hysterectomy. I went to my gyno a few days ago and was in the process of setting up an appointment to get a hysterectomy. I have now changed my mind. My only complaint is that I just had a large fibroid removed in 12/14, and now another small one is forming. I have pain like my period is going to start but just a little cramping, not even enough to take pain med but I was thinking doing a total hysterectomy was the answer to future fibroid removal. I can’t afford to have bladder and bowel problems since I had a bowel resection in 10/12 and a small bowel obstruction in 3/15 possibly due to adhesions. These women have saved my life with their stories! I am calling my gyno back and am not having the surgery. My gyno didn’t really even try to talk me out of the surgery or tell me what can happen to my body afterwards. I am not willing to trade a little discomfort for a lifetime of pain. I’m newly remarried at 56 and wouldn’t dream of losing the desire to make love! Thank you ladies from the bottom of my heart for sharing your stories!
    Yvonne S.

  48. This article is misleading and does a disservice to those recovering from hysterectomy. There are far more muscles involved in maintaining skeletal support than the pelvis. I suspect many woman don’t have proper posture, let alone core muscle strength, prior to surgery, and of course being laid up only makes the problem worse. To suggest that the cutting of the ligaments that support the uterus is the sole cause of your back problems is folly. Many women recover from hysterectomy without these problems by doing proper core exercises and mainting proper posture. You paint a picture of the rib cage sliding down, as if that were possible. One’s spine would have to be severly misshapen to have what you describe occur. Performing abdominal exercises can be daunting after surgery, and some put more pressure on the pelvis than others. Anyone with these issues should seek a referral to a physiotherapist, not advice from websites like this. (BTW I ran across this article looking for exercises targeting my hips and came across this nonsense, so please don’t try to suggest something else as you did with another individual that disagreed with you).

  49. Someone Who Cares – Thank you for your kind words as well as backing me up on this issue. It is time that women fess up to the negative effects of hysterectomy. Until they do, many more women will be harmed by these surgeries that are seldom necessary.

  50. Dear WS – I’m sorry to see that you were so viciously attacked for telling the truth. Please don’t let it get you down.

  51. Sandy – You are obviously angry and upset but that does not justify name calling. No doubt, it is upsetting to discover negative effects of hysterectomy of which you were not informed by your medical professionals. Like you, I did not understand how hysterectomy could destroy the pelvis’ skeletal structure…that is until it started happening and then gradually worsened as time went on. And that is also when I realized why all the hysterectomized women I knew had boxy figures and big bellies. As detailed in the article, it is not the uterus itself that is responsible for the core’s skeletal structure. It is the four sets of ligaments that hold the uterus in place and are the core’s structural supports keeping the spine, hips, and rib cage where they belong.

    I wish I could say that my body, in your words, is “boxy BC you are not properly working your core and eating a clean diet period.” My diet and exercise routines have not changed in MANY years and I weigh less than I did pre-surgery despite weight gain being a common complaint after hysterectomy.

    Unfortunately, many of the problems caused by hysterectomy do not happen overnight. For many women, the relief from gynecologic problems is replaced by a whole new set of problems which are compounded if ovaries are removed or fail (40% chance of failure). Granted, some women’s gynecologic problems are severe enough that hysterectomy is a good trade-off.

    You said “These women complaining obviously complained over minor or maybe even normal female issues and conVince their doctors to give them a surgery they didn’t need and now they are complaining even more.“ Based on what I have learned in the last 9 years, gynecologists are typically the ones who convince their patients that they NEED the surgery, not the other way around. But regardless of who pushed for the surgery, women are not given all the facts about the lifelong functions of the uterus and ovaries before signing the surgical consent form. In my opinion, women deserve to know that hysterectomy can cause bladder and bowel problems including incontinence, loss of pelvic skeletal integrity and ensuing back and hip pain, sexual dysfunction, and 40% chance of ovarian failure which increases risk for a number of health issues. And ovary removal has a whole list of increased health risks.

    Yes, some women who have hysterectomies for endometriosis do get relief but some don’t. And for some the relief is only temporary. Hopefully, it will be permanent for you.

  52. Also your uterus does not hold your spine in place or anything else if it did women would have spine displacement when they have a uterus that tilts. Not to mention your spine goes down to your tailbone. There is no gap in your back where your spine separates the two.
    Your CORE holds everything in place! Your uterus is normally very small, just above ur pelvis. So the whole idea of your uterus being needed to keep your ribs off your hips is nonsense.

    and for real a roll of fat is from excess visereal fat like too many carbs or processed foods aka bad diet/ estrogen dominance which can be caused be fibroids bc they produce extra estrogen. Which will cause a boxy look just FYI!
    also not to be mean but anyone who opts for a surgery they haven’t researched is a moron. That is why you have an appointment a week or so before your surgery so you can ask questions after reading up on it.
    I’m sorry but you guys really piss me off!

    1. Sandy, I had endometriosis. My doctor and her nurses told me to avoid the internet so I wouldn’t be scared with any horror stories. The thing is, 4 years post-op and my story is darn near identical to the ones I found here. The endometriosis I had my whole life (I’m now 46) was a cake walk compared to the hell I’m in now! I’m on so many drugs for pain, depression, hair loss, vaginal ph, arthritis, urinary & bowl issues, I have to put Lidocaine inside my vjay 15 mins before sex & then lube just to make love with my husband of 26 years! I even had an InterStim device placed in my upper buttocks with the hope that it would help with urinary issues and pain (it didn’t). I have ongoing PT and dry-needling for my lower back, pelvic floor, sciatica & my hips. My skin feels dry & paper thin. I have 50% less hair on my head, hardly any vjay hair, a flat ass & tummy pooch now too! Blood work shows my ovaries are no longer working. My mom & older sisters all had their periods well into their 50’s. AND BTW… I hade NONE of these other issues before. They started four months post-op. So I trusted my Doctor and didn’t search on the internet for the side effects of a hysterectomy. I wish I would have…I wouldn’t be where I am today. I guess that means I’m twice the moron….and you’re obviously twice the bitch.

  53. To all the people reading this agenda driven bs understand this website is giving skewed at best and at worst false information!
    The ligaments cut for a hysterectemy are reattached to your pelvic wall so yeah the whole spine compression due to ligaments bei g cut is an outright lie. And also it is very difficult to get a hysterectemy, took me 20yrs of severe pain bleeding and stomach swelling before I was finally able to get relief. Already a couple weeks out I feel a million times better, pain gone, pregnant belly look gone I finally have my abs back, and nausea and migraines from messed up uterus also gone. My skin looks better and I can finally Urinate like a normal person and am no looking going to the bathroom every ten minutes.
    These women complaining obviously complained over minor or maybe even normal female issues and conVince their doctors to give them a surgery they didn’t need and now they are complaining even more. That behavior harms those of us who need this medical treatment BC doctors are that much more reluctant to give patients treatment they NEED for real problems which a lot of women suffer unnecessarily with for years.
    Ur body is boxy BC you are not properly working your core and eating a clean diet period. Stop lying and blaming it on a surgery you had how many years ago? Seriously! What you are doing on this page is anti female! Women should be able to get treatment for serious female problems and this bs campaign serves nobody. Fibroids cause major hormone imbalances which in itself is hell not to mention the pain and long term internal damage an enlarged and sick uterus can cause as well as uterine cancer, excessive weight gain that can’t be lost with diet and exercise. The pregnant stomach from a messed up uterus is not pleasant either and cause major body issues as there is nothing that you can do to fix it. Birth control pills makes these problems worse over time as putting artificial hormones in your body is not healthy and is damaging to your entire system a d causes dangerous health risks. I could go on and on but the point is maybe some people don’t need a hysterectemy but there are those of us that not only desperately needed it but it was a godsend. and a hysterectemy may not cure endometrisos but it majorly helps and improves quality of life a lot. I know two other women who had a hysterectemy for the same reason i did both are very happy about the decision and Think as i do that it was crap that it took so freaking long to finally get it done. So thank you whiny jerks for being the reason women like me have to suffer for years before we can get the medical care we needed!

    1. It takes 10-15 years to see the changes from a hysterectomy in your skeletal anatomy, etc. Rectal prolapse and incontinence happens because when they remove the uterus the bowels drop in that space. Truth

      1. Sally – The skeletal changes can be noticed by women by about two years post-op especially if they are in tune with their bodies and haven’t gained a bit of weight. The descent of the rib cage will be particularly noticeable in thin women as indentations at the top of the hip bones in the back/sides and as a poochy belly in front. And then they gradually become more pronounced over time.

        Not only are the bowels (and bladder) displaced but the severing of nerves and blood vessels can further impair their function.

    2. Ahh! Another POSITIVE person. I agree. I feel 100% better since my hysterectomy. No more unscheduled discharge, etc. Thank you for posting your thoughts.

    3. Sandy,

      Thank you! I had a LAVH 4 days ago. Still in a bit of pain but following dr.’s orders to take it easy for 6 to 8 weeks. I was starting to freak out a little when I came across this website until I read your comment. I believe much more of what you have said than all the other comments combined. Misery loves company so the more negative comments that are left the more negative replies. I’m only 45 years old,had 3 periods in 2015 and in March of this year bled for over a month,soaking 6+pads in a day. No pain until beginning of April. Had an ultrasond, was told I had a large polyp. Polyp removal and d&c preformed. After my follow up on April 21 was told that I had adenomyosis, and people are right not much out there on that. Options:IUD or birthcontrol! Sorry not putting a foreign object I’m my body or messing with hormones. Only real cure is hysterectomy. I said sign me up! I was placed on the waiting list and within 4 days my dr.office called to say I was scheduled for May 3. I have no regrets and gone into this transition in my life with a POSITIVE ATTITUDE. I think when women get together to talk or vent about issues it’s almost like we have to outdo each other. If there is a medical reason you need a hysterectomy, do it. Some of these comments are from women who have been suffering for years. WHY THE HELL WOULD YOU LET YOURSELVES SUFFER FOR SO LONG? For all the complainers, turn your negative energy into positive energy and see what happens. The mind is a powerful thing. Embrace yourselves in white light positive thinking and meditation. You will be surprised

  54. I don’t even know where to begin. I feel like my hysterectomy took my life away. I am over a year postop Everyday is a struggle with bladder pain, constipation and pelvic blood vessel pain. Surgery was recommended because of heavy periods, pelvic congestion and fibroids. When I woke up from my surgery I also had excruciating sciatic pain which has never gone away. My body was previously bikini worthy, now as others seem to have experienced, there is less support so my ribcage is lower and my abdomen has a bulge. My pelvic muscles also are almost frozen. I have a new large indent in my back now., almost like the plane across where the uterus was has an empty void and doesn’t support my spine. I wanted to get relief form my original symptoms. Instead i exchanged them for a far worse set and no one knows how to offer me pain relief. I have many friends who have had easy hysterectomies but you never know how it will turn out and if you are unlucky like me you will regret your choice every hour.

    1. Ann, I am so sorry that you are also suffering from this awful surgery! The changes to our figures alone are awful but I cannot imagine being left with worse chronic pain. As far as the “large indent in my back now, almost like the plane across where the uterus was has an empty void and doesn’t support my spine” – I also have this indent (more like two indents on each side/back) which is a result of the rib cage sitting on the hip bones.

      I am 9 years post-op and am still appalled by all the stories / lies women are told to lure them into the operating room.

  55. Ah…thank you! I read and commented on your article shortly after you wrote it. What a great ending…”If you are considering hysterectomy and/or castration, you may have to decide whom to trust: the woman who cares enough to warn you or the one who says I am ridiculous.”

    I will be watching for more of your articles.

  56. Dear Sweet WS – Please don’t downplay the value of your article, by giving credit to someone else. I have admired the HERS Foundation for many, many years, and their video is packed with tons of factual information. However, your article presents this particular after effect in a wonderfully warm, personal, understandable manner. Please accept the credit you so richly deserve.

    As to your suggestion that I write more hysterectomy articles, my “Confessions Of A Castrated Woman” was published here on August 7, 2014, although (for some reason) I didn’t use my normal “Someone Who Cares” as the author. I need to be more consistent.

  57. Someone Who Cares – Thanks for the compliment. But the kudos should go to the HERS Foundation for its video “Female Anatomy: the Functions of the Female Organs” which is embedded at the end of the article and can also be found on HERS’ website as well as Youtube.

    As far as women who negate the after effects on hysterectomy forums, I question their honesty. People who are happy with the outcome don’t typically spend time on forums. They are out living life. And keep in mind that some women just do not want to admit the truth or are in denial. It is hard to admit and accept that one was scammed (regardless of the type of scam). Granted, there may be some women who get relief from chronic pain after hysterectomy but that would only account for a small percentage of women. And not all of those women would have made the same decision if they had known all the trade-offs.

    You really should write an article titled “The Hysterectomy Finally Did Me In.” Contact the owner of this website. She would probably love for you to write about anything hysterectomy.

  58. Congratulations on having written the most read article during 2014. The honor is well deserved. I have survived hysterectomy/castration for nearly 40 years, and thought I knew everything there was to know about the after effects – until I read your enlightening article. Thank you; thank you. I’m sure this article provided validation for many women who have experienced these after effects,, but have never read the “why” so fully explained. Again, thank you.

    After all these years, lately I have been jokingly considering writing an article entitled “The Hysterectomy Finally Did Me In.” One thing that never ceases to amaze me is why there are so many hysterectomy support group websites where, in posting after posting, the women make it sound like the after effects are no big deal or even non-existent. These websites make it appear that those of us who tell the ugly truth are nothing but neurotic kooks. How can this be happening so much? It makes no sense!

  59. Kathy – You did not say how long it has been since your hysterectomy. The changes to my figure did not happen overnight. They were gradual. Every woman I know who has had a hysterectomy has the boxy figure. It is more pronounced in some than others. And some clothes hide it better than others.

    What prompted you to read this article? Are you suffering some after effects of hysterectomy?

  60. I don’t agree with most of this article at all. I had a hysterecomy and my body didn’t change in appeareance due to my surgery. This is bullcrap.

    1. I agree with you, Kathy!! And i belong to a page on Facebook of women that have had hysters. What this article presents is NOT AT ALL the norm on the page with thousands of women. My quality of life is 100% better now than it has been in the past 10years. I’ve lost some weight due to the fact that i can actually get out and about now and enjoy a pain free life. I’ve had no negative body changes, in fact i’ve had only positive ones. No more horrific cramps or back pain or leg pain so terrible that i could barely walk. No more blood loss and transfusions and no more have i been told that my organs were starting to shut down from being at a 4.3 blood count! Emotionally, i’ve been more stable and no mood swings. I never got to have children and it took me a few years to get geared up to have the hyster but i was at the point where i’d rather have no children than be in the situation that i was in. I think where we are in life has a lot more to do with our internal dialogue and thoughts than just our physical well being. I’ve been a 19yr regular patient of chiropractic and my chiropractor hasn’t noticed any of the above mentioned problems with me. I’m 7 months PO and 43 yrs old. My advice for anyone reading this article before you decide on surgery…please look up the Hyster sites on Facebook, you’ll learn lots there and get good advice and honesty and not scare tactics. Of course things can go wrong. I discussed that with my doctor. He assured me that only about 5% have something that “goes wrong” and 100% of those things can be fixed.

      1. Michelle – I am sorry you were faced with this crappy choice but glad the hysterectomy has relieved your pain and I hope it continues to do so (you did not say if you have endometriosis). Indeed, for women who get substantial pain relief from hysterectomy, the trade-offs may be worthwhile. However, in many cases (such as with fibroids), there are organ preserving treatments that are just as effective without the nasty trade-offs. You are still early post-op (7 months) to be experiencing some of the after effects.

        I am glad you found a Facebook group to help you post-hysterectomy. Of course, we gravitate toward groups that fit our experiences. Being that hysterectomy is such a life-altering surgery, there are plenty of online forums and women’s experiences. Unfortunately, some that pose as “support” groups (such as the “sisterhood” site) limit negative posts or those that do not align with their commercial (profit) motives, such as selling products, doctor listings, “ask a doctor” services, and aligning with Intuitive Surgical (the daVinci robot manufacturer). It is important that women are aware that they may not be getting unbiased and uncensored information.

        Best of luck to you in your health journey!

      2. You’re now only eight months post op. Come back in five years after you’ve hit menopause and your internal organs are sliding around, you’re suffering from anal incontinence, fistula disease, cardiovascular disease, constipation and god knows what else.

      3. Thank goodness there are other positive posts! I feel 100% better after mine; no more monthly (most of the time more than once) discharge. I have already gone through menopause and it should not have been happening. Now, all is taken care of.

        1. Mary – The fact that the ovaries are active our whole lives explains why some women have post-menopausal bleeding. It is more common than most women (and many doctors) realize. Most cases are not cancer or even pre-cancer (endometrial hyperplasia) but merely some sporadic ovarian activity especially in women who went through menopause in the last 5 years or so. However, any post-menopausal bleeding should be investigated just to be sure. If hyperplasia is found via an endometrial biopsy or D&C procedure then hormonal medication is the first-line treatment since it oftentimes cures it, no hysterectomy needed. Of course, if cancer is found via an in-office endometrial biopsy or D&C then hysterectomy makes sense / is warranted.

  61. ATH – I am sorry you are going through all this. I am surprised your doctor did an ablation for abnormal cells / hyperplasia. Ablation is not supposed to be done when there is hyperplasia since it can mask hyperplasia or cancer. Medication is the standard treatment for hyerplasia and typically cures it.

    Since you are having debilitating back pain, I wonder if it is from the surgical positioning. Another possibility is nerve damage which is next to impossible to diagnose. Have you considered physical therapy? That might help.

    As far as the diarrhea – Since you have taken so many antibiotics for the UTI’s (plus probably a prophylactic AB in the hospital), your good bacteria has likely been “wiped out.” A good probiotic or daily servings of yogurt with live cultures to restore your gut flora may help. I had severe diarrhea for probably 9 months or so post-hysterectomy and my bowels are still not normal (8 years out). I do not know the cause but suspect it was either a hospital acquired infection or the effects of the prophylactic antibiotics administered in the hospital.

    Hope you get answers and relief soon!

  62. A Smith – I am sorry you have had to deal with chronic pain. I feel for women with gynecologic problems that cause chronic pain because they oftentimes have no good options. No one wants to trade one set of problems for another. But like you said, sometimes there is no choice. I hope the hysterectomy gives you relief in the long-term.

    It really is disheartening to view this video after one has already undergone a hysterectomy. I had a lot of the same emotions about it 8 years ago after my surgery. Yet, at the same time, I was already experiencing many of the symptoms listed in the video. So it validated what I was experiencing. I came across it just as you did – while searching for answers to how I was feeling after hysterectomy. As time has gone on, some symptoms have improved with hormone “replacement” but some have worsened and new ones have manifested. I only wish I would have found it prior to my surgery as I would have declined my gynecologist’s urging for the surgery. (Ironically, HE used scare tactics to get me into the operating room.)

    Yes, depression is one physiological after effect of hysterectomy. Our hormones affect mood so removal of the ovaries or their compromised function after hysterectomy can cause serious mood disorders. The uterus itself may also have some link to mood. I quickly plummeted into a suicidal depression after my surgery. I also became extremely irritable and short-tempered. I may have gotten the help I needed sooner than later had my gynecologist (surgeon) not abandoned me after surgery. Instead I continued in this state for well over a year. Thankfully, estrogen pulled me out of the black hole. It is critical that women understand this link so they can get help. Some of the other symptoms mentioned in the video may be linked to depression. But many including the anatomical and skeletal after effects are not.

    Our sex organs are essential our whole lives and, unfortunately, women are not getting the necessary information to make an informed decision regarding their removal. It is particularly disturbing that doctors are withholding information from women and in many cases negating the facts and resorting to unethical tactics to sell this surgery. Even more alarming is the treatment of the female sex organs as disposable after childbearing is completed. Why else would healthy sex organs be removed for benign conditions? Why not remove the fibroids (myomectomy) or the cysts (cystectomy) and preserve the organs? And why remove healthy ovaries just because they are “in there” removing the uterus? Yet this happens in about 73% of hysterectomies. Did you know that 76% of hysterectomies do not meet ACOG criteria? One of the biggest ACOG criteria that is not followed is obtaining a definitive diagnosis prior to recommending a hysterectomy. The best treatment for overall health cannot possibly be determined until a diagnosis is made regardless of the health issue and specialty.

    It is imperative that women understand the after effects of female organ removal before signing a consent form. Only then will they be getting true / informed consent.

  63. I came here looking for information and wound up with a nasty scare tactic video. I am sure that all the information that was presented was factually true, but I also think that it was scripted in the most fear mongering way possible. I am 3 weeks post-op and just sort of curious about what sorts of things are happening in my body. I would have liked to have some of this information without the constant nagging that a hysterectomy was a bad idea. Well, let me tell you something. This was one of the best decisions I ever made. I know there will be changes, but I was in CONSTANT UNRELENTING PAIN since having my children’s 2.5 years ago. I won’t share my specific issues because it’s none of your business, but even with this scare tactic crap I would have made the same choice. I feel a million times better already.

    You should consider putting a label on this post as an anti-hysterectomy post that is aimed at people who are considering the surgery. That way people like me who have already had it don’t have to read through and watch a video who’s only intention is to make them feel badly about a choice that is already done. Is the information useful? Sure. And I’ll have lots to share with my doctor today as the information helps me to articulate some of the sensations I’m having. But this video makes me feel like I’m doomed to a life of agony and incontinence. Most of the reported symptoms of hysterectomy that the video claim are all symptoms of depression, which is totally possible after major surgery but shouldn’t be attributed to the surgery itself. You might be scaring women out of a procedure that may save their life or even drastically improve the quality of their lives. How about reframing the information in a way that’s actually useful and supportive? Instead of claiming that someone WILL have bladder problems, talk about what a bladder problem might look like. That way someone post-surgery can get some information to take back to their doctor about what their feeling.

    I really get that your purpose is to try and curb the unnecessary use of the procedure, but you are being cruel to the women who have already undergone this procedure and are simply looking for some information.

    1. Your anger is misdirected. You should be talking to the doctor who failed to inform you. You shouldn’t have to search on the internet to find out what’s wrong with you post-op – your doctor should have *told* you what was more than likely going to happen.

  64. In 2012 I had an endometrial ablation because of low risk abnormal cells, heavy periods and pelvic pain. 2 years later the bleeding and pain had started again and the abnormal cells were back but were high risk this time. My obgyn of 10 years recommended a hysterectomy. On June 24, 2014 I underwent a vaginal hysterectomy. They took my uterus, tubes and cervix. I still have my ovaries. After surgery I began getting chronic UTI’s, experiencing severe lower back pain, diarrhea and weight loss. I have always been thin but I’m down to 109 lbs. I was at 115 before surgery. I went back to my obgyn (more than once) and was blown off and told pain was common and would go away on it’s own. So I went to my family doctor and she tried to treat the UTI’s. She told me the back pain was most likely from the UTI. I was on antibiotics on and off for 3 months when I decided to see an infectious disease specialist. He treated the UTI with a double strength antibiotic but I still have severe lower back pain. The pain is debilitating. I can hardly make it through a full shift at work and driving is something that I avoid because sitting in the same position for more than 5 min is almost impossible. I have had an Indium scan, a CT with barium and contrast, a stool test and several blood tests. All showed nothing. So now I’m looked at as a pain pill seeking hypochondriac that just wants attention. I am only 31 years old and have 2 kids ages 7 and 9 and have become depressed because I can’t keep up with them due to severe pain. Not to mention that my marriage is suffering. The thought of having sex makes me cringe because I know the kind of pain that will follow. WHY IS THIS HAPPENING??

  65. Yvonne, Sorry to hear you are feeling badly post-hysterectomy. Besides the possible causes Chandler mentioned, you could have some nerve damage or even a urinary tract infection. UTI’s are pretty common after hysterectomy and do not always show up on urine cultures. Hoping you get some answers soon and start feeling better.

  66. I cam a crossed this site while once again researching all my post op problems from my recent hysterectomy . I have been to 3 doctors and going to my forth in about 30 mins. I am 7 wk post op was told I needed surgery for my adenomyosis. I am 38 and now feel worse than I ever have . Really bad lower back pain and pain in my pelvic area and pain when urination. Inter course is very unconfortable also. I wish I would have know before how I was going to feel. All the doctors just look at me like I am crazy and I can’t stop crying. I sleep on a heating pas when I can sleep. I am now worried about how I am going to return to work I work on my feet for 12 he shifts. I just want some help..

    1. Have you considered that perhaps you have endometriosis? Hysterectomy will not help endometriosis and the endometrial lesions can grow anywhere, ligments, bladder, bowels, sciatic nerve. Read our articles on endometrisios and perhaps you’ll recognize the symptoms and find some help. Alternatively, it is possible, probably likely, that you have some scar tissues/adhesions that are causing problems. We have posts about that as well.

  67. Hi all, I recently had a total hysterectomy and lately I have been so sad. I can hardly get out of bed. I have no appetite, no energy, and I feel awful. Has anyone experienced this type of sadness? Somebody help me.

    1. Sharon, I am sorry for your suffering. Mood changes are common after hysterectomy whether it be mood swings, general irritability, anxiety, or depression. I fell into a suicidal depression after my hysterectomy. Thankfully, estrogen has helped but I no longer have the basic joy and love of life that I previously took for granted. I urge you to seek professional help to address this “sadness.”

  68. I am new to this site. I had my hysterectomy on 9/3/14. I read the consent form and I’m not blaming anyone. I have been trying to find out if my symptoms are normal or if its in my head like my primary doc and Gyn doc thinks. I had Laparoscopic hysterectomy with the leaving of ovaries and removal through my vagina. When I woke up after surgery my neck muscles ( rt side of neck only) was hurting was told that was because of breathing tube. Ok. A week later a week later my rt shoulde/ blade was killing me with lower back pain. I didn’t think it was from my surgery so went to my primary doc and he did some chiropractic like stuff with my shoulder and back. It helped a little. Now (2+ weeks) after my surgery my whole body is hurting. Is this normal?

    1. Jennifer, I am sorry you are suffering these side effects. With laparoscopic surgery, the abdomen is pumped up with carbon dioxide to give the surgeon a better view of organs. This gas becomes trapped and irritates the diaphragmatic nerves causing shoulder and upper abdominal pain. It occurs in up to 80% of patients and can be severe. I would think this pain should abate over time but there are treatments that can be helpful. Here is an article comparing two treatments for this – http://archsurg.jamanetwork.com/article.aspx?articleid=1107256. Also, positioning at time of surgery can cause issues but that tends to be more in the hip area. I am surprised your surgeon or even your primary care doctor did not explain the gas retention as being the likely culprit.

  69. I had a hysterectomy in April 2014. Since then, it seem the way my body handles alcohol has changed in recent months. Could these two occurrences be related?

    1. Lisa, Sorry to hear about your hysterectomy. My body also handles alcohol differently since my hysterectomy. I have not written about it here on Hormones Matter but have mentioned it elsewhere on the web. I no longer get that tipsy feeling but could really use it since the hysterectomy has blunted my natural endorphins. And unlike before, alcohol does not make me horny…nothing does. I was never a big drinker but enjoyed a couple of drinks with friends on the weekend. Now it isn’t usually worth the nighttime “hot flashes” and disrupted sleep it causes.

  70. I had a vaginal hysterectomy on July 11/14 and in the recovery room my bllod pressure wouldn’t come back up so they did an ultrasound to discover I was bleeding internally and then had to cut me open like a c section. I then followed with 4 blood transfusions. I had them remove everything and am ok with that but I seem to have a couple problems. I am having a constant stomache ache all the time and I can not fart without staining and I cannot have a bowel movement without some sort of help by taking a sapository or duculax. I am going back to the doctors next week and I am making him run test to find out what is wrong or might of got screwed up in surgery!

    1. Sheila – I am sorry you had surgical complications and are now suffering with constipation and stomach aches. The medications given with hysterectomy can cause constipation. So can the repositioning of the bowels. Hopefully, everything will settle down as your recovery progresses.

    2. Magnesium supplements work well for constipation and since most women are deficient in magnesium, supplementing is usually helpful for a number of issues.

  71. WS. Thank you for the additional advice re repair and healing. I am so impatient and active but I have decided to take this time to rest, reflect, and heal. I’m not sure if it was you that recommended metamucil but I used it yesterday ( I also had fruit smoothie w oats and almond milk). Easy BM and bloating drastically reduced. Love that stuff -best fiber supplement. Cg

    1. I may have recommended Metamucil – can’t recall. I have used the generic because my bowels have been screwed up since my hysterectomy. But instead of constipation of which most women complain, I have had loose bowels with some fat malabsorption. Maybe I should try the Metamucil again. I quit using it as it did not seem to be helping. I fear I now have some permanent damage.

  72. Hi everyone. I am. New to site. I just had total vaginal hysterectomy w/ ant and post vaginal wall repair due to prolapse pelvic last Monday. My major issue was prolapse coupled w/tilted fibroid covered uterus. I am still extremely bloated and just feel weird. I am 58 and post menopausal. I opted on the vaginal repair over the sling due to several factors. 1st, the complications that could occur after vaginal sling placement. 2nd, if done properly, vaginal repair could be as effective as sling. I did a lot of research prior to procedure and came to the conclusion this was the best option for me. Of course, it’s early and the verdict over My decision is still out. I am very proactive and involved in my own health. I know my body. This was a major decision. I will keep you informed of progress and will be brutally honest so others similar to me can share and compare. My recommendation -research the facts -thoroughly. Best health to all. Because we are all in this together it is vital to find ways to stay positive! Cg

    1. Connie – I am sorry you had to make this decision. Please take it easy during the recovery period. Having had prolapse, you have a bit more healing that needs to take place. You do not want to risk tearing sutures or developing (more) adhesions.

  73. I had a total hysterectomy and ureter repair two days later. This was 3 years ago. I had to have it done. Although I never had children, my uterus has grown so large because of fibroids that they said that if I had waited,my uterus could have ruptered.
    I have had pain in my sternum for months, my Primary car doctor could care less. I have pain in my ride side from time to time. I also experience problems urinating. I go ALL the time. I think I am finished, I wipe and when I stand up, I have leakage.
    This post was informative and has given me a lot to think about. I never gave much thought to the changes in my muscles and bones.

    1. Nikki – I am sorry you are suffering these side effects of hysterectomy. Although bladder (and bowel) problems are common after hysterectomy, the damage to your ureter could be a contributing factor. I hope your kidney has not been permanently damaged. A few studies show that women who have had hysterectomies are at increased risk for renal cell (kidney) cancer. So please be vigilant of any problems. I also wrote an article about the pelvic floor effects of hysterectomy. You can see a list of all my articles here – http://www.hormonesmatter.com/author/ws/.

  74. Am on a continual quest to find out more about my problems after a total hysterectomy in 2007, and if others are having similar symptoms. It seems women are suffering horrible consequences of these surgeries that actually are unnecessary but performed because Doctors are incentivised to sell more procedures and support products like mesh and bladder slings, thanks to the American health insurance schemes like HMOs.
    My life changed the day I went to a women doctor who did not disclose everything when she recommended a total hysterectomy for me due to a bladder prolapse. I went to a women doctor because I thought I could trust her.
    She was the absolute worst. How stupid I feel now. And am in dire straits with my physical and mental being. My life with my husband has changed and even though he is so sympathetic and helpful we are like ships passing in the night.
    I do not understand how this ruination of women’s lives is so common, still.
    I think every women who is recommended for a hysterectomy should receive patient advocacy intervention before surgery. It should be the responsibility of every Doctor from GP to OBGYN to recommend this, or better still write a prescription for it, as Doctors seem ill equipped or unwilling to spend time to explain thoroughly the consequences of having your lower organs removed.
    Somebody do something!!!!!!!!!…please.

    1. Gail – I am so sorry for all your losses caused by an unwarranted hysterectomy. I also lost the strong bond I had with my husband as well as my children. Talk about devastating! And of course that is only one consequence; there are countless others that destroyed the happy, vibrant, youthful person I was before I was needlessly hysterectomized and castrated…by a man I had trusted for 20 years. And ironically at a Catholic hospital (Mercy) that does not believe in birth control. I discovered the non-profit HERS Foundation not long after my hysterectomy and that is when it all became clear. Getting my medical records was another eye-opener.

      Yes, Somebody has to do Something! But like you said, there are many $$$ to be lost in the medical industry. And insurance companies’ primary clients are the doctors and hospitals not the insured who pay the premiums. Informed consent legislation seems like a reasonable solution but legislators seem to be more concerned about losing votes from doctors and others in the medical profession than preventing this despicable assault and battery that destroys so many women and families. And filing a complaint with the state’s medical board is usually futile. It seems like the states’ attorney generals should be treating these scammers like they treat scammers in other industries. But I guess they deem them “untouchable” since they have M.D. or D.O. behind their names.

      I spend countless hours on forums every day trying to educate women. Unfortunately, the sheer number of hysterectomies leads women to believe that it is a “benign” surgery. And unfortunately, some women just do not want to hear the negatives (facts or personal experiences) and accuse me of not being supportive. And then there are those who have had hysterectomies who hang out on forums telling women to listen and trust their doctors not women’s negative experiences. And many women who would like to speak out just don’t have the time and energy with all the negative effects of their surgeries. If we could all work together, maybe we can make a difference. Feel free to email me if you’d like. And again, I am so very sorry for your losses!

  75. Help me please!
    Crying while I write. I always had painful heavy periods. Have a son. Was experiencing flooding became chronically anaemic, was told a ablation was the answer to my prayers. Worse thing ever had the worst pain ever after every month. Ended up in A&E on morphine to get me through the pain. Surgeon suspected I may have addeymoisis ( not sure on spelling) contractions so bad felt worse than labour. Was advised only option was a total hysterectomy had it on 6th Febuary 2014 recovery ok. Sex life non existent major loss of feeling, weak pelvic floor – leaking pee when exercise, sneeze, rarely laugh. Feel the lowest I have EVER felt in my life and gained 20lbs. Can’t sleep, wake up with headaches every day. Having major sweats, Loosing my hair and my mind! Am so moany and miserable have zero patience. HRT is not an option for me mum nan and aunt all died before 50 of breast cancer. Tried excersise, peppermint tea, no fizzy drinks, vitiams, water nothing is working I can’t cope anymore. Any advise would be welcomed and is seriously needed. Thank you Rebecca

    1. Rebecca – I am so sorry you were victimized TWICE by harmful gynecologic procedures. Since the uterus, ovaries, and tubes work as a system, any procedure that disrupts their normal functioning can wreak havoc and cause permanent harm. You can read about the mechanism of chronic pelvic pain caused by ablation in one of my other articles. Here is a list of all my articles on HormonesMatter – http://www.hormonesmatter.com/author/ws/.

      I am sorry you are now suffering from the negative consequences of hysterectomy. I suspect you did not get informed consent for either the ablation or the hysterectomy. Most women don’t.

      Studies show that estrogen replacement (without a progestin) does not increase risk of breast cancer. So it would seem reasonable to get a doctor to prescribe estrogen if you decide you want to go that route. I personally do not think I would want to go on living without estrogen. I can’t say I am the person I was prior to being butchered but estrogen has improved many of my symptoms including suicidal depression.

      Thank you for sharing your story and please continue to speak out about the consequences of hysterectomy. If you don’t mind, please complete the Hysterectomy Survey here on HormonesMatter. You can find it by clicking on “Take a Health Survey” on the right sidebar.

  76. Shanda – I am sorry that you also became a victim of the hysterectomy industry. It’s been 8 years for me and I am still horrified by the tactics used by gynecologists to lure women into the operating room. And robotics marketing is the latest tool in their toolbox. The authorities (including the states’ medical boards) just look the other way.

  77. I, too had a hysterectomy..and just like some of the ladies I just read about their stories…I was told I would feel better…but unfortunately…I do not…the worse I have ever felt…I am so disappointed in some of these doctors who do not sincerely care enough to give the patient all information make the right decision…I have come to know that you really have to study on information yourself and not really trust everything the dr tell you…who you have trusted with your medical care and taking your money for years…so sad there are people in this profession and not have a conscious to really care and go to bed at night with their spouses and not think about other people…but one thing I do know…God know all and see all…they will have to answer to it all…

  78. Elissa – I am sorry that you are also suffering from the adverse effects of hysterectomy. There is a study that shows a 40% chance of ovarian failure post-hysterectomy. And with only one ovary, there is even more chance of ovarian failure. Have you tried some estrogen to see if that helps? Unfortunately, there is no FDA approved testosterone “replacement” for women even though post-menopausal ovaries of intact women produce 50% of their testosterone. I hope you can find something that helps you feel “normal” again.

  79. I too had a hysterectomy and was told how great I would feel, which I cannot complain about the bleeding and cramps but my bones hurt! My who
    E body hurts! I have more spider veins in my legs now than I remember my grandma having when she was 70. I had my surgery on nov. 1,2013 not even a year ago. I have had my hormones checked because he left one ovary and was told it is working. My heart also beats differently and I feel very tired a lot!! Any natural advice would be great! Hope and pray that all of us get better or feel better soon!

  80. Theresa – I am sorry you are also suffering. Did you have a robotic hysterectomy? The surgical positioning for the robotic method seems to cause more problems with the back, hips, and legs than other methods (at least in the short-term).

  81. I also had a hysterectomy in October 2013. My lower back, hips, and legs are constantly killing me after the surgery. My lower back has an inward indentation as if I have a lordosis back. I never had this before neither all these aches and pains. Im so glad I found this site because I really thought I was starting to loose my mind.
    I wish I never had a hysterectomy, although I have my ovaries. I thought it was for the best but it wasn’t. Like others my gynecologist never explained all the side symptoms to me. Had I known I would’ve just removed my fibroids ONLY.

  82. Ladies – I urge you to take action with two organizations that are trying to make a difference in patient harm. Please tell your story of harm and misinformed consent from any/all gynecologic procedures that resulted in adverse effects (tubal, ablation, hysterectomy, oophorectomy).

    You can do this on the Consumers Union Safe Patient Project website here – http://safepatientproject.org/share-your-story. I told my story in two categories – “Doctor Accountability” and “Overtreatment” (the last two on the webpage).

    And you can also tell your story on ProPublica (Journalism in the Public Interest) here – http://www.propublica.org/getinvolved/item/have-you-been-harmed-in-a-medical-facility-share-your-story. There is also a ProPublica Patient Harm Facebook page.

    The HERS Foundation also has a Facebook page. And you can post the name of your surgeon and hospital on the HERS’ blog “Name that Doctor and Hospital” on their website.

  83. Renae – I’m sorry you are also suffering the effects of hysterectomy. I am glad you are starting a blog and Facebook group. I like your idea of enhancing sex education to include all the functions of the female organs, not just reproduction. Not long after my hysterectomy, I sent a copy of the HERS Foundation’s DVD “Female Anatomy: the Functions of the Female Organs” to the head of sex ed for my children’s school district. I followed up with a phone call asking if they would incorporate it into their sex ed curriculum. I cannot recall their exact response but they basically said “probably not.” I have not pursued it further.

    There are a lot of deceit tactics used to get women to consent to this surgery. And with all the medical literature showing the harm, I am still appalled that the “assembly line” continues. But the hysterectomy industry is very lucrative and now with all the expensive da Vinci robots, they will not go down without a fight.

  84. Hi, how can I share my story on your website? I had a partial hysterectomy at age 33, what a nightmare….I’m starting my own blog and Facebook page called “project hysterectomy” to bring awareness. I want women to be informed, my Dr never told me any of these consequences….I also want to work on getting the true functions of the ovaries into the sex education curriculum at schools, I was only taught that the ovaries create an egg, and I’m finding many women don’t understand their functions…I didn’t and my aunt who raised me is am obgyn!

  85. Elaine – I am sorry you were also duped into a hysterectomy, a grossly overused surgery. Only 2% are done for cancer and, per a study in 2000, 76% do not meet ACOG criteria.

    I was also duped (for possible cancer). My long-time gynecologist removed all my sex organs for a benign cyst. I was a lab rat for gynecology residents, unbeknownst to me until I was in pre-op and they had already started sedation. You can read my hysterectomy story here on Hormones Matter. Just click on my username “WS” behind the title of this article and you’ll see a list of all my articles, one being my story.

    This abuse of female organ removal will not stop unless we speak out. It is too lucrative for all involved. I was so angry at having been deceived and harmed that I took every avenue possible to make it known. These included pursuing legal action, filing a formal complaint with my state’s medical board, filing a complaint with my insurance company that should have never authorized the surgery (although they will not tell me what my doctor submitted to get authorization), and telling my story at Consumers Union under both “Doctor Accountability” and “Overtreatment” here – http://safepatientproject.org/share-your-story. I also wrote to my state’s Attorney General. I probably should have also filed a complaint with the hospital (Mercy) but figured it would be a waste of time and may hurt me in getting future medical care.

    Did you know that the ovaries of intact women produce hormones into their 80’s especially androgens which can be converted to estrogen as needed? Taking some estrogen and/or testosterone can make a big difference in surgical menopause symptoms. I took both for a period of time but have mostly taken just estrogen and it has helped a lot. I am 8 years post-op.

    I hope you find something that helps you function and gives you back your life. And I hope you can find the wherewithal to fight this injustice.

  86. Rene – I am sorry that you are suffering the effects of hysterectomy. Breast pain doesn’t seem to be one of the typical symptoms but I suppose it could be caused by nerve damage, the same cause of post-hysterectomy sciatica. I lost sensation in my breasts due to the nerves that are severed to remove the uterus and cervix.

    Gallbladder problems also seem to be common post-hysterectomy. Hormonal changes can affect gallbladder function but there may also be an anatomical mechanism (displaced organs). Diarrhea post gallbladder removal seems more common than constipation. But constipation is a common complaint after hysterectomy. Have you tried a fiber supplement such as Metamucil (psyllium husk) or Citrucel (methylcellulose)? These can regulate the bowels whether you have constipation or diarrhea. I suffered with post-hysterectomy diarrhea for over a year. It was pretty severe for about 9 months. I am 8 years post-op and I still have loose bowels although not nearly as severe.

  87. July of 2013 I was an active mom of two young adults, I was washing walls and cabinets. The next day had a weird pain in my abdomen, called nurse 911 and was advised it could be a hernia to go to the ER. Long story short they found a uterine mass. I had fibroids in the past, removed via laparoscopy. Surgeon basically told me I had to have a hysterectomy, I had gone through menopause so I was not using it anyway….made sense, plus I as in shock … After the surgery I complained about my wrists being stiff, was told probably just a result of the positioning in surgery. I went home after a week in the hospital, and the hot flashes started. The first time I went through menopause, it was like walking toward an oven standing there for a bit then walking away. This time I get tossed into a blast furnace and left there for several minutes then shuts off and could repeat several times. Sleep what is that, I cat nap all night long. My past surgeries were a spinal fusion and 2 C-sections….had no issues after any of them. Now every morning is a chore, my knees, my ankles, my elbows, and recently now my lower back is sooooo stiff and sore. If I sit and try to stand I look like an 80 yr old woman. I ache constantly, I still get intense flashes and my energy level has gone from active (pre-surgery) to minimal…..I am so sleep deprived and so sore….I feel I was not thoroughly informed and this surgery was the biggest mistake!

    I cry and yearn for who I was a year ago.

  88. i had a hsteromoncy in 2004 an i have suffered with with swelling in my stomach ever since i look like im 9 months pregant , have trouble going to the bathroom had y gallbadder removed since then i stay in pain my stomach an lower back an now im having sharp pains in one of my breast , i need some advice please

  89. dahlia – Thank heavens you found this site! I hope you are taking a good, absorbable form of iron with vitamin C to treat the anemia. The fibroids should shrink shortly after menopause. And if they cause debilitating problems, you could find a surgeon who does a lot of fibroid removals (myomectomy or hysteroscopic resection of fibroids) that will allow you to keep your uterus and its many LIFELONG functions.

  90. Sherlyn – Sorry you also developed hyperthyroidism. Hysterectomy really taxes the endocrine system. I recall a woman saying that she went into a thyroid storm and almost died post-organ removal. My endocrine system went haywire too and my hair has been falling out for the entire 8 years. I am frustrated with trying various forms and doses of HRT and thyroid meds. I suspect my adrenals aren’t in the best of shape either.

    I am glad you told your rheumy doctor about this website. Unfortunately, too many doctors are not educated about the effects of hysterectomy. I think they purposely dodge that in medical school – too much money to be made doing these surgeries and making us “forever” patients.

    And as I stand and type here, I have shooting pains through my hip and tingling in my feet.

  91. No not one Dr. Put this together. I had the hysterectomy 2/23/2010. Hyperthyroidism 7/2011. I just left my Rhemutologist office and told her about this website. She requested the link. She is going to read and research to maybe help someone else. Thanks ladies.

  92. Sherlyn – I am sorry to hear this. I am curious if any medical practitioner has stated that your stenosis was caused or likely caused by the hysterectomy. As I stated in my article, it would certainly seem possible for this to occur but I have not seen any medical proof.

    I have back, rib cage, and hip pain that I never had before I was needlessly hysterectomized and castrated.

  93. I am a victim of getting Spinal Stenosis 12 months post Hysterectomy. I had to leave my good job 6/2013. I cannot sit long, walk long, stand long. I cannot clean my home, handwriting changed. Heavy legs, arms. Pin all over body.

  94. Thank God for this site
    I have severe anemia an MY Dr has said it’s due to my fibriods 2 the size of oranges and suggest hysterectomy I was considering it until I found this page. My heart goes out to all the women who did it an now have regrets but thank you for enlightening us.

  95. Lisa – I apologize for my delayed response; I just noticed your post. I am sorry that you too were victimized by the hysterectomy industry. Although there are many of us out there, it’s a very lonely, isolated feeling. If you still aren’t getting any symptom relief from the Premarin, it may be worth trying some other form of estrogen. There are lots of options so don’t give up.

    And based on your surgical results, you may have a legal case if you wish to pursue it.

    I hope better days are ahead for you. I know how you feel.

  96. My nightmare began 6 years ago. I Have spent that entire time trying to regulate Hypothyroidism. The minute I found the right Dr and levels normal, I started bleeding. This went on for several weeks, it was so bad, I had to have a D&C because my Uterus was the size of a football. Dr recommended Hysterctomy (keeping Ovaries) and posterier repair. I had 6 kids and after kids I had 5 years with a Mirena IUD. I had the Mirena removed for 1 year before I considered surgery. 8 months after Hysterectomy, I am miserable. My joints ache in my legs and arms. After sitting maybe an hour or less, I can barely move. When I walk any distance my lower body especially my legs feel really heavy. I’m constantly tired. I got pneumonia for the first time ever 2 months ago, and now sick again. I never used to fet sick. The Posterier repair is a nightmare. I am too small for my husband and along with the lack of sensation, its not fun at all.. Even after 6 vaginal births, I always enjoyed sex. Though it feels great to my husband, and he is sensitive about my feelings, I have now developed an anxiety about sex. Because of my physical appearance ( I worked out really hard after my kids) but between my weight and size of vagina, I avoid sex.The other issue is my extreme hot flashes. They are out of control too. I have bad mood swings. Now lets talk about my appearance, I have permanent bloating, (bigger depending on my level of activity) My hair started thinning in front and coming in grey at crown. I developed permanent dark bags under my eyes and I gained at least 20 pounds. I have a job that requires a lot of standing and I have contemplating quitting after 12 years. I am 48 years old. I’m angry at myself because I didn’t research this. I was never presented with any other options. I am depressed to think that this is my new quality of life. I feel I aged 20 years since the surgery. I switched Dr’s and was put on premarin pills and cream. Haven’t noticed a huge difference, but only been 2 weeks. . I’m really discouraged.

  97. Hi Julie. I’m sorry to hear about your pain. How recent was your surgery? The bursitis I developed in my hip not too long after surgery went away on its own. But the back and other hip pain started a few years post-op. The pain comes and goes. It’s mild so I have not sought any treatment for it.

    Is it possible you have sciatica? I’m not sure what type of medical professional would be best to see. I know all of the ones you mentioned can be helpful for various problems. And stretching exercises can be good too (e.g. yoga).

    Hope you get some relief!

  98. HI, I wanted to know if you still have back, hip, and leg problems? I had all those stymptoms prior to my hysterectomy and I still have them after my surgery. It’s very frustrating and I don’t know what to do, see a chiropractor, acupuncturist, or do physical therapy. Let me know, Julie

  99. Rachel – I am sorry for your awful experience! I also had nausea almost immediately post-op and it lasted quite awhile. And with it came severe diarrhea which lasted about 9 months and never totally resolved. Like you, I vascillate between loose bowels and constipation (with occasional intense pelvic pain). I seriously wonder if my gallbladder was non-functional for a period of time. And I wonder if the bowel issues contributed (along with the hormonal changes) to me losing most of my hair within 4 months of surgery.

    Did any doctor indicate to you that the gallbladder is at risk of damage when doing a hysterectomy?

  100. I was looking up stuff and came across this page and wow… I had a total hysterectomy August 13 2007 a few weeks later I kept getting nauseous so went toDr and he did labs found nothing but sent me to another Dr and after several test it was discovered my gall bladder had shut down so Dec 13 2007 it was removed and the trouble began I since then had last ovary removed.due to fast growing cyst. Since then I suffer from IBD and I fluctuate between constipation and diarrhea. Sudden menopause has not been good to me and I hope you all find answers soon.

  101. Nicole,
    I am sorry that you too did not get informed consent for hysterectomy and are suffering the effects of this damaging surgery. The kidney infections are concerning. A study (in PubMed) concluded that hysterectomy increases risk of kidney cancer, likely due to damage to the ureters. Have you by any chance seen a kidney specialist (nephrologist)?

  102. Hi there. I’m a 32 year old female who had a complete hysterectomy two years ago. After battling bad endometriosis and poly cystic ovary syndrome for ten years and several surgeries to remove them both I was left with no other choice as it kept coming back worse. Since my hysterectomy I’ve had some major health issues such as heart issues, bowel issues, complicated migraines causing TIA’s (mini strokes), leg numbness and back pain. I have also had some bad kidney infections. I wish I would have known about all of this prior to the surgery so I could have passed on having a compete hysterectomy especially since I have no children. My question now is what really happens with your bladder and kidneys after having this surgery. Do I need to be concerned about serious issues? Thank you

  103. Angie,
    I’m sorry that you too were subjected to the gross overuse and damage of hysterectomy. Feel free to contact me via email if you wish to talk. Others here may contact me also.

  104. Hello all 🙂
    I came across this page and thought I would share also. Well I had my 3rd son at 18 and my 4th at 21. Had a lot of trouble after having my last son. So at 26 I had a total hysterectomy. Worst thing I could ever do!!! I have pain all the time cause nerves were left exsposed and my hips are tilting in and back pain all the time. All with other health problems I think maybe connected. But for those who are thinking of having one or thinking its great , its not!!! I would love to have the week of pain every month I was having for the rest of my life. Instead I now have some kind of pain every day and just getting worse. So really think of the rest your life don’t focus on the once a week pain.

  105. Sue,
    I’m sorry that hysterectomy has robbed you of so much! Constipation seems to be really common. And it’s hard to know if adhesions are the culprit since they can’t typically be seen on imaging tests. Have you tried using psyllium husk such as Metamucil? Another product that is supposed to be safe to use on a regular basis is Miralax.

    I’ve also had bowel problems since my hysterectomy in 2006. It started as severe diarrhea and lasted for 9 months or so. My bowels have never returned to normal but tend to be too loose with intermittent constipation. My gastro hasn’t been much help either and when I started seeing him the first words out of his mouth were “your surgery didn’t cause this.” Well I certainly didn’t have any of these problems prior and they all started almost immediately post-op!

  106. I’m so glad I found this site. I had a hysterectomy in 2007 and my health has slowly declined ever since to the point that the last few yrs. have been debilitating. My first sympton was constipation, then came the tiredness, headaches got worse, I’ve lost weight and muscle loss too. I can’t go to the bathroom with out some sort of laxative and now they don’t even work at times. I have on and off pain under my right rib, have been to every doctor I can think of. My health just continues to decline. I was the most active person before this surgery, now I do nothing most days. I’m very concerned about my bowel issue and the relentless fatigue. Suffering for all theses yrs. is really getting to me latley and just don’t know what to do. I know you don’t offer medical advice, but can you guide me to who I should see? My gastro and pcp’s are useless. Please…I’m desperate

  107. AJ – I hope you can find a solution to your pelvic pain and bleeding without having to resort to hysterectomy and all its negative consequences. Have you tried some form of birth control? What about non-hormonal options to reduce bleeding and pain such as Lysteda (tranexamic acid) or Aleve or Motrin (OTC or Rx)?

  108. I’ve had ablation .. two years ago and I’m still getting regular, painful periods. I’m scheduled for a hysterectomy next month, and I’m concerned. My doctor has told me none of the above information. I had no idea of the skeletal changes, I’m a healthy, fit 43 year old in great shape. I am a fitness model and my body is my income. I have serious concerns having read this site. What are other options? if any?

  109. Ashley, I’m sorry to hear this. It seems odd that your gallbladder would be “acting up” this soon after surgery. What are your symptoms? And has a doctor told you he/she suspects it is your gallbladder? There does seem to be a link between gallbladder disease and estrogen but if you’re taking estrogen (and just recently started it), I can’t imagine this would have occurred this quickly.

    Be aware that gallbladder removal surgery is oftentimes done unnecessarily. Also, it can cause permanent problems. Oftentimes, more conservative treatments can fix the problem. So please do your research.

    I developed diarrhea shortly post-op and still don’t have a diagnosis. But it doesn’t appear to be my gallbladder or my pancreas which the GI doctor seemed sure of (although I never agreed with him).

    Please post back with more info.

  110. hi i had a hystrectomy aug 30th and now my galbladders acting up have to go see a surgeon tommorow for it and i was wondering have you heard of anyone else having this problem after?

  111. As far as ablation – The younger a woman is, the riskier it is. According to this study – http://journals.lww.com/greenjournal/Fulltext/2008/12000/Previous_Tubal_Ligation_Is_a_Risk_Factor_for.6.aspx – the risk of hysterectomy after ablation is fairly high in women who have an ablation before age 46. “Hysterectomy risk increased with each decreasing stratum of age and exceeded 40% in women aged 40 years or younger.”

    Any procedure that disrupts the normal functioning of the “reproductive” system can cause permanent problems. These include ablation, tubal ligation, hysterectomy. These problems have been coined post ablation syndrome, post tubal ligation syndrome, post hysterectomy syndrome.

    There are a number of hormonal and non-hormonal medications to treat heavy bleeding and those are supposed to be the first-line treatment. Here’s a list of those options – http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0015970/table/ch8.t1/?report=objectonly.

    Health care marketing is no different from marketing of other goods and services. We need to do our homework. Unfortunately, we can’t depend on getting all the facts from our health care providers.

    1. WS, great find on the study linking ablation to future hysterectomy. I friend and I were just talking about ablation the other day and wondering if there was any long term outcome research. Would you mind writing a quick news post on this topic. I think there is a real void in space. It is something we haven’t covered and should. If there is any more research on ablation, that would be great too.

  112. Kathryn,
    I’m so glad you declined a hysterectomy and continue to research its adverse effects. Hopefully, you’ll share your findings on your website. If it’s not against the policies of Hormonesmatter, feel free to link to my articles. We desperately need to educate other women in order to stop this gross overuse of hysterectomy (and oophorectomy – castration) and the permanent harm caused.

  113. I’d like to add that in the book “Menopause in Modern Perspective” by Prof Wulf H Utian and published in 1974 (!!) they knew back then that leaving the ovaries in tact made little difference to the incidence of ovarian cancer (previously it was thought there could be an increase in this cancer if they were left in tact during a hyster) and should therefore be left in. This happened nearly 40 years ago.

    1. Thank you. I will add. Thanks for the reference. Speaking of historical knowledge ignored by modern medicine, Hans Selye, deemed the father of modern endocrinology b/c of his recognition of cortisol and the stress response, also wrote about the role of progesterone on multiple organ systems, esp the heart and lungs on males and females. He, unlike others that came after him, didn’t relegate progesterone just too the its reproductive role. He recognized that as one of the hormones at the top of the pathway its functions would expand well beyond the ovaries. That seems to be ignored by most and somewhere we got the mistaken nomenclature of ‘female’ and ‘male’ hormones and then the further narrowing of focus to simply their role in reproduction.

  114. You’ve answered so many questions! I was offered a hysterectomy but declined but I often spend time trying to understand what happens to the vacuum/other organs and could only come up with part of the answer. I’ve done some research to find alternatives (ablation seems to be a good option? what are your thoughts? Certainly for mennorhagia which appears to be the main reason a hyster is suggested in the first place- was for me).
    Can I use your blog on my website? Not only the one quoted above but also http://www.mentoringthroughmenopause.com. Robin Karr knows me.
    Regards
    Kathryn

    1. Kathryn,
      We’re happy to have you cross-link our posts and blogs. I would prefer you not repost entire article verbatim, however. That is detrimental to SEO for both of our sites. The search engines don’t like duplicate content. What other blogs have done instead is to write a brief introduction of the topic and then include a link back under: to read more click here. That will typically draw traffic to both sites and becomes a win/win.

      1. I had a hysterectomy 13 years ago. It did nothing for endometriosis, first I put on three stone and now its still going up, I crave cakes and rubbish, I can’t stop eating, I was a size 10 at my largest, now I’m an 18. I can’t tolerate estrogen, so I have facial hair, my knees dont bend and I have very little use of my arms as my joints are ceased. I have had hundreds of problems with my bladder, have to use my hands as a sphincter muscle otherwise the poo doesnt come out and I have stomach pain for hours and cant sleep. My husband of 34 really happy years,as I have a beard and Im fat and so unfit. I now have terrible osteoporosis and osteoporosis and the medication for these makes you bones brittle and they just snap.

        1. Lisa,
          I’m sorry you’re suffering since your hysterectomy. It’s sad too that so many women are led to believe that hysterectomy is a cure for endometriosis when it isn’t. Since post-menopausal ovaries produce quite a bit of testosterone (some of which is converted to estrogen) have you considered trying some testosterone especially since you cannot tolerate estrogen?

Leave a Reply

Your email address will not be published. Required fields are marked *