Introducing the third in our series of Real Women. Real Data.TM surveys: The Gardasil Cervarix HPV Vaccine Survey.
At Hormones MatterTM we have covered the Gardasil story many times. We have been struck by the depth and breadth of adverse events experienced by young girls and women who have been given the HPV vaccines. We are concerned by the lack non-industry sponsored data regarding the range, frequency and severity of adverse events. We aim to solve that problem and we need your help.
About Gardasil and Cervarix
Individual reports abound about the dangers of the HPV vaccine, Gardasil. Less is known about Cervarix. Data collected from Vaccine Adverse Event Reporting System (VAERS) and reported on here, indicates a serious adverse event rate 4.3 per 100,000 doses of Gardasil. Serious adverse events are those that cause death or are life threatening, require hospitalization, cause persistent disability or incapacity and/or require medical treatment to prevent permanent impairment or damage. This is compared to a death rate of cervical cancer, which according to the WHO stands at 1.7 per 100,0000 cases in the US.
What we don’t know is who is most at risk for these adverse events. Are there particular pre-existing conditions, medications or even menstrual cycle triggers that increase the risk for an adverse event? What is the full range of side-effects and adverse events, short term and long term? Is either vaccine more risky than the other? These are questions that must be addressed so that as medical consumers we can make educated decisions about vaccine safety.
We need your help to gather these data. Please take this survey and share it with your friends, sisters, colleagues and anyone you know who has been given the HPV vaccine. Please post on your Facebook pages and share on Twitter, Linkedin, Reddit and other social media. We will need thousands of women to find the connections. That requires crowdsourcing and sharing amongst women.
Purpose the Gardasil – Cervarix Survey
Women and their physicians need more data about the side-effects of the HPV vaccines, Gardasil and Cervarix. There is a lack of data about who is at risk for adverse events and whether certain pre-existing conditions increase one’s risk for an adverse event. There is also a lack of data about the long term health effects of these vaccines. The purpose of this survey is to fill that data void; to learn more about the risks for and nature of adverse events associated with each of the HPV vaccines, Gardasil and Cervarix.
Who Should Take the Gardasil Cervarix HPV Vaccine Survey
Girls or women who have been given either vaccine or the parents or other family members of young girls given the vaccine.
We are not currently collecting data on the adverse reactions for men and boys, but intend to launch a separate survey to tackle that population.
How Long Does the Gardasil Cervarix HPV Vaccine Survey Take?
This is a long survey. We felt it was important to assess the full depth, breadth, onset and severity of adverse reactions in order to give parents and women the data they need to make informed medical decisions. This necessitated a longer than desired survey. We estimate it will take approximately 20-30 minutes to complete the survey. We hope, given what is at risk, survey respondents will take the time to complete the entire survey.
Is the Survey Anonymous and Secure?
Yes. We do not collect personal identifying information and the survey is hosted with SSL encryption using a verisign certificate Version 3, 128 bit encryption.
How Will the Data be Used?
To inform future research and women’s health decision-making.
Who is Conducting this Research?
Researchers from LucineTM, Hormones MatterTM. For more information on Lucine, click here. For more information about Hormones MatterTM , click here.
What Can I Do To Help?
Our organization is completely unfunded at this juncture and we rely entirely on crowdsourcing and volunteers to conduct the research and produce quality health education materials for the public. Get involved and help us prove that hormones matter and that women’s health data matter. Become an advocate, spread the word about our site, our research and our mission. Join our team. Write for us, partner with us, help us grow. For more information contact us at: firstname.lastname@example.org.
To take the Gardasil Cervarix HPV Vaccine Survey, click here.
To take one of our other Real Women. Real Data.TM surveys, click here.
To sign up for our newsletter and receive weekly updates on the latest research news, click here.
Thank you in advance for your help.
Hi I hope this article helps other parents from the nightmare that I went threw constantly day in and day out with my daughter. She had a total of 5 vaccines months apartment gardasil (2) of them, dtap, flu, and menegitis. These vaccines were required as she was only 11 years old in order to go back to school for 6th grade. Now let me say after the second trial of the gardasil 9 she stopped walking completely 20 days later. Her body started to work up a chain reaction. We spent countless days and nights in the hospital and at the drs. As all her test kept coming back negative. At the time I didn’t have alot of knowledge and never thought this would ever happen to my own daughter.
She had a constant series of headaches, stomach pains, nausea, cold feet, light sensitivity, balance and cordination problems, gait abnormalities, fatigue, she couldn’t feel from her legs down to her feet, she could no longer hold her own neck up it just flopped. She also lost tons of weight. She just turned 16 and still hasn’t recovered to walking just yet. She was misdiagnosed so many times. They said it was conversion disorder that its all in my daughters head, to acute cerebellar ataxia etc. I know that we were lied to about the conversion disorder the same thing that the manufacture merck said in there article findings. The drs often lied to my face telling us take your daughter for counseling and it had something to do with mentally. Really counseling?? It’s because drs don’t want lawsuits and counseling lose there license if they ever spoke bad about vaccines period. Ummm this is not a mental thing she is dealing with its more of the physical aspects of it all. My daughter was a happy healthy outgoing girl before she had this awful vaccine. Gardasil robbed my daughter away from her and destroyed her. It still breaks my heart and wish I never allowed for her to have this vaccine as I never knew much about the dangers of vaccines. I wish someone would of warned me or I should have did the research on it. I wish I could take it all back. The only outlet I knew to getting her better was homeopathy. And it worked. The wonderful lady we had that helped heal most of her symptoms is located outside of the United States in the U.K area. We been doing homeopathic remedies such ad detoxing having metals,. Liver/kidney detoxes as the toxins build up in your vital organs, gardasil detox, flu detox, dtap, polio detox and so much more over the last 4 years. I was skeptical at first but as we worked really hard on this her headaches went away, her nerve pain healed, she just started talking again, her light sensitivity is slowly healing after her not being able to talk for 2 and half years after she had a sezire after the drs put her on prozac.
My daughters case was so severe but she is finally making progress and there is light finally at the end of the tunnel. I feel in my heart she will be able to hopefully walk someday since it’s been almost 5 years of her being bedridden and wheelchair bound. Homeopathy is the nest source to heal your child since there isn’t nothing the drs can do to fix your child period. We suffered enough with all this and for her old pediatrician to call cps on me all because of her medical condition and losing weight. My life has been hell with all this to be blamed and accused of starving my daughter. Never in my life would I do that to my own child. The nerve that these drs and what they did to add more stress to out own lives knowing what we were already going threw with my daughter. As I hear many other stories it makes me sad that anyone or any child is suffering from this horrible vaccines. I blame Merck for damaging and robbing my daughters life away. I wish they would just take this vaccine off the market. This needs to stop. Nobody deserves to suffer like that. I did so much research on this the last 4 years about the devasting and awful effects this has on kids and adults. All the lives that were taken and the lives that were ruined. My heart and prayers go out to anyone who is suffering the same way that my daughter did. But don’t give up hope. Homeopathy has saved my daughter and is really working. By far it has been a major success. My homeopathic worker has helped her heal a total of 10 symptoms off the list already that she had begun in the beginning of all this. Also I just purchased mitochondria pills at a special pharmaceutical place to start giving her. We also did iv fusions called a Myers cocktails which is made up with antixidant vitamins that are important for the body at the beginning at a naturopath and they seemed to help along with gluthionone. There is hope don’ give up parents. I remained very patient and kept the faith threw all of this. Hug your child everyday and tell them you love them and there is hope. Keeping them in a positive mind frame is very important key to healing as well. My thing is why keep going back to the drs who make you only sicker by giving you the worst conventional medicines that have physical side effects and for them to not do anything to help your sick child when there is a safer alternative such as Homeopathy which is all safe, natural and doesn’t harm your body like conventional medicines do. We are just giving the big pharmaceutical companies more money to further damage our children more. I feel after seeing so many different drs was a huge waste of time when nothing was done to even help my daughter.
Would you be interested in reworking this comment into a standalone article for the website. It is important for parents to see this and they may not if it is only comment.
Hi. I am the mother of an 18 year old girl, who had the 3 Gartisil vaccines a few years ago in NZ (after not listening to my darling daughter saying she didn’t want it ?) – why didn’t I listen to her?
As far as I can remember she didn’t react as such to the injection site or anything but ever since she had the third injection her health just deteriorated. I didn’t think too much of it at first, it may have even been a couple of years later, that I got a niggly feeling that maybe there was a connection between her ‘random problems’ and the vaccine.
It just felt like we were always at the doctor – previously and was a ‘normal’ healthy kid, just the usual illnesses.
I remember taking her for headaches, body and joint pains (first they said growing pains, then tested for arthritis – but negative), random bleeding noses, constipation, she had a lump in her neck – and no doubt other things too.
Then the ‘heart thing’ started. I don’t know how to describe it but she says her heart will randomly beat really fast, then skip, and sometimes she would just go grey, clammy hands, weird vision, and it would seem like she was going to flake out. We went to the doctor and even A&E time and time again, feeling like a paranoid mother, bit nothing got resolved. She wore a tracking heart monitor for a while but typically it didn’t go off while she wearing it – it waited until we’d dropped it back to the specialist to play up.
The specialist basically said it’s a short circuit in her heart and shouldn’t cause any problems.
The next ‘problem’ was then her periods.
She had her period for a couple of years by now I would imagine, and they had never been an issue – totally the opposite actually, they were extremely light. I thought it would sort itself out as she got a bit older but it didn’t. She ended up with severe period pains but basically no bleeding. Once again we went to the doctor numerous times, finally got around to seeing a specialist, who in my opinion was absolutely hopeless. All she wanted to do was put her on the pill and that’s it. I couldn’t take that so demanded more be done. Managed to get her booked in the a scan/probe thing, which didn’t show anything either. I was expecting endometriosis, polyps or something? So we had no option but to get the pill prescription and it did help the pain so that was a relief. By this time she had started seeing a natural health person – she suffers from a bit of anxiety at times, and has sleep issues sometimes, and constipation often – and e thought that it was worth a try.
It had been very helpful so far, she’s come off the pill and I don’t think the pain is as intense – but she’s has had a hormone balance test (golly, this is the only part of the story I had planned to share but I have written a novel !).
The reason I have started researching all this again with the HPV vaccination is because the test has come back showing she barely, if at all, ovulates – she’s low in proestogen. This has obviously been a bit of a bummer for her because instantly we think fertility problems when the time comes.
Ayway, I was wondering if anyone else has, or knows anyone who has, had the same problem ? I’m assuming the lack of proestogen is the reason why she barely bleeds? And could there possibly be a link to any of these things mentioned and Gardisil ???
Thanks so much your patience, it’s been great having a browse and feeling like I’m not a complete lunatic !!! I should point out too – she’s not really bad, still an extremely wonderfully behaved almost adult. She’s learnt to soldier on most of the time how I think ? Any advice/opinions welcome ??
I received HPV vaccine in summer of 2007. My life was forever changed. I developed VITILIGO, an autoimmune disorder. I will never look the same, 13 years later almost my entire body has lost pigment.
My daughter is 23 and after talking myself into it, we got her the first HPV shot on May 11th. 7 weeks later we have had 4 rounds of hives, each one getting more aggressive. Hives are only on arms, hands, neck and face. We ended up in ER today. They pumped her with steroids, pepcid, benadryl etc and told us to see an allergist. How do we get this nightmare to stop? Will it stop?
I’d like to know a little more about HPV Gardasil Vaccine and Thyroid disfunctions. I’ve heard about it and about 2 years after I finished all my doses, a chain of events unwrapped. I was accidentally found with 145 bpm @ the ENT, who eventually noticed my goiter and from an ear exam ended up in Athenolol and Hyperthyroidism meds. Unbalanced thyroid hormones that took around 2 years of treatment to control. Nowadays I still need labs to make sure my thyroid is working properly.
My son also had the gardasil shot. He went from playing every sport in school, to playing none. Was very active, almost to much energy to sleeping all day. He is now 19 and still has no energy at all. He finally come to me 3 years later and said he has had erectile dysfunction for 3 years , he was to embarrassed to come to me about this topic. He has been to 2 urologist, and had all the test done. They said all they can do is give him viagra, which does nothing for him.
My son had Gardasil at 18. Low grade fevers (that came and went for at least a year), iron levels too low to calculate (with no prior history of anemia), multiple joint pain, muscle pain, headaches, chronic fatigue, rash (lasting 3 months, dizziness, chest pain and palpitations, enlarged lymph nodes, etc.followed within weeks. Doctor missed the connection and went for the next dose 3 months later during a visit to address ongoing symptoms–this time, it only took 48 hours before he had another major decline in health, starting with the collapse of his legs. It’s been over 3 years now and he still hasn’t regained full mobility. Hair loss, burning skin sensations, imbalance, altered gait, unable to ambulate without a walking aid, weight loss (lowest clinical weigh in was 108 at almost 6 ft tall), and premature osteoporosis without metabolic or genetic explanation. We eventually did get a diagnosis for mixed hyperadrenergic and neuropathic pots, with a more recent development of an incomplete right bundle branch block, but not one person has been able to explain to us the mechanisms that created this nightmare–and we’ve seen a LOT of doctors. It’s equally scary and angering. We need answers, we need adequate treatment, none of which most doctors are able to provide in these cases.
Jennifer, please read our articles about thiamine and dysautonomia, perhaps even consider the book. The damage to the mitochondria are eliciting the symptoms and in order to have any chance of recovery, you must repair, heal his mitochondria. Also, we have a Facebook group called understanding mitochondrial nutrients, you might consider joining. Finally, please consider writing up these experiences and sharing them as a post of this blog.
Thank you for your response. I am happy to see someone covering mitochondrial issues post Gardasil and will be looking into this more deeply (I’ve wondered about this for a while now). I also just joined the Facebook group and look forward to learning more. Something’s gotta give. Our experiences are pretty nightmarish, especially in regard to some of the treatment we’ve received by medical professionals, but I hear similar stories on a regular basis. I would like to thank you and those you work with for addressing this devastating problem–even if others are under the misconception that tens of thousands all woke up one day and decided to create some of the same psychosomatic symptoms, with Gardasil being the commonality in each case, whether our kids were male, female, 11, 12, 13, 14, 15, 16, 17, 18 and so on.
Can you please provide the name of the book so I can order? I just joined the facebook page. My daughter has had POTS for a few years. She is 5’6 and 94 pounds (gained a few pounds) although went to the doctor yesterday without me and they gave her the HPV vaccine when shes already diagnosed with POTS. She was bullied into getting this. I am so scared as to what the outcome of this may be.
I believe I saw online a fluoriquinaline detox protocol. Perhaps there is for Gardasil too. There is also vaccine homeopathics too online you can use to detox, even though I don’t know if they are Gardasil specific.
The reason behind Lipitor and fluoroquinolins being so wicked is they are fluorinated. It is not listed on the ingredients list. You have to look at the molecule structure on the package insert for an “F”.
The very mitochondria of the cell seems to be depleted of co enzyme q10. That is why you end up with such vast symptoms.
To detox for the other sources of fluoride I use simply baking soda and organic limes.
Its tough. My daughter has not been the same since s few doses of a drug.
My daughter had the first shot in July 2014 when she was 14. We never got the rest, we almost got the second one this past July but didn’t because she was sick. Now I’m sure we never will. I’ve never felt comfortable with it. She developed PCOS symptoms about a year after the shot, officially diagnosed a year and a half after the shot and I am just now putting together the connection. Are there ways to detox this far out? I’m looking into detox options through Chlorella Spirulina to take out heavy metals. Anything else that can be done? She is not overweight. I am trying to get her to work on her diet and take supplements including vitamin D and berberine.
Read up on mitochondrial nutrients and begin there. If you can feed her mitochondria what they need to repair things, they will. We have a lot of articles on mitochondria and the nutrients they need. Also, we just started a Facebook group called Understanding Mitochondrial Nutrients. Join.
is it possible to get a copy of the survey?
we made a study in Sweden among some injured girls. and I would like to compare the two results. (guess that there will be similarities…)
please send me a copy if you can.
My daughter has anxiety, depression, muscle and joint soreness and has not yet started her period. She just turned 16. Please contact me about alternative treatments to indie the damages of Guardasil. She started her period a couple times then it went away and now I find this info and fear I may have harmed her by allowing the vaccine.
Could gardisil cause a normal young girl to become more boy-like and refuse to accept her feminine gender any more?
This is what happening to my daughter, after the gardasil reaction.
My daughter sounds a lot like yours, though without the stomach pains. The crippling migraines, the neurological and cognitive problems and the crippling joint pain and the worst thing has been the thoughts of suicide that overwhelm her when she thinks that her life might be like this from now on. A doctor at the hospital was who told me they thought it was Gardasil that may have caused her problems. Yet they still give the vaccine.
THE GARDASIL LIFE: MY CHILD’S PARALYZED STOMACH AND INCURABLE STOMACH VIRUS
My daughter was an outgoing, super funny, confident, soccer athlete, practicing 3-4 hrs a day. She planned to play HS soccer and move on to college soccer. Autumn was a free spirit and so full of life. Her love for animals and passion to save the mistreated drove her to want to open her own animal shelter. She had dreams, goals and a plan. In January of 2010 she received the series of Gardasil shots. Her second shot was on 3/31 and by 5/10 we had her back to the doctors due to shortness of breath, horrible rib and back pain. That is when our nightmare just kept getting worse. Autumn’s life after Gardasil. Excruciating rib/back pain episodes, unable to stand up straight or breath deeply. Pain episodes lasting as long as 4wks, requiring many ER visits. A mass measuring 6x12x9 found in her abdominal muscle under her rib was thought to possibly be bone cancer. Doctors kept her overnight to do a bone biopsy but morning came and the mass was gone. It literally disappeared overnight, the doctors could give no explanation and conducted no further studies. Constant leg/knee pain, intense muscle contractions, painful joints, chronic congestion, sore throats, ear pain, reoccurring hearing loss, bladder infections, heat sensitivity feeling faint in showers/bath, shortness of breath walking one flight of steps/talking too long, unbearable migraines leaving her screaming in pain, light/sound sensitivity, chest pain, racing heart, lymphadenopathy, tiny cuts bleeding over 20 min, bruising, petechia rash, cold purple feet, heavy menstrual cycles, paralyzing pelvic pain with lumps that come and go, cycles lasting 3 wks or longer. Chronic fatigue, sleeping sometimes 20 hrs a day, night sweats, strange skin sensations, lips going numb, reoccurring rashes covering her body including the mucosa of her mouth/nose making breathing difficult requiring ER visits. Gastroparesis- stomach paralysis causing severe bloating appearing 6 mths pregnant, debilitating pain, no appetite, severe weight loss, weight gain from body going into starvation mode, constant nausea, vomiting blood/bile leaving her begging for mercy, pleading for death. Autumn will live with a stomach virus for the rest of her life, 24/7/365. Can you imagine? Unable to absorb nutrition, malnourishment. Autumn fought hard to keep the life she had prior to Gardasil, but eventually was forced to quit soccer and withdrawal from school. She has been diagnosed with depression and anxiety. She suffers from extreme memory loss, anger, insomnia, severely diminished cognitive processes. She has self harmed, cutting and branding her wrist/hips to cope with the suffering she endures daily. Did the benefit outweigh the risk? Absolutely not. So where is the medical community now? They casually say Autumn is a complicated case, offer no answers, and wish us luck. PLEASE SHARE AUTUMN’S STORY TO HELP SAVE ANOTHER CHILD FROM DEVESTATION
Would you like to share your daughter’s story on our site. We cover personal health stories on this and many other topics where folks have been injured by medications or vaccines and develop chronic conditions. These stories serve both to raise awareness and to inform research. They are very important. You can message us directly via the Write for Us link in the footer.
Hi, I am very new to this but we have been trying to diagnose my daughter, Chelsie, for 2 years now. Chelsie began to have symptoms approximately 2 months after recieving her 1st HPV vaccine, we didn’t put anything together until recently when a friend asked me if she had gotten the vaccine and I began to research it. When Chelsie started having symptoms they started out as numbness in her face and right hand. She went to the doctor shortly after telling me that she thought something was wrong with her and I told her to go to the doctor, she was living in Reno at the time. They looked her over and then afterwards asked her if she had started the HPV vaccines, she told them that she had the 1st one but that she didn’t have the follow up ones, so they advised her that she should have them. They proceeded to give her they remaining 2, one in each arm that day. As her symptoms began to worsen , she went through several tests, MRIs , spinal tap, blood tests and cat scans with no diagnosis from any of them. A few months later she was in a car accident and had to move home. She didn’t see another doctor until a few months later, when she had moved in with her boyfriend and had suffered a terrible siezure right after she had gotten to work. They took her to the hospital where they did another MRI and they saw brain demylination. We began to take her to UCSF shortly after to try and get an answer. They did her 1st brain biopsy a month later, it came back inconclusive but not a tumor, cancer, and ruled out several other things but still no answer. a few months later they tried to see if Chemo would work for her and after 4 months, after another MRI and seeing that it was not working , she told them that she wanted to stop it as it was just making her so sick and she had lost 30 pounds. They decided that they wanted to do another, more indepth biopsy at this time, so she had that done, again, no answer, they checked for everything! So they suggested more chemo, which she said no to, so they suggested a plasma exchange that she agreed to and also try the drug Tysabri, which they will be starting soon. I am not too sure about this drug for her but not sure of what else will work. After talking to another mom of a Guardasil injured daughter, it makes me more scared! I did get chelsie to see a natural medicine and we did start her on supplements about 2 months ago. She continues to have trouble speaking, finding the right words to say, walking difficulties in her right leg, her right hand also does not work she has numbness in both the leg and arm. We live in northen California. Any ideas out there?? Please let us know, we are desperate and I just know that the vaccine is the cause of all of this!
Jeannie, I am so sorry for the difficulties you’ve had with your daughter post gardasil. They are not uncommon. Search our site for gardasil and you’ll a number of personal stories regarding both the symptoms and the treatment. We also have number of research articles on the topic under search terms of gardasil, mitochondria, vaccine and others. We’ve built a tremendous archive of information. We’re still figuring it out, but gist is that the vaccine seems to attack mitochondria which then affect a variety of systems/organs through out the body. As far as we can tell, to the extent recovery is possible, and it appears to be for some young women, it is via heavy duty nutrient supplementation and other non-standard treatments. If you are interested and willing, if you share your daughter’s story as a blog post, that will open up more discussion and more feedback from individuals who suffered similarly.
Thank you so much for all your hard work on this issue. I refused the vaccine for my twin boys last year. I am concerned about this year because my friend said her doctor gave it to her boys without her consent and then tried to tell her it was time. My boys have their checkups in mid December. I will be sure to post here there are issues.
Rhonda, you are welcome. We’re trying. Please do keep us posted. It takes a village though.
My son had a very adverse reaction to the HPV Vaccine and we would be interested in the survey. Are you collecting the data on the boys?
We’re not yet collecting data on the boys yet. I am hoping to have the male version of the survey up by late September. However, we cover Gardasil stories every month. The next scheduled week of stories will be the week of 9/19. Would you be interested in sharing your son’s story? Since the boys symptoms are likely different than those of the girls, I would be interested in learning more about your son’s symptoms as I create the survey. That way, I can be sure to include all the symptoms. Finally, please sign up for our newsletter, upper right column of blog, so that you can get the announcement when the survey goes live. Thanks.
My son had the shots and now has many health issues. I wish the Dr. had not told him anything about them or gave him the booklet on them. Worst mistake ever!
Sonya, I am so sorry for your son’s health issues. Would you be interested in sharing his health story so that others might learn from it?
Dear Hormones Matter,
Is it possible for people outside the USA to complete your survey about reactions to Gardasil and Cervairx HPV vaccines? I am writing from Spain where a number of young women have had serious reactions to the HPV vaccines in Spain. I am certain they / their families would want to participate.
Yes, however, it is only in English at this time and we do not have the capability of translating. If there volunteers who would be interested in translating, I am happy to work with them to get this study out to as many people as possible. You can email me directly at: email@example.com. Thank you for you question.