medication reactions Archives

Trauma, Pain, and Complex Illness: A Battle for Survival

by MM

Published on June 11, 2018

2724 views

As a child, I endured every form of abuse. Both of my parents were mentally and emotionally abusive. I was beaten and experienced two severe head injuries that were never treated. One incident involved falling head first out of a moving vehicle. My brother grabbed my legs, but my head hit the pavement several times before he was able to pull me back in. The other incident was being thrown onto my parents’ waterbed and hitting the sharp corner of the bed frame.

I was sexually abused starting at the age of three.

I had my first period in third grade. My periods were painful with heavy flows that also came along with depression and anxiety. I was put on birth control at the age of 12 to try and control the menstrual symptoms.

At the age of 12, I was prescribed Prozac for the depression and within a couple of weeks of starting the medication, I had my first suicide attempt. Over the next 20 years, I was placed on almost every psychiatric drug there is – always resulting in a suicide attempt or a worsening of symptoms.

In high school, I started getting terrible headaches and went to a chiropractor for a few years. That chiropractor said that my neck curves the wrong way possibly caused by the head injuries as a child.

Also, in high school, my bladder started causing me a lot of distress. I pee a lot. Yes, women say they pee a lot. To this day I pee upwards of 30 times a day. The urologist in my hometown performed one of the most painful tests I have ever endured. They pumped me full of saline and waited until my bladder was full. I was in tears when it got to halfway full. Then they took x-rays as I tried to pee into a cup. The result was a diagnosis of overactive bladder. He said that my bladder was very strong, that when any urine hit my bladder it would spasm giving the feeling of needing to pee.

The menstrual issues continued to get worse. I would be debilitated during my periods. In my early 20s, we ran more tests on my bladder. They diagnosed me with interstitial cystitis and said that I had little to no capacity in my bladder. I cut back on caffeine and acidic drinks and /foods and upped my water intake.

Around this same time, I had a mental and emotional breakdown after a confrontation with my father. I was diagnosed with PTSD and went through EMDR therapy with great results.

In my mid-20s we did a laparoscopic surgery to determine why I was still having so many problems with menstruation and was told I had an excessive amount of blood vessels on my uterus. I was told that having children should help alleviate the symptoms. They sent me home before I was able to go to the bathroom. This led to one of the most painful nights I have ever had because I could not pee. I just sat on the toilet and cried. We went back to the hospital and they inserted a catheter and were bewildered. I was outputting way more than I was inputting. The doctors had no clue why this was happening or what could be done. Once I was able to urinate without the catheter, I was sent home and no further tests were run.

After a divorce and the death of my step-father, I married an abusive man. I had another breakdown and he had me institutionalized. While I was in the hospital they diagnosed me with Fibromyalgia. They put me on a cocktail of 40mg of Lyrica, Xanax, Valium, Trazadone, and Paxil. I was a zombie and within 3 weeks, I took all the pills in another suicide attempt. I was in the ICU for three days and came out a stronger person. I divorced my then husband and moved to the east coast.

I get regular sinus infections and bronchitis. I struggle with both falling and staying asleep. I have an amazing toolkit for managing anxiety and depression.

In 2010, during an MRI they discovered that I had 4 small nodules (under 1cm) on my thyroid. They diagnosed me with multinodular goiter.

I got pregnant in September of 2011 and it was brutal pregnancy. I ended up in the hospital with dehydration because I could not even keep water down. Thankfully Zofran helped me survive my pregnancy. I had a c-section in June of 2012 because I would not dilate. I was induced and after almost 48 hours of labor, I had only dilated ½ cm. I experienced severe postpartum depression but pushed through without medication.

In 2014, I got pregnant again and had another brutal pregnancy. I had gestational diabetes and was monitored closely. I had another c-section in August of 2014 followed by the worst infection I have ever endured. I went through five rounds of oral antibiotics and two weeks of IV antibiotics before the infection cleared up. Over the next few months, my husband and I became concerned with the increase in my bowel movements and swollen stomach. I saw a GI and he said it was most likely IBS and to try an elimination diet. I did and proceeded to lose 65 lbs. I cut out corn, wheat, rice, and only had minimal dairy. I also began working out regularly as well to improve my health. While this was going on I also started having increased pain with menstruation. I bled for three months non-stop. I saw several GYNs with no answers or help provided. I finally found an amazing GYN that discovered I had fibroids and cysts and we decided to try a partial hysterectomy. They removed my uterus and cervix in March of 2016. I had severe endometriosis and had scar tissue wrapped around my intestines. After surgery, I had another mental breakdown and he then regretted not taking my ovaries. He said he believed I have PMS disorder.

I also started to experience worsening headaches during this time but was able to manage with Tylenol, rest, etc. I was having significant shoulder and neck pain and my primary care doc ordered an MRI in August 2016 and we then discovered I had 9 thyroid nodules, two of which were over 1 cm in size. They were biopsied and found to be benign.

I broke my ankle in October of 2016 (first bone I have ever broken and had surgery to install a plate and six screws into my right ankle). I have permanent nerve damage and tendinitis in that ankle now. During the recovery from my ankle surgery, I noticed a high pitched and very loud ringing in my right ear. I was having difficulty hearing and felt very off balance (more so than usual). In January 2017, I went to an ENT and we discovered I have lost roughly 50% of the hearing in my right ear. They said it was Idiopathic Sudden Sensorineural Hearing Loss and I got a hearing aid to help. They performed an MRI and I was told there were no significant findings. I began having severe facial pain, headaches, and migraines. I began having severe issues sleeping. For almost a month, I was only averaging 3-4 hours of sleep a night and then went almost a full week with no sleep. I went to my primary care and she told me there was nothing she could do for insomnia and head pain but would treat the sinus infection I had with prednisone. This led to an acute psychotic break.

Over the next few weeks, I advocated for myself and made an appointment at a neurologist’s office and found a new primary care doctor. The nurse at the neurologist office I saw prescribed Imitrex. Which led to another adverse reaction and another hospitalization.

My new primary care doc ordered a CT scan of my sinuses and it appears I have a deviated septum with some sinus thickening. I went and saw an ENT and he advised me that I needed a competent neurologist but did not refer me to one.

A headache that began in January of 2017 continued with increased migraines. I began seeing a psychologist and learned mindfulness and cognitive behavioral therapy techniques. We did some neuro-biofeedback and EMDR.

The verdict is always the same – “this is complex” or “it’s all very biochemical”. We tried some blood pressure medication to help me sleep as well as some antipsychotics, but the side effects were worse than coping on my own.

We did a colonoscopy in July 2017, to investigate the stomach pain and distension I continue to have. While lying down I can often see the movement of my intestines. Looks like a baby moving around in my belly. The stomach distension comes and goes. Some days it’s normal and other days I look 6+ months pregnant. I also struggle with constipation and diarrhea. The GI specialist said that I had reflux but no other significant findings.

October of 2017, I saw the neurologist and he recommended Botox and neuro-biofeedback. I took a brain test on a computer and he did not perform any other tests. My GYN tried putting me back on birth control pills to see if the estrogen would help level me out. The results were BAD!!! I had an oophorectomy in December 2017. For a few weeks after the surgery, there was an improvement. I still had a never-ending headache, but migraines were less, and I felt strong enough to push through the head pain. Then it all came back with a vengeance. We lowered the estradiol from 1mg to .5mg and the neurologist gave me a sedative to try and break the migraine cycle. It helped but was brutal. The medication made me very suicidal and paranoid, but I pushed through!

After doing research on the Botox, I decided I did not want to proceed with that treatment.

I had a bit of a reprieve from the migraines after adjusting the estradiol and was just managing the headache. We did another thyroid ultrasound last month and there was significant growth on one of the nodules. They biopsied the largest nodule and it came back benign again.

Last week the migraine came back. We did two shots of 30mg of Toradol. It was better for a couple days and then came back again. We are going to shorten the time between changing the estradiol and see if that helps. I am researching and trying to find a headache clinic at the recommendation of my primary care. I practice self-care regularly and fight through a headache, joint pain, constant bladder pain and anxiety as best I can. I haven’t had a headache free day since January 2017. Please help.

Family History of Cancer:

Maternal Grandmother: Colon Cancer

Mother: Breast Cancer, Colon polyp that was removed w/ surgery

Father: Skin Cancer

Sister: Hodgkin’s Lymphoma Lung Cancer (age 14 – in remission)

Brother: Bile Duct Cancer (passed away in 2011)

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Another Day, Another Death

by Chandler Marrs, PhD

Published on July 25, 2017

3212 views

Another Gardasil girl died last month. I didn’t know her, but her mother had written for us a few years back. My heart aches for her family and for all of the other families who have lost loved ones to pharmaceutical industry malfeasance. Sadly, her death is just one more in a long line of deaths attributable to this vaccine. For the industry that profits from this vaccine, her death means nothing.

No one, except her family and friends will suffer for her death. There will be no culpability from the industry that manufactures and distributes this vaccine, none from the governmental agencies that fail to address the safety issues of these medications, none from the doctors who push this and others vaccines and then dismiss the side effects outright leaving parents to navigate the resultant complex illnesses on their own. No one will admit responsibility. How can they? We have all have been fed a heavy diet of ‘vaccines are always perfectly safe’, that injuries and deaths are due to random chance, not the cocktail of toxicants proffered under the guise of herd immunity. Just unlucky I guess, the price to pay for the safety of others.

Vaccines are perfectly safe.

Really?

Forget, of course, that this is foolhardy and that nothing is perfectly safe.

Forget also that industry knows these vaccines are neither safe nor effective, having fudged the trials and post market research, spent billions on marketing to promote the faulty research, and no small sum on astroturfing campaigns, replete with vitriolic trolls and an echo chamber of paid ‘thought leaders‘.

Forget that 70% of major media budgets are funded by the pharmaceutical industry advertising, as are most medical associations, medical education, university and continuing, medical journals, and patient support groups. Health journalism too, receives its fair share of pharma funding.

Forget that the pharmaceutical industry spends more in lobbying politicians than any other industry, including defense.

Forget that the FDA is a revolving door to cushy industry jobs. Approve this or that drug and one is set for life once one’s government affiliation is over.

Forget too that FDA review panels are staffed with industry insiders and that FDA approves 96% of all applications. Can’t imagine how bad a drug has to be in order the FDA to reject it.

Forget that when vaccine side effects began to be recognized en masse during the Reagan administration, industry quickly colluded with governmental agencies to force vaccination and eliminate any liability for themselves. Enter the vaccine courts, where no matter the injury, no matter the negligence or malfeasance, the government foots the bill for industry. What an ideal business model; all products are always safe and if they aren’t someone else covers those costs. Liability? Responsibility? Nope.

Forget all of these things, and yes, vaccines can be considered perfectly safe, side effects ignored, and deaths considered unfortunate matters of coincidence.

Except they aren’t and we shouldn’t forget.

Young women are dying and/or are debilitated to the point of wanting to die, thousands of them, with this one vaccine alone. This is on top of the skyrocketing number of vaccine and pharmaceutical injured children. Did you know that 1 in every 68 children suffers with neurodevelopmental disorders; 1 in 68. That is a staggering statistic that should give us all pause, but mostly, it doesn’t. Neither does the fact that 70% of adults take at least one medication chronically, 50% take two or more, and 20% take five or more medications, or that toddlers represent the largest growing market for psychotropic medications – toddlers! Admittedly, toddlers can be a bit crazy, but do we really, truly believe that toddlers need antidepressants, stimulants, or worse yet, antipsychotics?

With all of these medications and vaccines, are we healthier?

Nope.

In fact, for the first time in generations, we are living sicker and dying younger. But no, we hold tight to the belief that pharmaceutical medicine is working and all of these injuries, illnesses, and deaths are flukes attributable to the vagaries of random chance.

It was a convenient dissonance while it lasted; still is for many. It allowed us to avoid the much starker reality of modern pharmaceutical medicine or modern living in general: that chemistry matters, that toxicants don’t just magically disappear once they enter the body (or the oceans), and that for all of our technological brilliance, we really have no frickin clue what the compound effects of all of these chemicals are. We really don’t. Heck, we don’t even know what most medications do. A study in the British Medical Journal found that only 50% of medications have sufficient data to suggest that they are likely effective. And since we don’t test most medications on women, we really have no idea whether any medications work or induce serious side effects in women.

Pharmaceuticals are chemical toxicants, plain and simple. They are poisons, albeit sometimes necessary poisons, but poisons nevertheless. We don’t call them poisons though. We call them medicines, but the fact remains, poisons don’t become less poisonous simply because we rename them.

Poisons, by their very nature, are designed to kill things, to block things, and otherwise usurp normal biological functions. Poisons do not ‘heal’. They supplant and they override. Neither do they become less poisonous simply because we take them in small doses. In fact, in many cases, it’s with the smaller doses, particularly when taken chronically, that we see the most devastating side effects, the complex multi-system ones that do everything but kill the individual outright. We are dissonant from these concepts, sometimes willfully. The chemistry is complicated, the disinformation dense, and if we’re truthful with ourselves, it’s easier not to know. Until it isn’t.

Knowing all of this, what do we say to the families who have lost love ones to vaccine injury or death or medication injury or death? How do we go about our daily lives knowing the science is corrupted, arguably with intention, and that more will suffer as a result?

I don’t know the answer to either of these questions. All I know is that as a mom, I feel your loss and I am sorry.

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When Did it Become Okay to Disregard Patient Pain?

by Lisa Bloomquist

Published on October 7, 2013

3737 views

Fibromyalgia, Chronic Fatigue Syndrome / M.E., Gluten Intolerance / Celiac Disease (or other dietary intolerances), Lyme Disease, depression, anxiety and every disease that is brought on by an adverse reaction to a drug or vaccine, is very difficult to diagnose and treat. Individuals with these diseases are often disregarded and treated as if they are making up their symptoms, or choosing to be sick, or as if they are crazy, which leads me to the question – When did it become okay to disregard patient pain and suffering?

I was at a dinner party recently where a gentleman was expressing an incredulous attitude about gluten intolerance. He stated that bread has been around for thousands of years and that people have been dealing with it just fine for all that time. He didn’t see how people could suddenly start having trouble digesting gluten. This simplistic attitude fails to take into account the facts that both our bread, through GMO wheat, pesticides and processing, is different now, and that our digestive systems, because of rampant use of antibiotics, are also different now. Regardless of the causes of gluten intolerance, it is not something that you can believe in or not. People have experiences of feeling ill when they eat foods that contain gluten. To disregard their experience and to tell them that what they feel is not valid, is inexcusably arrogant and rude. Sadly, that is exactly what happens too often in healthcare today. Symptoms that are not easily understandable, recognizable by modern diagnostic tools or treatable by the medications currently available, are disregarded, and worse yet, attributed to the patient’s own mental health weakness.

The Myth of Modern Diagnostics

Perhaps disregard and disbelief emanates from the notion that if a disease isn’t detectable and it isn’t treatable, then it doesn’t exist. When pain, a disease, physical or mental dysfunction of one sort or another, is felt intensely by the patient but its source is undetectable using the methods of modern medicine, it easier to deny that the problem exists than search for solutions. Rather than question the detection methods, the diagnostics, or say “I don’t know,” many doctors, family and friends deny that there is a problem at all. The mysterious, difficult to treat illnesses is attributed to a mental health flaw or personal weakness. It’s “all in their head,” is a common refrain; as if what is in your head is a choice or isn’t important.

It Gets Worse

For those of us with illness caused by a drug or vaccine, having our pain and suffering acknowledged is difficult at best. Our symptoms are typically invisible and mysterious, and when we tell people about the cause of our illness we are often treated with hostility. It is as if in telling our stories about how we were hurt by a pharmaceutical, we are trying to dismantle the entire modern medical system and get rid of the good with the bad. I have experienced this repeatedly since my adverse reaction and subsequent injury from Cipro. My experience is not uncommon. Read any of the patient stories of post-Gardasil, post-Lupron or post-fluoroquinolone injury – we all suffer, and we are often treated poorly.

When one speaks out against a travesty in the medical system, he or she is often accused of being a conspiracy theorist, anti-vaccine or anti-science, even though medication interactions, errors and adverse events are the 4^th leading cause of death in the U.S. There are few shades of grey. One is either pro-medicine, science, vaccine or drug, or on the lunatic fringe. This characterization is unfair, as many victims of adverse reactions to prescription drugs or vaccines thoroughly believe in the efficacy of the Scientific Method, we just dislike being an experiment gone awry.

For those who have not been harmed by a medication or vaccine, it is difficult to imagine. How could a drug that is prescribed all the time, a drug that also does some good (or it wouldn’t be prescribed), have caused such harm? How could a drug or vaccine lead to such chronic pain or illness? It is difficult to conceive. It is difficult to reconcile. Egos get involved and shackles get raised. How dare a patient, a victim, a normal person, accuse a doctor, an expert, of doing harm? What doctors don’t recognize is that we are not meaning to accuse, we are seeking help, compassion and understanding.

When Did It Become Okay to Disregard Patient Pain and Suffering?

I suspect it happened during the debate over whether or not vaccines contribute to Autism. Somewhere during that debate, which is yet on-going, it became okay to tell people that it was impossible for drugs or vaccines to cause the horrifying plethora of side-effects that they do indeed cause. It became okay to believe, despite the long list of adverse effects that accompany each pharmaceutical, that medicines and vaccines where somehow entirely safe; that because they didn’t cause ill-effects in all patients, they couldn’t cause them in some.

It’s not okay.

Drug and Vaccine Side-Effects Happen

They are serious and they should not be ignored. Please have some compassion for the victims of adverse reactions to drugs and vaccines. Please listen to their stories and realize that they know their bodies and conditions better than anyone else. Please treat them with kindness, respect and love. They deserve no less. Most importantly, do the research necessary to find out how and why these adverse event occurred and then develop the appropriate solutions to heal these patients. Better yet, invest in safer, more personalized vaccines and medications that are only given to those who will benefit from them.

Information about Fluoroquinolone Toxicity

Information about the author, and adverse reactions to fluoroquinolone antibiotics (Cipro/ciprofloxacin, Levaquin/levofloxacin, Avelox/moxifloxacin and Floxin/ofloxacin) can be found on Lisa Bloomquist’s site, www.floxiehope.com.