August 2013 - Page 2

Your Real Body Type: You are NOT a Fruit!

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In our minds are deeply held beliefs about our bodies.  We constantly assess our bodies whether we’re naked, clothed, or being intimate. The thoughts never completely leave our minds because, let’s face it, our birthday suit is the only gift we can’t return. We can, however, improve it, shape it, and mold it to our liking. Even with its amazing  potential for customization, we often panic, fret, and judge our bodies. We see terms like “pear,” “apple,” and “coke bottle” to describe our body shape. But, unless you’re in the mall looking for clothes, all of these terms (including other references to your body using fruits vegetables and inanimate objects) are wrong. Once you understand what your body type really is you can relax knowing that, while some physical features can’t be changed, you still have a lot of control over your body and it’s physique.

Muscle, Fat and Bone

When we think of our body composition three things usually come to mind, muscle, fat, and bone. Now if you’re in the medical field those thoughts go much deeper but for the sake of simplicity it’s true that our body’s shape mostly consists of muscle tissue, fat tissue, and bone tissue. Media and mass circulated misinformation can make it seem like our body types are set and there isn’t much we can do about them, that our genetics have to be perfect in order to be fit and healthy, or that we have to undergo some crazy surgery and take a miracle pill to get our bodies to a place where we feel confident and positive about ourselves. This type of thinking couldn’t be further from the truth. As a trainer I’ve heard the excuses and the concerns that plague the minds of friends, family, and clients. It’s often a feeling of helplessness, one that  is incredibly hard to express let alone deal with. The good news is that muscle fiber can be built, fat cells can be reduced in size and the body really is concerned with only two things, efficiency and survival.

Muscles

Your muscles, a major part of your musculoskeletal system which is made up of bones muscles ligaments and tendons; its purpose is to, “protect and support the internal structures and organs of the body, allow movement, give shape to the body, produce blood cells, store calcium and phosphorus and produce heat.”[emphasis added] Your body is in a constant struggle to create efficiency by constantly changing to meet the amount of strain you place on it. Muscle fiber gives the body shape and your organs protection. It also creates more red blood cells, increases your white blood cell count, and can increase the body’s ability to fight infection. Here is the secret: you need muscles. Skinny isn’t necessarily healthy. Skinny is in itself a potential health issue, but I’ll get to that in a future article. Muscles big and small are vital to your survival and well-being.

Fat

Fat, also known as lipids, is another misunderstood aspect of health. Lipids of the appropriate type are incredibly important to the body. While saturated and trans fats can be harmful, other fats such as mono and polyunsaturated fats are healthy and support your body’s functioning by acting as a “highly concentrated secondary energy source, and a carrying agent in the transportation of the fat-soluble vitamins A, D, E, and K. They are an essential ingredient in skin and hair and regulate blood pressure.” (pg. 478) You as an informed consumer need to be aware of what you are putting into your body. It will determine the quality of life you live both now and in your later years.

Bones

Usually we only get information about bones after damage has been done or in a milk commercial. Your skeleton “serves as a collection of levers that transmit muscular forces, protects organs, serves as a framework for tissues and organs, and serve as banks for storage and release of minerals like calcium and phosphorous.”(pg. 74) Exercise (low or high impact) creates dense bones providing us with a healthier, stronger, and more durable skeleton. A diet and exercise regime that supports bone health is also critical to help people create a healthy future.

Body Types

In keeping with the idea that the most useful information is simple information, I’d like to bring your attention to something called Somatotypes. When people talk about what genetic body type they are, this is what they should be referring to. Your Somatotype is your body’s propensity to create, store, or regulate muscle and fat. The term “Somatotype” was coined by William H. Sheldon. “William H. Sheldon, PhD, MD, introduced the concept of body types, or somatotypes, in the 1940s. Most people are unique combinations of the three body types: ectomorph, mesomorph, and endomorph.” “Most individuals have a dominant somatotype and also display some characteristics of the other two.” Keep this in mind the next time you look in the mirror and are being a little overly critical of your body. There are arguments involving bodybuilders, scientists, and fitness professionals that support the theory that your Somatotype is not set in stone and can change through exercise and dieting. This is an entirely different subject and there is a lot of information out there if I’ve piqued your interest.

Female body type
What body type are you?

It is believed that ectomorphs have fewer fat cells and muscle fiber cells. Again, this is arguable but they are classified as having very lean frames, high metabolisms, and small muscles. Ectomorphs can build muscle and they can get fat if they become overly sedentary. The University of Houston says, “While most of us love to hate these genetically-blessed individuals, some male ectomorphs may not be thrilled with their narrow-chested frames, and some female ectomorphs long for more womanly curves.” Now does this mean that a female ectomorph can’t have womanly curves? Absolutely not! It just takes work and she has to pay attention to her diet. She can’t be peckish about eating and has to educate herself on proper dieting to get her to her goal.

On the other end of the spectrum is the endomorph. Many endomorphs simply give up thinking that they must be cursed to never be fit and healthy. Many endomorphs are actually ecto- and mesomorphs that are super sedentary and have terrible diets, thus they are not endomorphs at all. But, to those true endomorphs, you are not without hope. Endomorphs simply have more muscle fibers and more fat cells, so paying close attention to exercise and dieting is crucial. Step off the yellow brick road and Dorothy is storing fat, fast. Living healthy, exercising, and being active, all while adopting a healthy diet is the key to a fit healthy life.

Last is the famed and envied mesomorph. Their bodies pack on muscle easily and have fewer fat cells so they usually have a very muscular build. I’ll even admit (and I’m an ectomorph), that they hit the genetic jackpot. All that is needed is consistent exercise and a good diet and their bodies can become shaped very easily. Does this mean mesomorphs don’t get fat? No! Like any person, no matter the body type, diet and exercise is critical to good health.

A Healthy Lifestyle is all that Matters

So, no matter your body type, the key is to live healthy (research your food and what is going into your body) and be active. When you stand in front of the mirror and you’re being your own worst critic, ask yourself a few honest questions. Do you really have any goals for your health and fitness? How do you eat, honestly? Are you active and how? Then realize that what you see is your creation. You can change it. Genetics are there to help us survive as a species, not hold us back. They neither doom or guarantee fitness or good health. You have power over your body, and there are people like me who simply want to dispel the myths and encourage and empower you with the ability to live the life you really want to live. So now you know that the terms Pear, Apple, Bottle, etc. belong in the clothing stores. They have no practical application other than picking out a shirt, jeans, a dress or other garment. When you look at yourself, see what you want to be, make a plan, and get after it. Stay healthy, and keep moving forward.

References

http://www.thefreedictionary.com/somatotype

“It’s Your Body Composition, Not Your Body Weight That Matters!” IronMagazine Bodybuilding Fitness Magazine Anabolic Steroid Resource RSS. N.p., n.d. Web. 11 Aug. 2013.http://www.ironmagazine.com/2012/its-your-body-composition-not-your-body-weight-that-matters/

“HOW TO SOMATOTYPE.” HOW TO SOMATOTYPE. N.p., n.d. Web. 11 Aug. 2013.http://www.mysomatotype.com/howtosomatotype/

“Understanding the Basic Anatomy and Physiology of the Human Body.” – The Musculoskeletal System. N.p., n.d. Web. 11 Aug. 2013. http://lrrpublic.cli.det.nsw.edu.au/lrrSecure/Sites/LRRView/7700/documents/5657/5657/5657_04.htm

“THE 3 SOMATOTYPES.” THE 3 SOMATOTYPES. N.p., n.d. Web. 11 Aug. 2013.http://www.uh.edu/fitness/comm_educators/3_somatotypesNEW.htm

Hatfield, Frederick C. Fitness: The Complete Guide.Santa Barbara,CA: International Sports Sciences Association, 1996. Print

About the Author: John-Brandon Pierre is a former enlisted United States Marine who, for twelve years, had the responsibility of keeping Marines in shape, conditioned, and ready for the worst both physically and mentally. John is now an ISSA Certified Fitness professional and the proud owner of Pinnacle Fitness and Training.

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What Do Fluoroquinolone Antibiotics Have in Common With Gardasil?

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Lisa Bloomquist

Horrific side effects that are generally unrecognized by medical practitioners, that’s what these medications have in common. Gardasil Week just ended on Hormones Matter. It made me realize how many bad drugs are on the market. I had an adverse reaction to a fluoroquinolone antibiotic, Cipro, and my life changed forever. Reading the Gardasil stories, I noticed similarities amongst the adverse reactions of the fluoroquinolone antibiotics, Cipro, Levaquin and Avelox and the adverse reactions to Gardasil; both are massive, system-wide and go generally unnoticed by modern medicine.

I have to admit, I’m a bit scared about writing this post. I don’t want to be labeled as “anti-vaccine” and demonized as such. I’m not anti-vaccine. Vaccines have saved thousands of lives throughout human history. Even though an antibiotic hurt me, I’m not anti-antibiotic either. Like vaccines, antibiotics have saved thousands, possibly millions of lives.  Vaccines and antibiotics together account for so much good in modern medicine that it has become almost sacrilegious to question or criticize them – as if in questioning them one negates the lives that have been saved by them.

Rogue Players

Unfortunately, some rogue players have entered both the vaccine and the antibiotic fields; Gardasil in the vaccine market and the fluoroquinolone antibiotics, Cipro, Levaquin and Avelox, in the antibiotic market. Whether the benefits outweigh the risks of these drugs and/or whether these drugs are being used properly is a question that should be asked. Unfortunately, questioning a vaccine or antibiotic leads many to a knee-jerk reaction. Often the injured individual is accused of being anti-vax or anti-antibiotic. It is as if even asking whether or not these drugs are being properly applied and the risk are being properly assessed, is offensive;  as if, in acknowledging that there are side-effects that may not outweigh the benefits for these particular drugs, you are trying to annihilate the whole class of treatments.

I’m not, in any way shape or form, proposing that we get rid of either vaccines or antibiotics. But it would be more than nice, it would be the right, just, empathetic, loving thing to do, to listen to the stories of those who have been hurt by Gardasil or fluoroquinolones, and to explore whether or not they are the right tools to use for accomplishing what we want to accomplish – the limiting of disease and infection. Sticking one’s head in the sand and insisting that all things that come out of the pharmaceutical industry are good and pro-science is a faith-based position that is, frankly, incorrect.

People are being hurt by both Gardasil and fluoroquinolne antibiotics. Disabling, ruinous effects are coming from both of these drugs. Their lives go from normal, with nothing wrong with them in the case of those being treated by Gardasil, or having possibly only a minor infection, in the case of those prescribed fluoroquinolones, to a life of suffering with chronic health problems. This isn’t right. It’s not okay. There is nothing that is okay about turning a non-existent condition into a chronic miserable condition, or an acute condition that can be cured with mild antibiotics, and turning it into a chronic syndrome that causes pain and suffering for years to come.

Too Severe to be Real?

Reactions to both Gardasil and fluoroquinolones are often delayed, weeks to months, and so severe that they are, ironically, disregarded as absurd or impossible. If hundreds or even thousands people didn’t have similar reactions, this might be a valid argument, but when a lot of people have the same reaction of body-wide breakdown, the connection between the drug and the reaction should be seen as valid and researched as such.

Hiking before Cipro, hiking after Cipro
Greg Spooner had a toxic reaction to Cipro in 2010. Details about his story are listed below.

Maybe the incredulous attitude people display when faced with a severe adverse reaction to a pharmaceutical stems from our preconceptions about what medicines should do or how they should act.  Although, we are all aware of the risk for side-effects, we believe they “should” be mild and treatable. When, in fact, some patients develop severe reactions that are systemic, complex and difficult or impossible to treat. Rather than connecting the system-wide breakdown that the patient experiences to the drug, it is easier to believe that the cause of the person’s problems were something else, or dismiss the patient with a misdiagnosis. Rarely are the illnesses linked to the medications that caused them. When the adverse reactions are so comprehensive, they’re seen as absurd and unlikely. Worse yet, they are considered impossible to treat and often dismissed. Even if a physician recognizes the connection between the medication or vaccine and the system-wide breakdown that develops, there is very little, if anything, he or she can do to treat the syndromes that arise.

But They Save Lives

“But they save lives!” is always the argument that people make in favor of these drugs.  For fluoroquinolones, OF COURSE they save lives!  No one is arguing that they don’t.  But given the severity of the adverse effects caused by fluoroquinolones, their use should be reserved for life or death situations. Unfortunately, fluoroquinolones are used as a first line of defense against urinary tract infections, sinus infections, suspected prostate infections, travelers’ diarrhea, etc., when other, safer drugs are available and are equally effective. Giving people a drug with the potential for severe negative consequences when there are effective alternatives that don’t have the same risks is a violation of the Hippocratic Oath.

Of course, if everyone reacted as badly as I did to Cipro, or as badly as Alexis, Ashley or Nicole did to Gardasil, these drugs would be taken off the market.  Everyone would know that they are dangerous and no one would take them (except, in the case of fluoroquinolones like Cipro, in a truly life-or-death situation where there were no other alternatives). But the fact that not everyone has a horrific adverse reaction to these drugs does not negate the fact that some people do.  (And more people have bad reactions to these drugs than realize it.  Because of the delay in adverse reactions, the fact that they are under-recognized by doctors and thus an incorrect diagnosis is often made, and the absurdity of the reactions being caused by an antibiotic or vaccine, people often fail to make the connection between the cause, fluoroquinolones or Gardasil, and the reaction, a chronic syndrome of pain and destruction.)

Regardless of whether or not policy change comes as a result of the harm caused by Gardasil or fluoroquinolones, the victims of both deserve sympathy and compassion.  They deserve to be able to tell their stories. They deserve to be listened to. I can only hope that the stories are heard.

Postscript. Read more about Greg Spooner’s toxic reaction to Cipro, here.

Information about Fluoroquinolone Toxicity

Information about the author, and adverse reactions to fluoroquinolone antibiotics (Cipro/ciprofloxacin, Levaquin/levofloxacin, Avelox/moxifloxacin and Floxin/ofloxacin) can be found on Lisa Bloomquist’s site, www.floxiehope.com.

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PROP Painkiller Labeling Changes May Hurt Women with Chronic Pain

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Philippa Bridge Cook

Many Americans with chronic pain conditions may not realize that their access to narcotic pain medication, which is already difficult and mired with barriers, may be about to decrease even more. An FDA advisory board is currently considering a petition to change the labeling on opioid pain relievers, which could affect the ability of millions of Americans with chronic pain conditions to continue using these drugs as they are being used today. The petition to the FDA, led by Physicians for Responsible Opioid Prescribing (PROP), calls for three changes to the drug labels of opioid pain medications. For non-cancer pain, these medications are currently approved for “moderate to severe” pain, and the proposed changes would remove the word “moderate,” leaving the drugs indicated only for non-cancer pain that is severe. In addition, the petition calls for the addition of a daily limit of 100 mg of morphine or equivalent per day, and a maximum 90 day treatment period.

What the Medical Societies Think

Several respected medical bodies, such as the American Medical Association (AMA), are against the PROP petition to the FDA. In a letter to the FDA opposing the petition, the AMA correctly points out that the PROP petition is not based on valid, scientific data from new studies, nor does it suggest proven therapies that can replace opioids in patient treatment when necessary. The American Academy of Pain Medicine stated in a letter to the FDA that the “rationale for the requested changes is seriously flawed, potentially harmful to patients with debilitating pain conditions for whom opioid therapy is indicated, and without substantive scientific foundation.”

Preventing Abuse

The proposed labeling changes are aimed at curbing a prescription painkiller abuse problem that has been increasing exponentially in the U.S. The issue of narcotic painkiller abuse/misuse has been in the news recently, with the Centers for Disease Control and Prevention (CDC) reporting in July that the number of women dying from prescription painkiller overdoses has increased by more than 400 percent since 1999. Although more men than women still die of prescription painkiller overdoses, the increase in women has been dramatic and highlights the growing problem with prescription painkiller abuse. Almost 48,000 women died from prescription painkiller overdose between 1999 and 2010, and 30 times that number went to the ER for issues related to painkiller abuse or misuse. Prescription painkillers now top heroin and cocaine as the number one cause of death from drug overdose, although many of these deaths involve additional drugs or alcohol.

The proposed changes to opioid painkiller labeling aims to address the problem of prescription painkiller abuse by limiting the number of prescriptions for these drugs. However, it is not clear that limiting prescriptions for these drugs would solve the problem of drug addiction, which is much more complex than just being about availability of prescriptions.  For instance, research shows that 75 percent of people who abuse prescription painkillers have obtained drugs from family members, friends, or on the street, rather than having these painkillers prescribed to them. In addition, the risk of chronic pain patients developing addiction is relatively low, and addiction in this patient population is more common if other predisposing factors are also present (such as prior history of substance abuse, or mental health disorders). Prescription painkiller abuse is a problem that deserves to be addressed, but there is little evidence to suggest that the proposed opioid labeling changes will help this problem.

The Burden of Chronic Pain

On the other hand, the proposed changes will undoubtedly hurt the population of over 100 million Americans suffering from chronic pain. Chronic pain can result from many conditions, including headaches/migraines, low back pain, arthritis, cancer pain, fibromyalgia, pelvic pain, and neurogenic pain (pain resulting from damage to the peripheral nerves or central nervous system), and is generally defined as pain lasting longer than three to six months. Many chronic pain conditions are more likely to affect women than men. The burden of chronic pain, in terms of costs to the health care system, is huge: chronic pain costs up to 635 billion dollars per year in medical bills and lost productivity. However, the personal cost to the patient with chronic pain is immeasurable.

According to the World Health Organization (WHO), millions of people around the world suffer from under-treated pain. Patients with inadequately treated pain have an increased risk of suffering from depression and anxiety, and may experience many consequences of the pain such as decreased mobility, impaired sleep, immune impairment, loss of independence, and withdrawal from social interaction. Other than increasing the amount of suffering an individual has to endure, under-treatment of pain has other effects such as lost productivity and excessive health care costs. Patients with chronic, non-malignant pain are at the highest risk of having their pain inadequately managed. And it is those patients who would be most affected by the proposed changes to opioid labeling. Patients in both developed and developing countries have under-treated pain for multiple reasons including inaccessibility of opioids.

Women with Chronic Pain

Women may be particularly at risk for having their pain under-treated, even though women are more at risk for suffering with a chronic pain condition. Most medications, especially older medications (which includes narcotic painkillers), were only tested on male animals  and human males. Therefore, how well they actually treat pain in women, and their possible adverse effects, are not well understood. Furthermore, the fact that the mechanisms behind these chronic pain conditions are not understood also makes them difficult to treat effectively.

Chronic Pain is Complicated

Chronic pain is a complicated problem that requires highly individualized multi-modal treatment. In addition to using appropriate medications at the right dosages, other methods to address pain can be helpful, such as surgery, physical therapy, psychological counseling, acupuncture, and meditation. There are only about 3000 to 4000 pain specialists across the U.S., leaving primary care doctors to treat pain, despite very little specific training. In addition, lack of reimbursement by insurance companies for complementary therapies can be an additional barrier to patients being able to fully treat their pain. Making opioid pain medications less accessible for chronic pain patients will only increase the number of barriers for these patients.

Will PROP Work?

The PROP petition aims to fix the prescription drug abuse problem by withholding medication from patients with chronic pain. The idea that having fewer drugs in circulation will solve the problem of prescription painkiller addiction is too simplistic, as drug addiction is a much more complex psychosocial problem. But worse, this petition will compound the already huge problem of chronic pain in the U.S., by limiting accessibility to a class of medications that many pain patients find helpful for their condition. I believe the FDA should reject the PROP petition in favor of other approaches that target the drug abuse problem directly, rather than causing a large group of patients to endure more suffering for the sake of unproven societal benefit.

To help stop the PROP petition to the FDA, sign the change.org petition at: http://www.change.org/petitions/please-help-to-stop-prop-s-petition.

 

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One More Day – A Day in the Life Post Gardasil

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My head feels strange, like I might have a seizure today. It is difficult to explain, but Mom seems to understand what I mean. She tries to get my breakfast made as quickly as possible. My legs are so unstable so decide to sit in my favorite recliner – maybe watch one of the shows I recorded while my food is being made.

The pain in my head, the pressure especially is worse right now. Brain fog is preventing me from understanding what is going on in the program. Thankfully, Mom arrives with my scrambled eggs, gluten free English muffin, grapes, mint tea. She knows my stomach is not the greatest, but I am hungry!  She sits with me for a few minutes while we eat. We talk a little but my mind isn’t thinking so clearly. That weird feeling in my head is worse. As Mom heads back upstairs with my tray I ask her for some sparkling water for my stomach.

The blinding pain hits me like a white-hot knife cutting through my head. It is a searing series of jolts, like I am being electrocuted multiple times. Mercifully, an inky blackness spreads over me and everything goes dark.

Even though I’m pretty sure I’m still on the recliner I am only vaguely aware of choking on the foam that has risen in my throat during the seizure. I can feel Mom trying to wipe my mouth with a tissue. She lets me tug it from her hand to clear my mouth better. It hurts incredibly to move, but I need to get to bed. The pressure is worse in my head now.

The weird sensation is rising from my stomach into my head. Have to tell Mom, but my vocal cords are frozen. I’m blind as well from the first seizure. Even my hearing is gone. All I can do is make motions with my hands, but Mom understands enough to lower the recliner, ease me forward, then slowly get me to my feet. It’s a struggle to do any of it but will my body to stand. Oh, how I wish my legs would cooperate! They are weak, trembly, unsteady. Can’t blame them, they have very little feeling left from mid-thigh down. Mom slides my arms around her shoulders, then leads me to my bed – Slowly, Mom, legs are protesting, my mind tries to shout. After what seems like forever we reach my bed. Mom helps guide my hands to the edge, helping me find the blessed pillows. It’s so hard to lift my legs, but finally I’m safe on the mattress, before another seizure hits.

I have no idea how long I’ve been lying in bed when my consciousness returns. Without vision, hearing or speech it is impossible to know anything safe for the new levels of pain that run from my head to my upper thighs. Everything is achingly tender. I flinch when Mom gently strokes my ear. She pulls her hand away not knowing how to comfort me. While attempting to sign to her I discover the blood pressure cuff is still on my arm – It hurts! Must have whimpered because Mom quickly got it off.  I sign again to the open air, hoping Mom will understand. She gives me her hand so I can spell out short words. She squeezes my hand once – Yes! She understands my request! (We worked out a system to communicate when all of my other senses flee after a seizure. Squeeze once for Yes, squeeze twice for No. And when my confusion clears enough we spell into each other’s hand to ask or answer questions.)

After giving me a drink to clear my throat, Mom lets me rest – I truly need rest to recover. My body won’t cooperate, needing a trip to the bathroom. After locating the wall by my bed, I begin to knock. I don’t know how loud it is, but Mom is quickly by my bed. She holds my hand to let me know, but I flinch again from the pain. That hand is swollen a bit as well. Mom waits for me to sign, which is easy this time. She gently guides me to and from my destination; helping me as best she can. Finally back in bed, she signs into my left hand to rest. Wish my hearing would release – I need to listen to my ocean CD. It is so relaxing.

After lying in my bed a few minutes, aching from the seizures, my hearing suddenly returns. Silent tears slide down my face unbidden, but I can’t help it. Every time my senses begin to return, there is relief, joy, thankfulness. Knocking on the wall again, Mom returns, but I can hear her softly speaking, praying for me. When I respond she is also relieved that my hearing returned. She immediately turns on my ocean waves CD. She whispers she loves me, then allows me to drift fitfully to sleep.

Several hours later I awake, realizing immediately that my vision is returning. It isn’t the greatest, but I have color and can distinguish objects. My legs are a little less wobbly so I can get my own water. Eventually I can get out of bed, go up to the kitchen to see my mom. She is surprised that I’ve negotiated the steps on my own, giving me a smile and a gentle hug. My body feels I have been in the fight of my life, tender, aching, sore, but my head pressure is improved some. The weird sensation is almost gone. Mom notices one of my eyelids is drooping, but it’s hard to miss. She just smiles, then asks me if I’m hungry. Since my voice hasn’t returned I sign in a little while. After I get a glass of mint tea, Mom helps me back down to the family room. My vision still isn’t the greatest but I can watch Duck Dynasty! The show makes me laugh which I desperately need until supper.

My stomach isn’t doing the best right now; ate something with gluten a couple of days previous, so I’m paying for it. Mom has given me several choices for supper, but nothing sounds good. My dad had just finished eating, giving me a soft kiss on the forehead. He has to go to a meeting at church, so he can’t linger but a few minutes. How I miss our dates we had while growing up! It’s been a long time since we’ve been able to have dinner and a movie night. I smile at my dad, trying not to let him see my pain. The Gardasil injury has been very hard on both my parents. Not an easy thing to live with, but this is my life now.

Mom finally makes me quinoa with chicken and organic veggies – it tastes good so digesting will be easy, I hope. After watching a movie with mom I decide to take a shower. Couldn’t get my IV today, but I’m very determined to go tomorrow! Mom isn’t crazy about the idea, but lets me know she will be close by. I am thankful that I can do this much finally, but knowing she’s close if I need help is reassuring. After my second dose of Gardasil, Mom had to bathe me, feed me, help me in and out of my wheelchair. Six years later I’m doing some things on my own again!

During my shower I begin to overheat. Reducing the water temperature isn’t helping. My head and stomach are way too hot now, so I quickly shut off the water, open the door while trying to call for mom. Even with the door wide open, my towel is too hot as well. As the waves of nausea strike, I grab my trash can. Mom arrives as I lose my super.  My body really seems to hate me, though my voice has unexpectedly returned!  At least something positive has just happened! Wobbly legs and trembling arms prevent me from drying off quickly. With Mom’s help though, I’m partly dressed by the time I hit my bed. My face is on fire from the flaming nerve endings that bloom on my body randomly. The nausea is pretty bad, but mom fans me best she can. Finally, after what seems an eternity, the flame in my face and stomach fades. I’m still trembling from the exertion but at least I’m not tossing my cookies. Mom gets me something for my stomach, Bromelain – best thing I’ve ever tried for nausea! It settles my stomach to the point I can finish getting ready for bed. Thank you, Lord, for getting me through one more day. Tonight, hopefully I will sleep. Tomorrow will be a better day…

Brittney and Roxie Fiste

To read more about Brittney’s Gardasil injury: One Less After Gardasil.

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Knitting for Victory against Gardasil

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Alisa Duckworth knitting for victory against Gardasil

It wasn’t too long ago that you read the story about my daughter Alisa Duckworth and how her life was dramatically disabled from the Gardasil vaccine series, see Gardasil Injured. What I didn’t tell you about Alisa, is how loving, caring, and compassionate she is about helping others. Alisa has made it her mission to knit hats to help the other victims of the vaccine. She has even shipped internationally.

Knitting

The story begins during her first paralysis; I would sit by her hospital bed and knit for hours – just knitting without being aware of the time. I finished the first hat and put it on Alisa. She wore it her entire stay in the hospital. She called it her security hat.

I taught Alisa how to knit a few years ago to help keep her mind off the intense pain. She struggled to learn, as the pain would take away her concentration. It was extremely frustrating, but she was determined. Soon she got into the rhythm of the stitches and knitting became easy for her. She would focus on the project she was working on and found it very relaxing.

Pay it Forward

Alisa has taken her knitting and is now “paying it forward”, so they say. She finds that knitting helps with her pain control. She knows how her security hat made her feel better and is now knitting hats for the others injured from the vaccine. She finds comfort in making them a hat in a pattern and color of their choice. She then mails out the hats to them.

You Can Help

With her medical care bills already out of control, I found it was getting really expensive to buy the yarn and pay for the shipping too. I spoke to her about options so she could continue knitting for the injured and knitting for her pain control. We came to the conclusion of using her Allie Designs on Facebook. She sells her hats to customers and uses the money to purchase more yarn. We also have a Paypal account where she accepts donations to use for yarn and shipping. The PayPal account is steven.duckworth@gmail.com.

Educate before you vaccinate.

Allie’s Designs

Sarah Meyers wearing one of Allie's DesignsAlexis Wolf wearing one of Allie's DesigsMickayla Dussault wearing one of Allie's Designs

 

Participate in Research

Hormones MatterTM is conducting research on the side effects and adverse events associated with Gardasil and its counterpart Cervarix. If you or your daughter has had either HPV vaccine, please take this important survey. The Gardasil Cervarix HPV Vaccine Survey.

To take one of our other Real Women. Real Data.TM surveys, click here.

To sign up for our newsletter and receive weekly updates on the latest research news, click here.

 

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Five Years After Gardasil

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Ashley Adair

My name is Ashley Adair and I am suffering the side effects of something I thought would help me.  I received the Gardasil vaccine because the people and doctors all around me kept telling me “OH! This vaccine is the best thing to happen to the medical industry!” Of course my mom and I fell for it like many girls have. I want to let people know about the dark side of the Gardasil vaccine.

My Life Before Gardasil

Before the HPV Vaccine, I was the most energetic child. I went to school for 8 hours, then went to 3 hours of gymnastics practice, finishing with homework at night. My weekends were filled with gymnastics meets. After gymnastics I went straight into competition cheerleading, which were the same hours. I basically lived in the gym and loved every second of it. I was blessed. Overall I was a healthy child.

After the First Gardasil Injection

I received my first injection in April, 2008. My injection did hurt more than a normal injection. I had mild soreness and redness after. At the time, I didn’t recognize the symptoms I was having. I had slight fatigue, and I would occasionally have a very sore throat. I could not stick my tongue out and I just threw it off as an allergic reaction to chlorine because I was swimming a lot.

After the Second Gardasil Injection

The nightmare began in June, 2008. I received the second shot and I noticed it hurt a bit more than the first. I almost cried a bit, which is very much unlike me. I got a little lightheaded at the checkout line. After 30 minutes, I was fine. The very next night I told my mom I was very sick. I was crying in pain with my pelvis and legs absolutely killing me. I was running a fever and I was very nauseous. So like any parent would, she took me to the emergency room. Of course, the doctors only listen to one symptom and told me I had a stomach virus and that they couldn’t do anything for me. They sent me home.

The next day I was so exhausted and slept till about 3 o’clock. My mom came home from work.  I went outside and noticed I had some kind of rash all over my body. It looked like someone took a fine point purple permanent marker and dotted it all over me. My mom immediately took me to my regular pediatrician and he could not figure out what was on me. He ran a lot of blood work and we went home until we could receive the blood work news. My mom received a phone call around 9 o’clock; one of the scariest phone calls she has ever received. My doctor told her I needed to get back to the ER ASAP. He told her that my blood work was CRITICAL, and the rash on me was called a petechial rash.

Petechiae rashMy red blood cells and white blood cells were completely wiped out. They told me if I were to do a handstand my gums would start bleeding and I would bleed to death. If I caught a common cold my body would not be able to fight it off and I would die. Over the next six weeks I went through so many different rashes, EXTREME fatigue, joint pains, leg pains, shoulder pains, dizziness, and low blood pressure. I finally went to an infectious disease specialist and he told me not to get the third shot or I wouldn’t be here.

I finally started getting better. At the age of 15 I still had not received my menstrual cycle. I went to an OBGYN and he put me on birth control to start my period. That should have been a sign then but we didn’t think about it. I never gained my energy back. My senior year things started acting up again. I got a hemangioma on my lip.

This was very strange because it is mostly babies that will get a hemangioma, not adults. After that happened, I started getting very sick. I missed weeks of school at a time. I kept getting severe bronchitis and I just couldn’t shake it off. I also had to go to the doctor because I was very depressed. I was then put on Zoloft. Luckily my teachers worked with me and I graduated with A’s and B’s.

Ashley Adair Hemangioma post Gardasil
The hemangioma that developed on my lip.

Five Years Post Gardasil

Over the five years after I received the shot I always slept, never had energy, and kept getting what I thought was growing pains. In June of 2012 my growing pains were getting worse in my knees/legs. So my mom took me to the doctor and they couldn’t really figure out what was wrong. They put me in a knee brace and gave me medicine and sent me off. I also just did not feel good at all and my doctor ran some more blood work on me. We then found out I had hypothyroidism, I am now on medicine for that.

From June 2012 until now (August 2013), I face every day with severe pain. My pain is in my lower back, pelvic, hips, back of leg, and knee. I had eight epidurals for the pain. Nothing worked. My legs will also turn a dark purple almost black and it will travel all the way down to my feet.  No one seems to know what causes this.

Ashley Adair post Gardasil blood pooling
My leg turning purple.

I had an MRI for my back and found out that I am missing an ovary and have a mass on my uterus. Of course, when I went to the OBGYN for it, he did a sonogram and could find neither the mass nor my ovary. He threw me off like it was no big deal. I am now lost on whether I have an ovary or a mass.

I have discovered in this situation that doctors really will not try to help you. They just don’t believe you or throw you off to another doctor if they can’t figure it out. I also have lost family members because of this problem. Not everyone will believe you or know what you are going through, but I am here to get my word out so no girl or boy will have to go through the misery that I am going through. I want to create something good out of something terrible.

Participate in Research

Hormones MatterTM is conducting research on the side effects and adverse events associated with Gardasil and its counterpart Cervarix. If you or your daughter has had either HPV vaccine, please take this important survey. The Gardasil Cervarix HPV Vaccine Survey.

To take one of our other Real Women. Real Data.TM surveys, click here.

To sign up for our newsletter and receive weekly updates on the latest research news, click here.

 

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Before and After Gardasil

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On January 29th, 2011, I went to a gynecological appointment with my fiancé to discuss birth control pills and get my first set of HPV Gardasil vaccinations. I believed the vaccine was important. I personally had never taken the time to research vaccinations or Gardasil. I believed it was a part of the ‘healthcare’ system.  I had seen the commercials and wanted to be ‘one less girl’ affected by cervical cancer. I didn’t know the ingredients, the real statistics on HPV, cervical cancer, or even how long it had been studied and tested. I knew nothing about the vaccine but trusted my doctors.

My Health before Gardasil

Prior to that visit, I had been dealing with spine issues and pain since I was a teenager. In October of 2010 I had another injury that put me out of work and aggravated my spine issues. I was prescribed heavy doses of muscle relaxers.  I had been taking those medications for the six months prior, but had weaned myself off a couple weeks before my Ob/Gyn checkup. The muscle relaxers were causing gastrointestinal (GI) complications in my body, exacerbating GI issues I already had. I thought this appointment would be beneficial and I was happy I had weaned off muscle relaxers two weeks prior. I was hoping to keep what small progress I had going.

My First Gardasil Injection

Within the first few days and for the week after the Gardasil shot, I was bedridden and sick with what we thought was a bad flu. It was also possible I was having a reaction from the muscle relaxer withdrawal or the side effects of my newly prescribed birth control pills. I stopped taking the birth control pills after eight days and my symptoms worsened.

My mother and fiancé remember the physical changes when I wasn’t feeling well, but those few days after Gardasil have blurred together for me. I was so sick. The next days, weeks and months to come, I experienced the worst nausea, weakness and most severe pain in every crevice of my stomach and body that I have ever felt in my life. Even the other stomach sensitivities and spine/back issues I had experienced previously paled in comparison to what happened to me after getting Gardasil.

The Doctors

We went to every doctor appointment and tested everything we possibly could. The tests kept coming back ‘fine’. (Ironically, they never tested for heavy metal poisoning, which we found later I had. If any doctor would have known those symptoms, I had nearly all of them, perhaps I wouldn’t have suffered for so long.) None of the doctors said there could be any connection with Gardasil, but we suspected otherwise. In fact, most told us just the opposite; that my symptoms were definitely not caused by Gardasil. It was not until blood tests taken outside of my doctor’s office nine months later that we discovered the toxic stress, heavy metal poisoning and other toxins were filtering through my bloodstream. (Gardasil ingredients included; we finally connected it with certainty here.)

The Pain and Nausea

During this period of many months, for twenty four hours a day, every moment of my life, I was nauseas, sick to my stomach and alternating puking. I could not drink water or eat anything without getting sick. Digesting anything was extremely painful. It hurt to move, to walk or to do anything. I could not even wear jeans around my waist for seven months because of how painful my stomach felt. I discovered new levels of dizziness. I was losing weight rapidly, up to 15 pounds a month, with limited activity.

Nicole Alexandra Before and After Gardasil
Left: me in December 2010, one month before Gardasil. Right: a year and a half later, July 2012 after the extreme weight loss post Gardasil.

I tried to focus and meditate healing into my body to counteract what was happening. I lost 100 pounds within that first year and a half. My diastolic blood pressure dropped to the 50’s/40’s. It used to be consistently around 120’s/60-70’s. My hair fell out at the rate of my weight loss – quickly. Even my tongue turned a grey black color in the center, and my eyes turned a slight yellow.

The most challenging and embarrassing issues were the gastrointestinal problems, which were each horrifying on their own. Every time I had to use the restroom, it made me more ill than I already felt, and the pain I experienced is something I will never forget. The pain in my stomach and body was disorientating. It physically hurt everywhere. I struggled focusing, verbalizing my anxiety or frustrations because I was feeling so toxic in my own body. I was in more pain, more exhausted and more fatigued than I had ever felt. It was often overwhelming and uncomfortable, especially trying to sleep with comfort or ease. Meanwhile through all of this, I was told by my doctors that I had Irritable Bowel Syndrome (IBS) and to go on a whole grain diet. That was the only advice they had for us, after all my symptoms, IBS. We knew we needed other help and resources.

Family Support

My family focused all of their efforts into helping me any way they could. I was already seeing an acupuncturist outside of my insurance every week and she was documenting my progressing issues as time went on.

We bought vitamins, herbs, protein powders, digestive enzymes, probiotics, and fiber supplements to treat IBS issues. We began the first of many dramatic diet changes to facilitate gut healing. After months of using these products, they were helping on a small scale by not making things feel worse, with some slight benefits. The nausea and pain were still constant. My back and whole body were amongst the most excruciating pains and because of the pain, my mobility, energy and strength were limited. As the months went by, I became further immobilized. I walked as much as I was able. I tried swimming during the summer, but it exacerbated my pain greatly. My physical therapist told me, “This was as good as I was going to get.” We didn’t stick around with her after that.

Out of Desperation

We were at our tip of desperation after I returned from a two day trip with my fiancé. We went out of town to see friends. It was traveling, something I hadn’t done during this year of many changes. We were trying to make it work even with my health complications. It was wonderful seeing my friends, but my body could not recover from exhaustion after returning. We sought additional help. The physicians we saw during this time had not helped, many would not help and denied my symptoms. It was my acupuncturist, who stuck with us and tried to heal me. She gave me the name of a chiropractor in the area. It was worth a try.

Chiropractic Health

One of our biggest blessings through this chaos was finding chiropractic care and meeting my chiropractor, Dr. McKillican. He recognized the crisis my health and nervous system were in and was the first sincere and genuine doctor that strived to help us. A chiropractor was not on any of my insurance or among the recommendations suggested to me, ever. In fact, I was advised to stay away from them earlier in life. I know with my whole being that chiropractic saved my life, especially during this crucial time of disease and sickness. I have been getting weekly adjustments for nearly two years, beginning seven months after getting Gardasil. Chiropractic adjustments have made significant and dramatic improvements in healing and strengthening my nervous system and body. Regular adjustments work on our nervous system to remove nerve interference within us and to promote the body’s natural ability to heal itself.

 Vital Hematology and Nutrition

Nine months after Gardasil, I worked with a vital hematologist to detoxify my body naturally. We used a focused diet that included: juicing specific veggies, fruits, herbs, multiple vitamins, digestive enzymes, colloidal silver, olive leaf extract, glutathione, aloe vera juice. This regime greatly helped with my unbearable, chronic nausea.  It seems to have reduced the intensity of pain throughout my stomach. I have had significant improvements in GI health.

This past year I also began working with a nutritionist to deal with the continuous mending needed to repair my GI issues, adrenal dysfunction, energy, appetite/food challenges and over all internal damages. I am thankful beyond words for the healing I’ve experienced, and despite the pain and the many challenges I have faced post Gardasil, my body is mending at the rate it can.  I use my energy to focus on this.

Two Years Post Gardasil

The issues I am still working on healing and mending are different two and half years after Gardasil are the autoimmunity changes. These include:  gastrointestinal issues, body pain, appetite dysregulation and the ability to eat enough, malabsorption of nutrients, low blood pressure and dizziness, energy, sensitivity to cold temperature and chemicals.

Food and my appetite can be very overwhelming sometimes.  I often don’t want or have the desire to eat or I get full too quickly. I also get really hungry all at once, often unexpectedly and painfully. The food and appetite issues are a constant work in progress that is still very complex. They have become somewhat easier to work with now than in the years before. I find focusing on ratios of carbs, fats and protein I need helps. I have also eliminated foods with gluten, GMO or that are processed. I no longer eat foods that are spicy or acidic either. I eat raw organic veggies only juiced because my GI tract cannot tolerate the un-juiced vegetables.  I watch my sugar intake, including many fruits, and other foods that I am sensitive to. I eat whole foods, organic vegetables and fruits, good fats (butter and coconut oil have helped immensely here) and as much healthy, grass fed, organic protein and protein shakes as my body needs to be balanced. All this has helped substantially.

My healthy lifestyle is vital to keep my progress going. With nutrition, vitamins, medicinal herbs, supplements, regular chiropractic adjustments, removing as many toxins from my environment, and adding as much movement, exercise, walking or stretching as I can, I am slowly improving. I also use coffee enemas and drink alkalized water (and lots of it). My body now seems to be on the path it needs to recover from the atrocity that Gardasil caused. Every day is different with pain and energy levels, but I focus on the blessings, because I know how much worse it can be.

The Support of My Family

It has taken a substantial amount of money, time and sacrifices from my extraordinary mother and fiancé to care for me post Gardasil. Without them, none of this progress could have been possible. I am more grateful and humbled than ever to be alive and for all the amazing, most abundant love and support of people I’m blessed to share my life with. I could not have come this far without these wonderful people.

Gardasil changed my health, my life, and family’s lives forever; physically, mentally emotionally, financially, and educationally. What I can give and share with others through this experience is the truth, my experiences, and the real facts and statistics regarding Gardasil. I plan to do this until this vaccine exists no more.

Participate in Research

Hormones MatterTM is conducting research on the side effects and adverse events associated with Gardasil and its counterpart Cervarix. If you or your daughter has had either HPV vaccine, please take this important survey. The Gardasil Cervarix HPV Vaccine Survey.

To take one of our other Real Women. Real Data.TM surveys, click here.

To sign up for our newsletter and receive weekly updates on the latest research news, click here.

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A Day in the Life of Alexis Wolf: Six Years After Gardasil

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Alexis Wolf post Gardasil

Alexis is now 20 years old. Six years have passed since her first injection of Gardasil. Life has changed drastically since then. After the Gardasil vaccine, Alexis developed encephalopathy, Traumatic Brain Injury (TBI) and a horrible seizure disorder that has yet to be controlled. Read the first part of Alexis’ Gardasil journey here.

Post Gardasil Brain Injury

Alexis’ brain injury post Gardasil is in the frontal lobe. This part of the brain controls so much of who we are. This has left Alexis with the mental capacity of about an 8 year old. She gets very confused easily and struggles with short term and long term memory so she requires constant supervision with frequent redirection on everyday tasks. Her skill level of preparing meals for herself and daily personal hygiene is almost nonexistent. She can no longer take showers due to the danger of having a seizure and falling. I have to help her take a bath and make sure she gets clean. I have to assist in washing her hair to make sure it gets clean. I also have to get her clothes ready for her. She can usually dress herself with little assistance.

Post Gardasil Bowel and Bladder Problems

Since receiving Gardasil, Alexis progressively lost bladder and bowel control.  She has to wear adult diapers.  Sometimes she will put her fingers inside her anus to try to help herself go #2. Although we have discussed this with all of her doctors and with her, telling her it is very dangerous for her and everyone one else, she cannot control herself. We make her wash her hands OFTEN. I wipe things down with Lysol wipes OFTEN.

Post Gardasil Pain

Alexis has often expressed frustration, depression and suicidal thoughts as to her present life and her future. She can be swift to anger and have great mood swings. She will slam doors, throw things, spit at us and call us a variety of cuss words. She is miserable most of the time. She complains about pain constantly. We have been turned away by three different pain specialist because they review her records and tell me she is “too complex” for them to treat. The only thing she has to help her with the pain is medical marijuana in the form of tinctures and vapors. When her head hurts really badly she will hit her forehead with the palm of her hand and say “brain get better, brain get better…” She also complains about all over body aches, sharp pains in her chest, joint and muscle pain. She will tell us that everything looks scary, strange and unusual even herself. The best description she was able to give us was that it looked like the walls were melting and people looked like cartoons. I had to take her out of high school for the above reasons. Her teachers were not very patient with her and they would push her buttons so one day she hit one of her teachers in the arm. The school called the police so I took her out of school.

Post Gardasil Seizures

Alexis’ speech patterns can often digress to repetitive statements over and over. This occurs without the knowledge that she is engaged in that behavior. Her motivation level is very low due to her brain injury. Getting her to do anything is quite the struggle. Almost every task is labored and takes lots of patience from the person helping her. Often at times she will flat out refuse to move and begs to take a nap. She naps off and on all day every day. We really do not know how long she sleeps at night but we think it is no longer than two hours at a time. The seizures happen all the time and they wake her up while she is sleeping. She is usually unable to fall back to sleep, so she wanders the house and searches for food. She has horrible impulse control and she is not able to tell if she is full or not. We have to keep the fridge and the pantry locked up at all times so she does not eat herself into a coma. If she eats a full meal and then has a seizure she will forget that she has just eaten and she begs for food saying that she is starving. We also lock up her medications because she will forget that she has taken them and try to take more even though I store them in those daily dose medicine boxes. She can have many, many seizures in a day. She takes anti-seizure meds and she also has a device implanted in her chest called a VNS therapy. It is supposed to reduce or stop her seizures but so far we have not really noticed a difference. She has had it for 3 years and soon she will be due for a battery replacement that will require another surgery. The battery should have lasted 5-10 years but the doctors have made so many adjustments on the therapy levels that the battery only has a few months left of power.

Alexis having a Seizure in 2010

Six Years and Counting

In the past six years we have had to deal with many people who do not understand the side-effects of the Gardasil vaccine. We have been accused of horrible things. We have had to endure being investigated by Child Protective Services, Adult Protective Services, police, detectives and more. Family, friends and neighbors have turned their heads and left us behind. Alexis’ father has not spoken to her in two years and all the help he had once offered is nonexistent. The government services that should support Alexis and her brain injury are bogged down so she is on a waiting list of over 40,000 people. I was told she MIGHT get services in 2019 when her name comes up next on the list. The way things have been going it is possible that all money and services may dry up and go away before her name even comes up.

Alexis’ inability to live independently will require lifelong care and assistance. I worry all the time about what will happen to her when I am no longer able to care for her. Every day new challenges arise so I can never put down my guard. I have been told by at least two doctors that I should look into some sort of institutional assisted living facility, but I cannot wrap my mind around that just yet. Life is quite different than it was six years ago, before Gardasil. Six years ago Alexis was a normal 14 year old. Starting to wear make-up and get interested in boys…working hard in school and enjoying honor roll. She had her whole life ahead of her and now she spends every day in a living hell filled with pain and misery, begging to be better, begging everyone to pray for her.

Six years ago, before Gardasil, life was very different.

Alexis Wolf before Gardasil
Alexis Wolf, age 14, before her first Gardasil injection.

 

Alexis Wolf after Gardasil
Alexis Wolf, age 20, six years after Gardasil.

 

Participate in Research

Hormones MatterTM is conducting research on the side effects and adverse events associated with Gardasil and its counterpart Cervarix. If you or your daughter has had either HPV vaccine, please take this important survey. The Gardasil Cervarix HPV Vaccine Survey.

To take one of our other Real Women. Real Data.TM surveys, click here.

To sign up for our newsletter and receive weekly updates on the latest research news, click here.

 

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